SlideShare a Scribd company logo
1 of 32
Dr Paul Wong
Research Integrity Advisor Data
Management Workshop
Senior Data Management Specialist
31 March 2017 Brisbane QUT
The Australian National Data Service (ANDS) makes
Australia’s research data assets more valuable for
researchers, research institutions and the nation.
Partnering Australian
research organisations
and co-funded 294 data
projects, totally $54M
Research Data Australia
Cite My Data / DOIs minting
Vocabulary service etc.
In 2015, conducted over
100 workshops, forums,
and webinars with over
4000 participants,
developed online
resources e.g. guides,
videos etc.
• 40+ guides organised
around different topics
• Content is a moving
target – changing
policy landscape, new
practices etc.
• Designed as a
community resource
• If you see gaps, we
want your help to
make them better
http://www.ands.org.au/guides
• A dedicated set of
webpages on data
management
• A community resource
• If you see gaps, we
want your help to
make them better
http://www.ands.org.au/working-with-data/data-management
https://projects.ands.org.au/policy.php
Research data: as input & output
Research data may include:
 Laboratory and field notes
 Raw experimental data
 Analysed data
 Simulations and software
 Databases
 Clinical data, including clinical
records
 Questionnaires/surveys
 Images and photographs
 Audio-visual materials
Moynihan's field notes,
Panama, 1958 – CC BY
https://flic.kr/p/dmXHkJ
Screen capture of “Computer simulation of March 22,
2014 landslide event near Oso, Washington, by David
L. George and Richard M. Iverson, USGS”
http://youtu.be/2NzHCOhKr7g CC BY
Creative arts research data
Research data in the creative arts may include:
 Audio-visual recordings of a creative work
 Visual diaries
 Journals
 Drawings
 Photographs
 Manuscripts
 Musical annotations
 3D models
Research Data: a Broad Church
Hand written letters
Images or photos
Soil samples
Tissue samples
Archeological dig sites
…..
Scanned & OCR version
Scanned digital version
Analysed result of samples
Analysed result of samples
3D models of the dig site
…..
Physical Digital
ANDS’ primary focus is digital data
Why Bother?
Why managing (digital) research data?
In fact, why bother managing anything?
• Prevent bad things from happening.
• Enable good things to happen.
Data and Research Integrity
Nature 533, 452–454 (26 May 2016) doi:10.1038/533452a. Reprint with permission © 2016 Macmillan
Data and Research Integrity
“The Availability of Research Data Declines Rapidly with Article Age”, Vine
et al, Current Biology, Volume 24, Issue 1, p94–97, 6 January 2014
• “For papers where authors reported the status of their data, the odds
of the data being extant decreased by 17% per year...”
• “Responses included authors being sure that the data were lost (e.g.,
on a stolen computer) or thinking that they might be stored in some
distant location (e.g., their parent’s attic) to authors having some
degree of certainty that the data are on a Zip or floppy disk in their
possession but no longer having the appropriate hardware to access
it.”
Make Data Awesome
Open Research Data Collection Showcase
http://www.ands.org.au/partners-and-
communities/projects/open-research-data-collection
#Dataimpact stories
http://www.ands.org.au/news-and-events/dataimpact
The companion case studies report of the Watt review
https://docs.education.gov.au/system/files/doc/other/20
151202_case_studies_volume_nc_0.pdf
Data Management in Practice
• One of ANDS’ guides to outline, in an easy to understand
practical framework, how research data can be managed
effectively in an institutional setting.
• 15 key points – with short descriptions, 7 pages long.
• Incorporating project management best practice
• Shared responsibilities model
• Continual data curation approach
• Road tested with librarians, data managers, researchers
and research support staff
The Current Thinking: FAIR
Findable, Accessible, Interoperable, Reusable
15 principles to ensure research data is FAIR
Mark D. Wilkinson et al. The FAIR Guiding Principles for
scientific data management and stewardship, Scientific
Data (2016). DOI: 10.1038/sdata.2016.18
“FAIRness is a prerequisite for proper data management and
data stewardship”
http://www.ands.org.au/__data/assets/pdf_file/0009/394056/research-data-management-in-practice.pdf
Continual data curation across domains
Data Curation as Documentation
Assigning metadata (structured data about the data)
• Who collected the data?
• Who funded the research project?
• When (and where) was it collected?
• Instruments and setting for collecting the data?
• Title of the dataset
• Methods used to process the data
• Etc. etc.
Light Touch Heavy Duty
Ecological
Geographic
Biological
Metadata
Structured
Detailed
Machine readable
Structured
Minimal
Human readable
What is Data Citation?
Data citation refers to the practice of providing a reference to
data in the same way as researchers routinely provide a
bibliographic reference to outputs such as journal articles,
reports and conference papers. Citing data is now recognised
as one of the key practices leading to recognition of data as a
primary research output.
http://www.ands.org.au/working-with-data/citation-and-
identifiers/data-citation
Data Citation Standard
A standard citation would include the following elements:
Author(s) (Year): Title. Publisher(s). DOI (if used)
Hanigan, Ivan (2012): Monthly drought data for Australia 1890-2008 using the
Hutchinson Drought Index. The Australian National University Australian Data
Archive. http://doi.org/10.4225/13/50BBFD7E6727A
Alternatively,
Author(s) (Year): Title. Version. Publisher(s). ResourceType. Identifier
Bradford, Matt; Murphy, Helen; Ford, Andrew; Hogan, Dominic; Metcalfe, Dan (2014):
CSIRO Permanent Rainforest Plots of North Queensland. v2. CSIRO. Data Collection.
http://doi.org/10.4225/08/53C4CC1D94DA0
http://www.ands.org.au/working-with-data/citation-and-identifiers/data-citation
Institutional Policy and
Procedures
Support services - people and
other means of providing
advice and support
IT Infrastructure - the
hardware, software and other
facilities
Metadata management - so
that data records can be
meaningful and fit for purpose
Institutional Data
Management
Framework
Pre Research
Data Management Plan
• data organisation and storage;
• metadata standards and guidelines;
• backups;
• archiving for long-term preservation;
• version control and derived data products;
• data sharing or publishing intentions, including licensing;
• ensuring security of confidential data;
• data synchronisation; and
• governance, roles and responsibilities.
Pre Research
Storage requirements may vary across domains
Publishing and Sharing Data
Metadata Research Data
Open Open
Open Closed
Closed Open
Closed Closed
Publishing and Sharing data ≠ Open Access to data
“Open” and “Closed” are relative concepts.
“Closed” ≈ conditional access based on individual permission
“Closed” ≈ conditional access based on roles
Post Research
Ethics Clearance and Data Access: A Case Study
Data Managing and Sharing Research Data: A Guide to Good Practice, SAGE 2014
https://uk.sagepub.com/en-gb/eur/managing-and-sharing-research-
data/book240297
https://commons.wikimedia.org/wiki/File%3AFoot_and_Mouth_Disease_Map_-_geograph.org.uk_-_564718.jpg
Colin Smith [CC BY-SA 2.0] (http://creativecommons.org/licenses/by-sa/2.0)], via Wikimedia Commons from Wikimedia Commons)
Ethics Clearance and Data Access: A Case Study
Health and Social Consequences of the Foot and Mouth Disease Epidemic in North Cumbria, 2001-
2003
(M. Mort Lancaster University 2006, funded by the Department of Health UK, Study Number 5407)
http://ukdataservice.ac.uk/use-data/guides/dataset/foot-and-mouth
http://discover.ukdataservice.ac.uk/catalogue/?sn=5407
• 54 local people were recruited to write weekly diaries over 18 months to describe their lives
and the recovery they observed around the area
• The study was supplemented with interviews and focus group discussions that included other
stakeholders
• The study obtained consent from participants before the research but did not get consent for
sharing and archiving data
• The research team and the Department of Health wanted to share and archive the data after
the completion of the research.
• Had to get consent retrospectively and needed expert advice from copyright specialists
http://www.ands.org.au/__data/assets/pdf_file/0009/394056/research-data-management-in-practice.pdf
The framework
treats DM as a
set of coordinated
activities to
preserve the
evidence base of
research findings
and to make the
evidence base
more accessible
and reusable in
the long run.
Wise Advise
https://nicolahemmings.wordpress.com/2016/04/05/mistakes-ive-made-as-
an-early-career-researcher/
Mistakes I’ve made as an early career researcher
APRIL 5, 2016
Nicola Hemmings (post-doc, University of Sheffield)
Failing to organise my data adequately (circa 2007).
Prepare your datasets like you would if you were giving them to a stranger
who knew nothing about them. Label, annotate and meticulously file your R
scripts. Incorporate read-me files into everything and write them for the
monkey that will be you in five years, when you return to your data and/or
analyses for some unforeseen but vitally important reason. Don’t get this
wrong. You will regret it.
Special Healthy Data Year
‘Sharing health-y data: challenges and solutions’ workshops ANDS
ran in all capital cities in 2016-2017
Attended by researchers, and staff from the library, research office
and ethics office
Topics covered
 The data sharing landscape: funders and publishers
 Data de-identification
 Ethics and informed consent
 Licensing data
 How research data can be published (mediated
access, metadata, repositories)
Special Healthy Data Year
Coming up:
Health and Medical Data: 3 Short Lunchtime Bites Webinars in May
2017
Workshops with Health Libraries Australia: 10 medical and health
research data Things 'train the trainer' workshops. 31 May in
Brisbane, 13 June in Melbourne, 14 July in Perth. For health
librarians.
Senior Data Management Specialist
Paul.Wong@ands.org.au
+61 2 6125 0586
Dr Paul Wong
With the exception of logos, third party images or where otherwise indicated, this
work is licensed under the Creative Commons 4.0 International Attribution
Licence.
ANDS is supported by the Australian Government through the
National Collaborative Research Infrastructure Strategy Program.
Monash University leads the partnership with the Australian
National University and CSIRO.

