Using WordPress to Capture Memories by Kate Swaffer
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Kate Swaffer documents her experience living with dementia and how using WordPress has helped her capture memories and communicate with others. She did not expect to develop dementia at a young age, but it has taken away her ability to remember what she reads. WordPress allows her to blog and have her writing always available to re-read. It has brought back dreaming and opened a channel for dialogue, creating a memory bank. While dementia takes a toll, WordPress continues to make her life interesting and fulfilling.
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Using WordPress to Capture Memories by Kate Swaffer
- 1. My Unseen Disappearing World: Using WordPress to Capture Memories. Kate Swaffer 5th November 2011
- 2. My life was interesting, busy and very fulfilling.
- 4. ‘Live with urgency, before the emergency’ Robyn Moore, Alzheimer s Australia National Conference, 2011
- 5. I did not think dementia would be at my door at my age, if at all, and certainly not until I was much older…
- 6. ...it is imperative we all understand the human cost of dementia. Baroness Susan Greenfield, June 2011
- 7. We are mothers, fathers, lovers, daughters, wives, husbands, employees, bloggers… it is a tragedy so many just see our deficits.
- 8. My high functioning mind has slipped away, sometimes showing itself like a ghost, trying to tease me into believing it will be okay, but now outside of my reach. My thoughts fly around inside my head like helium balloons high inside an auditorium, also out of my reach.
- 9. I read then I forget… I read then I forget… I read, I take notes, and then I forget… I blog, and it is always there!
- 10. Hallucinations sometimes take over my mind, as strangers and wild cats stalk me. The feeling that these things are real is momentary, but startling none the less and they increase the feeling of madness creeping into my soul.
- 11. It can look like a swan – calm and serene on the surface, but legs paddling a thousand times faster below the surface to make things ‘look ok’ to others. Christine Bryden, Dancing with dementia, 2005.
- 12. It is as if I am drowning…
- 13. Dementia represents the end of dreaming... WordPress has brought back the dreaming.
- 14. WordPress has also opened up a vibrant channel of dialogue and communication… and a memory bank
- 18. My life continues to be interesting, busy and very fulfilling.
- 19. Statistics: 1500 new cases per week in Australia, i.e. 214 per day, no cure, treatment available for about 60%, which reduces symptoms for 2 years, and 100% of us die. THANK YOU.