Here is the list of Local Multiple System Atrophy Support Groups. Support, education, research and advocacy are important because multiple system atrophy is so rare that few patients, prior to diagnosis and few physicians have any knowledge of the disease. For more information visit https://www.multiplesystematrophy.org/ or call Support Hotline: (866)737-5999

1. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
USA
ALL STATES
THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION
(formerly the Shy-Drager/MSA Support Group)
8311 Brier Creek Parkway, Suite 105-434
Raleigh, NC 27617 USA www.MultipleSystemAtrophy.org Toll free: 1-866-737-4999 or 1-866-737-5999
“United to Defeat MULTIPLE SYTEM ATROPHY”
The Multiple System Atrophy (MSA) CoalitionTM is a 501(c)3 charitable organization (EIN: 74-2926378) devoted to a four pillar mission: • Supporting patients and caregivers affected by multiple system atrophy • Educating patients, caregivers and healthcare professionals • Financing and encouraging meaningful research toward identifying a cause and finding a cure for MSA • Advocating for issues important to the MSA community, including creating greater awareness
Information: We offer two toll free support lines staffed by former MSA caregivers.
Contact: Vera James (CA USA) 1-866-737-5999 vjames@msacoalition.org
Judy Biedenharn RN (OH USA) 1-866-737-4999 jbiedenharn@msacoalition.org
Meeting Time(s): We host an annual conference for MSA patients and families in a different US city each year, usually September or October timeframe. Please watch for announcements on our website www.MultipleSystemAtrophy.org DVD’s of past conferences are available to order
Other contacts: Carol Langer (MA USA) clanger@msacoalition.org
Don Crouse (NC USA) dcrouse@msacoalition.org
Pam Bower (NS CANADA) pbower@msacoalition.org
Larry Kellerman (IA USA) lkellerman@msacoalition.org
Phil Fortier (MI USA) pfortier@msacoalition.org
Tom Looney (NC USA) tlooney@msacoalition.org
Cynthia Roemer (NJ USA) croemer@msacoalition.org
Sharon Sutton (TX USA) ssuton@msacoalition.org

2. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
Note: Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time.
ALABAMA
CHICKASAW
Information: No Meeting Phone Support Only Contact: Janiece Naber Martindale 251-300-1196 janiecenjim@gmail.com
ARKANSAS
LITTLE ROCK
Information: For anyone affected by PSP<CBD or MSA
Location: Alzheimer’s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021
Meeting Time: 4th Thursday of every months from 1:00pm-2:30pm
Facilitator: Randi Haley 870-703-6417 randirhaley@yahoo.com
ARIZONA
TEMPE
Information: No Meeting Phone Support Only
Contact: Jean Suico 480-839-3794 Suicoaz@aol.com
GILBERT Information: No Meeting Contact: Tandy King Facebook: www.facebook.com/kingchtata

3. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
CALIFORNIA
FREMONT
Information: Non-profit for MSA
Cure MSA – Kathy Shih Memorial Foundation
P.O. Box 15088
Fremont, CA 94539 USA
www.curemsa.org
Contact: Lily Shih (Executive Director) 510-226-0453 lily@curemsa.org
BURLINGAME
Information: No Meeting Phone Support Only
Contact: Candy Welsh 650-375-0229 cortez1us@yahoo.com
FOUNTAIN VALLEY
Information: For family members and caregivers dealing with Atypical PD+ Disorders
Location: Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave
Fountain Valley, CA 92708
Facilitator: Justin Aquines 714-907-0074 atypicalpdgroup@gmail.com
FREMONT
Information: No Meeting Phone Support Only
Contact: Sandy Bierman 510-656-6897 sandybierman@yahoo.com
Lily Shih 510-226-0453 liyshih1@comcast.net
GOLETA
Information: No Meeting Phone Support Only after 11am EST
Contact: George Relles 805-683-4829 grelles@cox.net
LIVERMORE
Information: No Meeting Phone Support Only
Contact: Carol Dutcher 925-998-3656 califalck@gmail.com

