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The Estee Lauder Companies - 'Afterwards' book

  1. 1 SHARED WISDOM FROM THOSE WHO HAVE BEEN THERE REFLECTIONS ON LIFE BEYOND BREAST CANCER
  2. Disclaimer: The views, opinions and assumptions made or expressed in this publication are those of the contributors and do not necessarily reflect the official policy or position of The Estée Lauder Companies or any agency of The Estée Lauder Companies. Ownership: This document and the information contained within (Material) is proprietary to The Estée Lauder Companies. The Material may not be used for any other purpose (which includes reproduction or transmission of all or part of the Material) without the express permission of The Estée Lauder Companies.
  3. 4 5 Table of Contents Introducing the ‘Afterwards’ campaign Professor Lesley Fallowfield Foreword Introducing Paula Beetlestone During | Living with breast cancer Afterwards | Living beyond breast cancer Afterwards | Learning from those who have lost loved ones Elizabeth Hurley, Global Ambassador for The BCA Campaign Epilogue: Paula Beetlestone’s hints and tips Glossary of terms Background to The Breast Cancer Awareness (BCA) Campaign 7 9 15 19 125 163 193 197 203 215 5
  4. 7 Given that so many people have been affected in some way by cancer, the 2015 Estée Lauder Companies’ UK Breast Cancer Awareness (BCA) Campaign asks the often overlooked question of ‘What happens Afterwards?’ Afterwards the book, aims to speak to all breast cancer survivors, including those that have recovered from, or are still receiving treatment, and the friends and family members that love someone touched by the disease, or have loved and lost someone to it. The quotes, advice and anecdotes in this book have been gathered from real people who have been affected by breast cancer.
  5. 9 Professor Lesley Fallowfield, BSc, D.Phil, F.Med.Sci, Professor of Psycho-oncology, University of Sussex Director of Sussex Health Outcomes Research & Education in Cancer Professor Fallowfield is one of the world’s leading experts on oncology survivorship and lectures and trains around the world. She is one of a few international figures who have established psycho-oncology as an important subspecialty and has made an outstanding and lasting contribution to improving the quality of care received by patients with cancer.
  6. 11 A breast cancer diagnosis fills most women with dread. It can also be a challenging time for their families. All experience a myriad of doubts and uncertainties about their future, leaving many emotionally drained. Despite this, a plethora of decisions need to be made about the wide variety of treatment options now available. Thanks to the many advances made in scientific knowledge about breast cancer, improvements to surgical and radiotherapy techniques together with more targeted hormone and chemotherapy treatments, many of the one in eight women who are diagnosed with breast cancer now have a realistic prospect of cure and 87% will survive for at least five years or longer. This means that many women and those close to them are living with the after effects of cancer, which can include physical and psychological issues. Long-term hormonal medication may be required following surgery that can produce hot flushes, joint pains, sexual problems from vaginal dryness and fatigue. Psychologically, there’s the fear that comes from being brought closer to your own mortality and the very real and terrifying prospect that the cancer might return. But sometimes, the breast cancer diagnosis results in a positive reappraisal of many aspects of day-to-day life – some women who have had cancer will no longer worry about what is perceived as trivia – who needs to clean the kitchen floor when the sun is shining and there are better things to do? What works for one woman may not work for another. We’re all different and the
  7. 13 wise words from those included in this book demonstrate the many big and small things that helped women through their diagnosis, treatment and beyond. We hope sincerely that others might find solace and comfort in their words. This book is entirely based on the real experiences of women, and men, across the country, bringing together comments, insights and advice from a broad selection of people who have been affected by the life-changing impact of breast cancer. Unlike much of the literature out there, Afterwards explores the disease’s effects both during and after treatment. It illustrates the different ways - some poignant and moving, others positive and uplifting – that women and their loved ones can live well through and beyond a breast cancer diagnosis. Afterwards is the latest ‘action’ from The Estée Lauder Companies’ UK Breast Cancer Awareness (BCA) Campaign, bringing to life The BCA Campaign’s message that Every Action Counts when it comes to defeating breast cancer. Together we’re aiming to extend the symbol of the pink ribbon beyond research, diagnosis and treatment, and into a new territory that shines a spotlight on an aspect of breast cancer that is all to often ignored: what happens afterwards?
  8. 15 Paula | 47 Diagnosed with breast cancer in May 2013. Paula had a double mastectomy, radiotherapy, and is undergoing further reconstructive surgery. She has a faulty BRCA2 gene. Paula fronts The Estée Lauder Companies UK ‘Afterwards’ campaign.
  9. 17 “In my experience you never completely recover from breast cancer. When I was first diagnosed with the disease, I almost immediately went into ‘efficiency mode’. I made lists of things that needed to be done, people who need to be told and focused my energy on what was going to happen next. When my treatment started, my focus became about recovery. I was going through chemotherapy when my four-year-old son was just about to start school for the first time, and all that mattered was me being well enough to be there with him on his first day. Then remission came - I no longer had any signs of cancer left in my body. So what now? Should I have skipped off gleefully and signed up for a marathon to show that I was back to full fitness and happy to be alive? Well actually, no, because I often found (and still find) elements of my mental healing harder than when I had the focus of treatment, because the symptoms were (and still are) less visible. This means that women in remission, myself included, often have to shoulder the mental anguish of the aftermath of breast cancer all alone. But that fear of it returning is always there in the background and dealing with the fact you’ll never truly feel like the same person you were before - whether physically, mentally or emotionally - is something that shouldn’t be ignored. My advice would be to keep talking, because people will only be able to know how and when to help if you let them know that everything’s not completely rosy.”
  10. 19 During Living with breast cancer The impact of a breast cancer diagnosis and its treatment can be considerable and for some, long-term. Over the following pages, a selection of brave women and men share their advice on how to remain positive, provide support and cope when touched by this terrible disease.
