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‘Using social media to
communicate the findings of
    Cochrane reviews’

     Andre Tomlin
   MD, Minervation Ltd
Aims
• Discuss the accessibility and usability of
  Cochrane reviews
• Consider how to communicate the findings of
  Cochrane reviews in a more interesting and
  engaging way
• Introduce you to (and offer some top tips for
  using):
   – Blogs
   – Social media
André Tomlin
• Information Scientist
   – NHS (Health Sciences Library, 1994-1998)
   – University of Oxford (Centre for EBMH, 1998-2002)
   – Minervation Ltd (Health websites, 2002-present)
• Specialist in:
   – Website development, social media & blogging
   – Writing health information for patients and
     professionals
   – Evidence-based health care
   – Usability testing & user involvement
   – Multimedia
Minervation
• Oxford University
                        Sample clients:
  spin-out
• Built over 50 major   • WHO
  health websites       • NICE
• Work in public,       • Bupa
  private and charity   • LifeScan
  sectors               • Cancer Research UK
• Accessible, usable    • Equator Network
  and reliable health
  websites
Programme

•   Exercise 1
•   Blogging
•   Exercise 2
•   Social media
•   National Elf Service
•   Conclusions
Questions
• Who is on..?
  – Facebook
  – LinkedIn
  – Twitter
• Who’s written a blog?
• Who knows what a #hashtag is?
Can you help
me keep up to
date with the
latest research   • Dr Frank Talker
relating to me
patients?         • GP in Bristol
                  • Big proponent of
                    evidence-based
                    practice
                  • Loves the Internet
                    and technology
“Hey Frank, What do you
 think of evidence-based
     resources like the
    Cochrane Library?”
But I just don’t have the time to   On one hand,
find what I need and read it all.   Cochrane is
The reviews are really long and     great, because
technical. I’d love to get short    it’s so
user-friendly updates on my         systematic and
smartphone, like I can with other   reliable.
websites.
Exercise 1: Oral health advice
for people with mental illness
 This is Jon
 He has
schizophrenia and
problems with his
teeth
 Many patients
living in Frank’s
catchment area have
oral heath problems
like Jon
Who’s he trying
She may be         to kid! I fixed
the dentist, but   those dentures
I have the         myself last year!
cheesier
smile!
I’m delighted! I’ve
                   found a Cochrane
                   review that’s bang on
                   topic!




Khokhar WA, Clifton A, Jones H, Tosh G.
Oral health advice for people with serious mental illness
. Cochrane Database of Systematic Reviews
2011, Issue 11. Art. No.: CD008802. DOI:
10.1002/14651858. CD008802.pub2.
What should I
do now?

   Small group task:
   • Read the review
   • Write a short
   summary on oral
   health advice for
   people with severe
   mental illness
   • Present your
   summary in the style of
   a news report
Oral health advice
 for people with
 severe mental
      illness
Lessons from exercise 1
• Cochrane reviews often provide no conclusive
  answer, but it sometimes takes a few minutes to
  work this out!
• Obviously, users want answers so it’s helpful to
  provide other relevant evidence to help guide them
• This should be done systematically using an
  appropriate hierarchy, i.e. Guidelines, SRs, RCTs
  etc.
• Here’s what the Mental Elf said:
  http://www.thementalelf.net/publication-types/systematic-review/oral-health
Blogs
What’s a blog
Noun:
  A Web site where an
 individual or group of
 users record opinions
 and information on a
 regular basis.

Verb:
  Add new material to a
  blog: “I love the smell of
  blogging in the morning”
What’s a blog
         • Often a personal
           viewpoint
         • Frequently
           updated
         • Informal tone
         • Open to debate
         • Hooked up to
           social media
Why bother writing a blog?
• It’s fun and easy
• Users like it
• Search engines like it
• It encourages
  interaction
• If you don’t, you may
  get left behind!
Blogging tools

         • Blogger.com
         • Tumblr.com
         • Wordpress.com or
           Wordpress.org

         • Twitterfeed.com
Top tips for blogging
• The right topic
• Outstanding brand
• Clear lay-friendly
  language
• Easy to scan
• Use tags
• Engage with users
• Use social media
• Keep it lively and fun
Worth a read
•   Bad Science
•   CRUK Science Blog
•   Science-ish
•   Trust the Evidence
•   Evidence-Based Mommy
•   National Elf Service
•   The Mental Elf

• Plus lots of Cochrane
  blogs!
Exercise 2: Physical activity to
  improve balance in older
            people
 My gran loves to
skateboard, but she’s
maybe not typical
 Many of Frank’s
older patients have
balance problems and
suffer from debilitating
falls
 He wants to find
out which specific
forms of exercise are
most useful
He may be the physio,
but I’ve got the
stethoscope!




