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NHS
CANCER
                                              NHS Improvement
                                                         Cancer


DIAGNOSTICS




HEART         NHS Improvement - Cancer

              Sharing the learning through posters;
LUNG
              the work of the National Cancer Survivorship
              Initiative (NCSI) test sites, supported by
STROKE
              NHS Improvement (2012)
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




Introduction


The National Cancer Survivorship Initiative (NCSI) was           Without the hard work, commitment and expertise from all
launched in September 2008 and is a partnership between          our clinical leads and advisors, our cancer network service
the Department of Health, Macmillan Cancer Support and           improvement colleagues, local project teams and most
NHS Improvement. The aim of the national initiative is to        importantly our cancer patient survivors who have worked
improve models of aftercare provided for those patients          with us during this initiative this publication would not
surviving cancer, many of whom will need a range of              have been possible.
clinical and non-clinical services to enable them to live a
happy, healthy normal life after their initial treatment for     We thank them for their contribution and we hope readers
cancer.                                                          find the content interesting and informative.

Eight adult survivorship prototype sites (14 tumour specific     For further information you can access the NCSI website
teams) and ten children and young peoples test sites have        www.ncsi.org.uk and the NHS Improvement website
worked with us to develop and test stratified pathways of        www.improvement.nhs.uk/cancer
care that are tailored to individual needs with the focus on
providing the right support in the right place by the right
person and encouraging self management where
appropriate to do so.

The poster submissions included in this publication were         Gilmour Frew
presented at the NCSI conference event on 28 March 2012          Director - Cancer
and represent only some of the learning and the excellent
work from the teams and sites participating in this              Patricia Morris
programme. They are presented in two sections Adult and          Director - Cancer
Children and Young People with the winner and highly
commended entries at the start of each chapter.                  Anne Wilkinson
                                                                 National Improvement Lead - Cancer
Delegates on the day were then given the opportunity to
nominate the winning posters. The winners were then              Judi Tapp
presented with an award and certificate by Professor Sir         National Improvement Lead- Cancer
Mike Richards to congratulate them on their winning
poster design.




   Children and young people national test sites                 Adult Survivorship test sites
   • The Leeds Teaching Hospitals NHS Trust                      • Brighton and Sussex University Hospitals NHS Trust
   • The Christie NHS Foundation Trust                           • Guys and St Thomas’ Hospital NHS Foundation Trust
   • Birmingham Children's Hospital NHS Foundation Trust         • The Hillingdon Hospitals NHS Foundation Trust
   • Sheffield Teaching Hospitals NHS Foundation Trust           • Hull and East Yorkshire Hospitals NHS Trust
   • University Hospitals Bristol NHS Foundation Trust           • Ipswich Hospital NHS Trust
   • The Royal Marsden NHS Foundation Trust (RMH)                • North Bristol NHS Trust
   • Great Ormond Street Hospital for Children                   • Luton and Dunstable Hospital NHS Foundation Trust
     NHS Trust (GOSH)                                            • Salford Royal NHS Foundation Trust
   • Cambridge University Hospitals NHS Foundation Trust
   • Royal Alexandra Children's Hospital (Brighton)
   • CLIC Sargent




                                                                                                 www.improvement.nhs.uk         3
ADULT TEST SITE
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




POSTERS
       National Cancer Survivorship Initiative: Living
       with and beyond cancer - Adult Pathway
       Over the past four years work has commenced with patients, NHS clinical teams and third sector
       organisations to test care and support for those living with and beyond cancer. This work has culminated in
       the development and pilot testing of pathways of care tailored to individual needs in four tumour types
       (breast, colorectal, lung, prostate) with the aim of improving quality, reducing unnecessary hospital
       attendances and moving the focus of post treatment care from the disease and treatment to health and
       wellbeing.

       This interactive generic pathway demonstrating examples of care and support from testing work and also
       signposting to other relevant sources of information.