  11. 21 On coping
  12. 23 Justine | 44 Diagnosed with breast cancer in February 2014 and due to have a double mastectomy in October 2015. “My advice would be to try not to worry yourself about the ‘what ifs’ and remember to never give up hope. Everyone has their own way of dealing with breast cancer. There is no wrong or right way to approach it.”
  13. 25 Rochelle | 55 Diagnosed with breast cancer in July 2015. Results of an Oncotype DX test will establish whether or not she will need to undergo chemotherapy. “I think it’s important to keep busy and not dwell on the negatives. I really believe that staying positive and mentally keeping an upbeat mindset helps with the healing process.”
  14. 27 Sharon | 36 Diagnosed with breast cancer in October 2013. “I didn’t have time to have cancer with three young boys, two jobs and a love for running. Carrying on as both a mum and wife was very important to me, so I continued to do the school runs and work. I even went running between my chemo sessions. I would advise people to try to continue with life in as normal a way as their body allows.”
  15. 29 Guy’s mother has been diagnosed with breast cancer twice. The first time was in 1989 and the second time was in 2011. Guy | 34 “Try to stay positive yourself. Also encourage those going through cancer to think about the things they really enjoy doing, to help to keep their spirits up.”
  16. 31 Paula | 46 Diagnosed with breast cancer in 2014, after her mother had suffered the same disease. Paula is currently in remission. “Everyone says I stayed so positive, but I was able to because my prognosis was good. Every cancer is so personal.”
  17. 33 Diagnosis came in 2011, when she had a mastectomy, chemotherapy and radiotherapy. She is awaiting further reconstructive breast surgery. Joanne | 49 “It has been an interesting ‘journey’ and I’ve gone through so many emotions along the way. Life won’t be the same again, but in some ways, for me, things have turned out for the better. It just took a long time.”
  18. 35 Ali | 43 Diagnosed with breast cancer in 2012. In 2013, she co-founded the charity Annabel’s Angels, which raises funds to increase support for patients, carers and families living with cancer in Derby. “I’d say never lose your sense of humour or take life too seriously. In preparation for losing my hair, my sister and I made Top Trumps-style cards out of all my bad hairstyles of the past. Growing up in the eighties, this wasn’t difficult. Of course, losing your hair isn’t laughable, but you can have fun experimenting with wigs and accessories. I appreciate I have a unique sense of humour but it worked for me, so find what works for you.”
  19. 37 Tracey | 55 Diagnosed with breast cancer in 2007. She also lost her mother, 51 to breast cancer in 1972. “The breast cancer journey is like starting at the bottom of a big hill when you’re first diagnosed and facing a tough climb ahead. You start your ascent towards the top having your treatment, and once you are at the summit, you can see the finishing line down the hill at the bottom and you know that with each treatment, you are nearing the ribbon at the end. For each treatment you have, it is another one done and therefore fewer to go. Having a goal to reach encouraged me to face the treatment without feeling worried or scared, knowing that it was helping me recover and get to the end of my cancer journey.”
  20. 39 Carole Diagnosed in 1989. She underwent a lumpectomy and radiotherapy. “I am very grateful for having got through breast cancer, and with time I’ve learned not to dwell on it. I would advise anyone going through breast cancer to just keep positive, and know that you are having the right treatment and you can get through this.”
  21. 41 Beryl | 72 Finished breast cancer treatment in 2011. “Breast cancer treatment does not last forever, so just do what you can to look after yourself properly.”
  22. 43 On doing things your own way
  23. 45 Phillipa | 50 Found out she had breast cancer in 2011. She had a mastectomy, chemotherapy and radiotherapy. She is planning to have a risk- reducing second mastectomy and hysterectomy as there is a family history of the disease. “I’d recommend going at your own pace and not comparing yourself to other people, as everyone’s case and treatments are different. Comparing will only make you feel even more worried and anxious.”
  24. 47 Lara | 32 Says she’ll be ‘celebrating’ her one year ‘cancer-versary’ in October 2015. “It’s okay to hide yourself away from the world and stay in your pyjamas. It’s okay not to want to see anyone. It’s okay to feel ugly and gross and unwomanly. Just remember it’s not forever and you can come out the other side feeling stronger and more empowered than ever before.”
  25. 49 Angela | 44 Diagnosed with breast cancer in 2014 and finished treatment in April 2015. “Listen to your own body and do what’s best for you.”
  26. 51 Martine | 54 Diagnosed with breast cancer in 2008. She had a partial mastectomy. “Take time out for yourself, carry on as much as you can and continue to do the things you love. I appreciate everyday life, and I plan ahead and look to the future, because there is one to look forward to.”
  27. 53 Ali | 43 “The best advice I can offer would be to embrace it all and go with the flow. Looking back on my three years since diagnosis, I have felt a huge spectrum of emotions and they have all been part of my unique way of coping. There is no set path or correct way. I’d say be true and kind to yourself. There’s really no benefit to having ridiculous expectations or giving yourself a hard time.” Lara | 32 “I don’t think you should compare yourself to other patients going through treatment. Trust your instincts and do whatever you feel like doing. Your body is a very powerful machine, and usually if you’re craving something – be it a packet of salted crisps or a lie down it’s telling you that for a reason. I allowed myself to do one thing each day. Whether it be going for a coffee with a friend, going to the seaside or friends coming over for dinner. I found that if I did more than one thing I would get too tired and overwhelmed.”
  28. 55 Janine | 55 Diagnosed with breast cancer in 2011. She had a lumpectomy and underwent radiotherapy. “People often take their cues on how to behave around you from the way you deal with it. I tried to remain as upbeat as I could, which meant people around me mirrored this behaviour. It really helped me to remain positive throughout my treatment.”
