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Vζ
           VV
           An Alternative
           and Augmentative
           Communication Device


Aiding inclusion for children
     with cerebral palsy
What is Cerebral Palsy?


 One of the most common congenital disorders

 Affects muscle tone, movement and motor skills


 Large proportion of children with CP also have
  speech impairment



     Children with Cerebral Palsy find it
          difficult to communicate
Cerebral Palsy affects a child in many ways


 Hinders a child’s ability to integrate with the community

  Affects their education

  Affects their relationships with loved ones

  Limits their options for gainful employment

 Cerebral Palsy has the second highest economic cost
 among all birth defects*


* A study conducted by Center for Disease Control & Prevention (CDC) estimates the total average lifetime
  costs per person to be $921,000 (2003 dollars)
Children with Cerebral Palsy need assistive aids to
        overcome barriers in communication

Existing solutions in the market

 Manual methods
      Flip charts with alphabet/pictures



 PC-based software solutions
      Purpose-built software (Dasher, BoardMaker, Slate)




 Voice Output Communication Aids
      Portable device with recorded messages (Kathamala)
Existing solutions have many disadvantages


 Manual methods
      Excruciatingly slow
      Concentration of child and interlocutor is on flip
       chart rather than on each other



 PC-based software solution
      Limited mobility
      Difficult to operate independently



 Voice Output Communication Aids
      Limited number of messages can be recorded
      Suitable in only a few situations
What should be the features of the ideal solution?


 Enable freedom of expression
      Children should be able to convey virtually any thought in
       their mind


 Independent operation
      Usable by children with poor motor control skills and/or
       multiple disabilities


 Inter-operable with other assistive aids
      Enable incorporation of future improvements in assistive
       software as well as hardware


 Portable and easy to handle
AVAZ – aiding inclusion of CP children


Developed in collaboration with IIT Madras

Tested & used by Vidya Sagar (formerly the Spastics
Society of India, Chennai)


 Dynamic message generation and speech synthesis
 Easy-to-read font sizes on large 7” display
 Audio prompts for the visually impaired
 Supports different methods of interaction like
  contact and non-contact switches
 Battery operated
 Wheelchair mountable
Testimonial by an AVAZ user



“   good morning everyone. using
    avaz, i can now speak anything i
    want. i can go out on my own
    and talk to people. having avaz
    makes me happy and confident.
    hope to see many more children




                                             ”
    like me use these



     -Rohit   Parek Jain, AVAZ user,
                    Class XII, Vidya Sagar
We need your help and support!


AVAZ will help non-verbal children communicate with their parents,
caregivers, teachers and community



Through this, they can be independent and contribute positively to society



Help us donate these devices to NGOs and schools working with spastic
children



         Contribute to give voice to many more people.
                MAKE EVERY VOICE HEARD.
Thank You



If all my possessions were taken from me

with one exception, I would choose to keep

the power of communication, for by it I

would soon regain all the rest.

                          - Daniel Webster
Appendix 1: Organizations helping CP persons


The National Trust
A GoI body under the Ministry of Social Justice and Empowerment for the
Welfare of Persons with autism, cerebral palsy, mental retardation and
multiple disabilities (http://www.thenationaltrust.in/)




Vidya Sagar
A Chennai-based institution that help in increasing inclusion into society of
children with developmental disabilities (http://www.vidyasagar.co.in/)
Appendix 1: Organizations helping CP persons


Indian Institute of Cerebral Palsy
A Kolkata-based organization assisting children with cerebral palsy
(http://www.iicpindia.com/)




International Society of AAC (ISAAC)
ISAAC is an NGO in special consultative status with the Economic and Social
Council of the United Nations (http://www.isaac-online.org/)
Appendix 2: About Invention Labs


Invention Labs is a venture promoted by alumni of IIT Madras



Invention Labs develops products that provide people with multiple
disabilities the ability to communicate with family, educators, caregivers and
peers in an independent manner.



