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Psychotherapeutic approaches to
            helping adults with intellectual
            disability and autism spectrum
                        conditions



         Digby Tantam,
         Septimus Ltd.,
         Universities of Sheffield, and
         Cambridge


22 May                            RSM
2012
Further information
Autistic syndrome                Restricted repetitiveness
                                               (DSM-5)

         Impaired social communication
         and social interaction
         (DSM-5)




                                           Language impairment

22 May                               RSM
2012
Associated conditions             Restricted repetitiveness
                                                 (DSM-5)

         Impaired social communication
         and social interaction
                                                         Epilepsy
         (DSM-5)


                                                        ADHD



                                                    Tourette, dyspraxia,
                                                    agnosias




                                                   Intellectual disability

                                             Language impairment

22 May                                 RSM
2012
Consequential conditions        Restricted repetitiveness
                                                     (DSM-5)

              Impaired social communication
              and social interaction                          Epilepsy
              (DSM-5)


Sensory issues,
                                                            ADHD
Information overload,
melt downs

Anxiety-related disorder
                                                        Tourette, dyspraxia,
                                                        agnosias
 Victimization


         Marginalization                               Intellectual disability

                                                 Language impairment
         The search for the self
22 May                                     RSM
2012
General principles of
                  psychotherapeutic work in ASD
•  Do not expect narrative awareness or
   autobiographical memory
•  Do not rely on signs of attention
•  Simplify language but not ideas
•  Look for other communication media
•  May be easier to translate and then
   respond in action e.g. change carer
   behaviour than to communicate
•  Role blurring
    –  Advocate
    –  Advisor
    –  Carer
 22 May                                RSM
 2012
Autistic syndrome                  Restricted repetitiveness
                                                           (DSM-5)

                 Impaired social communication
                 and social interaction
                 (DSM-5)

Enter the other’s world, but
do not expect intersubjectivity

Be aware of the importance of the past and look for
commemorative activities

Provide predictability (may achieve this through
behavioural means e.g. ABC approach)

Be aware that anxiety—and frustration– may not be
expressed

Do not assume that a lack of social interaction is a
                                                       Language impairment
lack of interest

Value peer support
   22 May                                       RSM
   2012
Autistic syndrome                      Restricted repetitiveness
                                                             (DSM-5)

                Impaired social communication
                and social interaction
                (DSM-5)

Consider sameness to be a means of achieving comfort through
predictability
An increase in repetition may indicate anxiety
An appropriate balance must be struck about how much comfort is
appropriate
Rituals may be commemorative and acts of iImaginative
reconstruction that are open to involvement and modification by kindly
others
Special interests provide quality of life
OCD and hoarding involve an additional element of folie de doute, or
warding off
Rituals may come to be weapons
                                                       Language impairment

  22 May                                      RSM
  2012
Autistic syndrome                     Restricted repetitiveness
                                                            (DSM-5)

                Impaired social communication
                and social interaction
                (DSM-5)


Language, verbal IQ, and intellectual disability are correlated
Alternative means of communication may be useful
People with ID may develop simplifying concepts that can be
effective tools e.g. the open and closed face
Written language may sometimes be more comprehensible
Processing may take longer, but get there in the end
Apparent verbal fluency may be deceptive: it’s understanding not
language that matters
Psychotherapy may be a matter of connecting the dots…



                                                       Language impairment

  22 May                                      RSM
  2012
Associated conditions             Restricted repetitiveness
                                                        (DSM-5)

               Impaired social communication
               and social interaction
                                                                Epilepsy
               (DSM-5)


Learning from the EE literature                                ADHD

Understanding impersistence

Cueing attention                                           Tourette, dyspraxia,
                                                           agnosias
Dysexecutive Autistic syndrome

How does Dad handle it?
                                                          Intellectual disability

                                                    Language impairment

 22 May                                       RSM
 2012
Consequential conditions               Restricted repetitiveness
                                                            (DSM-5)

              Impaired social communication
              and social interaction                                Epilepsy
              (DSM-5)


 Sensory issues,         Meltdowns are catastrophic reactions.
                                                                   ADHD
 Information overload,
 melt downs              They can only be prevented when tension Is at an early
                         stage but may then be unrecognizable unless individual
Anxiety-related disorder prodrome is known
                                                               Tourette, dyspraxia,
   Victimization         A sensory assessment may be helpful, agnosias Include
                                                               but should
                         information demands

         Marginalization                                     Intellectual disability

                                                      Language impairment
         The search for the self
22 May                                       RSM
2012
Consequential conditions                   Restricted repetitiveness
                                                                (DSM-5)

              Impaired social communication
              and social interaction                                     Epilepsy
              (DSM-5)