  29. 57 On feeling better
  30. 59 Laura | 67 Diagnosed with breast cancer in 2011. Her treatment has finished, but she is still on medication. “On my last day of treatment, I celebrated by exchanging radiotherapy with retail therapy, and bought four pairs of shoes!”
  31. 61 Frances | 45 Diagnosed with breast cancer in June 2013. She underwent a full mastectomy of her left breast. “There will be those days when you feel down, but make sure you take the time to do things for yourself, such as a manicure or a facial. I used to treat myself and one day I bought a lovely perfume to help cheer myself up.”
  32. 63 Joanne | 50 Diagnosed with breast cancer in August 2013. She has since had a double mastectomy, chemotherapy, radiotherapy and breast reconstruction surgery. “It helped me to keep a positive memories book where I would write down all the lovely things that happened that day. These included things like having a nice meal with friends, or when my son got his first three wickets in a cricket match. It’s so lovely to read this back. It’s something I still fill in everyday.”
  33. Lara | 32 65 “Just because you have cancer and lose all your hair, eyebrows and eyelashes, it doesn’t mean you can’t still be glamorous. In fact, I found it gave me even more reason to be glam. With no hair you are a blank canvas and can have any look imaginable. I often wore nothing but bright lipstick, a bit of concealer under my eyes and some blusher– it was a striking look that really worked. With no eyelashes, my eyes were a bit watery, so I didn’t always want to put heavy eye makeup on.” “You can still look beautiful and feminine, and that can make you feel a bit more like yourself again – sometimes you can feel like a man when you lose your hair (and for some ladies their breasts after mastectomies). A wonderful charity for ladies with breast cancer is The Haven. You go for an introduction day and then get ten free treatments of your choice. I had aromatherapy, acupuncture and reflexology. It made me feel so cared for and relaxed – almost normal again, even.”
  34. 67 Angela | 45 Diagnosed with breast cancer in 2012. She had a mastectomy, chemotherapy and is awaiting further breast reconstruction surgery. “Life carries on and it will get better if you feel that it will. It’s about positivity and finding that inner strength. Having the type of mentality that the glass is half full will help get you through this.”
  35. 69 Catherine Writer and yoga teacher, was diagnosed with DCIS (a very early stage breast cancer), and is still undergoing treatment. “I found that meditation really helped me get through my treatment. There’s a really simple technique, which I would do even when going through uncomfortable procedures, or when my mind was racing with worry. The technique is to focus on the breath moving in and out of the nostrils - imagine breathing in bright, white light and on the exhale, release grey smoke. Remember to carry on with everyday activities whenever possible and enjoy the pleasures of daily life such as cooking delicious meals, being outdoors, or just chatting with good friends.”
  36. 71 “It’s the little things in life that can often make a woman feel special. Putting on make-up, and even putting a smile on your face, can show the world that you’re ready to face it.” Angela | 44
  37. 73 On relationships
  38. 75 Michelle | 54 Diagnosed with breast cancer in early 2015, underwent surgery in March and is still undergoing chemotherapy. “I often find it hard to feel like myself. What’s important for me – and perhaps anyone going through cancer – is to surround myself with as many friendly faces and positive people as possible.”
  39. 77 Debbie | 43 Has a long family history of breast cancer, with her sister, mum and two aunts all having been diagnosed with the disease. Debbie is currently going through the process of an elective mastectomy. “Going through breast cancer gave me a different view about the world and made me appreciate the more important things in life. It made me recognise that sticking together as a family is so important, because it’s better to go through this as a unit. We all realised that petty scrabbles aren’t important and that time is precious. You may as well spend that precious time being happy together.”
  40. 79 Deborah | 48 Diagnosed with breast cancer in 2011. She is still taking medication. “For me, managing other people’s emotions was the hardest part – I was afraid that I was upsetting people by actually having cancer. I tried not to dwell on it and not become a ‘victim’. I just concentrated on the fact that going through treatment would be beneficial for my long term future.”
  41. 81 Pete | 35 Lost his wife Mair, the mother of their two children (aged just 10 weeks and 3 and a half years at the time), to breast cancer when she was just 41. Pete is the founder of charity Mummy’s Star, dedicated to women and their families affected by cancer during pregnancy. “I remember getting a text from my wife telling me that she had got frustrated with her hair coming out so had just gone into the shower and rubbed her hair with her knuckles to try and get it all out. Doing this had left her with sprigs of hair all over the place, so she asked me to shave it properly when I got home. I have to say this is one of the most intimate things we ever shared. She trusted me at her most vulnerable and it helped lift some of the issues around her hair loss.”
  42. 83 Clare | 45 Diagnosed with stage 3 breast cancer in April 2013. She underwent surgery, chemotherapy and radiotherapy soon after the death of her partner. “Going through treatment, when so recently widowed, was lonely, tough and horrible. There was no way I could return back to my old life, so I was open to reinventing myself. I joined several new social circles, and now have all sorts of friends I would never have imagined I would have had. I started a new relationship because I realised that life can be short, and I really wanted to make the most of now, while I am well enough to do so.”
  43. 85 Sam Lost her best friend Danielle to breast cancer in 2010, shortly after the death of Danielle’s mother in 2009. They founded Future Dreams in 2008 to raise essential funds for further research and new treatments into breast cancer. “Survivorship is the best word to describe life after breast cancer. Watching my childhood friend cope with the shock of diagnosis, followed by gruelling treatment and surgery and then given the green light to go back into everyday life was daunting for her and all her family and friends combined. The terror of the disease returning was paralysing and isolating. However, our solid relationship enabled her to be open and honest about her innermost fears and reality. I was honoured to share a wonderful harmonious relationship with Danielle, and after she lost her battle to breast cancer only twelve months after her mother Sylvie lost her fight to breast cancer, she passed on a baton to myself and her devoted group of girlfriends to continue her legacy and raise money to open a breast cancer support centre in London that will give breast cancer sufferers and their families a place to go and feel normal, supported, calm, informed, a ‘haven’ that will care for them in their darkest moments.”
