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Marie-José	Bonthuis
Privacy	by	Design	
and	
the	Blockchain
5-4-2018
Wie	is….
IT-Jurist,	PhD	RuG
UMCG,	LifeLines,…
Privacy,	EPD,	Chains,	Blockchain,...
IAPP;	CIPP/E,	CIPM,	CIPT
ePrivacy
13:30			Introduction
13:45			Theory Privacy	
14.00		Theory chains:	fallacy of	the wrong	level
14:15 Privacy	in	chains (misunderstandings)
14:30	Recommendations ’Privacy	by design’	
14:45	Questions and round up
Agenda:
13:30			Introduction
13:45			Theory Privacy	
14.00		Theory chains:	fallacy of	the wrong	level
14:15 Privacy	in	chains (misunderstandings)
14:30	Recommendations ’Privacy	by design’	
14:45	Questions and round up
Agenda:
Theorie:	Privacy	=		
The	possibility to be yourself
in	your own environment
Weighing interests
Privacy	is	contextual
Privacy	paradox
Privacy	concepts
• Purpose binding
• Dataminimasation
• Legitimate aim
• Security
• Transparency/	data	subject	rights
• Sensitive personal	data
• Is	the current framework applicable for (block-)chains?
Theorie:	chains
Chain-Big	Data-Blockchain…
• A	chain	is	different:
• No	overarching authority (controller)
• Open	system	(blockchain)=	open	data?
• What we	need is:	dominant	chain	problem!
Fallacy of	the wrong	level
• Large	scale systems	work
differentially than small	scale
systems!	
• Examples:	General	practice center,	electronic
health	records,	biometric visa,	EU-exchange	
of	criminal judgments,	municipalities and
youth healthcare
Contextual/	
scale independent	privacy	principes
• Controller
• (Processor)
• Legitimate aim (consent)
1. A	problem that can be felt everywhere in	the
chain,	and that none	of	the parties can solve on	
their own.
2. Only good cooperation	can prevent systematic
failure	to discredit	the chain	as	a	whole.
• A	coordinated approach	and a	dominant	chain	
problem should be the main trigger.
1818
Dominant	Chain	Problem
‘Privacy	by design’	and
blockchain(s)
• Classic	method of	computarization:	Klassieke	(push	
and pull)	en	de	privacyrisks:	
• Actors	decide;	law prescribes:	purpose limitation
• Broad consent	versus	accountability	
• No	overarching authority
• Privacy	by design	=	get	the right	on	the right	
moment
Privacyconcepts in	(block-)chains
• Dominant	chain	problem instead of	controller	(joint	controller)?	
• Processing	personal	data	(purpose limitation,	legitimate aim)	versus	
fallacy of	the wrong	level?
• Purpose limitation versus	re/	de-contextualisation
• Legitimate aim/	consent	1:1;	dcp?
• From push	to pull	(decentralisation);	bold infrastructuur	(get	the right	
on	the right	moment->	transactions	versus	content?)
• Data	subject	rights;	erasure?
21

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