More Related Content

What's hot

RDAP14: It’s a Real World: Developing Preservation Policy for Dryad
RDAP14: It’s a Real World: Developing Preservation Policy for DryadRDAP14: It’s a Real World: Developing Preservation Policy for Dryad
RDAP14: It’s a Real World: Developing Preservation Policy for DryadASIS&T
 
RDAP14: Collaboration and tension between institutions and units providing da...
RDAP14: Collaboration and tension between institutions and units providing da...RDAP14: Collaboration and tension between institutions and units providing da...
RDAP14: Collaboration and tension between institutions and units providing da...ASIS&T
 
Jeff Haywood - Research Integrity: Institutional Responsibility
Jeff Haywood - Research Integrity: Institutional ResponsibilityJeff Haywood - Research Integrity: Institutional Responsibility
Jeff Haywood - Research Integrity: Institutional ResponsibilityJisc
 
Research Data Management in practice
Research Data Management in practiceResearch Data Management in practice
Research Data Management in practiceARDC
 
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...OAbooks
 
RDAP14: OSTP Panel NIH’s Update Public Access
RDAP14: OSTP Panel NIH’s Update Public Access RDAP14: OSTP Panel NIH’s Update Public Access
RDAP14: OSTP Panel NIH’s Update Public Access ASIS&T
 
The Data Management Ecosystem
The Data Management EcosystemThe Data Management Ecosystem
The Data Management EcosystemJohn Kunze
 
RDAP 15 Local ICPSR Data Curation Workshop Pilot Project
RDAP 15 Local ICPSR Data Curation Workshop Pilot ProjectRDAP 15 Local ICPSR Data Curation Workshop Pilot Project
RDAP 15 Local ICPSR Data Curation Workshop Pilot ProjectASIS&T
 
Re tooling for data management-support
Re tooling for data management-supportRe tooling for data management-support
Re tooling for data management-supportSherry Lake
 
