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Sorry seems to be the
hardest word: Or is it?

       Stuart Lane
   Sydney Medical School
      Nepean Hospital
Overview
•   ODC
•   Qualitative research
•   PhD thesis – structure
•   PhD thesis – results and interpretation
•   Conclusions
Background
• 1987 VA Hospital, Lexington, USA,
• ‘To maintain a humanistic, care-giving attitude
  with those who have been harmed
• Rather than respond in a defensive and
  adversarial manner’
• Ten years later - drop in court cases and
  claims
• OD now forms part of health reform across
  the world
Background
• November 1999, the Institute of Medicine
  (IOM) issues a report ‘To err is human’
• Almost 100,000 patients each year die in US
  hospitals due to preventable medical errors.
• Up to 67% of all patients admitted to hospital
  are exposed to a medication prescription
  error.
Open disclosure communication
• The principles of ODC
  – Be open and timely with communication
  – Acknowledge the error
  – Express regret
  – Recognise the reasonable expectations of
    the patient, or their support person
  – Ensure support for health staff and
    confidentiality
Is it working?
•   Reports of decreased litigation
•   Lots of policies and documents
•   But not much evidence of teaching
•   Even less evidence of evaluation
•   Anecdotes
      • People have little understanding of it
      • People are not aware of the policies
      • But they probably practice it to some degree
Findings
• 30% did not agree with disclosing medical
  errors to patients
• 20% did not agree that a physician should
  never tell the patient something untrue
• 40% did not agree that they should disclose
  financial relationships with drugs and devices
• 11% said they had told a patient something
  untrue in the previous year
Why?
Qualitative vs. Quantitative
• A finding or result is more likely to be
  believed if it is expressed as a number
• Many of these numbers are biased and
  reductionist
• The numbers are the convincing part
• Quantitative research is powerful
  amongst the medical profession
Qualitative researchers
• Seek a ‘deeper truth’
• Or just a different truth
• Really a different question
• Study things in their natural setting
• Attempt to make sense of, or interpret,
  phenomena in terms of the meanings
  people bring to them
• Human behaviour is complex
Questions
• How many parents would consult their
  general practitioner when their child
  has a mild temperature?
• Why do parents worry so much about
  their children's temperature?
• What proportion of smokers have tried
  to give up?
• What stops people giving up smoking?
• Asthma and epilepsy as social conditions
PhD thesis
• Saying Sorry: Doctor’s experiences
  of open disclosure communication
  (ODC) following medication error?
Initial thoughts
• Doctors receive little or no communication education
      • Medical school
      • Hospital practice
• It forms a significant part of their clinical practice.
• Find their own way during their careers, to help them
  develop strategies to assist them in dealing with
  difficult communication scenarios
• Simulation has shown promise as an adult learning tool
• Simulation with facilitated debriefing can assist in
  the learning and teaching of ODC
Mind mapping
Question 1
• Intern experiences of open disclosure
  communication with patients and their
  families?
Question 2
• Final year medical students experiences
  of a simulation session focussing on open
  disclosure communication with a
  patient’s family
Question 3
• Intern experiences of open disclosure
  communication with patients and their
  families after a simulation experience
Methodology
•   How can we go about acquiring knowledge?
•   Research design and justification of methods
•   Phenomenology
•   Intentionality
•   The study of the ‘lived experience’
•   What is it like to be ..?’ ‘How do we make
    sense of ..?
Theoretical perspective
• The philosophical stance informing the
  methodology
• Interpretevist
• Meanings are constructed by humans as they
  engage with the world they are interpreting.
• Humans make sense of the world based on
  their historical and social perspective.
Epistemological stance
• The theory of knowledge / the knowing of
  knowing
• Constructivism
• Social phenomena develop in particular social
  contexts.
