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Tender Living Care
        Supporting Families with Serious Illness from the Point of Diagnosis

                           More about Helping Children
            (Based on excerpts from A Tiny Boat at Sea by Izetta Smith)


Things you should know:
◊ Children are resilient – they can make their way through hard times
◊ Each child has a powerful drive to figure out how to be okay
◊ Each child has his/her own unique way of figuring out how to be okay
◊ You can help your child by giving honest information, acceptance and caring


Three Tasks Facing Children when a family member is diagnosed with a life
threatening illness:

   Children want to understand what has happened – This is a thinking task
      Tell the truth as soon as possible, as this builds trust
      If you don’t tell the children they will make guesses or play detective which may
      have them imagining something more scary than the truth
      Match the information to the child’s maturity level
      Pick a time and place that is comfortable and preferable - not just before bedtime

   Children want to express how they feel about what is happening – This is a
   feeling task
       It is normal for children to feel sad, mad and scared
            Adults cry
            There is less time than money
            Routines change
            Physical appearance may change
       All of the above are normal changes when someone is diagnosed with an illness
       Children often show their feelings through art and play
       “Listen” to your child’s play and take time to have fun with her or him
       Children may show their feelings through different behaviors
            Some may withdraw or regress – help by drawing the child out and offering
            small challenges at which they can succeed
            Some become combative and act out – help by creating safe ways to express
            big energy of feelings, e.g. sports, gross motor activities, hitting pillows
            Some overachieve or begin to act overly mature – help by encouraging them
            to do childlike activities, giving praise for silliness, encouraging self-
            acceptance
                             Some ways of helping children express feelings:
            “Softly holding” while they are crying
            Create safe ways to express the big energy of feelings, e.g. sports, gross motor
            activity, hitting pillows
Make time for talk and questions – create regular talking times. Remember
            that children may express themselves in only two or three words and that’s ok.
            Share your own feelings as a model for children
            Play and draw with them
            Peer support groups for children
            Set up a telephone schedule with school personnel so the child can check in
            Keep the school informed as to what is happening at home

    Children want to continue to live fully in the present and open up to the future –
    This is a growing and doing task
       Children need to take breaks from dealing with the illness
       It helps to maintain their routines as much as possible
       Playing hard, laughing and temporarily losing awareness of the hard things in
       their life can help

                                           Created by
                                          Patricia Ellen



                                       Tender Living Care
     A Program Supporting Families with Serious Illness from the Point of Diagnosis
                           The Center for Grieving Children
                                 555 Forest Avenue
                                   Portland, Maine
                 For more information call, e-mail or visit our Web site
                                      775-5216
                                carol@cgcmaine.org
                                 www.cgcmaine.org




A Tiny Boat at Sea1 (excerpts) with TLC Logo                                             2

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602 c sylvester tiny boat handout

  • 1. Tender Living Care Supporting Families with Serious Illness from the Point of Diagnosis More about Helping Children (Based on excerpts from A Tiny Boat at Sea by Izetta Smith) Things you should know: ◊ Children are resilient – they can make their way through hard times ◊ Each child has a powerful drive to figure out how to be okay ◊ Each child has his/her own unique way of figuring out how to be okay ◊ You can help your child by giving honest information, acceptance and caring Three Tasks Facing Children when a family member is diagnosed with a life threatening illness: Children want to understand what has happened – This is a thinking task Tell the truth as soon as possible, as this builds trust If you don’t tell the children they will make guesses or play detective which may have them imagining something more scary than the truth Match the information to the child’s maturity level Pick a time and place that is comfortable and preferable - not just before bedtime Children want to express how they feel about what is happening – This is a feeling task It is normal for children to feel sad, mad and scared Adults cry There is less time than money Routines change Physical appearance may change All of the above are normal changes when someone is diagnosed with an illness Children often show their feelings through art and play “Listen” to your child’s play and take time to have fun with her or him Children may show their feelings through different behaviors Some may withdraw or regress – help by drawing the child out and offering small challenges at which they can succeed Some become combative and act out – help by creating safe ways to express big energy of feelings, e.g. sports, gross motor activities, hitting pillows Some overachieve or begin to act overly mature – help by encouraging them to do childlike activities, giving praise for silliness, encouraging self- acceptance Some ways of helping children express feelings: “Softly holding” while they are crying Create safe ways to express the big energy of feelings, e.g. sports, gross motor activity, hitting pillows
  • 2. Make time for talk and questions – create regular talking times. Remember that children may express themselves in only two or three words and that’s ok. Share your own feelings as a model for children Play and draw with them Peer support groups for children Set up a telephone schedule with school personnel so the child can check in Keep the school informed as to what is happening at home Children want to continue to live fully in the present and open up to the future – This is a growing and doing task Children need to take breaks from dealing with the illness It helps to maintain their routines as much as possible Playing hard, laughing and temporarily losing awareness of the hard things in their life can help Created by Patricia Ellen Tender Living Care A Program Supporting Families with Serious Illness from the Point of Diagnosis The Center for Grieving Children 555 Forest Avenue Portland, Maine For more information call, e-mail or visit our Web site 775-5216 carol@cgcmaine.org www.cgcmaine.org A Tiny Boat at Sea1 (excerpts) with TLC Logo 2