Presented at the Master of Science and Doctor of Philosophy Programs in Data Science for Healthcare and Clinical Informatics, Department of Clinical Epidemiology and Biostatistics, Faculty of Medicine Ramathibodi Hospital, Mahidol University, Bangkok, Thailand on November 10, 2021

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Social Media for Health
Nawanan Theera-Ampornpunt
For Ramathibodi M.S. & Ph.D. Programs
in Data Science for Health Care
SlideShare.net/Nawanan
nawanan.the@mahidol.ac.th
Nov. 10, 2021

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Social Media
• “A group of Internet-based applications that build
on ideological and technological foundations of
Web 2.0, and that allow the creation and
exchange of user-generated content”
(Andreas Kaplan & Michael Haenlein)
Kaplan Andreas M., Haenlein Michael (2010). "Users of the world, unite! The
challenges and opportunities of social media". Business Horizons 53 (1). p. 61.

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Types of Social Media & Examples
• Collaborative projects (Wikipedia)
• Blogs & microblogs (Twitter)
• Social news networking sites (Digg)
• Content communities (YouTube)
• Social networking sites (Facebook)
• Virtual game-worlds (World of Warcraft)
• Virtual social worlds (Second Life)
Kaplan Andreas M., Haenlein Michael (2010). "Users of the world, unite! The
challenges and opportunities of social media". Business Horizons 53 (1). p. 61.

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The Age of User-Generated Content
Time’s Person
of the Year 2006:
You

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Risks of Social Media
• Blurring lines between personal & professional lives
• Work-life balance
• Inappropriate & unprofessional conduct
• False/misleading information
• Limitations & liability of online consultations
• Privacy risks

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Maslow's Hierarchy of Needs
Image Source: http://en.wikipedia.org/wiki/Maslow's_hierarchy_of_needs

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Why People Use Social Media?
• To seek & to share information/knowledge
• To seek & to share valued opinion
• To seek & to give friendship/relationship
• To seek & to give mental support, respect, love,
acceptance
• In simplest terms: To “socialize”

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Some Social Media in Healthcare: PatientsLikeMe
PatientsLikeMe.com

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Some Social Media in Healthcare: CaringBridge
CaringBridge.org

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Why People Use Social Media in Healthcare?
• To seek & to share health information/knowledge
– Information asymmetry in healthcare
– Information could be general or personalized
• To seek & to share health-related valued opinion
• To seek & to give friendship/relationship
• To seek & to give mental support, respect, love,
acceptance during medical journeys
• To consult/socialize/give support among colleagues

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• Richard Davies deBronkart Jr.
• Cancer survivor & blogger
• Found proper cancer treatment
through online social network after
diagnosis
• Activist for participatory medicine &
patient engagement through
information technology
Meet E-Patient Dave
http://www.epatientdave.com/

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• Not “Electronic” Patient
• Engaged
• Equipped
• Empowered
• Educated
• Enlightened
• Etc.
Dave’s E-Patient Definition
From Dr. Danny Sands’ tutorial presentation at AMIA2013

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How Should We Use Social Media?

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Developed by Nawanan Theera-Ampornpunt for Thailand’s National Health
Commission in 2016
http://www.ratchakitcha.soc.go.th/DATA/PDF/2560/E/088/12.PDF
Social Media Best Practices

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• Respect for the Law
• Respect for Professional Ethics
• Respect for Institutional Policy
• Respecting Human Dignity & Avoiding Defamation &
Cyber-bullying
• Report of Misconduct
• Academic Freedom
Social Media Guidelines: General Principles

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• Protection from Harms
• Beneficence
Social Media Guidelines:
General Ethical Principles for Health Professionals

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• Maintaining Professionalism
• Pausing Before Posting
• Appropriate Behaviors Online
• Privacy Settings and Separating Personal & Professional
Information
• Periodic Self-Auditing
Social Media Guidelines:
Professionalism

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• Professional Boundaries with Patients
• Professional Boundaries with Others
Social Media Guidelines:
Professionalism

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• Protecting Information Security & Non-Disclosure of
Patient Information
• Informed Consent
Social Media Guidelines:
Protection of Patient Privacy

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• Non-Advertising
• Full Disclosure
• Self-Identification
• Avoiding Misrepresentation
• Fact Checking before Sharing
Social Media Guidelines: Integrity

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• Cautious Practice for Online Consultation
• Documentation of Professional Communications
Social Media Guidelines:
Online Consultation