       To access the pathway go to:
       www.improvement.nhs.uk/cancer/survivorship/
       adult_survivorship_pathway

          Scan the QR code for quick
          and easy access to the adult
          survivorship pathway




4    www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                ST
            TR L
        N RIS :
         H TO
     A B R


              U
   IT H NE
 SP RT N


          S
O NO WI

      L
H




                                                                                           www.improvement.nhs.uk           5
RE ITA X :
           - B SP SSE ED
        ST O U D
       U Y H S EN


                 ST S
                A L
         Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)
     TR SIT N & M
 H R O M
N IVE HT CO
  N IG Y
     BR HL
       IG
      H



   S
 U




         6     www.improvement.nhs.uk
ST O S :
             U TA X
       U H SU ED


               G S
          - L SPI SE
              N L
                       Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)

  S SIT N ND
N VER HTO ME
     TR Y &
 N G M
U BRI CO
   I
 H




                                                                                          www.improvement.nhs.uk         7
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




8    www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                   www.improvement.nhs.uk         9
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




10     www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                  www.improvement.nhs.uk         11
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




12     www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                  www.improvement.nhs.uk         13
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




14     www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                  www.improvement.nhs.uk         15
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




16     www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                  www.improvement.nhs.uk         17
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




18     www.improvement.nhs.uk
CYP TEST SITE
                          Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




POSTERS
 National Cancer Survivorship Initiative: Teenage
 and Adult Aftercare Pathway
 These Children and Young People Cancer Survivorship aftercare pathways have been produced and
 endorsed as clinical good practice following an extensive consultation process with input from clinical
 experts and cancers survivors.

 These defined pathways demonstrate the evidence emerging from three years of testing and prototyping
 with clinical teams and cancer patient survivors.

 To access the pathway go to:
 www.improvement.nhs.uk/cancer/survivorship/pathway

   Scan the QR code for quick
   and easy access to theteenage
   and adult aftercare pathway




                                                                                            www.improvement.nhs.uk         19
TR AL
                   ST
        N ’S H :
          AT O M
     Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)
          EN NG ER


              N IT
                 U
         D H A
            IO SP
    FO DR MI N
               N
 H IL IR I
N CH B W

      U
  S




     20     www.improvement.nhs.uk
:
                     ED
        D S B SITY ND
                           Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)

     U TAL ER ME




                  ST
              TR L
             N O
                U
           IO IST
   FO I IV M
 H O U CO


         AT R
          LY
  S SP N
         H
       IG



      N
      H

N H




                                                                                             www.improvement.nhs.uk         21
C
                           ST G OM
                              RE RE M
                         CH        A
                            IL ET T EN




22
                              D H O
                               RE O RM DE
                                 N SP O D
                                  N ITA N :
                                    H
                                      S L D
                                       TR FO
                                         U R
                                          ST




www.improvement.nhs.uk
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




                                                                  www.improvement.nhs.uk         23
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




24     www.improvement.nhs.uk
Adult test site poster presenations
                          Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




from Professor Sir Mike Richards




                                                                                 ADULTS WINNER:
                                                                                 North Bristol Hospital
                                                                                                        NHS Trust - Breast
                                                                                 Team. Dany Bell - Lea
                                                                                                      d Cancer Nurse




                            MMENDED:
       ADULTS HIGHLY CO           rsity Hospitals
       Brighton and Sussex Unive
       NHS Trust - Breast Team
                            nsultant Oncologist
       Richard Simcock - Co




                                                                                         www.improvement.nhs.uk          25
CYP test site poster presenations
Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI)




from Professor Sir Mike Richards




                                                                           CYP WINNER:
                                                                           Birmingham Children’
                                                                                                 s Hospital NHS
                                                                           Foundation Trust - Dr
                                                                                                 Helen Jenkinson




                                       ENDED:
                 CYP HIGHLY COMM
                                              ildren
                 Bristol Royal Hospital for Ch
                 Ruth Elson -  After Care Specialist




26     www.improvement.nhs.uk
NHS
CANCER
                                                                                                NHS Improvement

DIAGNOSTICS




HEART




LUNG




STROKE




NHS Improvement

NHS Improvement’s strength and expertise lies in practical service improvement. It has over a
decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung and
stroke and demonstrates some of the most leading edge improvement work in England which
supports improved patient experience and outcomes.


Working closely with the Department of Health, trusts, clinical networks, other health sector
partners, professional bodies and charities, over the past year it has tested, implemented, sustained
and spread quantifiable improvements with over 250 sites across the country as well as providing
an improvement tool to over 2,000 GP practices.