4. List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
LOS ANGELES
Information: Parkinsonian Disorders Support Group MSA ,PSP, CBD, OPCA, SND, SDS, PD
Location: Ronald Reagan UCLA Medical Center. 757 Westwood Plaza, Los Angeles, CA 90095, Conference Room 3102
Meeting Time(s): 1st Friday of every month from 2:00pm - 4:00pm
(for directions only: 310-825-9111)
Sponsors: Dr. Yvette Bordelon, UCLA Movement Disorder Department
Facilitator: Loretta Mazorra RN,MN,MA, Nurse Practiioner anlom@sbcglobal.net
Contact: Dolly West 310-430-6678 or 310 206-2154
MODESTO
Information: No Meeting Contact: Janeice Partridge elipartridge@att.net
NORTHERN/SAN MATEO
Information: Neurodegenerative movement disorder group (MSA PSP, CBD, etc.) – caregivers only. Contact facilitator for more info.
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm
Facilitator: Robin Riddle 650-814-0848 robin.riddle@brainsupportnetwork.org
SAN DIEGO
Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like MSA, PSP, CBD, OPCA, SND, SDS
Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3rd floor)
Meeting Time(s): 3rd Thursday of every month from 1:00pm -3:00pm
(for directions only: 858-657-7000)
Sponsors: Dr. Stephanie Lessig, UCSD & VA Movement Disorder Department
Facilitator: John Jenkins 619-787-2760 jenkins356@sbcglobal.net
SAN DIEGO
Information: For ONLY caregivers dealing with Atypical Parkinson Disorders
(MSA, PSP, CBD, OPCA)
Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123
Meeting Time(s): Every other month from 11:00am - 1:00pm
Facilitator: Patricia Hagan 619-223-1645 pkhagan@cox.net

5. List of Support Meetings & phone/email support
USA and Canada
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CALIFORNIA (continued)
SANTA BARBARA
Information: No Meeting Phone Support Only
Contact: Suzanne Grimmesey-Kirk 805-692-4010 suzkirk@co.santa-barbara.ca.us
THOUSAND OAKS
Information: For patients/caregivers dealing with Atypical Parkinsonian +
Disorders like MSA,PSP,CBD,OPCA,SND & SDS
Location: 672 Rosario Drive, Thousand Oaks, CA 91362
Meeting Times: One Saturday every quarter from 1:00pm-4:00pm
Call or email for meeting date.
Facilitator: Kathy Schwaiger 805-496-7018 ksquig2@yahoo.com
Ceri Williams medianet@earthlink.net
COLORADO
DENVER/ENGLEWOOD
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers
4th Friday of each month from 10:00am-12:00pm for Caregivers only
Facilitator: Helenn Franzgrote 303-789-9900 jhfranzgrote@comcast.net
JOHNSTOWN/LOVELAND
Information: MSA,PSP,CBD
Location: Northern Colorado Rehabilitation Hospital 4401 Union Street
Johnstown/Loveland, CO 80528
Meeting Time: 1st Friday of each month from 1:00pm - 3:00pm (No Dec/Jan meeting)
Facilitator: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net

6. List of Support Meetings & phone/email support
USA and Canada
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FLORIDA
BRADENTON Information: No Meeting Phone Support Only Contact: Dan Stone 678-581-9237 djsinvista@yahoo.com.hk
Contact: Connie Ferguson 941-778-5294 conokazee@aol.com
HOLMES BEACH Information: No Meeting Phone Support Only Contact: Connie Ferguson 941-778-5294 conokazee@aol.com
PORT ORANGE
Information: No Meeting Phone Support Only
Contact: Jim Grant 386-334-2691 jimboindc@yahoo.com
SOUTHEAST/DEERFIELD BEACH
Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases
Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for directions only: 954-941-8300)
Meeting Time(s): Contact Facilitator for more info
Facilitator: Paul Freeman 305-970-0805 freemanph@aol.com
SOUTHWEST/NAPLES
Information: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases
Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm
Facilitator: Cindy MacDonald 239-353-3960/239-404-4429 hotrdh@hotmail.com