  44. 87 On supporting others
  45. 89 Laura | 32 Diagnosed with breast cancer in early March 2015. She has undergone chemotherapy and is due to start radiotherapy soon. “Don’t be too afraid of saying the wrong thing, it’s just nice to know that people are thinking of you and are there to help whenever you need them. At times friends would offer to look after my children after I had chemotherapy; my mum would sometimes bring dinner over too, which was such a huge help. It was good to know so many people were willing to help.”
  46. 91 Sylvia Diagnosed and treated in 2012. She is now well and having yearly checkups. “I feel it is very important that each person is able to follow their own path in how they deal with breast cancer and what feels right for them. Any carer, friend or family member needs to listen to their wishes and not pressure them down another road. This may sometimes happen because of their very understandable fear of losing a loved one.”
  47. 93 Alison | 53 Lost her mother to breast cancer 20 years ago. Her sister is currently undergoing treatment for the disease, too. “My sister and I enjoy every single day together, because we see each day as a bonus. She just wants to live life to the full.”
  48. 95 Lisa’s mother, who is 75, was diagnosed with breast cancer in May 2015. Lisa | 51 “My mother just loves to talk about her breast cancer, and this really helps her to get through it. Being there from the very beginning and offering her support allows her to stay positive.”
  49. 97 “For friends and relatives who know someone going through treatment for breast cancer I would say just be there. Whether it’s a text, a letter, a card, an email, sending a crazy turban - I loved wearing those throughout my treatment and have about 10 that friends sent me - a phone call, some flowers, a picture, a CD compilation, a book, absolutely anything. Your friend with cancer may not answer because they have a lot on their plate but trust me it will mean so much and brighten their day. It was little things like that which kept me going. There is nothing worse than ignoring someone because they have cancer and you don’t know what to say to them. There is no right or wrong. Don’t be afraid to hurt their feelings, just knowing you’re still there for them helps so much. I was so touched by the love and support I received, it’s confirmed my faith in humanity.” Lara | 32
  50. 99 On taking control
  51. 101 “You can learn a lot about yourself when you feel closer to dying. Yes, you can look and feel the roughest you’ve ever felt. Yes, you can look like a bald man every time you look in the mirror, but who cares? I just kept reminding myself that it wasn’t forever. The chemo was killing any potential cancer cells swimming around my body, so in the long term I saw it as a good thing. I took the decision to ‘own it’. I knew the chemo would make my long blonde hair fall out, so I went to the hairdressers and had it all cut super-short and bleached platinum blonde. I felt like a film star. Then I threw a head shaving party and invited all my friends over. My oldest friend from school shaved all my hair off and even gave me a Mohawk. That time I felt like GI Jane. It could have been upsetting if I’d let it get thin and it started to fall out on its own. But I decided to be the master of my destiny, and it was a lot of fun.” Lara | 32
  52. 103 On living life
  53. 105 Jenny | 44 Lost her sister to cancer and was diagnosed with breast cancer herself in 2014. She is currently in remission. “As much as I lead a normal life there are some moments where I don’t feel normal, but I think it’s important to move forward and live the life handed to you.”
  54. 107 Natasha | 42 Finished her breast cancer treatment in July 2015. “My motto is, ‘It is what it is’. You can’t change what you have, but life does go on and there can be a very bright light at the end of the tunnel. Living with breast cancer is very hard, but in the dark moments I think you have to try to keep focussed on reaching the end of treatment. It does end eventually.”
  55. 109 Sylvie and Danielle, mother and daughter. Sylvie passed away from breast cancer in July 2009. Tragically, her daughter Danielle was diagnosed with secondary breast cancer in her lungs shortly before her mother’s death and sadly passed away on September 2010. Future Dreams lives on to realise Sylvie and Danielle’s dream of a future free of breast cancer. “When we both became ill we didn’t want to sit back, and watch the world go by. We wanted to do something positive to celebrate life and make a difference to the future.”
  56. 111 On distractions
  57. 113 Philippa | 37 Was diagnosed with breast cancer in 2010. She celebrated finishing treatment just before her 33rd birthday. “I took up knitting as a distraction when I was too tired to do anything else. To cheer myself up, I’d go shopping, walking, visit friends or get a cuddle from my young niece. Those cuddles were the best medicine.”
  58. 115 On second diagnosis
  59. 117 Clare | 50 Film-Industry Executive, was first diagnosed with breast cancer in May 2013 when she was 48. After undergoing chemotherapy, surgery and radiotherapy, which ended in January 2014, she was diagnosed with bone metastasis in June 2015. “My advice to anyone who has been given the devastating diagnosis of breast cancer is to be honest with yourself and your friends and family. You don’t go through cancer alone. And you shouldn’t. I am one of the unlucky ones whose cancer has returned. It is hard telling anyone that news but it was especially hard to tell friends who had been through their own cancer experiences. I worried that the news would be as devastating for them as it has been for me. I guess if I was to pass on anything else to anyone given the news today it would be that you need
  60. 119 to be kind to yourself. It’s hard but don’t spend any time on the ‘why me’ conundrum. Live in the present and the future. Treat yourself all the time. You don’t have to be lavish, small things make all the difference… A trip to the cinema with friends, a new lipstick, a long luxurious bath with candles and oils. Take up the offers of the complementary medicine, try aromatherapy, reiki and reflexology. This is all for you. Not for your kids, your husband, your friends, but for you. Be kind to yourself and when others offer to help, don’t say ‘I’m fine’, say ‘thank you’ and then tell them what you need from them. Whether it’s someone to do a small shop for you, to help prepare a meal, to go to the post office or to help you get the washing done. These things are a gift from those who love you and want to help. They need a steer in what to do otherwise they feel helpless.”
