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Portugal – 1st International meeting on the
         electronic health record
      ** Experience from the UK **
                        26 November 2010

                       Matthew Swindells

             Chair of the British Computer Society, Health
     Visiting Professor, Surrey University School of Management
           Vice President Global Consulting, Cerner Limited

         Former CIO for the English National Health Service
Disclaimer and Declaration
• This is a personal view
• I am not representing policy on behalf of:
   –   The NHS or NHS Connecting for Health
   –   Any other government body UK or otherwise
   –   Cerner
   –   BCS
• I now work as Vice President for Cerner Limited, a
  global health IT Supplier
An English Project

                        X
                       Scotland




    X
Northern Ireland




               X
               Wales
Some highlights of the delivery
                                            Secure
                                                                   National
                                          application
                   Encrypted                                       indexes                    Data
                                            servers
                     email                                                                 standards

   NHS
 network                        Spine                    Choose              GP to GP                      Technical
                               and SCR                  and Book             transfer                      standards




    4 prime           Hospitals               GPs            Community and              PACs                 SUS
  contractors                                                 Mental Health
Later reduced to    Two solutions        Choice from an       New products       100% coverage –            Hub to
    3 then 2            iSoft             approved list        developed         saved more than         standardise
                       Cerner                                                        forecast           measurement
                    (replace IDX)                                                                      and transactions
1.


                                                                                                                                                                                                         1998
                                                                                                                                                                                                                  1994




                                                                                                                                                                                                  2002
                                                                                                                                                                                Provide
                                                                                                                                                                                Prescriptions
                                                                                                                                                                                Service
                                                                                                                                                                                                                IM&T Strategy for the NHS




                                                                                                                                                                                Provide Bookings
                                                                                                                                                                                Service


                                                                                                                            Pervasive national electronic infrastructure (N3)




                                                                                                                                                                                Build Life-long
                                                                       Provide Prescriptions
                                                                                                                                                                                Health Record




Key:
                                                                       Service
                                                                                                                                                                                Service

                                                                       Provide Bookings Service




  Original Scope
                                                                          Build Life-long Health
                                                                          Record Service
                                                                                                   Commissioning




                                                                        Patient Choice



                                                                        Digital Imaging




Additional Scope
                   Pervasive national electronic infrastructure (N3)
                                                                        Secondary Uses Service
                                                                                                   Payment by Results




                                                                       NHS Email System
                                                                                                                                                                                                                                            Policy and medical practice changes are a fact of life




                                                                       Transfer of records
                                                                       between GPs

                                                                       Quality Management
                                                                       Analysis System


                                                                        NHS Numbers for Babies
                                                                                                                                                                                                                                                                                                     Healthcare is never a stable environment




                                                                                                   Plurality of provision




                                                                        Bowel Cancer Screening
2. Remember it’s about improving healthcare
                                            Focus on delivering information and improvement not technology

                Challenge – Clinical Knowledge-Processing Burden
“Current medical
practice relies
heavily on the                                           Knowledge processing requirement
unaided mind to
recall a great
amount of
detailed
knowledge – a
                                                                                            This gap
process which, to
                                                                                            injures patients
the detriment of
all stakeholders,                        Knowledge processing capacity
has repeatedly
been shown
unreliable”

Crane and Raymond
The Permanente
                                                Years ago                    Today
                                                                                                       A study published in British Medical Journal in
Journal
Winter 2003 Volume 7 No.1
Kaiser Permanente Institute for Health
                                                                                                       2004 concluded that:
Policy




                                                                                        •              1 in 16 hospital admissions are the result of an
                                                                                                       adverse drug reaction – 76% avoidable.
                                                                                        •              This equates to 4% of hospital bed capacity At any
                                                                                                       one time 7 x 800 bed hospitals are occupied by
                                                                                                       patients admitted with ADRs. Cost = £466m
                                                                                                       annually –
                                                                                        •              Patient harm and £354m expenditure avoidable
                                                                                                       by putting in place e-prescribing ?
                                                                                                       [1] Pirmohamed, M. et al: Adverse drug reactions as a cause of admission to
                                                                                                       hospital: prospective analysis of 18,820 patients: BMJ 2004; 329: 15-19
3. Acknowledge and confront public fears
                         Make the benefits argument - the media doesn’t help!


