ESCAP 2015 - Jolanda van der Meer: workshop stigma

1. Jolanda van der Meer, PhD
ESCAP, Saturday June 20th 2015
Destigmatisation
No disclosures or
conflict of interest

2. Jolanda van der Meer, PhD
ESCAP, Saturday June 20th 2015
Destigmatisation
ENCONTRAR-SE

3. Destigmatisation
Outline
• Which stigma sticks to you?
• What is stigma?
• ‘Helpful advices’
• Global initiatives
• Conceal or reveal
• Paradigms lost

4. Which stigma sticks to you?
Destigmatisation

5. What is stigma?
a) Negative societal perspective
b) Negative self-perspective
c) Negative culture, laws and regulations
Destigmatisation

6. What is stigma?
a) Negative societal perspective
b) Negative self-perspective
c) Negative culture, laws and regulations
Destigmatisation

7. Stigma attached to mental illness
75%
Due to a lack of empathy and knowledge about the illness?
Source: www.cdc.gov
Destigmatisation

8. An effort to reframe the conversation
Destigmatisation
What if people treated physical illness like mental illness?
Source: Hugs, Robot. Helpful Advice. Cartoon. Robot Hugs. November 21,
2013. www.robot-hugs.com.

9. ‘Helpful Advice’ no. 1
Source: www.robot-hugs.com
Destigmatisation

10. ‘Helpful Advice’ no. 2
Source: www.robot-hugs.com
Destigmatisation

11. ‘Helpful Advice’ no. 3
Source: www.robot-hugs.com
Destigmatisation

12. ‘Helpful Advice’ no. 4
Source: www.robot-hugs.com
Destigmatisation

13. ‘Helpful Advice’ no. 5
Source: www.robot-hugs.com
Destigmatisation

14. ‘Helpful Advice’ no. 6
Source: www.robot-hugs.com
Destigmatisation

15. An effort to reframe the conversation
What if people treated physical illness like mental illness?
Source: www.robot-hugs.com
Destigmatisation

16. Global initiatives in the fight against stigma
United Kingdom: Time to Change
Scotland: See me Scotland
New-Zealand: Like Minds Like Mine
Canada: Opening Minds & Beyond the Label
United States: Stamp Out Stigma & Erasing The Distance
Australia: Say no to stigma!
Destigmatisation

17. Australia: Say no to stigma!
Say no to stigma!
SANE guide to reducing stigma
• What harm does stigma do?
Destigmatisation

18. Australia: Say no to stigma!
Say no to stigma!
SANE guide to reducing stigma
• What harm does stigma do?
1. Stigma discourages help-seeking.
2. Stigma makes recovery harder.
3. Stigma promotes discrimination.
4. Stigma causes isolation.
5. Stigma affects family and friends.
6. Stigma affects society.
7. Stigma leads to self-stigma.
Destigmatisation

19. Australia: Say no to stigma!
Say no to stigma!
SANE guide to reducing stigma
• What harm does stigma do?
• The power of the media
Destigmatisation

20. Australia: Say no to stigma!
Say no to stigma!
SANE guide to reducing stigma
• What harm does stigma do?
• The power of the media
1. Linking mental illness to crime and violence.
2. Mockery.
3. Labeling people by their illness.
4. Misuse of medical terms.
Destigmatisation

21. UK: Time to Change
What does stigma feel like?
Outcomes set by the Time To Change programme
•Significantly increased public awareness.
•Increased empowerment for 100.000 people.
•Break down discrimination and improve well-being for 274.500 people.
Source: British Journal of Psychiatry, 2013 (Vol.202, Issue 55).
Destigmatisation

22. UK: Time to Change
SAPPHIRE research programme
CORAL: conceal or reveal.
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

23. CORAL: Conceal or reveal.
King’s College London
Guide to telling about
a mental health condition
Thirty minutes workshop
Suppose you and the person next
to you are co-workers, and one of you
suffers from mental health problems.
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

24. Conceal or reveal.
Which are your main pro’s and con’s
of disclosure?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

25. Conceal or reveal.
Which are your disclosure needs?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

26. Conceal or reveal.
Which are your disclosure values?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

27. Conceal or reveal.
When would you disclose?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

28. Conceal or reveal.
Who would you disclose to?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

29. Conceal or reveal.
What did you decide?
Sources: http://www.sapphire.iop.kcl.ac.uk ; http://www.kenniscentrumphrenos.nl
Destigmatisation

30. Research insights
• Intergenerational.
• Knowledge, attitude and behavior?
• Or… new perspectives.
Challenge key paradigms currently held about
the prevention or reduction of stigma attached
to mental illness.
Destigmatisation
Source: http://www.cipd.co.uk

31. Research insights
1. If not knowledge, attitude and behavior,
what is the origin of stigma?
Stigma’s are sensitive to cultural differences,
differ for distinct disorders and exist on an
individual, interpersonal and structural level.
Destigmatisation
Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

32. Research insights
2. What are ultimate goals in the fight
against stigma?
Increased quality of life and
breaking down barriers that create
and maintain social inequities.
Destigmatisation
Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

33. Research insights
3. Who plays what role in the fight
against stigma?
Partnership in local communities.
Based on experiences from the patients themselves
Destigmatisation
Sources: http://www.cipd.co.uk ; http://www.kenniscentrumphrenos.nl

34. Destigmatisation
Mental illness is nothing
to be ashamed of,
but stigma shames us all.

35. Contact:
Jolanda van der Meer
j.vandermeer@kenniscentrum-kjp.nl
@DeKennis
http:nl.linkedin.com/jolandavandermeer