John Ainsworth, Senior Research Fellow, Manchester University talks about the vision of Connected Health in the North and what it's all about.

2. Vision
The world’s first civic partnerships exploiting data:
• drive public sector reform for better health and care by
providing actionable information
• fuel region-wide health science that citizens trust
• accelerate business growth for the digital health revolution

3. • £20m / 3y
• Hub and Spoke Model
• Four city regions
– Greater Manchester
– North West Coast
– Yorkshire & Humber
– North East and North Cumbria
• One hub (GM)
• ~2 pathways per region
• Start Jan 2016
Population densities: North England 2012
Health North: CHC pilots

4. What is a learning health system?
An integrated health system in which
progress in science, informatics, and
care culture align to generate new
knowledge as an ongoing, natural
by-product of the care experience,
and seamlessly refine and deliver best
practices for continuous improvement
in health and healthcare.
Key metric: data-action latency

5. Data-Action Latency
Time
Data Production
Analysis
Data ProductionData-Action Latency
Insight
Action
Data
Preparation

6. CHC Ingredients
• Tri-partite commitment
• Population & health system
• Civic pride & public trust
• Information Readiness
• Multi-disciplinary critical mass
• Established partnerships and governance
• Industry integration

7. Civic Partnership – Social Licence
1 J Med Ethics. 2015 May;41(5):404-9
• The social licence for research: why care.data ran into trouble1
• Failure to meet expectations of citizens
– Reciprocity
– Non-exploitation
– Service of the public good
• Citizen Juries
– for health data sharing
• Open & Transparent
– Continuous informed consent
– Feedback to citizens
➔ Diameter of Trust
• Mass Participation
– City Moves
• Public Engagement
– #datasaveslives

8. How will we drive economic growth
• Open innovation partnership with established IT companies to
advance core infrastructure
• Spin-in laboratory to accelerate development of digital health
technologies by SMEs
• Platform for delivering real-world evidence studies

9. Connected Health Cities Pilot 2016-18
• Jan 2016 – CHC starts
• June 2017 – Technology Platform &
Knowledge Exchange and Reuse
Platform First Release
• Dec 2017 – Ark’s fully operational
• Dec 2018 – Pathway Optimisation
Complete; CHC Pilot Evaluation
Complete

10. Ark
• An Ark is a trustworthy, regional combinatorial innovation
centre for health and social data analysis, producing timely,
actionable information for the care of the population it serves.

11. Connected Health City: Ark-enhanced
Information Flows

12. Integration for Combinatorial Innovation in
Health Data Analytics

13. The Role of the Hub
• Project Management and Reporting
• Core platform development
• Communications and public engagement
• Knowledge Exchange and Reuse

14. Hub Technology
• Data Access, Information Governance and Citizens Control
• Ark Design and Reference Architecture
• Common Applications and Tools
• Knowledge Exchange and Reuse
• Data Federation, Virtualisation and Distributed Data Analysis

15. CHC Outcomes
• Civic partnerships
–Effective model for patient and public involvement
• Four pilot CHCs
–Blueprints and plans
• Federation of CHCs
–Exchanging and reusing knowledge
• Test learning health system methodology
–Understand data needs
• Model for driving economic growth
–Responsive to the needs of industry

16. Records
Evidence
Intelligence
Innovation
Informatics
Public Empowerment & Trust