• Learners construct mental models to
  understand the world around them
Data collection methods
• Interviews
• Focus groups
Data collection methods
• Audio interviews
    • Illuminate the person’s experience
• Focus groups
    • Concentrated data collection to an immediate
      event
    • Exploring reasoning and debate on the topic
Sampling
• Purposive for JMO interviews
    • Repeat sampling till thematic and theoretical
      saturation
• Purposive for simulation scenarios
    • Expected to have an opinion
The simulation aspect
•   8 final year medical students
•   2 groups of 4
•   Mannequin with deterioration
•   Team-leader speaks to family
•   Facilitated focus group after
    watching
Analysis
• Interpretive Phenomenological analysis
• IPA (Johnathan Smith)
  – Try to make sense of the participant trying
    to make sense of…
• Also grounded theory analysis for focus
  group data (Kathy Charmaz)
Reflexivity
• Needs to be happening
    • At all times
    • Throughout all processes’
    • Not just reflection but true analysis
• True reflexivity is almost impossible
• Needed to discover my views on the
  subjects and how they may influence
• CMS Harvard/MIT
    • Trial run of data collection
    • Prospective learning pathways grid
Results
• Provisional results
• Still working through the final
  conclusions
• Four areas to highlight
• SVU; We are sorry for your loss
• The hardest word - mistake
• Apologetic justification, ‘it’s the patient’
• The development of professionalism
SVU apology
• Easy to say sorry
     • ‘It is expected of us’
      • ‘It is what I would want to hear’
      • ‘I would say it even though I don’t really feel it’
• Can’t stop saying it enough
• Minimal empathy around sorry
      • Genuine for the situation
      • But not for the saying sorry part
The hardest word
• Mistake / error is the stumbling block
     • This is what worries people litigation wise
     • Do people actually see it as an error?
     • Can they be sorry if they see no error?
• Dialogue of prefixes and sentence fillers
     • ‘A little bit too much’
     • ‘Slightly excessive’
• Frightening regularity
     • It is expected
     • It is the culture
Does this matter?
• Why is theory important
• Bullying (Prof Helen McGrath)
   – Self esteem vs. Self respect
• Theory of apology
• Is our ODC template good enough?
• What does an apology mean in society
• “Tuesdays, Thursdays and Fridays are tricky for me, I’m
    sorry.”
•   “Best days for meetings are Mondays and Wednesdays.”
•   “Sorry to bother you.”
•   “Is now an okay time to talk for five minutes?”
•   This needs to be personal, not via the system
Famous apologies
Famous apologies
Famous apologies
Apology
Apologetic justification
• Its not me, it’s the patient
      • ‘It was her heart than was not strong enough for the
         medication’
       • ‘She would have died anyway’
       • ‘It was OK because they got her back with Naloxone’
       • ‘He could not handle the side-effects of the morphine
• Can the system always be to blame?
       • Side-effects vs medication error
       • Where does the cognition of error lie?
       • Opinions changed after reflection
Learning from simulation
• Constructivist approach appears justified
• It is beyond either behaviourism or
  cognitivism
• Creating a reflective environment that goes
  beyond the simulation centre and the
  simulation session
• This can not be assessed by conventional
  means
• We need to move away from the obsession of
  validation
Notions of professionalism
• Professional identity vs. professionalism
• Professional identity is constructed at the
  level of the individual. The reality might not
  be ideal
• Professionalism is constructed by the
  community and medical profession as a whole
  of the idealized professional. The ideal may
  not be a reality
Notions of professionalism
• This needs to be a personal
  characteristic
• Blaming the system does not help
• If it is not personal, how can one
  reflect?
• We don’t want a culture of blame
• But is making people feel accountable
  and responsible what is really needed?
So did simulation affect this
• People reflected far more
• They thought about the development of
  their practice
• What they concluded was up to them
• We need to help them draw the right
  conclusions
• And then reinforce them
• The education needed is far bigger than
  most anticipate
Take home messages
• Doctors are quite happy to say sorry
• They still struggle to admit to errors / mistakes
• Their communication can appear to rationalise it as a
  patient problem rather than a practitioner problem
• Many of the errors that occur are not even seen as
  errors since they happen so frequently
• We need to instil the desire to develop
  professionalism at a personal level, by forging the
  development of the appropriate professional
  identities.
• A beurocratic template based on decreasing litigation
  is not what is needed
Take home messages
• This is about the sort of doctor that you are and you
  want to be
• This is about what you say and do when you have
  family conferences
• This is about what effect you want to have and have
  had
• This is about how you learn, keep learning, and want
  to keep learning
• This is about the professional identity you have
  moulded for yourself, and how you develop you
  professionalism
• CICM provides a template and others provide
  guidance – you fill in the rest
Questions?