  61. 121 Alison | 67 Diagnosed a first time with breast cancer in 2000 and a second time in 2014. She is a retired therapy radiographer and has treated hundreds of women with breast cancer. Alison had a double mastectomy, and chose not to have reconstruction. “Give yourself time in those first few weeks – it takes a while to adjust to the changes ahead of you. The second time it happened to me I decided to go ahead with a planned holiday and so delayed my surgery by a month. This gave me time to think, to talk through all my fears, and to then start treatment in a positive, rather than a frightened, frame of mind.”
  62. 123 Jane Diagnosed with a recurrence of breast cancer whilst pregnant. It’s a gift, this life. Shame I didn’t realise, Before this wretched compromise. The news was not tangible. I was invincible, Fearless by youthful principle. But the nightmare became reality. So ugly for a malcontent to wake up, And see their best days spent. “That life’s, my right,” I cried. Two breasts, my health, a family Not yet conceived to me. And life was kind, I held my child. Then I could see, This privilege was not owed to me. It’s a gift, this life. Once, it seemed blue. Now, on this knife-edge, It takes a rosy hue.
  63. 125 Afterwards Living beyond breast cancer Many women who have had breast cancer live with the very real threat that their cancer will return. Others who have supported a loved one through breast cancer have a new ‘afterwards’ to live with. Over the following pages, a number of breast cancer ‘survivors’ share their own experiences, fears and hopes after the disease has touched their lives.
  64. 127 On motivation
  65. 129 Elke | 41 Diagnosed with breast cancer in 2011. Mammograms in September 2015 showed no evidence of recurrent disease. “I used to think that everything would go back to normal after treatment; I couldn’t have been more wrong. I don’t even know what ‘normal’ is anymore. Cancer has changed me, physically, emotionally and mentally. But it hasn’t all been bad: I finally learnt that I count and that it’s okay to treat myself, as well as others. I learnt that ‘I’ll do that when the kids are a bit older, when we have a bit more money, when the sun is out, when we’re retired’ might never happen. My advice would be that if you really want to do something you can. Do it! Do it now! Start doing it right now. Otherwise, a few years down the line, you might find yourself wishing you were as young as you were when you decided you were too old to do whatever it was that you wanted to do.”
  66. 131 Lesley | 49 Diagnosed with breast cancer earlier in 2015. “Following the end of my treatment I am trying to come to terms with the fact that the old me is no longer here. I am now learning to accept the mental and physical changes, which have made me the person I am now. I find that being outside, breathing in the fresh air and appreciating nature helps me when I need to pick myself up. I constantly remind myself that there was a chance that I actually might not have been here to enjoy these moments.”
  67. 133 “Three months after my chemotherapy finished, I took up running. I’ve since done a number of races and am currently training for the Royal Parks Half Marathon in October to raise money for Macmillan Cancer Support. I still wouldn’t call myself a runner (in fact, I pretty much hate it!) but I need a challenge and I will be crossing that finish line even if I’m crawling.” Philippa | 37 “Remember to focus on all the amazing things about yourself. Be your own cheerleader.” Ali | 43
  68. 135 “Work hard to get yourself as physically fit as you can. This way you gain by taking a bit of control back, from the sheer feel-good factor that exercise gives you. I walked miles in the weeks and months after my surgery, either on my own or with friends. I gained strength, lost weight, and felt fit to face the world again.” Alison | 67
  69. 137 On post-cancer support
  70. 139 Margaret | 77 Diagnosed with breast cancer in 2012 and finished treatment later that year. “Following breast cancer – the anxiety, fear, treatments, loss of hair (and personality, too) – it was hard to become ‘me’ again. One comes to dread seeing people as they don’t know what to say. However, getting together with a group of women of all ages at my local Cornish after-cancer support group, Made for Life, to share a little fun and understanding, was perfect. We could ask questions of others who had also recently been there; we could fully understand the meltdowns and anxieties, and praise every little improvement. We had pampering days, which were bliss, as well as art days, therapeutic discussions, craft days and meals out where hair loss was completely ignored. In my view, these groups play a vital role in healing. Five of us have died since January – we take nothing for granted and are heartily grateful for the time we have.”
  71. 141 Marjorie | 56 Diagnosed with breast cancer six years ago. “Having gone through a tough six years, I am thankful for life. It’s a skill to know when to ask for help and support. Just remember that there really are people out there who are willing to help.”
  72. 143 On feeling yourself again
  73. 145 “It’s hard to say how you get back to normal, because I believe that once you have had cancer you are no longer really the same person you once were. That doesn’t have to be a bad thing; you’re just a new ‘you’. One that is often so much stronger, mentally, if not physically, than before.” Sharon | 36 “I didn’t feel like me for about the last three months of treatment. I had gained a lot of weight and had water retention – I just didn’t see me when I looked in the mirror. I felt like I had lost my sparkle. When you feel good, I think you should go out. On the other hand, when you don’t feel good you should probably hibernate. Upon finishing my treatment, I felt euphoric. There was – and still is – a niggle that the cancer might come back, but it has been amazing to start to get life back on track. I’m finally starting to feel like myself again.” Natasha | 42
  74. 147 Sian | 52 Diagnosed with breast cancer in 2006. She underwent a mastectomy, chemotherapy and radiotherapy, and is in remission. “My ‘afterwards’ is that I learned to live for today and accept things for what they are. Small things became significant, such as my first haircut (it meant I had reached the stage where I had enough hair to cut!) and the end of my regular hospital appointments, a routine I had become so used to.”