7. List of Support Meetings & phone/email support
USA and Canada
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GEORGIA
ATLANTA
Information: For patients/caregivers living with Atypical Parkinsonism’s, PSP and CBD
Location: Wesley Woods Health Center, 1841 Clifton Rd, Atlanta, GA 30329, 3rd Floor Conference Room
Meeting Time(s): 2nd Saturday of each month (except May) from 10:00am – 11:30am
Facilitator: Lynn Ross 404-728-6300 slross@emory.edu
ELLIJAY Information: No Meeting Phone Support Only Contact: Paula Davis 706-669-1978 jimandpaula@ellijay.com
INDIANA
INDIANAPOLIS
Information: No Meeting Phone Support Only
Contact: Gary Huddleston 317-501-4899 garylovesjoyce@yahoo.com
KOKOMO
Information: For MSA Patients/caregivers
Contact: Renate Sharp 765-453-5351 rsbreslau@yahoo.com
Chris Markiewicz 765-513-5219 atacrew@aol.com
Francie Hutton 765-453-9020 huttondf20@aol.com
WARSAW Information: No Meeting Phone Support Only Contact: Terry Shepherd 574-267-1566 tellmenolies2004@yahoo.com
ILLINOIS
ORLAND PARK
Information: No Meeting Phone Support Only
Contact: Arthur (Ed) Wall 708-478-1236 aepwall@gmail.com

8. List of Support Meetings & phone/email support
USA and Canada
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CHICAGO AREA
Information: MSA Support Meeting for Patients/Caregivers
Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Page or Contact Facilitator.
Facilitator: John Standley 815-403-2221 johnstandley@Verizon.net
NORTHWESTERN AREA
Information: For those with PD and other movement disorders
Location: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3rd Floor Room A
(free parking at Huron/St. Clair)
Meeting Time : 4th Thursday of every month from 1:00-2:00 pm
Facilitator: Pamela Palmentera 312-503-4397 ppalment@nmff.org
IOWA
WESTERN IOWA AREA
Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 kmpaul@cox.net
NEW LONDON Information: No Meeting Contact: Larry Kellerman rurlfolk1@yahoo.com
KENTUCKY
LOUISVILLE
Information: Atypical Parkinsonian Disorders (MSA,PSP, CBD)
Location: PSCKY Office, Middletown 315 Townepark Circle, Suite 100
Meeting Time: 2nd Tuesday of every month 12:00pm-1:00pm
Facilitator: Dan Heins 502-216-4563 danheins@gmail.com

9. List of Support Meetings & phone/email support
USA and Canada
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LOUISANA
NEW ORLEANS
Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases
Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123
Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pm
Facilitator: Shiela Grose 504-737-2614 groseshiela@bellsouth.net
CLINTON Information: No Meeting Contact: Gloria Chaney gcathome@hughes.net
MAINE
FALMOUTH
Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME
Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info.
Facilitator: Janet Edmunson 207-799-4963 janet@janetedmunson.com
Barbi Johnson 207-633-0881
MARYLAND
ANNE ARUNDEL COUNTY
Information: For patients/caregivers affected by PSP, CBD & other neurodegenerative diseases
Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD
Meeting Time(s):3rd Saturday of every month from 1:00pm – 3:00pm
Facilitator: IIeen Watson 410-271-1818 ileenw@verizon.net
BALTIMORE
Information: For caregivers affect by Neurodegenerative diseases
Location: Govans Presbyterian Church 5828 York Road, Baltimore, MD 21212 . Peace Center Library.
Meeting Time 4th Thursday of every month
Facilitator: Becky Dunlop,RN 410-955-8795 rdunlop@jhmi.edu
BEL AIR
Information: For caregiver affected by MSA,PSP,CBD & other neurodegenerative diseases
Location: William McFaul Activities Center 525 West McPhail Road , Bel Air,MD 21014