Questions?

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Stuart Lane on SORRY

  • 1. Sorry seems to be the hardest word: Or is it? Stuart Lane Sydney Medical School Nepean Hospital
  • 2. Overview • ODC • Qualitative research • PhD thesis – structure • PhD thesis – results and interpretation • Conclusions
  • 3. Background • 1987 VA Hospital, Lexington, USA, • ‘To maintain a humanistic, care-giving attitude with those who have been harmed • Rather than respond in a defensive and adversarial manner’ • Ten years later - drop in court cases and claims • OD now forms part of health reform across the world
  • 4. Background • November 1999, the Institute of Medicine (IOM) issues a report ‘To err is human’ • Almost 100,000 patients each year die in US hospitals due to preventable medical errors. • Up to 67% of all patients admitted to hospital are exposed to a medication prescription error.
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  • 7. Open disclosure communication • The principles of ODC – Be open and timely with communication – Acknowledge the error – Express regret – Recognise the reasonable expectations of the patient, or their support person – Ensure support for health staff and confidentiality
  • 8. Is it working? • Reports of decreased litigation • Lots of policies and documents • But not much evidence of teaching • Even less evidence of evaluation • Anecdotes • People have little understanding of it • People are not aware of the policies • But they probably practice it to some degree
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  • 10. Findings • 30% did not agree with disclosing medical errors to patients • 20% did not agree that a physician should never tell the patient something untrue • 40% did not agree that they should disclose financial relationships with drugs and devices • 11% said they had told a patient something untrue in the previous year
  • 11. Why?
  • 12. Qualitative vs. Quantitative • A finding or result is more likely to be believed if it is expressed as a number • Many of these numbers are biased and reductionist • The numbers are the convincing part • Quantitative research is powerful amongst the medical profession
  • 13. Qualitative researchers • Seek a ‘deeper truth’ • Or just a different truth • Really a different question • Study things in their natural setting • Attempt to make sense of, or interpret, phenomena in terms of the meanings people bring to them • Human behaviour is complex
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  • 15. Questions • How many parents would consult their general practitioner when their child has a mild temperature? • Why do parents worry so much about their children's temperature? • What proportion of smokers have tried to give up? • What stops people giving up smoking? • Asthma and epilepsy as social conditions
  • 16. PhD thesis • Saying Sorry: Doctor’s experiences of open disclosure communication (ODC) following medication error?
  • 17. Initial thoughts • Doctors receive little or no communication education • Medical school • Hospital practice • It forms a significant part of their clinical practice. • Find their own way during their careers, to help them develop strategies to assist them in dealing with difficult communication scenarios • Simulation has shown promise as an adult learning tool • Simulation with facilitated debriefing can assist in the learning and teaching of ODC
  • 19. Question 1 • Intern experiences of open disclosure communication with patients and their families?
  • 20. Question 2 • Final year medical students experiences of a simulation session focussing on open disclosure communication with a patient’s family
  • 21. Question 3 • Intern experiences of open disclosure communication with patients and their families after a simulation experience
  • 22. Methodology • How can we go about acquiring knowledge? • Research design and justification of methods • Phenomenology • Intentionality • The study of the ‘lived experience’ • What is it like to be ..?’ ‘How do we make sense of ..?
  • 23. Theoretical perspective • The philosophical stance informing the methodology • Interpretevist • Meanings are constructed by humans as they engage with the world they are interpreting. • Humans make sense of the world based on their historical and social perspective.