  75. 149 Annette | 53 Diagnosed with early breast cancer in April 2014. She underwent a mastectomy, elected reconstructive surgery and radiotherapy. She is currently undergoing further reconstructive surgery due to complications from her first reconstruction. “I thought that after receiving my diagnosis, there would be treatment and radiotherapy, then that that would be it, but I’ve really had to look after myself since. ‘Afterwards’ for me is everything I’ve had to do to recover and all the support I’ve had to rely on for this to happen. It’s also been about getting myself into a position so that I can look to return to work and do more socially. Getting to this stage has meant more effort to eat healthily and keep my brain ticking over by learning new and inspiring things.”
  76. 151 Sally | 48 Diagnosed with breast cancer in 2012. She underwent a lumpectomy, chemotherapy, radiotherapy & had a year on Herceptin , and is now in remission. “When I was at hospital receiving all my treatment and medication, I felt that I was being looked after and protected from cancer. When it all came to an end I felt it was down to me to keep myself healthy, and I found that quite scary. To me, Afterwards has meant keeping fit andhealthy, and reading up on things that can help prevent the cancer returning. Afterwards is finding ways yourself to deal with your future. People ask if it’s good to be back to normal - they don’t realise just how fantastic ‘normal’ really is.”
  77. 153 Jeff Paula Beetlestone’s husband. “Having lived through every stage of my wife’s breast cancer - from diagnosis to remission - I’ve learned to appreciate the importance of being open about its impact. Most people are aware of the extremely gruelling impact the disease has on the body, but it seems few consider the long-term psychological impact it has afterwards. It goes without saying that you will never be the same person again, simply by the nature of the experience, so I believe it’s important to be able to talk about how you’ve changed. Only then can people around you respond to - and support - the new you.”
  78. 155 On new priorities
  79. 157 Jean Diagnosed with breast cancer in 2003. “Breast cancer opened me up to the possibility that anything can happen. For me, a workaholic singleton, this allowed me to embark in a relationship with the cute guy I met on a photography course. That cute guy is now my husband!”
  80. 159 “Time is so precious, and I use it wisely. Having cancer has made me value life a lot more than I did before. It’s made me not worry too much about the little things that used to get to me – like housework. I say live every day to the fullest, as life is such a gift.” Joanne | 50 “None of us know what is ahead of us. Being told that you have cancer is an opportunity to really work out what is important to you in your life and to adjust your priorities accordingly. Just don’t let cancer define you or your life. It has its place certainly, but it should stay in its place and not become the only thing that you think and talk about.” Alison | 67
  81. 161 Emily | 32 Diagnosed with breast cancer on 1st October 2014 when she was 29 weeks pregnant with her first child. She’s since gone through chemotherapy, a single mastectomy and a course of radiotherapy. “Life after breast cancer is different. Not dramatically life-changing different, but a subtle difference both in how you feel and how you view your world and that of those around you. Silly little problems that perhaps once consumed you, cease to matter. It’s a moment of clarity, about the importance of life and I hope I keep this. I’ve always been a glass half full kind of girl but I think I am even more so now. Life is precious and most certainly for living!”
  82. 163 Afterwards Learning from those who have lost loved ones Despite continued treatment advances and increased awareness, there are still many who sadly lose their lives to breast cancer. The following pages contain stories and words of wisdom passed on by those who have lost a loved one to breast cancer, in the hope of providing comfort and inspiration to anyone experiencing their own loss.
  83. 165 Justine Picardie | Editor-in-chief of Harper’s Bazaar UK Lost her sister, Ruth, to breast cancer just under year after she was diagnosed in 1996, aged 32. “The word afterwards is a very powerful and potent one. It can mean surviving and it can mean a very happy outcome. But it can also mean living with breast cancer and living with secondaries. It can mean a terminal diagnosis, too. For me, and the many years that have passed since my sister’s death in 1997, afterwards means honouring her and her memory. My sister Ruth feels much more than a memory, though – she feels incredibly alive to me. Not only because of her two wonderful children who will turn twenty this year, but because of the love we shared. Afterwards means love, and love doesn’t disappear, death doesn’t cause the end of love. Love continues.”
  84. 167 Laura | 25 Lost her mum to breast cancer in 2009. “Seeing my mother go through breast cancer and experiencing her strength and determination always spurs me on. It has made me into a stronger person today. I will never forget the hand-written note, which she wrote whilst in hospital, which read; ‘Hope is everything, never give up hope’. I will never forget these words and I will cherish them forever.”
  85. 169 “Ignore expectation. There is so much information out there at the moment that is built around the perception of what someone with breast cancer goes through, but it seldom describes the real personal experience. Your cancer is yours and you will deal with it the way you see fit, not the way others expect you to or the stereotypical way that people presume. It will bring about the rawest of emotion in you and in your partner, but in the midst of that there will be smiles and there will be moments in the experience that you or your partner will treasure.” “Perhaps an odd suggestion, but my wife began to refer to her cancer as ‘Larry The Lump’. It put a smile in a conversation and then it ceased to be an elephant in the room. Might not work for everyone but it made my wife giggle.” Pete | 35
  86. 171 Brenda | 68 Lost her daughter-in-law to breast cancer in June 2015. “My son and daughter-in-law were very open with their three children about breast cancer. They explained how poorly mummy was and the children were very upset, but it was a top priority for them that their lives stayed as normal as possible. When they came home from school, my daughter-in-law loved to hear what they’d been up to and their stories always put a smile on her face, even in the most difficult of circumstances.”