10. List of Support Meetings & phone/email support
USA and Canada
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Meeting Times: 4th Thursday of every month from 2pm-4pm
Facilitatior: Becky Dunlop , RN 410-955-8795 rdunlop@jhmi.edu
ELDERSBURG
Information: No Meeting Phone Support Only
Contact: Shirley Snyder 410-259-1354 Gramme835@gmail.com
PRINCE FREDERICK
Information: No Meeting Phone Support Only
Contact: James Taylor 410-535-0780 jtaylor@guam.net
MASSACHUSETTS
BOSTON
Information: For MSA Patients/Caregivers
Location: Boston University Medical Center; 88 East Newton Street, 2nd floor, Conf Rm C, Boston, MA
Meeting Time: quarterly
Facilitator: Melissa Diggin 339-927-5468 m_diggin@hotmail.com
Or contact: Carol Langer 617-93603053 carollanger@comcast.net
GARDNER
Information: For MSA patients/caregivers
Location: Heywood Hospital in Gardner, MA
Meeting Time: last Wednesday of each month at 2 PM
Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682
MICHIGAN
DETROIT
Information: Non Profit for MSA
Joseph G Fortier Foundation for MSA
P.O. Box 80778
St. Clair Shores, MI 48080 USA
jgf.foundation.msa@gmail.com
www.movingtodayformsa.org www.facebook.com/JGFFoundationForMSA

11. List of Support Meetings & phone/email support
USA and Canada
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We move today, in service of tomorrow!
Contact: Philip M Fortier (Co-Director) 586 246-1475 (cell/vm) fortiepm@udmercy.edu
ALMA Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center (below chapel) Meeting Time(s): 4th Wednesday of every month Facilitators: Robbie and Keith Virgo 989-681-6321 robbie@daytimesleeper.com
DELTON
Information: For patients, caregivers and families with PSP, CBD, MSA and other atypical
parkinsonian
location: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot)
Meeting Time : 2nd Saturday of each month from 2:00pm-3:30 pm beginning April 12, 2014
Facilitator : Mary Meagher 269-267-3117 mmeagher@mei.net
MINNESOLA
MINNEAPOLIS
Information: For patients and families dealing with PSP, CBD, MSA
Location : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427
Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pm
Facilitator: Joan Hlas 952-993-6650
MONTANA
KALISPELL
Information: No Meeting Phone Support Only
Contact: Gary Cuthbertson 406-257-4392 Grandmamt@centurytel.net
NEBRASKA
OMAHA
Information: No Meeting Phone Support Only Contact: Keryn Paul 402-813-7315 kmpaul@cox.net

12. List of Support Meetings & phone/email support
USA and Canada
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LINCOLN
Information: For caregiver and families dealing with PSP, CBD, MSA and others Atypical PD
Location: 5901 N. 27th Street , Lincoln , NE
Meeting Time: 4th Tuesday of every month from 6:30pm-8:30pm (beginning Jan 28, 2014)
Facilitator: Susie Luxford 402-525-7367 susie.luxford@homerealestate.com
NEVADA
LAS VEGAS
Information: No Meeting Phone Support Only
Contact: Marty Koppel 702-914-8041 please leave message if no answer
NEW HAMPSHIRE
CONCORD Information: No Meeting Contact: Gayle Gardner ggcpteach@comcast.net
NEW JERSEY
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org
CAPE MAY
Information: For caregiver dealing with Atypical Parkinson+ disorders
Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center)
Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pm
Facilitator: Bonnie Kratzer 609-463-4043 jkratzer@caperegional.com
MOORESTOWN (5 minutes from Philly and 30 from Trenton) Information: No Meeting Phone Support Only
Contact: Rachel Zambrano 856-316-6742 Rachelzambrano@comcast.net

13. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
NEW MEXICO
ALBUQUERQUE
Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD
Location: The Flying Star 10700 Corrales Road, Albuquerque, NM
Meeting Time : 1st Wednesday of each month from 6:30pm-8:00pm until Sept.
Note : Starting Sept meeting will change to the first Tuesday of each month at same time
Facilitator: Roxi Padrid 312-485-485-9342
NEW YORK
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org
BUFFALO
Information: No Meeting Phone Support Only
Contact: Maureen Conley 716-627-7344 moe@moeconley.com
NEW YORK CITY
Information: For MSA patients/caregivers
Location: Contact Michael DeMarsico for location
Meeting Time: 3rd Saturday of each month from 2:00pm-4:30pm
Contact: Michael DeMarsico mickpub@hotmail.com
NEW YORK CITY METRO AREA
Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: North Shore University Hospital, Tower Conference Rooms, First Floor, 300 Community Drive, Manhasset, NY 11030
Meeting Time(s): 3rd Saturday Quarterly from 1:30pm - 3:30pm
Facilitators: Kara Holisher 516-932-1696 kbhx2@optonline.net
Harriet Feiner 718-224-4654 hfeiner@nyc.rr.com

14. List of Support Meetings & phone/email support
USA and Canada
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SYRACUSE/CHITTENANGO
Information: For Anyone with Parkinson or SDS/MSA
Location: Jim Marshall Farm Foundations Facility North Chittenango
Directions to the farm can be found at http://www.jmffinc.org/services
Meeting times: 4th Tuesday of each month from 12:30PM-2:30PM
Contact: Wayne Hamilton 315-687-9014
NORTH CAROLINA
CHARLOTTE
Information: No Meeting Phone Support Only
Contact: Robert Lee 704-552-9198 sparrowln@carolina.rr.com
RALEIGH
Information: No Meeting Phone Support Only
Contact: Joe Turner 919-971-3512 Jpturner2011@gmail.com Melissa Turner 919-741-9668 mrsmelissajturner@gmail.com
ADVANCE
Information: No Meeting Phone Support Only
Contact: Tammy Hunt Hauser 336-998-2942 hausertammy@hotmail.com
OHIO
BEREA
Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+ Lewy Bodies
Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level)
Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm
Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital.
Facilitator: Pat Beekman 440-234-0007 mombeekman@yahoo.com
CINCINNATI
Information: No Meeting Phone Support Only
Contact: Kathy Griffin 513-208-6621 kgriffin4412@msn.com

15. List of Support Meetings & phone/email support
USA and Canada
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KETTERING Information: For MSA patients/caregivers Meeting Time(s): A get together is arranged in this area a couple times a year Contact: Susan Cervone 937-369-9531 FrankunSusan@aol.com
WESTERVILLE Information: For MSA caregivers
Meeting Time(s): Occasional meetings are now being held
Contact: Cathy Rapenport 614-403-1440 cathyrap83@gmail.com
OKLAHOMA
GROVE
Information: No Meeting Phone Support Only
Contact: Paul Nandico 918-786-4949
OREGON
PORTLAND
Information: For MSA Patients /Caregivers
Location: Marquis Care Center, 319 NE Russet ST, Portland, OR
Meeting Time: 3rd Saturday of each month 10 am to noon
Facilitator: Vicki Blacken 503-651-3633 vblacken@web-ster.com
PORTLAND
Information: For families & caregivers of people with PSP & CBD also welcomes MSA
Locations: OHSU River side building Room 12181
3303 SW Bond St. Portland, OR 97239
Meeting Time: 1st Thursday of each month at 5:30pm
Facilitator: Tod Lundy 503-281-4123 talktotod@gmail.com
BEND
Information: No Meeting Phone Support Only Contact: Nena Close 541-419-6408(cell) 541-383-0302(work) nena.close@gmail.com

