1. LIVES TURNED UPSIDE DOWN
THE IMPACT OF SARCOIDOSIS
Sarcoidosis is a rare inflammatory disease that can affect almost
any organ in the body.
200,000
It’s estimated that 200,000 people are
living with sarcoidosis in the United States.
OVER
20%
of patients get diagnosed with sarcoidosis within the
first three months of symptoms yet for over
patients it takes over five
14% of
years to be diagnosed.*
“Sarcoid has turned my life upside down with me no longer being able to work or do
anything physical and just about most of the things I was used to doing, and has left
me a shell of a man.”
"I don't feel like a whole as a wife, mother, and grandmother part of me feels like it's
missing. I am not that queen that my family had before the illness."
What are the top burdens or negative effects
that sarcoidosis has had on your life overall?*
FATIGUE
SIDE EFFECTS OF
MEDICINE
72%
39%
UNABLE TO WORK
31%
DEPRESSION
29%
AFFECTED
FAMILY LIFE
31%
BED RIDDEN
2%
* Based on January 2014 online survey conducted of members of the Foundation for Sarcoidosis
Research/Inspire Stop Sarcoidosis Support Community (www.inspire.com/groups/stop-sarcoidosis)
The Foundation for Sarcoidosis Research (www.stopsarcoidosis.org) is
dedicated to finding a cure and improving care for sarcoidosis patients. The
FSR's new Patient Registry will be an online database where patients record
their own information and experiences with sarcoidosis to aid research.
Inspire (www.Inspire.com) is the trusted place for patient engagement.
Our online community of 450,000 patients and caregivers, organized by
medical condition, helps industry connect with patients in order to
accelerate and improve research.
Find out more at http://corp.inspire.com, or by contacting us at
team@inspire.com.