           Who needs a
           stethoscope
           when you
           have hands
           like mine!?
Oh great, another
                Cochrane review!




Howe TE, Rochester L, Neil F, Skelton DA,
Ballinger C.
Exercise for improving balance in older people.
Cochrane Database of Systematic Reviews
2011, Issue 11. Art. No.: CD004963. DOI:
10.1002/14651858.CD004963.pub3.
What should I
do now?

   Small group task:
   • Read the review
   • Write a short
   summary on physical
   activity to improve
   balance in older
   people
   • Present your
   summary in the style of
   a news report
Physical activity
for older people
Lessons from exercise 2
• It’s hard to make specific recommendations
  when reviews include a wide range of
  interventions
• Some reviews have longer abstracts than
  others!
• Here’s what the Lifestyle Elf said:
  http://www.thelifestyleelf.net/older-people-need-ple
Social media
Platforms
• Millions of online health and healthcare
  conversations are happening right now
• The 3 main platforms are:




    Mostly patients   A mix of          Mostly
    & care givers     professionals,    professionals
                      patients & care
                      givers
• Social media also includes
  Google+, MySpace, Ning etc.
Why bother with social media?
• Join in the
  conversation
• It will happen with you
  and without you
• It increases:
  – Awareness of your
    work
  – Traffic to your site
  – Engagement with your
    audience
• 845m active users
• 9% of all online visits
• 1 in every 5 online page views happens on
  Facebook
• An average Facebook visit is 23 minutes
• Slightly more female users
• Average number of friends is 130
• Average number of total likes is 80
• More than half of people recommend brands
  they ‘like’
Facebook architecture
• Wall
  – Your personal list of activities
• Page
  – A page about a company, product or topic of
    interest
• Group
  – A collection of pages, discussions and other media
• 127 million active users
• An average Twitter visit is 14 minutes
• 54% of people use Twitter on their
  phone
• 36% of Twitter users tweet at least
  once a day
Twitter architecture
• Tweet
   – A single post <140 characters
• Homepage
   – Your Twitter homepage (like the Facebook wall)
• Followers
   – People who receive your tweets on their homepage
• Connect > Interactions
   – Where you engage with your users
• Connect > Mentions
   – When people mention you (e.g. @andretomlin) in their
     tweet
• Hashtag
   – Highlighting a topic (e.g. #lovelychap) in their tweet
Twitter tools

         • Tweetdeck or
           Seesmic
         • Klout
         • Tweetreach
         • Tweetsheet
• 135m registered users
• 80% of members from US, India, UK, Brazil,
  Canada, France, Netherlands, Australia & Spain
• Slightly more male users
• Slightly older demographic than Facebook &
  Twitter
• “Facebook for business”
Top tips for social media
• Establish a presence on all of
  the relevant platforms
• Choose the best platforms to
  focus your energy
• Build your brand and your
  audience
• Follow like-minded people
• Plan your posts so they
  reflect your brand and niche
• Be yourself 
• Don’t be shy!
It’s out of control!
• Mobile apps such as
  Flipboard allow users
  to create their own
  interactive
  magazines, with
  content from social
  feeds
National Elf Service
National Elf Service
• We’ve been helping health professionals keep
  up to date with the latest evidence since the
  late-90s
• Lot’s of projects, e.g.
  – National Library for Health (Muir Gray)
  – NHS Evidence (NICE)
• We wanted to create something new that is
  simple, approachable, highly usable and fun
Users get:
• 1 blog each week day
• Highlighting a relevant and
  reliable piece of research,
  guidance or policy
• Written in an accessible and
  engaging way
• Updates that work for them
  (email, social media, RSS,
  website etc.)
• Opportunities to discuss the
  evidence
Our elves are:

•   Leading EBM Experts
•   Health Professionals
•   Researchers
•   Information Scientists
We have 8 elves so far

         Live:
         • Dental
         • Diabetes
         • Healthy Lifestyle
         • Learning Disabilities
         • Mental Health
We have 8 elves so far


