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Dr. Liza Hopkins - Incoporating Education into the holistic Care of paediatric Patients: the CL@RCH Project
1. Incorporating education into the
holistic care of pediatric patients:
The CL@RCH (Childrenâs Learning
at The RCH) project
Liza Hopkins
Tsharni Zazryn
Sue Wilks
Kira Macleod
Royal Childrenâs Hospital Education Institute
2. CL@RCH: Overall premise
⢠To strengthen the capacity of a
childrenâs hospital to keep children
engaged with learning in a dynamic and
flexible environment.
4. CL@RCH: Our questions
1. What do children and young people value
about learning during hospitalisation?
2. In what ways do they and their families use
the hospital environment to stay engaged in
learning related activities while in the
hospital?
3. How can physical spaces where children and
young people spend time across the hospital
be used to strengthen the promotion of
childrenâs learning?
5. CL@RCH: Our questions (2)
4. What partnerships could or should be
developed to enhance learning opportunities
at the RCH and how should these
partnerships be fostered?
5. What are the critical components for
childrenâs learning applicable to a hospital
environment?
6. CL@RCH products
⢠Learning spaces literature review
⢠Learning spaces issues and needs framework
⢠Consultation report
⢠Snapshot booklet
⢠Key messages framework
⢠Set of principles for teaching and learning
⢠RCH procedure for education support
7. Literature review findings
⢠Effective spaces connect with best practice teaching
and learning
⢠Learners need ownership of the learning space
⢠Technology connects learners wherever they are
⢠The importance of the outdoor environment
⢠Connecting spaces with people â a holistic learning
environment
⢠Arts based pedagogy contributes to education, well-
being and health
8. Consultation methodology
⢠Consultations with:
⢠57children & young people (3-19 years)
⢠29 parents
⢠10 external education professionals
⢠23 RCH Education Institute staff
⢠4 junior medical doctors
9. Example: Children & young people
⢠Across all areas of hospital
⢠except ED & ICU
⢠purposive & convenience sampling
⢠Stimulus â photographic slide show
⢠Semi-structured interview questions
⢠A3 design activity
11. Children & young people questions
Domain Examples of guiding questions
Children as learners ⢠Which activities in the photos would you like to do? Why?
⢠What sort of activities/things have you done today while here in the hospital?
What was your favourite? Why?
⢠How do you know when you have learnt something?
⢠Can you tell me about something you have learnt whilst here in the hospital?
Learning communities ⢠Do you like working/playing with other children/people? Why?
⢠Do you sometimes like working/playing on your own? Why?
Continuity of learning ⢠Have you worked with a teacher/play therapist here? What was that like?
⢠Do you keep in touch with your friends from school while you are in the
hospital? How? Why?
Physical spaces ⢠What is your favourite place to learn? What makes it your favourite place?
⢠What areas of the hospital do you spend time in? What do you do while you
are there? Are there things you wish you could do there?
13. Children and young people
⢠Children and young people have a deep and
broad understanding of what âlearningâ is
⢠Fun/games/interactivity are the key to
engagement in learning opportunities in a
hospital setting
⢠Children and young people are social beings
and learning opportunities should reflect this
14. Children and young people (2)
⢠Children and young people want to access
activity rooms and outdoor spaces for social
interactions
⢠Children and young people want more
appropriate fit outs for furniture/activities in
activity rooms and are capable of being
included in decision making in this regard
15. Children and young people:
Perceptions of learning
â... I like working in groups more. Because ... everyone has different ideas,
and so ... you can learn different things off different people, and, if your
answerâs wrong or something, they can be up there to help you learn
different ways that theyâve learnt how to learn it.â
âIt feels good. Before you didnât know what it is. You now know how to do
it.â
âItâs easier to learn when working with others. You learn more... itâs
sometimes better [to work alone] if you need to concentrate.â
âIf you work with other people, they might get something wrong.â
âYou can teach it to someone else.â
âI know something else.â
16. Parents
⢠Parents value and expect the inclusion of
education and learning support as part of the
holistic care of their children
⢠Many parents have limited knowledge of the
education support that is available in hospital
⢠Parents of hospitalised children undervalue
the early years of education
⢠âUm, cause sheâs only at Kinder I donât think itâs ... much of an issue.