No more waiting! Tools that work Today to reveal dataset use
No more waiting!  Tools that work Today to reveal dataset useNo more waiting!  Tools that work Today to reveal dataset use
No more waiting! Tools that work Today to reveal dataset useHeather Piwowar
 
Practical and Conceptual Considerations of Research Object Preservation
Practical and Conceptual Considerations of Research Object PreservationPractical and Conceptual Considerations of Research Object Preservation
Practical and Conceptual Considerations of Research Object PreservationSEAD
 
RDAP13 Elizabeth Moss: The impact of data reuse
RDAP13 Elizabeth Moss: The impact of data reuseRDAP13 Elizabeth Moss: The impact of data reuse
RDAP13 Elizabeth Moss: The impact of data reuseASIS&T
 
Introduction to Research Data Management at UWA
Introduction to Research Data Management at UWAIntroduction to Research Data Management at UWA
Introduction to Research Data Management at UWAKatina Toufexis
 
Presentation to the UM Library Emergent Research Series
Presentation to the UM Library Emergent Research SeriesPresentation to the UM Library Emergent Research Series
Presentation to the UM Library Emergent Research SeriesSEAD
 

What's hot (20)

RDAP14: It’s a Real World: Developing Preservation Policy for Dryad
RDAP14: It’s a Real World: Developing Preservation Policy for DryadRDAP14: It’s a Real World: Developing Preservation Policy for Dryad
RDAP14: It’s a Real World: Developing Preservation Policy for Dryad
 
RDAP14: Collaboration and tension between institutions and units providing da...
RDAP14: Collaboration and tension between institutions and units providing da...RDAP14: Collaboration and tension between institutions and units providing da...
RDAP14: Collaboration and tension between institutions and units providing da...
 
Jeff Haywood - Research Integrity: Institutional Responsibility
Jeff Haywood - Research Integrity: Institutional ResponsibilityJeff Haywood - Research Integrity: Institutional Responsibility
Jeff Haywood - Research Integrity: Institutional Responsibility
 
Borgman - Privacy, Policy and Data Governance in the University
Borgman - Privacy, Policy and Data Governance in the UniversityBorgman - Privacy, Policy and Data Governance in the University
Borgman - Privacy, Policy and Data Governance in the University
 
Stephenson - Data Curation for Quantitative Social Science Research
Stephenson - Data Curation for Quantitative Social Science ResearchStephenson - Data Curation for Quantitative Social Science Research
Stephenson - Data Curation for Quantitative Social Science Research
 
Research Data Management in practice
Research Data Management in practiceResearch Data Management in practice
Research Data Management in practice
 
NISO Training Thursday Crafting a Scientific Data Management Plan
NISO Training Thursday Crafting a Scientific Data Management PlanNISO Training Thursday Crafting a Scientific Data Management Plan
NISO Training Thursday Crafting a Scientific Data Management Plan
 
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...
Strand 1: Connecting research and researchers: An introduction to ORCID by Ed...
 
RDAP14: OSTP Panel NIH’s Update Public Access
RDAP14: OSTP Panel NIH’s Update Public Access RDAP14: OSTP Panel NIH’s Update Public Access
RDAP14: OSTP Panel NIH’s Update Public Access
 
The Data Management Ecosystem
The Data Management EcosystemThe Data Management Ecosystem
The Data Management Ecosystem
 
RDAP 15 Local ICPSR Data Curation Workshop Pilot Project
RDAP 15 Local ICPSR Data Curation Workshop Pilot ProjectRDAP 15 Local ICPSR Data Curation Workshop Pilot Project
RDAP 15 Local ICPSR Data Curation Workshop Pilot Project
 
UWA Research Week 2016
UWA Research Week 2016UWA Research Week 2016
UWA Research Week 2016
 
Llebot "Research Data Support for Researchers: Metadata, Challenges, and Oppo...
Llebot "Research Data Support for Researchers: Metadata, Challenges, and Oppo...Llebot "Research Data Support for Researchers: Metadata, Challenges, and Oppo...
Llebot "Research Data Support for Researchers: Metadata, Challenges, and Oppo...
 
Re tooling for data management-support
Re tooling for data management-supportRe tooling for data management-support
Re tooling for data management-support
 
No more waiting! Tools that work Today to reveal dataset use
No more waiting!  Tools that work Today to reveal dataset useNo more waiting!  Tools that work Today to reveal dataset use
No more waiting! Tools that work Today to reveal dataset use
 
Practical and Conceptual Considerations of Research Object Preservation
Practical and Conceptual Considerations of Research Object PreservationPractical and Conceptual Considerations of Research Object Preservation
Practical and Conceptual Considerations of Research Object Preservation
 
RDAP13 Elizabeth Moss: The impact of data reuse
RDAP13 Elizabeth Moss: The impact of data reuseRDAP13 Elizabeth Moss: The impact of data reuse
RDAP13 Elizabeth Moss: The impact of data reuse
 
Burton - Security, Privacy and Trust
Burton - Security, Privacy and TrustBurton - Security, Privacy and Trust
Burton - Security, Privacy and Trust
 
Introduction to Research Data Management at UWA
Introduction to Research Data Management at UWAIntroduction to Research Data Management at UWA
Introduction to Research Data Management at UWA
 
Presentation to the UM Library Emergent Research Series
Presentation to the UM Library Emergent Research SeriesPresentation to the UM Library Emergent Research Series
Presentation to the UM Library Emergent Research Series
 

Similar to ANDS Data Management Workshop Summary

Research Integrity Advisor and Data Management
Research Integrity Advisor and Data ManagementResearch Integrity Advisor and Data Management
Research Integrity Advisor and Data ManagementARDC
 
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017Research Data Management in practice, RIA Data Management Workshop Adelaide 2017
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017ARDC
 
Data management woolfrey
Data management woolfreyData management woolfrey
Data management woolfreypvhead123
 
