This document discusses partnership between patients, the public, and healthcare professionals and scientists. It argues that true partnership requires equal participation from all parties in planning and delivering healthcare. The future patient will be more informed about their health through technology, will manage their own care through access to online records and test results, and will have more choices. Healthcare scientists can partner with patients by making complex medical data understandable and by codesigning new models of integrated care delivery. Examples of current partnership initiatives include PatientView, which allows patients to access test results online, and a patient-held record developed together for thalassemia patients. Moving forward will require embracing new roles for healthcare scientists that leverage their skills and involving all stakeholders in redesigning healthcare systems

1. Partnership Working:
Patients, Public & the
Community.
Barbara Wood
Karen Sandler

2. NHS Constitution
Under the proposed updating of the Constitution
Patients have the right to be involved in planning and making decisions about their
health and care with their care provider, including end of life care, and to be given
information to enable them to do this. Where appropriate this right includes their
family and carers. This includes being given the chance to manage their own care
and treatment.
They have the right to be involved, directly or through representatives, in the
planning of healthcare services commissioned by NHS bodies, the development and
consideration of proposals for changes in the way those services are provided and in
the decisions to be made affecting the operation of those services.

3. NHS Constitution – pledges
The NHS also commits:
To provide patients with the information and support they need to influence and
scrutinise the planning and delivery of NHS services
To work in partnership with patients, their families, carers and representatives
To involve patients in discussions about planning their care……..
To encourage and welcome feedback on their health and care experiences and use
this to improve services

4. Partnership Working, i.e. Patients, Public & the Community
with Health Care Professionals. Thepatient’sperspective:
What is partnership?
The patient of the future, their needs
What are the benefits of partnership?
 the Five-Year Forward View; which argues for
“a more engaged relationship with patients, carers, and citizens in order to promote
wellbeing and prevent ill-health”

5. Partnership is more than engagement
The “duty” to participate belongs equally to all partners – patients, families,
communities and all who work, teach and learn in the healthcare system.
“The people have the right and duty to participate individually and collectively
in the planning and implementation of their health care” (Alma Ata Declaration
1978)
“No decision about me, without me.” (Liberating the NHS 2012)
Future models of care will require partnerships of equal respect and trust

6. The Future Patient
Informed – Through the use of IT, data, and the knowledge base shared with the
global community of patients
Expert – In their own health and goals for themselves
Self-managing – through access to their own test results, online records,
technological aids, and access to healthcare professionals when needed
Demographic changes including older patients with multiple co-morbidities
New technologies leading to more personalised care and more choices to be made

7. Patient care delivered by HCSs
Increasingly direct patient care is being delivered by HCSs in examples
ranging from audiologists, radiographers, diagnosticians performing
point of care testing, prosthetics and reconstructive scientists, clinical
photographers, and clinical physiologists.
These direct relationships require a partnership of trust and the
professionalism, values and behaviours which enable that. This also
requires education, training and professional development for the whole
workforce.
It requires services designed to deliver the rights and pledges set out in
the NHS Constitution and Good Scientific Practice code of conduct.

8. Partnership with Healthcare Scientists?
>50% of biochemical tests are related to chronic disease management
Approximately 800m tests performed annually
300k patients have a test each working day
50m electronic results reports sent by labs to GPs annually
Pathology involved in 70% of diagnoses made in the NHS
Source: digital.innovation.nhs.uk
Making these accessible and understandable by other professionals in the MDT is
not enough. Patients and their families are also members of the team.

9. Partnership with Healthcare Scientists in the new care
models?
Where will this happen?
Primary and Acute Care Systems (PACS)
GP’s and Multispecialty Community Providers (MCPs)
Urgent and Emergency Care Networks
Viable Smaller hospitals
Specialised care
Modern Maternity Services
Enhanced health in care homes
AND
Co-design and implementation of new care models

10. The benefits of partnership?
To the HCP;
Opportunities to develop specialist
skills
Job satisfaction
Maximise opportunities for career
development
Research opportunities
Opportunities to develop a care model
based on skills and competencies rather
than on qualification(s) eg
Haematologist vs Blood Scientist
Opportunity to develop a care model
that maximises input from all partners
thereby increasing (cost) –effectiveness
and minimising attrition
To the patient;
Confidence in quality of care from specialist
centre
Potential for integrated care
Opportunity to maximise contribution to
own treatment and care
Confidence in value for money of treatment
and care pathway
Maximise choice of treatment options
Self-care which starts with patients who
understand their own medical data

11. Co-design and implementation of the new
care models; HCSs as partners with patients?
Design of new care models and patient pathways provides the opportunity to ensure that HCSs
leverage their skills for the maximum benefit of all partners
The skills and knowledge of the HCSs are invaluable to optimising new models of care and to the
development of new treatments egs radiotherapies, gene therapies
Give attention to both cutting-edge and everyday, point of care technologies and skills. Everyday,
point of care delivery makes the biggest difference to the most people.
BUT
Do the HCSs want to be in the vanguard?
Information and communication is key
HCSs generate a huge % of data used to diagnose and treat. How will you make this available and
accessible to fellow professionals and to the patients and carers
How can this data be available to benefit research

12. Examples of partnership working
PatientView: Shows your latest test results, plus info about diagnosis and treatment.
You can view it from anywhere you want, and share your information with anyone
you want. www.patientview.org
PatientView started out as a service for kidney patients in the UK. Information
comes directly from existing records, for example hospital and GP records, or may be
entered directly or via other apps. It now includes most renal units in the UK plus
some places dealing with inflammatory Bowel Disease and Diabetes (Salford and
centres in Scotland)
Labtestsonline-UK: This site is designed to help patients and their families and
friends, better understand laboratory tests and results www.labtestsonline.org.uk
As yet evidence is limited on how health outcomes are affected but the value of direct
access is greater than simply viewing results: it is an opportunity for redrawing the
HCS/patient relationship. BMJ 2015;350:h673 Can patients use test results
effectively if they have direct access?
UK Thalassaemia Society Patient held record designed in partnership with HCSs and
clinicians www.ukts.org

13. WHAT NEXT?
Be ambitious - Select new care models with the biggest case for change and with the
greatest involvement of HCSs in partnership with patients and the public. Focus on service
as much as science.
Understand and explain potential new roles of HCSs and the impact on numbers and
range of HCSs required.
Recognise the importance of values, skills, behaviours and support to provide safe, high-
quality care wherever and whenever the patient is, at all times and in all settings.
HEE Framework 15
Work in partnership to ensure that HCS recruitment and training is values based and
attracts and selects students, trainees or employees on the basis that their individual
values and behaviours align with the values of the NHS Constitution: Respect and dignity,
Commitment to quality of care, Compassion, Improving lives, Working together and
Everyone counts.
BE OPEN TO CHANGE!