  • 24. Epistemological stance • The theory of knowledge / the knowing of knowing • Constructivism • Social phenomena develop in particular social contexts. • Learners construct mental models to understand the world around them
  • 25. Data collection methods • Interviews • Focus groups
  • 26. Data collection methods • Audio interviews • Illuminate the person’s experience • Focus groups • Concentrated data collection to an immediate event • Exploring reasoning and debate on the topic
  • 27. Sampling • Purposive for JMO interviews • Repeat sampling till thematic and theoretical saturation • Purposive for simulation scenarios • Expected to have an opinion
  • 28. The simulation aspect • 8 final year medical students • 2 groups of 4 • Mannequin with deterioration • Team-leader speaks to family • Facilitated focus group after watching
  • 29. Analysis • Interpretive Phenomenological analysis • IPA (Johnathan Smith) – Try to make sense of the participant trying to make sense of… • Also grounded theory analysis for focus group data (Kathy Charmaz)
  • 30. Reflexivity • Needs to be happening • At all times • Throughout all processes’ • Not just reflection but true analysis • True reflexivity is almost impossible • Needed to discover my views on the subjects and how they may influence • CMS Harvard/MIT • Trial run of data collection • Prospective learning pathways grid
  • 31. Results • Provisional results • Still working through the final conclusions • Four areas to highlight • SVU; We are sorry for your loss • The hardest word - mistake • Apologetic justification, ‘it’s the patient’ • The development of professionalism
  • 32. SVU apology • Easy to say sorry • ‘It is expected of us’ • ‘It is what I would want to hear’ • ‘I would say it even though I don’t really feel it’ • Can’t stop saying it enough • Minimal empathy around sorry • Genuine for the situation • But not for the saying sorry part
  • 33. The hardest word • Mistake / error is the stumbling block • This is what worries people litigation wise • Do people actually see it as an error? • Can they be sorry if they see no error? • Dialogue of prefixes and sentence fillers • ‘A little bit too much’ • ‘Slightly excessive’ • Frightening regularity • It is expected • It is the culture
  • 34. Does this matter? • Why is theory important • Bullying (Prof Helen McGrath) – Self esteem vs. Self respect • Theory of apology • Is our ODC template good enough? • What does an apology mean in society • “Tuesdays, Thursdays and Fridays are tricky for me, I’m sorry.” • “Best days for meetings are Mondays and Wednesdays.” • “Sorry to bother you.” • “Is now an okay time to talk for five minutes?” • This needs to be personal, not via the system
  • 39. Apologetic justification • Its not me, it’s the patient • ‘It was her heart than was not strong enough for the medication’ • ‘She would have died anyway’ • ‘It was OK because they got her back with Naloxone’ • ‘He could not handle the side-effects of the morphine • Can the system always be to blame? • Side-effects vs medication error • Where does the cognition of error lie? • Opinions changed after reflection
  • 40. Learning from simulation • Constructivist approach appears justified • It is beyond either behaviourism or cognitivism • Creating a reflective environment that goes beyond the simulation centre and the simulation session • This can not be assessed by conventional means • We need to move away from the obsession of validation
  • 41. Notions of professionalism • Professional identity vs. professionalism • Professional identity is constructed at the level of the individual. The reality might not be ideal • Professionalism is constructed by the community and medical profession as a whole of the idealized professional. The ideal may not be a reality
  • 42. Notions of professionalism • This needs to be a personal characteristic • Blaming the system does not help • If it is not personal, how can one reflect? • We don’t want a culture of blame • But is making people feel accountable and responsible what is really needed?
  • 43. So did simulation affect this • People reflected far more • They thought about the development of their practice • What they concluded was up to them • We need to help them draw the right conclusions • And then reinforce them • The education needed is far bigger than most anticipate
  • 44. Take home messages • Doctors are quite happy to say sorry • They still struggle to admit to errors / mistakes • Their communication can appear to rationalise it as a patient problem rather than a practitioner problem • Many of the errors that occur are not even seen as errors since they happen so frequently • We need to instil the desire to develop professionalism at a personal level, by forging the development of the appropriate professional identities. • A beurocratic template based on decreasing litigation is not what is needed
  • 45. Take home messages • This is about the sort of doctor that you are and you want to be • This is about what you say and do when you have family conferences • This is about what effect you want to have and have had • This is about how you learn, keep learning, and want to keep learning • This is about the professional identity you have moulded for yourself, and how you develop you professionalism • CICM provides a template and others provide guidance – you fill in the rest

Hinweis der Redaktion

  1. What we are not doing. Tick box exercise, and can they remember them
  2. Thesis title after several alterations
  3. Purposive sampling. Establishing a baseline of interns in their first year of practice
  4. The simulation part of the thesis
  5. The follow up from the simulation session
  6. How the simulation woks