Invention Labs is committed to building and supporting different kinds of
assistive software that can run on AVAZ to cater to the communication needs
of persons with speech impairment.

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Introduction to Avaz - an AAC Device

  • 1. VV An Alternative and Augmentative Communication Device Aiding inclusion for children with cerebral palsy
  • 2. What is Cerebral Palsy?  One of the most common congenital disorders  Affects muscle tone, movement and motor skills  Large proportion of children with CP also have speech impairment Children with Cerebral Palsy find it difficult to communicate
  • 3. Cerebral Palsy affects a child in many ways Hinders a child’s ability to integrate with the community  Affects their education  Affects their relationships with loved ones  Limits their options for gainful employment Cerebral Palsy has the second highest economic cost among all birth defects* * A study conducted by Center for Disease Control & Prevention (CDC) estimates the total average lifetime costs per person to be $921,000 (2003 dollars)
  • 4. Children with Cerebral Palsy need assistive aids to overcome barriers in communication Existing solutions in the market  Manual methods  Flip charts with alphabet/pictures  PC-based software solutions  Purpose-built software (Dasher, BoardMaker, Slate)  Voice Output Communication Aids  Portable device with recorded messages (Kathamala)
  • 5. Existing solutions have many disadvantages  Manual methods  Excruciatingly slow  Concentration of child and interlocutor is on flip chart rather than on each other  PC-based software solution  Limited mobility  Difficult to operate independently  Voice Output Communication Aids  Limited number of messages can be recorded  Suitable in only a few situations
  • 6. What should be the features of the ideal solution?  Enable freedom of expression  Children should be able to convey virtually any thought in their mind  Independent operation  Usable by children with poor motor control skills and/or multiple disabilities  Inter-operable with other assistive aids  Enable incorporation of future improvements in assistive software as well as hardware  Portable and easy to handle
  • 7. AVAZ – aiding inclusion of CP children Developed in collaboration with IIT Madras Tested & used by Vidya Sagar (formerly the Spastics Society of India, Chennai)  Dynamic message generation and speech synthesis  Easy-to-read font sizes on large 7” display  Audio prompts for the visually impaired  Supports different methods of interaction like contact and non-contact switches  Battery operated  Wheelchair mountable
  • 8. Testimonial by an AVAZ user “ good morning everyone. using avaz, i can now speak anything i want. i can go out on my own and talk to people. having avaz makes me happy and confident. hope to see many more children ” like me use these -Rohit Parek Jain, AVAZ user, Class XII, Vidya Sagar
  • 9. We need your help and support! AVAZ will help non-verbal children communicate with their parents, caregivers, teachers and community Through this, they can be independent and contribute positively to society Help us donate these devices to NGOs and schools working with spastic children Contribute to give voice to many more people. MAKE EVERY VOICE HEARD.
  • 10. Thank You If all my possessions were taken from me with one exception, I would choose to keep the power of communication, for by it I would soon regain all the rest. - Daniel Webster
  • 11. Appendix 1: Organizations helping CP persons The National Trust A GoI body under the Ministry of Social Justice and Empowerment for the Welfare of Persons with autism, cerebral palsy, mental retardation and multiple disabilities (http://www.thenationaltrust.in/) Vidya Sagar A Chennai-based institution that help in increasing inclusion into society of children with developmental disabilities (http://www.vidyasagar.co.in/)
  • 12. Appendix 1: Organizations helping CP persons Indian Institute of Cerebral Palsy A Kolkata-based organization assisting children with cerebral palsy (http://www.iicpindia.com/) International Society of AAC (ISAAC) ISAAC is an NGO in special consultative status with the Economic and Social Council of the United Nations (http://www.isaac-online.org/)
  • 13. Appendix 2: About Invention Labs Invention Labs is a venture promoted by alumni of IIT Madras Invention Labs develops products that provide people with multiple disabilities the ability to communicate with family, educators, caregivers and peers in an independent manner. Invention Labs is committed to building and supporting different kinds of assistive software that can run on AVAZ to cater to the communication needs of persons with speech impairment.