NHS Improvement
3rd Floor | St John’s House | East Street | Leicester | LE1 6NB
Telephone: 0116 222 5184 | Fax: 0116 222 5101

www.improvement.nhs.uk




Delivering tomorrow’s
                                                                                                                  Publication Ref: NHSImp Cancer 0001 - May 2012
                                                                                                                  ©NHS Improvement 2012 | All Rights Reserved




improvement agenda
for the NHS

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Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) test sites, supported by NHS Improvement

  • 1. NHS CANCER NHS Improvement Cancer DIAGNOSTICS HEART NHS Improvement - Cancer Sharing the learning through posters; LUNG the work of the National Cancer Survivorship Initiative (NCSI) test sites, supported by STROKE NHS Improvement (2012)
  • 2.
  • 3. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) Introduction The National Cancer Survivorship Initiative (NCSI) was Without the hard work, commitment and expertise from all launched in September 2008 and is a partnership between our clinical leads and advisors, our cancer network service the Department of Health, Macmillan Cancer Support and improvement colleagues, local project teams and most NHS Improvement. The aim of the national initiative is to importantly our cancer patient survivors who have worked improve models of aftercare provided for those patients with us during this initiative this publication would not surviving cancer, many of whom will need a range of have been possible. clinical and non-clinical services to enable them to live a happy, healthy normal life after their initial treatment for We thank them for their contribution and we hope readers cancer. find the content interesting and informative. Eight adult survivorship prototype sites (14 tumour specific For further information you can access the NCSI website teams) and ten children and young peoples test sites have www.ncsi.org.uk and the NHS Improvement website worked with us to develop and test stratified pathways of www.improvement.nhs.uk/cancer care that are tailored to individual needs with the focus on providing the right support in the right place by the right person and encouraging self management where appropriate to do so. The poster submissions included in this publication were Gilmour Frew presented at the NCSI conference event on 28 March 2012 Director - Cancer and represent only some of the learning and the excellent work from the teams and sites participating in this Patricia Morris programme. They are presented in two sections Adult and Director - Cancer Children and Young People with the winner and highly commended entries at the start of each chapter. Anne Wilkinson National Improvement Lead - Cancer Delegates on the day were then given the opportunity to nominate the winning posters. The winners were then Judi Tapp presented with an award and certificate by Professor Sir National Improvement Lead- Cancer Mike Richards to congratulate them on their winning poster design. Children and young people national test sites Adult Survivorship test sites • The Leeds Teaching Hospitals NHS Trust • Brighton and Sussex University Hospitals NHS Trust • The Christie NHS Foundation Trust • Guys and St Thomas’ Hospital NHS Foundation Trust • Birmingham Children's Hospital NHS Foundation Trust • The Hillingdon Hospitals NHS Foundation Trust • Sheffield Teaching Hospitals NHS Foundation Trust • Hull and East Yorkshire Hospitals NHS Trust • University Hospitals Bristol NHS Foundation Trust • Ipswich Hospital NHS Trust • The Royal Marsden NHS Foundation Trust (RMH) • North Bristol NHS Trust • Great Ormond Street Hospital for Children • Luton and Dunstable Hospital NHS Foundation Trust NHS Trust (GOSH) • Salford Royal NHS Foundation Trust • Cambridge University Hospitals NHS Foundation Trust • Royal Alexandra Children's Hospital (Brighton) • CLIC Sargent www.improvement.nhs.uk 3
  • 4. ADULT TEST SITE Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) POSTERS National Cancer Survivorship Initiative: Living with and beyond cancer - Adult Pathway Over the past four years work has commenced with patients, NHS clinical teams and third sector organisations to test care and support for those living with and beyond cancer. This work has culminated in the development and pilot testing of pathways of care tailored to individual needs in four tumour types (breast, colorectal, lung, prostate) with the aim of improving quality, reducing unnecessary hospital attendances and moving the focus of post treatment care from the disease and treatment to health and wellbeing. This interactive generic pathway demonstrating examples of care and support from testing work and also signposting to other relevant sources of information. To access the pathway go to: www.improvement.nhs.uk/cancer/survivorship/ adult_survivorship_pathway Scan the QR code for quick and easy access to the adult survivorship pathway 4 www.improvement.nhs.uk