16. List of Support Meetings & phone/email support
USA and Canada
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PENNSYLVANIA
TRI-STATE AREA Information: Non profit support group covering the tri-state area MSA NJ P.O. Box 773 Howell, NJ 07731 www.msanj.org Contact: Cynthia Roemer contact@msanj.org
N.VERSAILLES
Information: No Meeting Phone Support Only
Contact: Carole Barber 412-678-8948 barber.carole@juno.com
PHILADELPHIA Information: No Meeting
Contact: Liz Martin elizabetmartin2200@comcast.net
PHILADELPHIA
Information: For persons with movement disorders
Location: Pennsylvania Hospital Movement Disorder Center, 330 S. 9th Street, 2nd floor conference room. Philadelphia, PA 19107
Meeting Time: 3th Saturday of each month from 1:00pm to 2pm
Facilitator: Christin Salemno 215-829-2347 christin.salemno@uphs.upenn.edu
YORK Information: No Meeting Phone Support Only
Contact: Thomas Fitzgerald 717-840-3830
PUERTO RICO
Information: No Meeting Contact: Alexis Brewer alexis_brewer_200@yahoo.com

17. List of Support Meetings & phone/email support
USA and Canada
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RHODE ISLAND
CRANSTON
Information: No Meeting
Contact: Jan Gillis jan2343@aol.com
SOUTH DAKOTA
SIOUX FALLS Information: No Meeting Phone Support Only Contact: Dawn Koenig 605-759-6740 dawn@ameri-star.com
TENNESSEE
TULLAHOMA
Information: No Meeting Phone Support Only
Contact: Marilyn Morris 913-455-3108 mgm12@lighttube.net
FAIRFIELD GLADE
Information: PD & Movement Brian disorder Support Group (PD,MSA, ET,PSP,CBD)
Location: Christ Luthern Church Fellowship Hall 481 Snead Dr. Fairfield Glade, TN
Meeting Time: 1st Tuesday of each month at 2:30 pm
Facilitator: Gary & Sally Dixner 931-484-0193
TEXAS
ARLINGTON
Information: No Meeting Phone Support Only
Contact: Barbara Selleck 817-469-6044 barbaraselleck@sbcglobal.net
HOUSTON
Information: For patients/families with PSP, CBD, MSA, LBD
Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building II
Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm
Facilitator: Karen Kennemer 281-358-2282 kmk1224@aol.com

18. List of Support Meetings & phone/email support
USA and Canada
Page 18 of 22
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DALLAS
Information: For PSP/CBD/MSA patients and caregivers
Location: Texas Health Resources University (THRU) building, Room 111
Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am
Facilitator: Kathryn MacDonell 214-908-4793 kathmac@linkrd.com
SEYMOUR
Information: For patients & caregivers affected by MSA,PSP,CBD & Atypical PD+
Location: Baylor Country Extension Building 500 N. Main Street Seymour ,TX 76380
Meeting Time: 3rd Monday of each month from 4:00pm-5:30pm
Facilitator: Sis Hammack 940-889-6638 Bradnsis@swbell.net
SAN ANTONIO
Information: No Meeting Phone Support Only
Contact: Sharon Sutton 210-296-4619 saksutton@aol.com
Candice Valenta 210-912-4530 cleo0308@yahoo.com
VERMONT
BURLINGTON
Information: For caregivers of Parkinson's with mild cognitive impairment and Parkinson's Plus syndromes
Location: Varies; contact facilitator for info
Meeting Time(s): Varies; contact facilitator for info
Facilitator: Janice Clements 802-862-7464 janclem25@gmail.com
VIRGINIA
AMISSVILLE
Information: Will meet with people if they want to travel to Amissville or will meet at other’s home if accessible and can arrange a time and date to have a meeting
Contact: Bill Werre 540-937-6092 rwwerre@comcast.net
ANNANDALE
Information: For patients, caregiver, and families dealing PSP,CBD, MSA and Atypical PD
Location: George Mason Regional Library, 7001 Little River Turnpike, Annandale, VA 22003
Meeting time: 2nd Thursday of every month from 7:00pm -9:00pm
Facilitator: Kristin Washington , 709-256-3800 krwashin@gmail.com