Data Management - Lynn Woolfrey
Data Management - Lynn WoolfreyData Management - Lynn Woolfrey
Data Management - Lynn Woolfreypvhead123
 
Natasha intro to rdm c3 dis may 2018.pptx
Natasha intro to rdm c3 dis may 2018.pptxNatasha intro to rdm c3 dis may 2018.pptx
Natasha intro to rdm c3 dis may 2018.pptxARDC
 
Winter school in research data science research data management - final
Winter school in research data science research data management - finalWinter school in research data science research data management - final
Winter school in research data science research data management - finalARDC
 
Research Data Management and Librarians
Research Data Management and LibrariansResearch Data Management and Librarians
Research Data Management and LibrariansJohann van Wyk
 
Managing, Sharing and Curating Your Research Data in a Digital Environment
Managing, Sharing and Curating Your Research Data in a Digital EnvironmentManaging, Sharing and Curating Your Research Data in a Digital Environment
Managing, Sharing and Curating Your Research Data in a Digital Environmentphilipdurbin
 
Data Management for Postgraduate students by Lynn Woolfrey
Data Management for Postgraduate students by Lynn WoolfreyData Management for Postgraduate students by Lynn Woolfrey
Data Management for Postgraduate students by Lynn Woolfreypvhead123
 
Getting to grips with research data management
Getting to grips with research data management Getting to grips with research data management
Getting to grips with research data management Wendy Mears
 
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...ARDC
 
Getting to Grips with Research Data Management
Getting to Grips with Research Data Management Getting to Grips with Research Data Management
Getting to Grips with Research Data Management IzzyChad
 
Getting to grips with Research Data Management
Getting to grips with Research Data ManagementGetting to grips with Research Data Management
Getting to grips with Research Data ManagementIzzyChad
 
Data Literacy: Creating and Managing Reserach Data
Data Literacy: Creating and Managing Reserach DataData Literacy: Creating and Managing Reserach Data
Data Literacy: Creating and Managing Reserach Datacunera
 
Research data management for masters and ph d students
Research data management for masters and ph d studentsResearch data management for masters and ph d students
Research data management for masters and ph d studentsDebs Martindale
 
Data sharing: How, what and why?
Data sharing: How, what and why?Data sharing: How, what and why?
Data sharing: How, what and why?dancrane_open
 

Similar to ANDS Data Management Workshop Summary (20)

Research Integrity Advisor and Data Management
Research Integrity Advisor and Data ManagementResearch Integrity Advisor and Data Management
Research Integrity Advisor and Data Management
 
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017Research Data Management in practice, RIA Data Management Workshop Adelaide 2017
Research Data Management in practice, RIA Data Management Workshop Adelaide 2017
 
Data management woolfrey
Data management woolfreyData management woolfrey
Data management woolfrey
 
Data Management - Lynn Woolfrey
Data Management - Lynn WoolfreyData Management - Lynn Woolfrey
Data Management - Lynn Woolfrey
 
Natasha intro to rdm c3 dis may 2018.pptx
Natasha intro to rdm c3 dis may 2018.pptxNatasha intro to rdm c3 dis may 2018.pptx
Natasha intro to rdm c3 dis may 2018.pptx
 
Winter school in research data science research data management - final
Winter school in research data science research data management - finalWinter school in research data science research data management - final
Winter school in research data science research data management - final
 
Research Data Management and Librarians
Research Data Management and LibrariansResearch Data Management and Librarians
Research Data Management and Librarians
 
Managing, Sharing and Curating Your Research Data in a Digital Environment
Managing, Sharing and Curating Your Research Data in a Digital EnvironmentManaging, Sharing and Curating Your Research Data in a Digital Environment
Managing, Sharing and Curating Your Research Data in a Digital Environment
 
Data Management for Postgraduate students by Lynn Woolfrey
Data Management for Postgraduate students by Lynn WoolfreyData Management for Postgraduate students by Lynn Woolfrey
Data Management for Postgraduate students by Lynn Woolfrey
 
Getting to grips with research data management
Getting to grips with research data management Getting to grips with research data management
Getting to grips with research data management
 
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...
Ands ttt2 perth_accelerate your data skills training_ top tips for topics and...
 
Critical infrastructure to promote data synthesis
Critical infrastructure to promote data synthesis Critical infrastructure to promote data synthesis
Critical infrastructure to promote data synthesis
 
Getting to Grips with Research Data Management
Getting to Grips with Research Data Management Getting to Grips with Research Data Management
Getting to Grips with Research Data Management
 
Getting to grips with Research Data Management
Getting to grips with Research Data ManagementGetting to grips with Research Data Management
Getting to grips with Research Data Management
 
Introduction to Research Data Management - 2014-01-27 - Social Sciences Divis...
Introduction to Research Data Management - 2014-01-27 - Social Sciences Divis...Introduction to Research Data Management - 2014-01-27 - Social Sciences Divis...
Introduction to Research Data Management - 2014-01-27 - Social Sciences Divis...
 
Data Literacy: Creating and Managing Reserach Data
Data Literacy: Creating and Managing Reserach DataData Literacy: Creating and Managing Reserach Data
Data Literacy: Creating and Managing Reserach Data
 
Research data life cycle
Research data life cycleResearch data life cycle
Research data life cycle
 
Research data management for masters and ph d students
Research data management for masters and ph d studentsResearch data management for masters and ph d students
Research data management for masters and ph d students
 
Data sharing: How, what and why?
Data sharing: How, what and why?Data sharing: How, what and why?
Data sharing: How, what and why?
 
