1. Reinforcing the Bridges and Scaling up
EU/USCooperation on Patient Summary
Trillium II
This project has received funding from the
European Union’s Horizon 2020 research
and innovation programme under grant
agreement No 727745
3. • P
• S
It emphasizes the need to provide generic solutions
for global application beyond a particular region or
country.
Health record extract comprising a standardized collection of
clinical and contextual information (retrospective, concurrent,
prospective) that provides a snapshot in time of a subject of
care’s health information and healthcare
SOURCE: ISO/TR 12773-1:2009 (en) Business requirements for health summary records — Part 1: Requirements]
International
4. Vision
• “In order to further the care for citizens across the
globe, we agree to collaborate on a single,
common International Patient Summary (IPS)
specification that is readily usable by all clinicians
for the (cross-border) unscheduled care of a
patient.”
Scope
• “The IPS specification shall focus on a minimal and
non-exhaustive Patient Summary, which is
specialty-agnostic and condition-independent,
but still clinically relevant.”
IPSPrinciples
5. eHN EU PS
Guidelines
CEN/EN 17269
IPS
CEN/TS 17288
IPS
HL7 IPS CDA IGHL7 IPS FHIR IG
refer refer
implement
Provide guidance for EU
refine
6. eHN EU PS
Guidelines
CEN/EN 17269
IPS
CEN/TS 17288
IPS
HL7 IPS CDA IGHL7 IPS FHIR IG
refer refer
implement implement
Provide guidance for EU
refine
EU standard Global
aspiration
EU scope
Global Standards
9. • The HL7 and CEN collaboration on IPS has worked superbly well with
4 specifications near completion in just 2 years !
• Hopefully, to be extended..
10. Towards a
FHIR IPS
“library”
Extending the scope
of patient summaries
beyond
emergency/unplanned
Refine the IPS
components, with the
knowledge gained
from the project.
11. Implementable
Applicable for global use
Extensible and open
Sustainable
Minimal
Non-exhaustive
Specialty-agnostic
Condition-independent
..but still clinically relevant
DataSet
Principles
13. The IPS is a document !
as a document
Current Intended Use Expected Future Use
as a document and a as a library
19. Attribute WHO ICVP Trillium II DataSet Implementation Notes
Vaccine or prophylaxis X Vaccine Code
Date of vaccination X Vaccination Date
Manufacturer of vaccine or prophylaxis X Manufacturer
batch no. of vaccine or prophylaxis X Lot Number
brand name of the product Trade Name
Commercial Product identifier Covered by the IPS profile
Product expiring date To be added in the data set.
Covered (Immunization.expirationDate)
Target site + laterality Administration Site
route of administration Administration Route
not administered flag Not Given
reason for not administering Reason Not Given
Disease targeted X Target Diseases
Certificate validity from to (coverage) X VaccinationValidity Current implementation specify only year
Administration progressive number Planned Doses
Next booster (date) X Immunization include protocol data, but not the plan.
ImmunizationRecommendation is used for future plans.
Instructions to Patient X FixedText for ICVP; to be added
Information for Physicians X FixedText for ICVP; to be added
Administering centre X Performer
Administering professional X Performer
20. Trillium II + extension for
supporting theVaccination
Validity
vaccineCode
The concept of PS is not new but with sevral different views
The IPS name comprises of two parts
International
and PS
And for starting th eprocess it has been decided to consider a very focused Summary.
A lot of activity around the PS occured in the last decades
Minimal
Reflects the ideas of ‘summary’ and the need to be concise
It alludes to the existence of a core set of data items that all health care professionals can use;
NE
It recognises that the ideal dataset is not closed, and is likely to be extended, not just in terms of requirement evolution, but also pragmatically in instances of use.
Agnostic, Condition ind.
It does not imply that all the items in the dataset will be used in every patient summary.
It is a starter set of data to help inform a person’s treatment at the point of care, irrespective of the condition of the patient or of the specialist trying to manage the care
resources/fragments/building blocks,…)
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Consider IPS too as being a global framework for harmonising and for conformance... it’s value operates at the strategic and operational levels of the life cycle... so as well as document and library it is a framework and tool for governance.. slide 40 follows naturally when you do the next line...
Evaluation of IPS during the European disaster exercise
EU ModEX, Bucarest, 2018 Oct 15-17
Condiered some additonal national and international requirements
Patient Attributes
Patient’s Address Book’
Cross-border meta data
Provenance meta data
Patient Attributes
Patient’s Address Book’
Cross-border meta data
Provenance meta data
global framework for harmonising and for conformance... it’s value operates at the strategic and operational levels of the life cycle... so as well as document and library it is a framework and tool for governance..
Children are not mini adults….
MOCHA is about delivery not content… CEN has to be both
This extensible core data set may be used to provide progressivly detailed information
Thta can be accessed (if avaiable9 depending the context of use)