The document discusses the role of civil society organizations like the European Cancer Patient Coalition (ECPC) in health promotion campaigns for prostate cancer. It notes that ECPC represents over 400 cancer patient organizations across Europe and believes patients should be partners in the fight against cancer. It outlines how civil society can lead advocacy campaigns, disseminate information, and help implement health programs. It argues that policy should involve patients, care should be multidisciplinary and patient-centered, and survivorship plans are important to empower individuals. ECPC will co-host an advocacy session at a urology conference to build capacity for patient advocacy groups.

1. The role of civil society in health promotion campaigns for prostate
cancer
Dr. Lydia Makaroff, Director, European Cancer Patient Coalition
@lydiamakaroff

2. Who are we?
▪ ECPC is the largest European cancer patients' umbrella organisation.
▪ Representing more than 400 organisations in 46 EU and non-EU countries.
▪ Our Vision
ECPC works for a Europe of equality, where all European cancer patients
have timely and affordable access to the best treatment and care available,
throughout their life. ECPC believes that cancer patients are the most important
partners in the fight against cancer and against all the cancer-related issues
affecting our society. Policy makers, researchers, doctors and industry should
recognise cancer patients as co-creators of their own health.

4. Civil society in health
promotion campaigns
▪ Lead grass-roots mobilization and
advocacy campaigns
▪ Support the wide dissemination of
information
▪ Advocate and support health
promotion/prevention programmes
▪ Contribute to putting knowledge and
evidence into practice
▪ Raising awareness

5. Policy
Patients and patient
organisations must be
involved in developing
policies that result in
improved survival and
quality of life for people with
prostate cancer

6. Patient-centered
multidisciplinary care
European institutions and
Member States need to ensure
that people with prostate
cancer receive high quality,
standardized, and integrated
care with a focus on a patient-
centred multidisciplinary
approach

7. Survivorship
Proper follow-up should be
included in a personalized
cancer survivorship plan, to
empower individuals and
ensure sure that each person
has as much control as
possible over their life

8. Advocacy
ECPC will co-cost a Patient
Advocacy Session at the
European Association of
Urology congress in 2018 to
build the capacity of European
prostate, kidney, and bladder
patient advocacy groups to
support their members and
advocate for better care.

9. lydia.makaroff@ecpc.org
@cancereu @lydiamakaroff
European Cancer Patient Coalition
Thank you