In this presentation at NIH, Mary Madden and Susannah Fox discuss the rise of participatory medicine within the context of key internet demographics and emerging online trends. 6/10/2008

1. Participatory Medicine: How user-generated media are changing Americans’ attitudes and actions, both online and offline 6.10.08 Susannah Fox and Mary Madden Pew Internet & American Life Project Presented to: NIH

2. Who we are…

3. Where we live…

5. Older adults still less likely to be online October-December 2007

6. Education still matters, too… October-December 2007

7. All Whites (76%) All Blacks (56%) English-Speaking Hispanics (79%) 75%* of the population reports using the internet or email. Here is a breakdown of use among different groups. (shown as a percentage of population online) 18-29 Years Old (92%) 30-49 Years Old (85%) 50-64 Years Old (72%) 65+ Years Old (37%) No High School Degree (38%) College Graduates (93%) <$30K Income (61%) >$75K Income (93%) Men (76%) Women (74%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org ** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006. High School Graduates (67%) Urban (77%) Rural (64%) Suburban (77%) Spanish-Dominant Hispanics (32%)**

8. Then and Now… 2000 5% with broadband at home 50% owned a cell phone =slow and stationary connections 2008 55% with broadband at home 80% own a cell phone =fast and mobile connections

9. Mobile access goes mainstream 62% of Americans have some experience with “on the go” access to digital data and information

10. Does technology improve our lives? 59 Your ability to do your job 79 Your ability to learn new things 81% Your ability to keep in touch with friends and family Source: Pew Internet & American Life Project April 2006 Survey. N=3,355 for internet and cell phone users. Margin of error is ±2%. 55 Your ability to work with others in your community or in groups you belong to 55 Your ability to share your ideas and creations with others 55 The way you pursue your hobbies or interests “ A lot” or “ Somewhat” How much, if at all, have communication and information devices improved … Attitudes about information technology

11. What’s the big deal with Web 2.0?

12. How many of us are participating? 19 37 8 9 11 12 18 Those who have done at least one: Create or work on your own online journal or blog Take material you find online – like songs, text, or images and remix them into your own artistic creation Create or work on webpages or blogs for others Create or work on your own webpage Post comments to an online news group or website Share something online that you created yourself, such as your own artwork, photos, stories, or videos % - Adult Internet Users User-generated content creation activities:

13. Content Creation: Age tells a different story

14. Youth of today, innovators of today

15. All Whites (76%) All Blacks (56%) English-Speaking Hispanics (79%) 75%* of the population reports using the internet or email. Here is a breakdown of use among different groups. (shown as a percentage of population online) 18-29 Years Old (92%) 30-49 Years Old (85%) 50-64 Years Old (72%) 65+ Years Old (37%) No High School Degree (38%) College Graduates (93%) <$30K Income (61%) >$75K Income (93%) Men (76%) Women (74%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org ** This statistic comes from the Pew Internet Project’s Latinos Online data, collected June-October, 2006. High School Graduates (67%) Urban (77%) Rural (64%) Suburban (77%) Spanish-Dominant Hispanics (32%)**

16. 54%* of the population reports using a high-speed connection (e.g., DSL, cable, wireless) when accessing the internet from home. Here is a breakdown of use among different groups. (shown as a percentage of population using a high-speed connection from home) Whites (55%) Blacks (38%) English-Speaking Hispanics (57%) 18-29 Years Old (74%) 30-49 Years Old (62%) 50-64 Years Old (49%) 65+ Years Old (20%) No High School Degree (22%) College Graduates (74%) <$30K Income (40%) >$75K Income (77%) Men (58%) Women (50%) High School Graduates (43%) Urban (60%) Suburban (56%) Rural (42%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org

17. Whites (74%) Blacks (71%) English-Speaking Hispanics (84%) 75%* of the population reports owning a cell phone. Here is a breakdown of use among different groups. (shown as a percentage of population owning a cell phone) 18-29 Years Old (88%) 30-49 Years Old (83%) 50-64 Years Old (70%) 65+ Years Old (50%) No High School Degree (63%) College Graduates (86%) <$30K Income (61%) >$75K Income (92%) Men (77%) Women (73%) High School Graduates (67%) Urban (79%) Suburban (77%) Rural (62%) *Source: Pew Internet & American Life Survey, December 2007. http://www.pewinternet.org