  87. 173 Emma | 31 Lost her younger sister to breast cancer when she was just 28. Her sister was diagnosed in 2011 and again in 2014. “I think it’s important to try and appreciate that this is a life-long situation for so many people, whether they’re undergoing treatment or dealing with a loss. Everyone asks what they can do to help, and it’s easy to dip in and out – send a text or an email checking in – but sometimes those well-meant messages from people left me feeling even more isolated. It felt like they were saying a quick hello out of obligation and then going back to their lives – all it did was remind me how much my life had changed. I felt left behind for a very long time, and I’ve lost friendships with people who didn’t, or perhaps couldn’t, appreciate the magnitude of things. But on the plus side, I’ve found deeper friendships in unexpected places, with people who do understand. Those people have been a hundred times more helpful than they realise, just by allowing me the space to talk freely. The most important thing for me was learning that it’s okay to talk – whether it’s about cancer or bereavement – don’t let it be an elephant in the room. People are so wary of mentioning it in case they upset you or remind you about things, but for me it was worse when people avoided the subject or tried to divert me away from it. Glossing over terrible things doesn’t help someone suffering – it just tells them that they should look elsewhere for support. To support someone afterwards, you really have to be willing to be in it with them and be a reliable presence.”
  88. 175 Becky | 46 Lost her mother, 53 to breast cancer in 1993. “I felt angry and upset that my mum was taken so young, at only 53 it seemed so unfair. Throughout her battle, she always stayed positive, and for this I have to applaud her. Living without my mum at such a young age has been hard and I feel sad that my children will never really know her. I do think it’s important to keep her alive in their lives and I try and talk about her with them and tell them her stories. She was a vibrant character and is missed every day but never forgotten. Grief is one of the hardest things I have ever had to deal with and more so because you can only really deal with it alone, it is personal. It’s important to allow people to grieve, no matter how long it takes. Losing a loved one is the hardest pain to deal with, everyone is different in how they deal with it and to achieve some kind of normality takes time.”
  89. 177 Katie | 25 Lost her mum to breast cancer in 2011. She had been battling it for eight years and had fought into remission on four occasions. “Remaining strong for my mother was important to her. Even after she had passed, we continued to celebrate her life. She was an avid shoe collector so we asked the ladies at her funeral to wear high heels, which we know our mother would have loved. Being there for the rest of the family has helped us get through this. It is such a relief to have people to talk to, there is nothing worse then keeping it all in.”
  90. 179 Sue | 62 Lost her mother and best friend to breast cancer. “It was important to always remain optimistic so it wasn’t all doom and gloom. Treat anyone going through breast cancer the same way as you would have done previously and talk to them about the same things you would usually. I always reminded my mum and best friend that I was there for them if they needed me for anything at all.”
  91. 181 Sam | 47 Lost her mum to breast cancer when she was 24. “The thing that used to cheer my mum up the most was a good gossip and a cup of tea. Even when she was very ill in hospital, she would love to see her colleagues and hear what the latest office gossip was to feel normal and to still feel connected to people.”
  92. 183 Chyrell | 38 Has the BRCA2 gene and is having an elective mastectomy. She lost her mum to breast cancer and her mum’s four sisters have also had the disease. “My auntie would always say, ‘As long as you’ve got your lipstick on and your chin up, you’ll be fine.’”
  93. 185 Bob Lost his wife Paula in March 2015 to breast cancer. Paula founded Relay for Life, Aylesbury and raised £330,000 in her lifetime for Cancer Research. “Friends and family are an enormous source of comfort after losing someone close, especially young grandchildren. Being with them and seeing their lust for life just makes you realise that life does go on and it is impossible to be totally unhappy when surrounded by children.”
  94. 187 Sarah Lost her mum Paula in March 2015 after suffering with breast cancer for many years. “Although losing mum is hard, I’ve tried to turn it into an opportunity to look at my life and make changes for the better, to reassess what really matters to me and how I want my life to be - it’s exactly what mum did when she was first diagnosed. It has given me a new love of life and better perspective to focus on the things that really matter and bring us joy.”
  95. 189 Helen Lost her mum Paula in March 2015 after suffering with breast cancer for many years. “Having things to focus on and look forward to has helped me cope – such as something fun with friends at the weekend or a lovely family holiday. Being able to make plans ahead of time was something mum did throughout her illness and it’s something I now make a conscious effort to do. My family and friends have been an invaluable support and my children make the tough days brighter. My advice to anyone in a similar situation is to reach out amongst your support network, accept the offers of help and take time out for yourself when you need it. Cry and scream when you need to just don’t bottle your emotions up! Also, picture your loved one in their happy place, pain free and relaxed.”