NHS porters and cleaners can
snoop on your medical records
Daily Mail 26-Mar-2010




                                              'Big brother' health database
                                              Daily Mail 11-Oct-2010
4. Ensure local ownership and build capacity
             You can’t nationalise responsibility
5. Deliver clinical functionality early
          What’s in it for the clinical staff?
6. Redesign and improve the service
    Computerisation of poor process solves nothing
7. Be rigorous about standards
                                   Data, integration and semantics are all important
•   Terminology: SNOMED CT http://www.ihtsdo.org/                       What is the date Wednesday next week?
•   Drug Database: dm+d http://www.dmd.nhs.uk/
•   https://www.uktcregistration.nss.cfh.nhs.uk/trud/                   •   It will be the 1st of December 2010
•   Professional Record Keeping:                                        •   UK 1/12/10
    http://www.rcplondon.ac.uk/clinical-standards/hiu/medical-records   •   US 12/1/10
•   Professionalism: UKCHIP http:www.ukchip.org.uk                      •   Sweden 10/12/1
•   Definitions: i.e. ‘Allergy’ and ‘Current Medication’
•   Messaging: HL7 v3 http://hl7.org
                                                                        •   So in health it’s 01-Dec-2010
•   Logical Architecture / Archetypes:                                      and that’s final !
    http://www.connectingforhealth.nhs.uk/systemsandservices/data/l
    ra
•   Knowledge and Knowledge Authorship:                                 •   By doing this I just reduced the number
                                                                            of errors it’s possible to make for 12 days
•   Device Interoperability: www.continuaalliance.org                       a month.
•   User interface design: www.cui.nhs.uk
•   Open Health tools: www.openhealthtools.org


                        How many times do these need to be invented globally ?
                      Adopt what’s already there and be rigorous about enforcing it.
                                      No competition on standards!
8. Invest in the infrastructure
                          You’ll think of new things to use it for

                                  Secure
                                                         National
                                application
          Encrypted                                      indexes                  Data
                                  servers
            email                                                              standards

  NHS
network                Spine                   Choose          GP to GP                    Technical
                      and SCR                 and Book         transfer                    standards




                                 Thousands of NHS medical records lost
                                                                      Daily Telegraph




                                        Central
                                       Expertise
9. Use more than one vendor
   Competition future proofs your investment
10. Be Brave




“Culture eats strategy for breakfast”
 Some times you feel as if you are fighting 100 years of
 operational practice on your own!
Ten lessons
1. Healthcare is never a stable                6. Redesign and improve the service
   environment                                      • Computerisation of poor process
      • Policy and medical practice changes           solves nothing
        are a fact of life                     7. Be rigorous about standards
2. Remember it’s about improving                    • Data, integration and semantics are
   healthcare                                         all important
      • Focus on delivering information and    8. Invest in the infrastructure
        improvement not technology
                                                    • You’ll think of new things to use it for
3.   Acknowledge public fears
                                               9. Use more than one vendor
      • Make the benefits argument
4. Ensure local ownership and build                 • Competition future proofs your
                                                      investment
   capacity
      • You can’t nationalise responsibility   10. Be brave
5. Deliver clinical functionality early             • This is really hard. Change is hard.
                                                      The technology is difficult. Can you
      • What’s in it for the clinical staff?
                                                      imagine a health service where we
                                                      don’t confront this challenge
** Experience from the UK **

                   Questions

                  Matthew Swindells

        Chair of the British Computer Society, Health
Visiting Professor, Surrey University School of Management
      Vice President Global Consulting, Cerner Limited

    Former CIO for the English National Health Service

                                         matthew.swindells@cerner.com
                                         +44 7961 557556