INCLUSION OF DATA ARCHIVES IN DATA MANAGEMENT PLAN
INCLUSION OF DATA ARCHIVES IN DATA MANAGEMENT PLANINCLUSION OF DATA ARCHIVES IN DATA MANAGEMENT PLAN
INCLUSION OF DATA ARCHIVES IN DATA MANAGEMENT PLAN
 

More from ARDC

Introduction to ADA
Introduction to ADAIntroduction to ADA
Introduction to ADAARDC
 
Architecture and Standards
Architecture and StandardsArchitecture and Standards
Architecture and StandardsARDC
 
Data Sharing and Release Legislation
Data Sharing and Release Legislation   Data Sharing and Release Legislation
Data Sharing and Release Legislation ARDC
 
Australian Dementia Network (ADNet)
Australian Dementia Network (ADNet)Australian Dementia Network (ADNet)
Australian Dementia Network (ADNet)ARDC
 
Investigator-initiated clinical trials: a community perspective
Investigator-initiated clinical trials: a community perspectiveInvestigator-initiated clinical trials: a community perspective
Investigator-initiated clinical trials: a community perspectiveARDC
 
NCRIS and the health domain
NCRIS and the health domainNCRIS and the health domain
NCRIS and the health domainARDC
 
International perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research dataInternational perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research dataARDC
 
Clinical trials data sharing
Clinical trials data sharingClinical trials data sharing
Clinical trials data sharingARDC
 
Clinical trials and cohort studies
Clinical trials and cohort studiesClinical trials and cohort studies
Clinical trials and cohort studiesARDC
 
Introduction to vision and scope
Introduction to vision and scopeIntroduction to vision and scope
Introduction to vision and scopeARDC
 
FAIR for the future: embracing all things data
FAIR for the future: embracing all things dataFAIR for the future: embracing all things data
FAIR for the future: embracing all things dataARDC
 
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian Duncan
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian DuncanARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian Duncan
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian DuncanARDC
 
Skilling-up-in-research-data-management-20181128
Skilling-up-in-research-data-management-20181128Skilling-up-in-research-data-management-20181128
Skilling-up-in-research-data-management-20181128ARDC
 
Research data management and sharing of medical data
Research data management and sharing of medical dataResearch data management and sharing of medical data
Research data management and sharing of medical dataARDC
 
Findable, Accessible, Interoperable and Reusable (FAIR) data
Findable, Accessible, Interoperable and Reusable (FAIR) dataFindable, Accessible, Interoperable and Reusable (FAIR) data
Findable, Accessible, Interoperable and Reusable (FAIR) dataARDC
 
Applying FAIR principles to linked datasets: Opportunities and Challenges
Applying FAIR principles to linked datasets: Opportunities and ChallengesApplying FAIR principles to linked datasets: Opportunities and Challenges
Applying FAIR principles to linked datasets: Opportunities and ChallengesARDC
 
How to make your data count webinar, 26 Nov 2018
How to make your data count webinar, 26 Nov 2018How to make your data count webinar, 26 Nov 2018
How to make your data count webinar, 26 Nov 2018ARDC
 
Ready, Set, Go! Join the Top 10 FAIR Data Things Global Sprint
Ready, Set, Go! Join the Top 10 FAIR Data Things Global SprintReady, Set, Go! Join the Top 10 FAIR Data Things Global Sprint
Ready, Set, Go! Join the Top 10 FAIR Data Things Global SprintARDC
 
How FAIR is your data? Copyright, licensing and reuse of data
How FAIR is your data? Copyright, licensing and reuse of dataHow FAIR is your data? Copyright, licensing and reuse of data
How FAIR is your data? Copyright, licensing and reuse of dataARDC
 
Peter neish DMPs BoF eResearch 2018
Peter neish DMPs BoF eResearch 2018Peter neish DMPs BoF eResearch 2018
Peter neish DMPs BoF eResearch 2018ARDC
 

More from ARDC (20)

Introduction to ADA
Introduction to ADAIntroduction to ADA
Introduction to ADA
 
Architecture and Standards
Architecture and StandardsArchitecture and Standards
Architecture and Standards
 
Data Sharing and Release Legislation
Data Sharing and Release Legislation   Data Sharing and Release Legislation
Data Sharing and Release Legislation
 
Australian Dementia Network (ADNet)
Australian Dementia Network (ADNet)Australian Dementia Network (ADNet)
Australian Dementia Network (ADNet)
 
Investigator-initiated clinical trials: a community perspective
Investigator-initiated clinical trials: a community perspectiveInvestigator-initiated clinical trials: a community perspective
Investigator-initiated clinical trials: a community perspective
 
NCRIS and the health domain
NCRIS and the health domainNCRIS and the health domain
NCRIS and the health domain
 
International perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research dataInternational perspective for sharing publicly funded medical research data
International perspective for sharing publicly funded medical research data
 
Clinical trials data sharing
Clinical trials data sharingClinical trials data sharing
Clinical trials data sharing
 
Clinical trials and cohort studies
Clinical trials and cohort studiesClinical trials and cohort studies
Clinical trials and cohort studies
 
Introduction to vision and scope
Introduction to vision and scopeIntroduction to vision and scope
Introduction to vision and scope
 
FAIR for the future: embracing all things data
FAIR for the future: embracing all things dataFAIR for the future: embracing all things data
FAIR for the future: embracing all things data
 
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian Duncan
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian DuncanARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian Duncan
ARDC 2018 state engagements - Nov-Dec 2018 - Slides - Ian Duncan
 
Skilling-up-in-research-data-management-20181128
Skilling-up-in-research-data-management-20181128Skilling-up-in-research-data-management-20181128
Skilling-up-in-research-data-management-20181128
 
Research data management and sharing of medical data
Research data management and sharing of medical dataResearch data management and sharing of medical data
Research data management and sharing of medical data
 
Findable, Accessible, Interoperable and Reusable (FAIR) data
Findable, Accessible, Interoperable and Reusable (FAIR) dataFindable, Accessible, Interoperable and Reusable (FAIR) data
Findable, Accessible, Interoperable and Reusable (FAIR) data
 
Applying FAIR principles to linked datasets: Opportunities and Challenges
Applying FAIR principles to linked datasets: Opportunities and ChallengesApplying FAIR principles to linked datasets: Opportunities and Challenges
Applying FAIR principles to linked datasets: Opportunities and Challenges
 