  96. 191 “Don’t let cancer tell you what to do. You are not defined by your diagnosis. You are you, not cancer, just as I am not defined by the fact that I am that young guy who lost his wife to cancer. Don’t lose sight of who you are.” Pete | 35
  97. 193 Elizabeth Hurley Global Ambassador for The BCA Campaign
  98. 195 “My beloved grandmother died of breast cancer. When I first met Evelyn Lauder, founder of the Breast Cancer Awareness Campaign and the Breast Cancer Research Foundation in 1995, she told me that women all over the world were dying of breast cancer but no one was talking about it. Breast cancer was only whispered about. This struck such a nerve because my grandmother didn’t tell anyone about the lump she’d found in her breast for a long time because she was so scared; when she was finally diagnosed, the disease was advanced. After her death, I wanted to do my part to honour her, and help spread the message that catching the disease early can hugely increase the chance of successful treatment, and that’s why I’ve supported The Breast Cancer Awareness Campaign since my first meeting with Evelyn. I hope people everywhere learn just how impactful each and every action can truly be in bringing us closer to a world without breast cancer. My action is to get a mammogram each year on my birthday and encourage women around the world to do the same.” Elizabeth Hurley
  99. 197 Epilogue Paula Beetlestone’s hints and tips Paula’s advice to those who have been diagnosed and are starting treatment are to: 1) be yourself 2) look after yourself 3) let people help you
  100. 199 The little things that made a big difference to Paula’s journey through breast cancer include: • A simple text message from family and friends • A card arriving in hospital, or at home, wishing me well and sharing news of everyday life • Being the recipient of beautiful flowers • A friend dropping by for a quick chat, but only visiting if they were 100 percent cold free, because chemotherapy makes the immune system so weak • Gifts of simple plain food, such as a loaf of bread just after a dose of chemo, when food was a necessity but a chore, or when things get better, a home made Bakewell tart, or a basic dahl
  101. 201 • Kind gifts of essential cosmetics and a few luxuries. “When the chemo turns skin grey, and makes your hair fall out, a gentle foundation, eye and brow liner a light brush of blusher can help you walk out the house and feel strong” • The hospital and The Dimbleby Cancer Care Charity who offered six complimentary sessions of reflexology during my chemo • My sister’s care and help whenever I needed it • My husband being at every consultation, and supporting me at work • A couple of kind friends ran a sponsored marathon, raising funds for us to have a carefree holiday at the end of treatment • Knowing that our son’s school (who were fully informed) was keeping an eye out and caring for our son • Colleagues and clients being sensitive to my ability to work and not being put off by the days when treatment took over • Box sets of gripping TV series and films
  102. 203 Glossary of terms Here is a glossary of medical words and terms to help you feel better informed about breast cancer, taken from Breast Cancer Care’s online glossary:
  103. 205 Advanced breast cancer Adverse effect Biopsy Benign Breast cancer that has spread beyond the breast and the lymph nodes under the arm to other parts of the body, also known as secondary, stage 4 or metastatic breast cancer. An undesired or harmful effect resulting from treatment. Removal of tissue to be looked at under a microscope. Not cancer BRCA1 (Breast Cancer1) BRCA2 (Breast Cancer2) An altered or faulty gene passed on at birth from either parent that causes a permanent change in a person’s DNA. People who inherit an altered BRCA1 gene have a much higher risk of developing breast cancer and some other cancers compared with the general population. An altered or faulty gene passed on at birth from either parent that causes a permanent change in a person’s DNA. People who inherit an altered BRCA2 gene have a much higher risk of developing breast cancer and some other cancers compared with the general population.
  104. 207 Cancer Chemotherapy Complementary therapies Chronic A group of diseases in which malignant cells grow out of control and may spread to other parts of the body. Treatment aimed at destroying cancer cells using anti-cancer drugs, which are also called cytotoxic drugs. A varied group of therapies used alongside conventional medical treatments. An illness, disease or condition that is long lasting and generally slow to progress. Grade Hormone therapy Invasive cancer The system used to classify cancer cells according to how different they are to normal breast cells and how quickly they are growing. Use of drugs to block the effect of hormones on cancer cells; only used if the breast cancer is hormone receptor positive. Has the potential to spread to other parts of the body.
  105. 209 Lumpectomy Lymph nodes Malignant An operation to remove an area of breast tissue with or without a margin of healthy tissue; in breast cancer may also be called wide local excision or breast- conserving surgery. Also known as lymph glands. Small oval- shaped structures found in clusters throughout the lymphatic system, for example under the arm. In cancer, uncontrolled growth. Invasive cells that have the potential to spread elsewhere in the body. Mammogram Mastectomy Metastases A breast x-ray. Removal of all the breast tissue including the nipple area. Cancer cells that have spread from the first cancer site and grown elsewhere in the body, for example the bones. Also called mets, advanced cancer, secondary cancer or secondaries.
  106. 211 Oncologist Primary breast cancer Prognosis A doctor who specialises in cancer (oncology). An oncologist may be a medical oncologist (cancer drugs specialist) or clinical oncologist (radiotherapy and/or cancer drugs specialist). Breast cancer that has not spread beyond the breast or the lymph nodes (lymph glands) under the arm (axilla). The likely outlook of a disease, whether it is likely to be cured and the person’s life expectancy. Radiotherapy Reconstruction (breast) surgery Recurrence Risk factor The use of high energy x-rays to destroy cancer cells. Rebuilds breast shape after all or part of the breast has been removed. When a disease or condition returns. There are several types of breast cancer recurrence. In medicine, something that increases a person’s chance of developing an illness such as cancer.
  107. 213 Secondary breast cancer Tumour When breast cancer cells spread from the first (primary) tumour in the breast through the lymphatic or blood system to other parts of the body. Also called metastases, advanced breast cancer, secondaries or stage 4 breast cancer. An overgrowth of cells forming a lump; may be benign (not cancer) or cancer.
  108. 215 The Estée Lauder Companies’ Breast Cancer Awareness (BCA) Campaign was founded in 1992 by the late Mrs. Evelyn H. Lauder with the launch of the Pink Ribbon, today the universal symbol for breast health. Over the past two decades, The Estée Lauder Companies’ Breast Cancer Awareness (BCA) Campaign has brought together women, men and families in more than 70 countries to help defeat breast cancer in their own unique ways—from sharing their powerful stories about their experiences with the disease to participating in fundraising and awareness activities. Together, these actions have sparked a global movement, enhancing awareness and raising more than $58 million to support global research, education and medical services. The 2015 BCA Campaign celebrates all the things we do, big or small, in the fight against breast cancer and unites and empowers the global community to take action throughout the year. Action can mean different things to different people. Whether a person proudly wears a Pink Ribbon in honour of a friend, reminds a loved one to schedule her yearly appointments, donates to research or volunteers, every effort truly has meaning and when we join together, we can achieve significantly greater impact. Founder and guiding spirit, the late Evelyn H. Lauder, always said: “It really is something that can never be done by any one person; it has to be done by a group.”
  109. 217 Printer credit: Paper supplied by Antalis and Printing Services supplied by Mayfield Press. Proud to support The Estée Lauder Companies’ Breast Cancer Awareness Campaign.
  110. 220 Supporting education and medical research. Join us at BCAcampaign.com #BCAstrength
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