In the pipeline:
• Commissioning
• Skin
• Women’s Health
Do you have an elf in you?

 andre.tomlin@minervation.com
Conclusions
What have we learnt?
• Social media:
  – Communicate
  – Engage
  – Promote
• Blogs:
  – Popular
  – Fun
  – Cost effective
• Key social media platforms:
  – Facebook
  – Twitter
  – LinkedIn

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Andre Tomlin - Using social media to communicate the findings of Cochrane reviews

  • 1. ‘Using social media to communicate the findings of Cochrane reviews’ Andre Tomlin MD, Minervation Ltd
  • 2. Aims • Discuss the accessibility and usability of Cochrane reviews • Consider how to communicate the findings of Cochrane reviews in a more interesting and engaging way • Introduce you to (and offer some top tips for using): – Blogs – Social media
  • 3. André Tomlin • Information Scientist – NHS (Health Sciences Library, 1994-1998) – University of Oxford (Centre for EBMH, 1998-2002) – Minervation Ltd (Health websites, 2002-present) • Specialist in: – Website development, social media & blogging – Writing health information for patients and professionals – Evidence-based health care – Usability testing & user involvement – Multimedia
  • 4. Minervation • Oxford University Sample clients: spin-out • Built over 50 major • WHO health websites • NICE • Work in public, • Bupa private and charity • LifeScan sectors • Cancer Research UK • Accessible, usable • Equator Network and reliable health websites
  • 5. Programme • Exercise 1 • Blogging • Exercise 2 • Social media • National Elf Service • Conclusions
  • 6. Questions • Who is on..? – Facebook – LinkedIn – Twitter • Who’s written a blog? • Who knows what a #hashtag is?
  • 7. Can you help me keep up to date with the latest research • Dr Frank Talker relating to me patients? • GP in Bristol • Big proponent of evidence-based practice • Loves the Internet and technology
  • 8. “Hey Frank, What do you think of evidence-based resources like the Cochrane Library?”
  • 9. But I just don’t have the time to On one hand, find what I need and read it all. Cochrane is The reviews are really long and great, because technical. I’d love to get short it’s so user-friendly updates on my systematic and smartphone, like I can with other reliable. websites.
  • 10. Exercise 1: Oral health advice for people with mental illness
  • 11.  This is Jon  He has schizophrenia and problems with his teeth  Many patients living in Frank’s catchment area have oral heath problems like Jon
  • 12. Who’s he trying She may be to kid! I fixed the dentist, but those dentures I have the myself last year! cheesier smile!
  • 13. I’m delighted! I’ve found a Cochrane review that’s bang on topic! Khokhar WA, Clifton A, Jones H, Tosh G. Oral health advice for people with serious mental illness . Cochrane Database of Systematic Reviews 2011, Issue 11. Art. No.: CD008802. DOI: 10.1002/14651858. CD008802.pub2.
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  • 16. What should I do now? Small group task: • Read the review • Write a short summary on oral health advice for people with severe mental illness • Present your summary in the style of a news report
  • 17. Oral health advice for people with severe mental illness
  • 18. Lessons from exercise 1 • Cochrane reviews often provide no conclusive answer, but it sometimes takes a few minutes to work this out! • Obviously, users want answers so it’s helpful to provide other relevant evidence to help guide them • This should be done systematically using an appropriate hierarchy, i.e. Guidelines, SRs, RCTs etc. • Here’s what the Mental Elf said: http://www.thementalelf.net/publication-types/systematic-review/oral-health
  • 19. Blogs
  • 20. What’s a blog Noun: A Web site where an individual or group of users record opinions and information on a regular basis. Verb: Add new material to a blog: “I love the smell of blogging in the morning”
  • 21. What’s a blog • Often a personal viewpoint • Frequently updated • Informal tone • Open to debate • Hooked up to social media
  • 22. Why bother writing a blog? • It’s fun and easy • Users like it • Search engines like it • It encourages interaction • If you don’t, you may get left behind!
  • 23. Blogging tools • Blogger.com • Tumblr.com • Wordpress.com or Wordpress.org • Twitterfeed.com
  • 24. Top tips for blogging • The right topic • Outstanding brand • Clear lay-friendly language • Easy to scan • Use tags • Engage with users • Use social media • Keep it lively and fun
  • 25. Worth a read • Bad Science • CRUK Science Blog • Science-ish • Trust the Evidence • Evidence-Based Mommy • National Elf Service • The Mental Elf • Plus lots of Cochrane blogs!
  • 26. Exercise 2: Physical activity to improve balance in older people
