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Improving Decision-Making in Pre-birth Assessment: The OxPUP Project

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Improving Decision-Making in Pre-birth Assessment: The OxPUP Project

  1. 1. Improving Decision-Making in Pre-birth Assessment: The OxPUP Project Jane Barlow Professor or Public Health in the Early Years
  2. 2.  What are the risks in pregnancy?  OXPUP: Children’s Social Care Perinatal pathway  Results of pilot study Structure of Paper
  3. 3. Parenting begins in pregnancy… Parenting begins in pregnancy with:  Prenatal behaviours that are designed to protect and promote the wellbeing of the foetus;  A process of ‘bonding’ with the foetus that begins in the second trimester.
  4. 4. PHYSIOLOGICAL Stress or Teratogens Programming of foetus HPA axis/neurological damage Compromised physiological/emotio nal and behavioural functioning PSYCHOLOGICAL/BE HAVIOURAL Reflective Function in pregnancy Atypical parenting Behaviours Disorganised Attachment Pathways in Pregnancy
  5. 5. OxPUP: A Prebirth Assessment Pathway
  6. 6. OXPUP - Care Pathway ANTENATAL  Identify high risk families during pregnancy – pre-birth assessments at 18 weeks  PuP Intervention begins ante-natally for 3 months BIRTH  Assess parent-infant interaction; mother-baby foster placements and concurrrent foster care where necessary NEXT 8 MONTHS  Continue time-limited intervention and clear goals to be achieved; re-assess 2, 4, 6 months  Remove infants where there is insufficient improvement before 8 months
  7. 7. PUP Programme  Evidence-based programme with high risk families – eg. Families referred from child protection services (Harnett and Dawe 2008) parental substance abuse (Dawe and Harnett 2012; 2007) women leaving prison (Frye & Dawe 2008)  PUP is underpinned by an ecological model of child development and targets multiple domains of family functioning, including the psychological functioning of individuals in the family, parent–child relationships, and social contextual factors  Incorporates ‘mindfulness’ skills that are aimed at improving parental affect regulation and RF
  8. 8. PUP evaluation  RCT with substance abusing parents of children aged 2- 8 years (Dawe and Harnett 2007)  Compared PUP with standard parenting programme  Significant reductions in parental stress; methadone dose and child abuse potential (significant worsening in the child abuse potential of parents receiving standard care); improved child behaviour problems
  9. 9. PUP  Contains 12 modules, delivered across 20 calendar weeks; sessions in home; 1-2 hours; parent workbook  The selection and delivery of the modules is determined by the assessment  Additional case management occurs outside the treatment session, according to individual family need (e.g., housing, legal advice, school intervention)  Day-to-day issues such as housing and finances provide a therapeutic opportunity to put coping skills into practise in a mindful and emotionally contained manner
  10. 10. Capacity to Change  Step 1: complete a cross-sectional assessment of the family’s current functioning using a range of standardised tools (Time 1)  Step 2: define and agree measurable goals with the family that address their unique situation specifying what needs to change  Step 3: delivery of evidence-based intervention (PUP)  Step 4: re-administer the standardised tools that were used previously (Time 2)
  11. 11. PUP assessment  Comprehensive assessment and individual case formulation conducted collaboratively with the family  Self-report measures supported by a purpose built data base that is automatically scored and provides clinical feedback on all key measures  Specific targets for change are identified during the assessment, as part of an assessment of capacity to change; which then become the focus of treatment.  12 modules - each module comprises a theme that continues throughout treatment.
  12. 12. Ante-natal Assessment Tools  Pre-birth assessment Standard pre-birth assessment  3 monthly assessment of functioning Mental health (DASS); Life events Scale (LES); Drug and Alcohol screen; Domestic abuse screen (SARA)  Reflective function – once during prenatal and once postnatal Pregnancy Interview and Parent Development Interview (PDI)
  13. 13. Postnatal Assessment tools  Parent-infant interaction – 3 minute videoclip (CARE-Index)  Home environment (HOME Inventory)  Mothers feelings about relationship with baby (Mother-Object relationship Scale)  Parenting Stress – Parenting Stress Index (PSI)
  14. 14. Level of expected outcome Goal 1 Decision making Goal 2 Self esteem Goal 3 Isolation Review date: Much more than expected (+2) Makes plans, follows through, modifies if needed, and reaches goal Expresses realistic positive feelings about self Actively participates in group or social activities More than expected (+1) Makes plans, follows through without assistance unless plan needs changing Expresses more positive than negative feelings about self Attends activities, sometimes initiates contact with others Most likely/expected outcome (0) Makes plans and follows through with assistance/reminders Expresses equally both positive and negative feelings about self Leaves house and attends community centre. Responds if approached Less than expected outcome (-1) Makes plans but does not take any action to follow through Expresses more negative than positive feelings about self Leaves house occasionally, no social contact Much less than expected Can consider alternatives but doesn't decide on a plan Expresses only negative feelings about self Spends most of time in house except for formal appointments