How to make your data count webinar, 26 Nov 2018
How to make your data count webinar, 26 Nov 2018How to make your data count webinar, 26 Nov 2018
How to make your data count webinar, 26 Nov 2018
 
Ready, Set, Go! Join the Top 10 FAIR Data Things Global Sprint
Ready, Set, Go! Join the Top 10 FAIR Data Things Global SprintReady, Set, Go! Join the Top 10 FAIR Data Things Global Sprint
Ready, Set, Go! Join the Top 10 FAIR Data Things Global Sprint
 
How FAIR is your data? Copyright, licensing and reuse of data
How FAIR is your data? Copyright, licensing and reuse of dataHow FAIR is your data? Copyright, licensing and reuse of data
How FAIR is your data? Copyright, licensing and reuse of data
 
Peter neish DMPs BoF eResearch 2018
Peter neish DMPs BoF eResearch 2018Peter neish DMPs BoF eResearch 2018
Peter neish DMPs BoF eResearch 2018
 

Recently uploaded

MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptx
MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptxMULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptx
MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptxAnupkumar Sharma
 
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17Celine George
 
Food processing presentation for bsc agriculture hons
Food processing presentation for bsc agriculture honsFood processing presentation for bsc agriculture hons
Food processing presentation for bsc agriculture honsManeerUddin
 
Earth Day Presentation wow hello nice great
Earth Day Presentation wow hello nice greatEarth Day Presentation wow hello nice great
Earth Day Presentation wow hello nice greatYousafMalik24
 
Activity 2-unit 2-update 2024. English translation
Activity 2-unit 2-update 2024. English translationActivity 2-unit 2-update 2024. English translation
Activity 2-unit 2-update 2024. English translationRosabel UA
 
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdf
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdfInclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdf
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdfTechSoup
 
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...JhezDiaz1
 
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATION
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATIONTHEORIES OF ORGANIZATION-PUBLIC ADMINISTRATION
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATIONHumphrey A Beña
 
ANG SEKTOR NG agrikultura.pptx QUARTER 4
ANG SEKTOR NG agrikultura.pptx QUARTER 4ANG SEKTOR NG agrikultura.pptx QUARTER 4
ANG SEKTOR NG agrikultura.pptx QUARTER 4MiaBumagat1
 
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITY
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITYISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITY
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITYKayeClaireEstoconing
 
4.16.24 21st Century Movements for Black Lives.pptx
4.16.24 21st Century Movements for Black Lives.pptx4.16.24 21st Century Movements for Black Lives.pptx
4.16.24 21st Century Movements for Black Lives.pptxmary850239
 
4.18.24 Movement Legacies, Reflection, and Review.pptx
4.18.24 Movement Legacies, Reflection, and Review.pptx4.18.24 Movement Legacies, Reflection, and Review.pptx
4.18.24 Movement Legacies, Reflection, and Review.pptxmary850239
 
Field Attribute Index Feature in Odoo 17
Field Attribute Index Feature in Odoo 17Field Attribute Index Feature in Odoo 17
Field Attribute Index Feature in Odoo 17Celine George
 
Active Learning Strategies (in short ALS).pdf
Active Learning Strategies (in short ALS).pdfActive Learning Strategies (in short ALS).pdf
Active Learning Strategies (in short ALS).pdfPatidar M
 
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdf
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdfGrade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdf
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdfJemuel Francisco
 
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptx
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptxECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptx
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptxiammrhaywood
 
Difference Between Search & Browse Methods in Odoo 17
Difference Between Search & Browse Methods in Odoo 17Difference Between Search & Browse Methods in Odoo 17
Difference Between Search & Browse Methods in Odoo 17Celine George
 
ICS2208 Lecture6 Notes for SL spaces.pdf
ICS2208 Lecture6 Notes for SL spaces.pdfICS2208 Lecture6 Notes for SL spaces.pdf
ICS2208 Lecture6 Notes for SL spaces.pdfVanessa Camilleri
 
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)lakshayb543
 

Recently uploaded (20)

MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptx
MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptxMULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptx
MULTIDISCIPLINRY NATURE OF THE ENVIRONMENTAL STUDIES.pptx
 
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17
Incoming and Outgoing Shipments in 3 STEPS Using Odoo 17
 
Food processing presentation for bsc agriculture hons
Food processing presentation for bsc agriculture honsFood processing presentation for bsc agriculture hons
Food processing presentation for bsc agriculture hons
 
Earth Day Presentation wow hello nice great
Earth Day Presentation wow hello nice greatEarth Day Presentation wow hello nice great
Earth Day Presentation wow hello nice great
 
Activity 2-unit 2-update 2024. English translation
Activity 2-unit 2-update 2024. English translationActivity 2-unit 2-update 2024. English translation
Activity 2-unit 2-update 2024. English translation
 
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdf
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdfInclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdf
Inclusivity Essentials_ Creating Accessible Websites for Nonprofits .pdf
 
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...
ENGLISH 7_Q4_LESSON 2_ Employing a Variety of Strategies for Effective Interp...
 