19. List of Support Meetings & phone/email support
USA and Canada
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VIRGINIA BEACH Information: No Meeting Phone Support Only Contact: James (Jim) Alvaro 757-430-2237 jimalvaro@verizon.net
WASHINGTON
SPOKANE
Information: For patients/caregivers with PSP/CBD but supports other neurodegenerative diseases
Location: Contact facilitator for info
Meeting Time(s): Contact facilitator for info
Facilitator: Mary Anne Memminger 509-921-6645
Jim Barron 509-332-6053 jimcbarron@yahoo.com
SEATTLE
Information: For Patients/Caregivers with MSA
Location: Virginia Mason Medical Center 1201 Terry, Seattle, WA
Change location starting January 2014 to Exeter House 720 Seneca St. Seattle ,WA
Meeting Time: 4th Monday of each month at 11:00 am
Contact: Carin Mack 206-230-0166 socialwkr@earthlink.net
WEST VIRGINIA
BECKLEY Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West Virginia Meeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pm Facilitator: Jean Johnson 304-573-3284 grammy44@suddenlink.net

20. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
MARTINSBURG Information: No Meeting Phone Support Only Contact: Shelli Hannon Kuhn 717-830-6199 shelli.kuhn@jetsndt.com
WISCONSIN
MILWAUKEE Information: Phone Support, but looking for interest for a support group. Location: Milwaukee or the surrounding areas Contact: Aaron Kittson 715-470-2007 kittsoan@uwec.edu
WYOMING
JOHNSTOWN/LOVELAND (COLORADO) Information: Neurodegenerative disorder (MSA,PSP,CBD) Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528 Meeting Time: 1st Friday of each month from 1:00 pm - 3:00pm Facilitators: Ruth Fletcher-Carter 970-532-2681 chantillylace3@usa.net
CANADA
ALL PROVINCES

21. List of Support Meetings & phone/email support
USA and Canada
Page 21 of 22
This list is maintained by Vera James vjames@msacoalition.org
Information: No Meeting – Email and Website for MSA information only Multiple System Atrophy Awareness Website: www.MSAawareness.org “Spreading awareness worldwide” Contact: Pam Bower pam.bower@msaawareness.org or pbower@accesscable.net
ALBERTA
FORT MCMURRAY Information: No Meeting Phone Support Only - Contact for the northern region of Alberta Contact: Iris Kirschner 780-792-7732 ikirschner@shaw.ca
BRITISH COLUMBIA
SIDNEY Information: No Meeting Phone Support Only Contact: Ann Jeffrey 250-656-9799 island.view@shaw.ca
NOVA SCOTIA
HALIFAX Information: No Meeting – Email and Website for MSA information only Contact: Pam Bower pam.bower@msaawareness.org or pbower@accesscable.net Website: www.MSAawareness.org
ONTARIO
HAMILTON Information: No Meeting Phone Support Only Contact: Bonnie Llewellyn 905-979-8254 llegs369@live.ca

22. List of Support Meetings & phone/email support
USA and Canada
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This list is maintained by Vera James vjames@msacoalition.org
BURLINGTON Information: For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON Meeting Time(s): 1st Thursday of every month from 6:30pm - 8:30pm (beginning October 3, 2013) Facilitator: Kimberley Adrovez 905-296-1095 kimberleyadrovez@yahoo.com
KINGSTON Information: For patients and families affected by PSP, CBD and MSA Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and handicap accessible) Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm beginning August 1, 2013 Facilitator: MJ Overby 613-531-2685 hopematterspspkingston@gmail.com
TORONTO Information: For care partners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario Location: 4211 Yonge Street, Suite 321, Toronto, ON Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm Facilitator: Robert TerSteege 416-227-3372/ 1-800-565-3000 x3372 robert.tersteege@parkinson.ca