The Kinder stuff they do is all play to learn, itâs not sit down and write ...
itâs all blocks and play dough ... and things like that.â
17. Parents (2)
⢠Parents of hospitalised children view learning
and education as formal schooling only
âThereâs nothing you guys can do that is actually gunna get me over the
thorough dislike I have of the fact that heâs not at school.â
âHe doesnât bring his work from school, his homework in here â he
conveniently forgets a lot! And um, thatâs actually a concern for me
nowâ
âI hate it when she misses school. I really hate it.â
âAnd ... during the school term weâve organised work from school and heâs
had to do some schoolwork. So you canât just take games all the time.â
18. Parents (3)
⢠Parents highlighted a need to reduce social
and educational barriers for their hospitalised
children and were unaware of the
opportunities available for better connections
to be established
⢠Families want to be able to utilise the outside
spaces more
⢠Communication between school and hospital
is critical
19. Parent comments
⢠â... Iâm trying to explain to her that she needs her education to further
her um expenditure on â going forth in her life ...â
⢠â[Education] - itâs very important for her to be all she can be.â
⢠â... just to maximise all opportunities heâs got. To give him opportunities
to do whatever he wants to do really. And um, cause I know that
education can give you access to things ... and education allows you to
achieve things that other people donât think you can.â
⢠âAnd even if he makes it up to 20 [years old] you know, heâs still going
to need to think ahead ... So if he does, then heâs going to need to be
able to go forward and have a job.â
⢠âI want her to be able to think well, you know she can do anything in life
if she wants to. But she also needs to be, we have to try and keep her
normal, too. So school and her health are very⌠on my top of the list.â
20. Education Institute staff
⢠Integration of education into a health
dominated environment is challenging and
takes a considerable time to be achieved
⢠There is an increasing understanding from
ward teams about the role of the Education
Institute and the teachers
⢠Communication and consultation are key to
teachers being successful in
their role
21. Education Institute staff (2)
⢠There are vast differences (both positive and
negative) between teaching and learning in a
school setting and teaching and learning in a
hospital setting
⢠There is the potential to better involve parents
in the education and learning opportunities in
this setting, but in some instances it is better
to allow parents âtime outâ
22. Education Institute staff comments
â... what Iâve seen in the play and learning spaces [in the hospital] are
safe spaces. So theyâre one of the very few places in the hospital where
thereâs no procedures undertaken. No medical staff can come in, unless
itâs to engage in learning or play activities. And thatâs a really important
thing for children in a hospital to have. A space that they know if
someone comes in with a lanyard on, theyâre not going to be doing
something to them that they donât want.â
âI always think a space in which students are comfortable to take risks I
think is one of the most important things.â
23. What we hope to achieve
⢠Outputs â procedure incorporated into the
RCH & an evidence-based framework to
guide teaching & learning in a paediatric
setting
⢠Embed notion of âchildren as learnersâ into the
core business of the new hospital
⢠See evidence of this in:
⢠budgets
⢠key messages
⢠infrastructure
⢠decision making processes
24. Recommendations
⢠The RCH Education Institute and RCH
Executive should continue to advocate and
provide opportunities for patients as learners
⢠Government and non-government education
organisations, and the RCH Education
Institute, need to provide opportunities to
build parent knowledge and skills
⢠The education support available in the
hospital needs to be publicised to staff,
patients and visitors
25. Acknowledgements
⢠Thanks to the children, families, hospital &
non-hospital-based professionals who have
generously given their time and voice to this
research
⢠The work of the Royal Childrenâs Hospital
Education Institute is made possible by
funding provided by the Victorian Government
Department of Education and Early Childhood
Development
Paper reports on the CL@RCH project which took place in 2011-2012 at the RCH in Melbourne
The project came about because dynamic and visionary educational leaders at the hospital decided to move away from the traditional model of the hospital school â which is usually a special school, although most of the students do not have special education needs, but rather are regular learners, learning in an irregular setting
The Education Institute at the RCH is not a registered school, but rather is a company limited by guarantee, funded by DEECD and based at the RCH. Ed Inst staff work with patients, siblings and families at the hospital to provide ed support for school-aged children and young people (approx half of all inpatients). Ed Inst also has a small research team who focus on the generation of evidence at the health-education interface to improve outcomes for children and to influence policy and procedures strategically in the provision of world-best education support to children and young people with acute and chronic health conditions. The CL@RCH project came about specifically in the context on the development of a new childrenâs hospital and the move from the old building, which took place in Nov 2011, into the bright, new, spacious, flexible, child-centred building which houses the new RCH. We wanted to focus on the ways in which education, which is not traditionally understood as belonging in a health-care space, could be incorporated much more holistically into the child-centred model of care and well-being.
We had five main research questions:
We had a number of outputs from the project. Today Iâm going to touch very briefly on the relevant findings from the literature review and then Iâm going to focus on the findings of our research with our young patients, their parents and the teachers of the Education Institute who deliver education support in the hospital. Iâll finish with a mention of three of the recommendations which we came up with for incorporating education more holistically and effectively into the hospital environment.
A lot of work has been done on the effects of physical spaces on childrenâs learning. These are some of the key findings which support the evidence we found by talking to people in the hospital
We talked to all these people.
What did we find?
Perception that move to new hospital (single rooms) would increase privacy, but decrease socialisation and group learning opportunities