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New resources to help staff caring for
residents at the end of life

Tieman JJ, Dicker R, Hayman S
PCNSW Nov 2012
RAC and End of Life
• Residential aged care in Australia
  – 185,000 places
  – 2,760 facilities
  – 50,000 deaths in 2010/11
• Policy Emphasis
  – Living Better, Living Longer
  – National Palliative Care Strategy
  – Dementia as priority health area
• Challenges in care
  – Comorbidities (Dementia)
  – Resourcing and workforce
Why a Hub?
• Hubs
   – Discrete set of content and resources reflect specific
     context of a particular group

• Recognises RAC engagement in EOL care
• Relationship to evidence
• Online (24/7)
• Success of previous hubs
   – GP, Nurses
Development Processes
•   Needs
•   Partners
•   Content Development
•   Pre-Post Marketing
•   Hub Production
•   Evaluation
Partnerships
• Partners
  –   National Advisory Group
  –   Working Group
  –   RAC Search Filter Group
  –   Feedback Providers
  –   Reviewers

• Ensure clinical/functional utility
Issues in development
• Size and expectations of the sector
• Diversity of potential users
• Acknowledging RAC environment and
  areas of expertise
• Evidence based practice in this context
• Starting not finishing
Hub Content
•   People working in RAC;
•   Care Issues;
•   Facility and Quality Issues;
•   Recognising Resident’s Concerns;
•   Communication;
•   For Residents and Families;
•   Resources and Tools; and
•   News and Events
RAC Search Filter
• RAC Search Filter Advisory Group
• Development Process
  –   Gold Standard
  –   Term Selection
  –   Search Testing
  –   Post hoc relevance

• PubMed Translation
  – Open access, free to use
  – Hyperlinking for one click searching
Building Awareness
•   Project News during development
•   Invitations to participate/feedback
•   Associated work/Cross promotion
•   Launch
    – Ambassador for Ageing
      (Also Minister for Ageing)
    – Held in a RACF
    – Release day announcements
    – Launch pack
Supporting engagement
•   Communications strategy
•   RAC Promotional materials
•   DVDs
•   My Learning module
•   RAC newsletter
Conclusion
• Hub recognises role and realities of
  RAC and EoL

• Processes involved
  working with RAC

• Encouraging access
  and learning
CareSearch would like to thank the many people
who contribute their time and expertise to the project including
members of the National Advisory Group and the Knowledge
Network Management Group.
CareSearch is funded by the Australian Government
Department of Health and Ageing.
                 www.caresearch.com.au

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New resources to help staff caring for residents at the end of life

  • 1. New resources to help staff caring for residents at the end of life Tieman JJ, Dicker R, Hayman S PCNSW Nov 2012
  • 2. RAC and End of Life • Residential aged care in Australia – 185,000 places – 2,760 facilities – 50,000 deaths in 2010/11 • Policy Emphasis – Living Better, Living Longer – National Palliative Care Strategy – Dementia as priority health area • Challenges in care – Comorbidities (Dementia) – Resourcing and workforce
  • 3. Why a Hub? • Hubs – Discrete set of content and resources reflect specific context of a particular group • Recognises RAC engagement in EOL care • Relationship to evidence • Online (24/7) • Success of previous hubs – GP, Nurses
  • 4. Development Processes • Needs • Partners • Content Development • Pre-Post Marketing • Hub Production • Evaluation
  • 5. Partnerships • Partners – National Advisory Group – Working Group – RAC Search Filter Group – Feedback Providers – Reviewers • Ensure clinical/functional utility
  • 6. Issues in development • Size and expectations of the sector • Diversity of potential users • Acknowledging RAC environment and areas of expertise • Evidence based practice in this context • Starting not finishing
  • 7.
  • 8. Hub Content • People working in RAC; • Care Issues; • Facility and Quality Issues; • Recognising Resident’s Concerns; • Communication; • For Residents and Families; • Resources and Tools; and • News and Events
  • 9.
  • 10.
  • 11. RAC Search Filter • RAC Search Filter Advisory Group • Development Process – Gold Standard – Term Selection – Search Testing – Post hoc relevance • PubMed Translation – Open access, free to use – Hyperlinking for one click searching
  • 12.
  • 13. Building Awareness • Project News during development • Invitations to participate/feedback • Associated work/Cross promotion • Launch – Ambassador for Ageing (Also Minister for Ageing) – Held in a RACF – Release day announcements – Launch pack
  • 14. Supporting engagement • Communications strategy • RAC Promotional materials • DVDs • My Learning module • RAC newsletter
  • 15. Conclusion • Hub recognises role and realities of RAC and EoL • Processes involved working with RAC • Encouraging access and learning
  • 16. CareSearch would like to thank the many people who contribute their time and expertise to the project including members of the National Advisory Group and the Knowledge Network Management Group. CareSearch is funded by the Australian Government Department of Health and Ageing. www.caresearch.com.au