  • 5. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) ST TR L N RIS : H TO A B R U IT H NE SP RT N S O NO WI L H www.improvement.nhs.uk 5
  • 6. RE ITA X : - B SP SSE ED ST O U D U Y H S EN ST S A L Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) TR SIT N & M H R O M N IVE HT CO N IG Y BR HL IG H S U 6 www.improvement.nhs.uk
  • 7. ST O S : U TA X U H SU ED G S - L SPI SE N L Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) S SIT N ND N VER HTO ME TR Y & N G M U BRI CO I H www.improvement.nhs.uk 7
  • 8. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 8 www.improvement.nhs.uk
  • 9. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 9
  • 10. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 10 www.improvement.nhs.uk
  • 11. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 11
  • 12. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 12 www.improvement.nhs.uk
  • 13. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 13
  • 14. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 14 www.improvement.nhs.uk
  • 15. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 15
  • 16. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 16 www.improvement.nhs.uk
  • 17. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 17
  • 18. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 18 www.improvement.nhs.uk
  • 19. CYP TEST SITE Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) POSTERS National Cancer Survivorship Initiative: Teenage and Adult Aftercare Pathway These Children and Young People Cancer Survivorship aftercare pathways have been produced and endorsed as clinical good practice following an extensive consultation process with input from clinical experts and cancers survivors. These defined pathways demonstrate the evidence emerging from three years of testing and prototyping with clinical teams and cancer patient survivors. To access the pathway go to: www.improvement.nhs.uk/cancer/survivorship/pathway Scan the QR code for quick and easy access to theteenage and adult aftercare pathway www.improvement.nhs.uk 19
  • 20. TR AL ST N ’S H : AT O M Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) EN NG ER N IT U D H A IO SP FO DR MI N N H IL IR I N CH B W U S 20 www.improvement.nhs.uk
  • 21. : ED D S B SITY ND Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) U TAL ER ME ST TR L N O U IO IST FO I IV M H O U CO AT R LY S SP N H IG N H N H www.improvement.nhs.uk 21
  • 22. C ST G OM RE RE M CH A IL ET T EN 22 D H O RE O RM DE N SP O D N ITA N : H S L D TR FO U R ST www.improvement.nhs.uk
  • 23. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) www.improvement.nhs.uk 23
  • 24. Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) 24 www.improvement.nhs.uk
  • 25. Adult test site poster presenations Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) from Professor Sir Mike Richards ADULTS WINNER: North Bristol Hospital NHS Trust - Breast Team. Dany Bell - Lea d Cancer Nurse MMENDED: ADULTS HIGHLY CO rsity Hospitals Brighton and Sussex Unive NHS Trust - Breast Team nsultant Oncologist Richard Simcock - Co www.improvement.nhs.uk 25
  • 26. CYP test site poster presenations Sharing the learning through posters; the work of the National Cancer Survivorship Initiative (NCSI) from Professor Sir Mike Richards CYP WINNER: Birmingham Children’ s Hospital NHS Foundation Trust - Dr Helen Jenkinson ENDED: CYP HIGHLY COMM ildren Bristol Royal Hospital for Ch Ruth Elson - After Care Specialist 26 www.improvement.nhs.uk
  • 27.
  • 28. NHS CANCER NHS Improvement DIAGNOSTICS HEART LUNG STROKE NHS Improvement NHS Improvement’s strength and expertise lies in practical service improvement. It has over a decade of experience in clinical patient pathway redesign in cancer, diagnostics, heart, lung and stroke and demonstrates some of the most leading edge improvement work in England which supports improved patient experience and outcomes. Working closely with the Department of Health, trusts, clinical networks, other health sector partners, professional bodies and charities, over the past year it has tested, implemented, sustained and spread quantifiable improvements with over 250 sites across the country as well as providing an improvement tool to over 2,000 GP practices. NHS Improvement 3rd Floor | St John’s House | East Street | Leicester | LE1 6NB Telephone: 0116 222 5184 | Fax: 0116 222 5101 www.improvement.nhs.uk Delivering tomorrow’s Publication Ref: NHSImp Cancer 0001 - May 2012 ©NHS Improvement 2012 | All Rights Reserved improvement agenda for the NHS