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATION
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATIONTHEORIES OF ORGANIZATION-PUBLIC ADMINISTRATION
THEORIES OF ORGANIZATION-PUBLIC ADMINISTRATION
 
ANG SEKTOR NG agrikultura.pptx QUARTER 4
ANG SEKTOR NG agrikultura.pptx QUARTER 4ANG SEKTOR NG agrikultura.pptx QUARTER 4
ANG SEKTOR NG agrikultura.pptx QUARTER 4
 
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITY
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITYISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITY
ISYU TUNGKOL SA SEKSWLADIDA (ISSUE ABOUT SEXUALITY
 
4.16.24 21st Century Movements for Black Lives.pptx
4.16.24 21st Century Movements for Black Lives.pptx4.16.24 21st Century Movements for Black Lives.pptx
4.16.24 21st Century Movements for Black Lives.pptx
 
4.18.24 Movement Legacies, Reflection, and Review.pptx
4.18.24 Movement Legacies, Reflection, and Review.pptx4.18.24 Movement Legacies, Reflection, and Review.pptx
4.18.24 Movement Legacies, Reflection, and Review.pptx
 
Field Attribute Index Feature in Odoo 17
Field Attribute Index Feature in Odoo 17Field Attribute Index Feature in Odoo 17
Field Attribute Index Feature in Odoo 17
 
Active Learning Strategies (in short ALS).pdf
Active Learning Strategies (in short ALS).pdfActive Learning Strategies (in short ALS).pdf
Active Learning Strategies (in short ALS).pdf
 
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdf
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdfGrade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdf
Grade 9 Quarter 4 Dll Grade 9 Quarter 4 DLL.pdf
 
Raw materials used in Herbal Cosmetics.pptx
Raw materials used in Herbal Cosmetics.pptxRaw materials used in Herbal Cosmetics.pptx
Raw materials used in Herbal Cosmetics.pptx
 
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptx
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptxECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptx
ECONOMIC CONTEXT - PAPER 1 Q3: NEWSPAPERS.pptx
 
Difference Between Search & Browse Methods in Odoo 17
Difference Between Search & Browse Methods in Odoo 17Difference Between Search & Browse Methods in Odoo 17
Difference Between Search & Browse Methods in Odoo 17
 
ICS2208 Lecture6 Notes for SL spaces.pdf
ICS2208 Lecture6 Notes for SL spaces.pdfICS2208 Lecture6 Notes for SL spaces.pdf
ICS2208 Lecture6 Notes for SL spaces.pdf
 
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)
Visit to a blind student's school🧑‍🦯🧑‍🦯(community medicine)
 

