Talk describing the kind of support necessary to avoid institutionalisation and abuse.

1. Personalised Support
the alternative to institutional care
Talk by Simon Duffy of The Centre for Welfare Reform for the Skills
for Care Conference, 18th April, Taunton.

2. Support Plans
Self-Directed Support
Supported Living
Inclusion
Citizenship
Keys to
Personal
Essential Lifestyle Planning
Budgets
Personalisation
Home Ownership Individual
Community Service Funds
Individual
Connecting Person Centred Planning
Budgets
Brokerage Personalised Support

3. “What did you think
it was all about?”

6. My Poem They shoved me in a hostel
As a guest of the Salvation Army,
With the company of drunks and punks
I’m a woman who has talent It was enough to send a poor lass barmy.
That they can’t take away.
I wonder why it had to be that all my life
They tried with drugs.
No one to love me
And needles to dope me every day.
No one to care
No one to see
Institutions stink,
No one to listen properly.
They make you want to puke,
The doctors think they’re it
So now my second life begun –
And they’ll read you like a book.
A new chance to live life through my son;
A reason for living I have found
I was kicked around and used
And it’s going to be better second time round.
Insulted and abused;
They messed my mind right from the start
So now I tell you
Treated me like a dirty tart.
I’ve got a voice
I’ve got a right to make a choice.
But it was them that did that,
I’m not a toy for you to abuse
It was them that scarred my mind,
I’m a woman of spirit and now I’ll refuse…To take
It was them that corrupted my innocence,
that abuse anymore.
And left me feeling that no one cared.
Suzie Fothergill

7. Why is Winterbourne
View not the exception
but the rule?

8. its an institution

9. 1. It robs life of purpose

10. 2. It takes away freedom

11. 3. It keeps people poor

12. 4. It makes people homeless

13. 5. It corrupts need

14. 6. It limits contribution

15. 7. It disregards love

16. And the institution is
still with us.

17. Institutions can be
large or small,
far or near,
cheap or costly...
...what they all have in common is
they are systems of control

20. Too often,
Community Care
is the Institution without the Park

21. Institutions don’t force
people to do evil...
...they just make evil
seem normal.

22. We are not condemned
to repeat this pattern

23. We can choose
to support
citizenship

24. 1. Help people find their purpose
2. Let people be free
3. Ensure people have enough money
4. Find people real homes
5. Offer the right kind of help
6. Enable contribution to a full life
7. Protect and foster love

25. This is not rhetoric or
ideology...
...it is commonsense

26. 1. Citizenship is safe

27. Levels of Relative Risk

28. 2. Citizenship is sustainable

29. In 1968 there were 65,000 people in
institutions. In 2010 there were
11,000 in smaller private
institutions at a typical cost of
£160,000 per person. We are
spending the same money on
institutions - but for about one
sixth of the people.

30. 3. Citizenship is happiness

31. when people take back control

32. 4. Citizenship is right

33. Honour can exist anywhere, love
can exist anywhere, but justice can
exist only among people who found
their relationships upon it.
Ursula Le Guin

34. Profound changes in
skills, supports,
services, and systems
will be required.

35. 5 Basic Tasks of Support
(O’Brien)

36. Individualised Service Design

37. Personalised Support

38. Self-Directed Support

39. We know what to do...
...are we ready to do it?

40. and can we do it at a
time of crisis?

42. £72 billion of cuts

43. Most cuts fall
in two areas:

45. To find out more
•How the cuts target
disabled people
•What will happen in
practice
•Why this is happening
download the report
www.centreforwelfarereform.org