  • 27.  My gran loves to skateboard, but she’s maybe not typical  Many of Frank’s older patients have balance problems and suffer from debilitating falls  He wants to find out which specific forms of exercise are most useful
  • 28. He may be the physio, but I’ve got the stethoscope! Who needs a stethoscope when you have hands like mine!?
  • 29. Oh great, another Cochrane review! Howe TE, Rochester L, Neil F, Skelton DA, Ballinger C. Exercise for improving balance in older people. Cochrane Database of Systematic Reviews 2011, Issue 11. Art. No.: CD004963. DOI: 10.1002/14651858.CD004963.pub3.
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  • 31. What should I do now? Small group task: • Read the review • Write a short summary on physical activity to improve balance in older people • Present your summary in the style of a news report
  • 33. Lessons from exercise 2 • It’s hard to make specific recommendations when reviews include a wide range of interventions • Some reviews have longer abstracts than others! • Here’s what the Lifestyle Elf said: http://www.thelifestyleelf.net/older-people-need-ple
  • 35. Platforms • Millions of online health and healthcare conversations are happening right now • The 3 main platforms are: Mostly patients A mix of Mostly & care givers professionals, professionals patients & care givers • Social media also includes Google+, MySpace, Ning etc.
  • 36. Why bother with social media? • Join in the conversation • It will happen with you and without you • It increases: – Awareness of your work – Traffic to your site – Engagement with your audience
  • 37. • 845m active users • 9% of all online visits • 1 in every 5 online page views happens on Facebook • An average Facebook visit is 23 minutes • Slightly more female users • Average number of friends is 130 • Average number of total likes is 80 • More than half of people recommend brands they ‘like’
  • 38. Facebook architecture • Wall – Your personal list of activities • Page – A page about a company, product or topic of interest • Group – A collection of pages, discussions and other media
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  • 43. • 127 million active users • An average Twitter visit is 14 minutes • 54% of people use Twitter on their phone • 36% of Twitter users tweet at least once a day
  • 44. Twitter architecture • Tweet – A single post <140 characters • Homepage – Your Twitter homepage (like the Facebook wall) • Followers – People who receive your tweets on their homepage • Connect > Interactions – Where you engage with your users • Connect > Mentions – When people mention you (e.g. @andretomlin) in their tweet • Hashtag – Highlighting a topic (e.g. #lovelychap) in their tweet
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  • 48. Twitter tools • Tweetdeck or Seesmic • Klout • Tweetreach • Tweetsheet
  • 49. • 135m registered users • 80% of members from US, India, UK, Brazil, Canada, France, Netherlands, Australia & Spain • Slightly more male users • Slightly older demographic than Facebook & Twitter • “Facebook for business”
  • 50. Top tips for social media • Establish a presence on all of the relevant platforms • Choose the best platforms to focus your energy • Build your brand and your audience • Follow like-minded people • Plan your posts so they reflect your brand and niche • Be yourself  • Don’t be shy!
  • 51. It’s out of control! • Mobile apps such as Flipboard allow users to create their own interactive magazines, with content from social feeds
  • 53. National Elf Service • We’ve been helping health professionals keep up to date with the latest evidence since the late-90s • Lot’s of projects, e.g. – National Library for Health (Muir Gray) – NHS Evidence (NICE) • We wanted to create something new that is simple, approachable, highly usable and fun
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  • 55. Users get: • 1 blog each week day • Highlighting a relevant and reliable piece of research, guidance or policy • Written in an accessible and engaging way • Updates that work for them (email, social media, RSS, website etc.) • Opportunities to discuss the evidence
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  • 60. Our elves are: • Leading EBM Experts • Health Professionals • Researchers • Information Scientists
  • 61. We have 8 elves so far Live: • Dental • Diabetes • Healthy Lifestyle • Learning Disabilities • Mental Health
  • 62. We have 8 elves so far In the pipeline: • Commissioning • Skin • Women’s Health
  • 63. Do you have an elf in you? andre.tomlin@minervation.com
  • 65. What have we learnt? • Social media: – Communicate – Engage – Promote • Blogs: – Popular – Fun – Cost effective • Key social media platforms: – Facebook – Twitter – LinkedIn