  15. 15. Cases to date  CPT has taken 26 referrals. 3 pregnancies ended pre-term. 23 families have engaged fully with the programme  CPT are case holders and have managed cases through from referral to final hearing (in legal cases) and into the community for those families who have remained intact  6 cases have required legal proceedings - ICO applications made and granted at birth in all cases  Early full parenting assessments have been presented to Court throughout proceedings by CPT team rather than this being seen as a separate task  17 families have been supported to care for their children at home with on-going PUP intervention from CPT as well as appropriate local support services
  16. 16. CASE STUDY 1  Mum 24 self referred 14 weeks pregnant requesting help to keep her baby  6 previous pregnancy’s 1st at age 14: 1 miscarriage; 2 abortions; 1 removed at 18 months due to chronic neglect and non-accidental injury; 2 removed at birth due to high-risk lifestyle  4 fathers to the children all much older; all highly aggressive and all with drug/alcohol dependencies  Left area of her birth and severed links with family, peer and previous abusive relationships  Relocated and reporting at point of referral to be in a loving relationship 17
  17. 17. INTERVENTION  Twice weekly sessions over period of 6 month  View of self as parent: very emotional journey to explore her own childhood traumas and to help her understand how to love and be a parent  Emotional Regulation: to help her to move away from guilt and blame; journey through denial and recognition and into responsibility in order to begin to forgive herself  Connecting to your Child: helping her to view the world from the eyes of her daughter; using her daughters cues and behaviours to increase parental sensitivity; video feedback  Building Relationships: to understand not just needs of herself and her baby but how to be a good partner, and what she should expect and accept from her partners 18
  18. 18. OUTCOME  Daughter remains in her parents care  Connection between mother and daughter is beautiful; mum is sensitive, caring and in total awe, not just of her child, but her relationship with her  Mum expresses that she cannot believe how good it feels to be allowed to love and be loved back  Mum and dad continue to parent together in a loving and supportive relationship 19
  19. 19. CASE STUDY 2  Mum 22 in relationship with abusive man aged 24  Extensive significant childhood trauma  Parents relationship abusive; mum and siblings chronically neglected and subjected to long-term emotional abuse  Mum continued into adulthood with no self-care skills; dirty, unhealthy diet, and emotionally withdrawn  1st Child removed due to neglect 20
  20. 20. INTERVENTION  Minimum 3 x a week over a 20 week period  Independent housing secured, benefits reviewed and put in place  Life Skills: Personal Hygiene/self-care skills promoted to increase self-esteem  Emotional Regulation: and support to access GP for low mood  Relationship module: to help her to address dependency on abuser identify and avoid abuse  View of self as Parent: to look at positive parenting styles and identify the kind of parent she would like to be  And much more… 21
  21. 21. OUTCOME  Two weeks before birth of child she opted to leave the accommodation and return to the abusive relationship  Within days presented as dirty and unkempt  Two admissions to A&E following fainting episodes due to hunger  Failure to attend appropriate ante-natal care  Low Iron, urine infections, weight loss and other health issues ignored, placing self and unborn child at risk  Interim Care Order granted at birth and baby removed from mothers care 22
  22. 22. Care Proceedings  Care proceedings for 6 CPT legal cases have all been completed within 26 weeks; non-CPT cases all mostly outside of the 26 week requirement  Foster care costs for CPT cases are significantly less than non-CPT cases because permanency planning for CPT has been achieved more quickly - CPT cases is £58,490; non-CPT cases cases is £99,272  Court costs significantly less - CPT cases is £54,874; non CPT cases is £91,119
  23. 23. Risk Assessment Prebirth: A Practice Model NSPCC DfE
  24. 24. Publications  Barlow J, Hall D (2012). Systematic Review of Models of analysing Significant Harm. London: DfE.  Barlow J, Scott J (2010). Safeguarding in the 21st Century: Where to Now? Dartington: Research in Practice.  Ward et al (2010). Infants suffering, or likely to suffer, significant harm: A prospective longitudinal study. London: DfE.  Barlow J, Schrader-McMillan A (2010). Safeguarding Children from Emotional Abuse: What Works? London: Jessica Kingsley.

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