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Ten Lessons from NPfIT

  • 1. Portugal – 1st International meeting on the electronic health record ** Experience from the UK ** 26 November 2010 Matthew Swindells Chair of the British Computer Society, Health Visiting Professor, Surrey University School of Management Vice President Global Consulting, Cerner Limited Former CIO for the English National Health Service
  • 2. Disclaimer and Declaration • This is a personal view • I am not representing policy on behalf of: – The NHS or NHS Connecting for Health – Any other government body UK or otherwise – Cerner – BCS • I now work as Vice President for Cerner Limited, a global health IT Supplier
  • 3. An English Project X Scotland X Northern Ireland X Wales
  • 4. Some highlights of the delivery Secure National application Encrypted indexes Data servers email standards NHS network Spine Choose GP to GP Technical and SCR and Book transfer standards 4 prime Hospitals GPs Community and PACs SUS contractors Mental Health Later reduced to Two solutions Choice from an New products 100% coverage – Hub to 3 then 2 iSoft approved list developed saved more than standardise Cerner forecast measurement (replace IDX) and transactions
  • 5. 1. 1998 1994 2002 Provide Prescriptions Service IM&T Strategy for the NHS Provide Bookings Service Pervasive national electronic infrastructure (N3) Build Life-long Provide Prescriptions Health Record Key: Service Service Provide Bookings Service Original Scope Build Life-long Health Record Service Commissioning Patient Choice Digital Imaging Additional Scope Pervasive national electronic infrastructure (N3) Secondary Uses Service Payment by Results NHS Email System Policy and medical practice changes are a fact of life Transfer of records between GPs Quality Management Analysis System NHS Numbers for Babies Healthcare is never a stable environment Plurality of provision Bowel Cancer Screening
  • 6. 2. Remember it’s about improving healthcare Focus on delivering information and improvement not technology Challenge – Clinical Knowledge-Processing Burden “Current medical practice relies heavily on the Knowledge processing requirement unaided mind to recall a great amount of detailed knowledge – a This gap process which, to injures patients the detriment of all stakeholders, Knowledge processing capacity has repeatedly been shown unreliable” Crane and Raymond The Permanente Years ago Today A study published in British Medical Journal in Journal Winter 2003 Volume 7 No.1 Kaiser Permanente Institute for Health 2004 concluded that: Policy • 1 in 16 hospital admissions are the result of an adverse drug reaction – 76% avoidable. • This equates to 4% of hospital bed capacity At any one time 7 x 800 bed hospitals are occupied by patients admitted with ADRs. Cost = £466m annually – • Patient harm and £354m expenditure avoidable by putting in place e-prescribing ? [1] Pirmohamed, M. et al: Adverse drug reactions as a cause of admission to hospital: prospective analysis of 18,820 patients: BMJ 2004; 329: 15-19
  • 7. 3. Acknowledge and confront public fears Make the benefits argument - the media doesn’t help! NHS porters and cleaners can snoop on your medical records Daily Mail 26-Mar-2010 'Big brother' health database Daily Mail 11-Oct-2010
  • 8. 4. Ensure local ownership and build capacity You can’t nationalise responsibility
  • 9. 5. Deliver clinical functionality early What’s in it for the clinical staff?
  • 10. 6. Redesign and improve the service Computerisation of poor process solves nothing
  • 11. 7. Be rigorous about standards Data, integration and semantics are all important • Terminology: SNOMED CT http://www.ihtsdo.org/ What is the date Wednesday next week? • Drug Database: dm+d http://www.dmd.nhs.uk/ • https://www.uktcregistration.nss.cfh.nhs.uk/trud/ • It will be the 1st of December 2010 • Professional Record Keeping: • UK 1/12/10 http://www.rcplondon.ac.uk/clinical-standards/hiu/medical-records • US 12/1/10 • Professionalism: UKCHIP http:www.ukchip.org.uk • Sweden 10/12/1 • Definitions: i.e. ‘Allergy’ and ‘Current Medication’ • Messaging: HL7 v3 http://hl7.org • So in health it’s 01-Dec-2010 • Logical Architecture / Archetypes: and that’s final ! http://www.connectingforhealth.nhs.uk/systemsandservices/data/l ra • Knowledge and Knowledge Authorship: • By doing this I just reduced the number of errors it’s possible to make for 12 days • Device Interoperability: www.continuaalliance.org a month. • User interface design: www.cui.nhs.uk • Open Health tools: www.openhealthtools.org How many times do these need to be invented globally ? Adopt what’s already there and be rigorous about enforcing it. No competition on standards!
  • 12. 8. Invest in the infrastructure You’ll think of new things to use it for Secure National application Encrypted indexes Data servers email standards NHS network Spine Choose GP to GP Technical and SCR and Book transfer standards Thousands of NHS medical records lost Daily Telegraph Central Expertise
  • 13. 9. Use more than one vendor Competition future proofs your investment
  • 14. 10. Be Brave “Culture eats strategy for breakfast” Some times you feel as if you are fighting 100 years of operational practice on your own!
  • 15. Ten lessons 1. Healthcare is never a stable 6. Redesign and improve the service environment • Computerisation of poor process • Policy and medical practice changes solves nothing are a fact of life 7. Be rigorous about standards 2. Remember it’s about improving • Data, integration and semantics are healthcare all important • Focus on delivering information and 8. Invest in the infrastructure improvement not technology • You’ll think of new things to use it for 3. Acknowledge public fears 9. Use more than one vendor • Make the benefits argument 4. Ensure local ownership and build • Competition future proofs your investment capacity • You can’t nationalise responsibility 10. Be brave 5. Deliver clinical functionality early • This is really hard. Change is hard. The technology is difficult. Can you • What’s in it for the clinical staff? imagine a health service where we don’t confront this challenge
  • 16. ** Experience from the UK ** Questions Matthew Swindells Chair of the British Computer Society, Health Visiting Professor, Surrey University School of Management Vice President Global Consulting, Cerner Limited Former CIO for the English National Health Service matthew.swindells@cerner.com +44 7961 557556