ANDS Data Management Workshop Summary

  • 1. Dr Paul Wong Research Integrity Advisor Data Management Workshop Senior Data Management Specialist 31 March 2017 Brisbane QUT
  • 2. The Australian National Data Service (ANDS) makes Australia’s research data assets more valuable for researchers, research institutions and the nation. Partnering Australian research organisations and co-funded 294 data projects, totally $54M Research Data Australia Cite My Data / DOIs minting Vocabulary service etc. In 2015, conducted over 100 workshops, forums, and webinars with over 4000 participants, developed online resources e.g. guides, videos etc.
  • 3. • 40+ guides organised around different topics • Content is a moving target – changing policy landscape, new practices etc. • Designed as a community resource • If you see gaps, we want your help to make them better http://www.ands.org.au/guides
  • 4. • A dedicated set of webpages on data management • A community resource • If you see gaps, we want your help to make them better http://www.ands.org.au/working-with-data/data-management
  • 6. Research data: as input & output Research data may include:  Laboratory and field notes  Raw experimental data  Analysed data  Simulations and software  Databases  Clinical data, including clinical records  Questionnaires/surveys  Images and photographs  Audio-visual materials Moynihan's field notes, Panama, 1958 – CC BY https://flic.kr/p/dmXHkJ Screen capture of “Computer simulation of March 22, 2014 landslide event near Oso, Washington, by David L. George and Richard M. Iverson, USGS” http://youtu.be/2NzHCOhKr7g CC BY
  • 7. Creative arts research data Research data in the creative arts may include:  Audio-visual recordings of a creative work  Visual diaries  Journals  Drawings  Photographs  Manuscripts  Musical annotations  3D models
  • 8. Research Data: a Broad Church Hand written letters Images or photos Soil samples Tissue samples Archeological dig sites ….. Scanned & OCR version Scanned digital version Analysed result of samples Analysed result of samples 3D models of the dig site ….. Physical Digital ANDS’ primary focus is digital data
  • 9. Why Bother? Why managing (digital) research data? In fact, why bother managing anything? • Prevent bad things from happening. • Enable good things to happen.
  • 10. Data and Research Integrity Nature 533, 452–454 (26 May 2016) doi:10.1038/533452a. Reprint with permission © 2016 Macmillan
  • 11. Data and Research Integrity “The Availability of Research Data Declines Rapidly with Article Age”, Vine et al, Current Biology, Volume 24, Issue 1, p94–97, 6 January 2014 • “For papers where authors reported the status of their data, the odds of the data being extant decreased by 17% per year...” • “Responses included authors being sure that the data were lost (e.g., on a stolen computer) or thinking that they might be stored in some distant location (e.g., their parent’s attic) to authors having some degree of certainty that the data are on a Zip or floppy disk in their possession but no longer having the appropriate hardware to access it.”
  • 12. Make Data Awesome Open Research Data Collection Showcase http://www.ands.org.au/partners-and- communities/projects/open-research-data-collection #Dataimpact stories http://www.ands.org.au/news-and-events/dataimpact The companion case studies report of the Watt review https://docs.education.gov.au/system/files/doc/other/20 151202_case_studies_volume_nc_0.pdf
  • 13.
  • 14. Data Management in Practice • One of ANDS’ guides to outline, in an easy to understand practical framework, how research data can be managed effectively in an institutional setting. • 15 key points – with short descriptions, 7 pages long. • Incorporating project management best practice • Shared responsibilities model • Continual data curation approach • Road tested with librarians, data managers, researchers and research support staff
  • 15. The Current Thinking: FAIR Findable, Accessible, Interoperable, Reusable 15 principles to ensure research data is FAIR Mark D. Wilkinson et al. The FAIR Guiding Principles for scientific data management and stewardship, Scientific Data (2016). DOI: 10.1038/sdata.2016.18 “FAIRness is a prerequisite for proper data management and data stewardship”
  • 17. Continual data curation across domains
  • 18. Data Curation as Documentation Assigning metadata (structured data about the data) • Who collected the data? • Who funded the research project? • When (and where) was it collected? • Instruments and setting for collecting the data? • Title of the dataset • Methods used to process the data • Etc. etc.
  • 19. Light Touch Heavy Duty Ecological Geographic Biological Metadata Structured Detailed Machine readable Structured Minimal Human readable
  • 20. What is Data Citation? Data citation refers to the practice of providing a reference to data in the same way as researchers routinely provide a bibliographic reference to outputs such as journal articles, reports and conference papers. Citing data is now recognised as one of the key practices leading to recognition of data as a primary research output. http://www.ands.org.au/working-with-data/citation-and- identifiers/data-citation
  • 21. Data Citation Standard A standard citation would include the following elements: Author(s) (Year): Title. Publisher(s). DOI (if used) Hanigan, Ivan (2012): Monthly drought data for Australia 1890-2008 using the Hutchinson Drought Index. The Australian National University Australian Data Archive. http://doi.org/10.4225/13/50BBFD7E6727A Alternatively, Author(s) (Year): Title. Version. Publisher(s). ResourceType. Identifier Bradford, Matt; Murphy, Helen; Ford, Andrew; Hogan, Dominic; Metcalfe, Dan (2014): CSIRO Permanent Rainforest Plots of North Queensland. v2. CSIRO. Data Collection. http://doi.org/10.4225/08/53C4CC1D94DA0 http://www.ands.org.au/working-with-data/citation-and-identifiers/data-citation
  • 22. Institutional Policy and Procedures Support services - people and other means of providing advice and support IT Infrastructure - the hardware, software and other facilities Metadata management - so that data records can be meaningful and fit for purpose Institutional Data Management Framework Pre Research
  • 23. Data Management Plan • data organisation and storage; • metadata standards and guidelines; • backups; • archiving for long-term preservation; • version control and derived data products; • data sharing or publishing intentions, including licensing; • ensuring security of confidential data; • data synchronisation; and • governance, roles and responsibilities. Pre Research
  • 24. Storage requirements may vary across domains
  • 25. Publishing and Sharing Data Metadata Research Data Open Open Open Closed Closed Open Closed Closed Publishing and Sharing data ≠ Open Access to data “Open” and “Closed” are relative concepts. “Closed” ≈ conditional access based on individual permission “Closed” ≈ conditional access based on roles Post Research
  • 26. Ethics Clearance and Data Access: A Case Study Data Managing and Sharing Research Data: A Guide to Good Practice, SAGE 2014 https://uk.sagepub.com/en-gb/eur/managing-and-sharing-research- data/book240297 https://commons.wikimedia.org/wiki/File%3AFoot_and_Mouth_Disease_Map_-_geograph.org.uk_-_564718.jpg Colin Smith [CC BY-SA 2.0] (http://creativecommons.org/licenses/by-sa/2.0)], via Wikimedia Commons from Wikimedia Commons)
  • 27. Ethics Clearance and Data Access: A Case Study Health and Social Consequences of the Foot and Mouth Disease Epidemic in North Cumbria, 2001- 2003 (M. Mort Lancaster University 2006, funded by the Department of Health UK, Study Number 5407) http://ukdataservice.ac.uk/use-data/guides/dataset/foot-and-mouth http://discover.ukdataservice.ac.uk/catalogue/?sn=5407 • 54 local people were recruited to write weekly diaries over 18 months to describe their lives and the recovery they observed around the area • The study was supplemented with interviews and focus group discussions that included other stakeholders • The study obtained consent from participants before the research but did not get consent for sharing and archiving data • The research team and the Department of Health wanted to share and archive the data after the completion of the research. • Had to get consent retrospectively and needed expert advice from copyright specialists
  • 28. http://www.ands.org.au/__data/assets/pdf_file/0009/394056/research-data-management-in-practice.pdf The framework treats DM as a set of coordinated activities to preserve the evidence base of research findings and to make the evidence base more accessible and reusable in the long run.
  • 29. Wise Advise https://nicolahemmings.wordpress.com/2016/04/05/mistakes-ive-made-as- an-early-career-researcher/ Mistakes I’ve made as an early career researcher APRIL 5, 2016 Nicola Hemmings (post-doc, University of Sheffield) Failing to organise my data adequately (circa 2007). Prepare your datasets like you would if you were giving them to a stranger who knew nothing about them. Label, annotate and meticulously file your R scripts. Incorporate read-me files into everything and write them for the monkey that will be you in five years, when you return to your data and/or analyses for some unforeseen but vitally important reason. Don’t get this wrong. You will regret it.
  • 30. Special Healthy Data Year ‘Sharing health-y data: challenges and solutions’ workshops ANDS ran in all capital cities in 2016-2017 Attended by researchers, and staff from the library, research office and ethics office Topics covered  The data sharing landscape: funders and publishers  Data de-identification  Ethics and informed consent  Licensing data  How research data can be published (mediated access, metadata, repositories)
  • 31. Special Healthy Data Year Coming up: Health and Medical Data: 3 Short Lunchtime Bites Webinars in May 2017 Workshops with Health Libraries Australia: 10 medical and health research data Things 'train the trainer' workshops. 31 May in Brisbane, 13 June in Melbourne, 14 July in Perth. For health librarians.
  • 32. Senior Data Management Specialist Paul.Wong@ands.org.au +61 2 6125 0586 Dr Paul Wong With the exception of logos, third party images or where otherwise indicated, this work is licensed under the Creative Commons 4.0 International Attribution Licence. ANDS is supported by the Australian Government through the National Collaborative Research Infrastructure Strategy Program. Monash University leads the partnership with the Australian National University and CSIRO.

Editor's Notes

  1. Note: Data is a very broad church within research. ANDS’ focus is primarily on digital data – not data in the “physical form” e.g. soil or tissue samples. Inclusive in our understanding of digital data, from all disciplines, e.g. quantitative and qualitative data, multi-media data (audio, images, videos), computer models.
  2. About 40 guides have been developed across a spectrum of data management topics
  3. 15 key points – with short descriptions, 7 pages long. incorporating project management best practice Shared responsibilities model Continual data curation approach