Sensory issues,                    The risk of a person with an ASD being bullied is
                                                                        ADHD
Information overload,              7 times greater relative to the risk of a neurotypical
melt downs                         child of the same age

Anxiety-related disorder
                                                                   Tourette, dyspraxia,
                                                                   agnosias
  Victimization


         Marginalization                                          Intellectual disability

                                                          Language impairment
         The search for the self
22 May                                          RSM
2012
Consequences of bullying
•  Passive failure to be
   included
  –  Reduced use of
     community resources
     (social exclusion)
  –  Experience of being
     unwanted/marginalized
•  Active rejection ,
   blaming, scapegoating
                                            Painted Bird by Edward
  –  Stigma as a means of                   Gafford, inspired by the
     keeping threatening                    novel ‘Painted Bird’ by
                                            Jerzy Kosiński, itself
     Other at a distance
                                            based on what has been
  –  Bullying                               claimed is a fictive war-
                                            time experience of the
                                            author in Poland
Consequential conditions             Restricted repetitiveness
                                                          (DSM-5)

              Impaired social communication
              and social interaction                               Epilepsy
              (DSM-5)


Sensory issues,
                                                                ADHD
Information overload,
melt downs                           Making an impact:uproar, aggression,
                                     weaponizing
Anxiety-related disorder
                                     Containing the risk so that non-reinforcement is
                                                              Tourette, dyspraxia,
                                     possible                 agnosias
 Victimization


         Marginalization                                    Intellectual disability

                                                    Language impairment
         The search for the self
22 May                                     RSM
2012
22 May   RSM
2012
Consequential conditions             Restricted repetitiveness
                                                          (DSM-5)

              Impaired social communication
              and social interaction                                 Epilepsy
              (DSM-5)


Sensory issues,
                                                                   ADHD
Information overload,
melt downs                              Identity borrowings
 Anxiety-related disorder               Providing a healthy identity
                                                              Tourette, dyspraxia,
                                                              agnosias
 Victimization


         Marginalization                                      Intellectual disability

                                                     Language impairment
         The search for the self
22 May                                     RSM
2012
Coping with a lack of identity
•  Fads
•  ‘Obsessive’ relationships
•  Lack of identity in many people with ASD
   –  Adopting identity wholesale
   –  Joining charismatic groups
   –  Moving places and work
•  Searching for identity
   –  ‘Transexualism’
   –  ‘Aspie’
•  Identities off the peg
   –  Gangster
   –  Professor
   –  Teddy bear
 22 May 2012                           RSM
Consequential conditions        Restricted repetitiveness
                                                     (DSM-5)

              Impaired social communication
              and social interaction                          Epilepsy
              (DSM-5)


Sensory issues,
                                                            ADHD
Information overload,
melt downs

 Anxiety-related disorder
                                                        Tourette, dyspraxia,
                                                        agnosias
 Victimization


         Marginalization                               Intellectual disability

                                                 Language impairment
         The search for the self
22 May                                     RSM
2012
‘Proper’ psychotherapy
•  No particular modality is better than another, although person-
   centered is good
•  Limited value for CBT (assumes ‘lexithymia’)
•  Do not expect working through
•  Social predicaments are relatively less common than in general
   psychotherapy
•  Ruminations may be an issue
   –  E.g. issues of injustice
•  Misunderstandings may be an issue
   –  E.g ‘You’ll be the death of her”
•  May require the reconstruction of another person’s perspective
    Practical advice may also be required
•  22 May                           RSM
 2012
The end.
         Thanks for listening.
         Slides at www.




22 May                  RSM
2012
Consequential conditions        Restricted repetitiveness
                                                     (DSM-5)

              Impaired social communication
              and social interaction                          Epilepsy
              (DSM-5)


Sensory issues,
                                                            ADHD
Information overload,
melt downs


                                                        Tourette, dyspraxia,
                                                        agnosias
 Victimization


         Marginalization                               Intellectual disability

                                                 Language impairment
         The search for the self
22 May                                     RSM
2012

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Psychotherapeutic approaches to helping adults with intellectual disability and autism spectrum conditions

  • 1. Psychotherapeutic approaches to helping adults with intellectual disability and autism spectrum conditions Digby Tantam, Septimus Ltd., Universities of Sheffield, and Cambridge 22 May RSM 2012
  • 3. Autistic syndrome Restricted repetitiveness (DSM-5) Impaired social communication and social interaction (DSM-5) Language impairment 22 May RSM 2012
  • 4. Associated conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) ADHD Tourette, dyspraxia, agnosias Intellectual disability Language impairment 22 May RSM 2012
  • 5. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, ADHD Information overload, melt downs Anxiety-related disorder Tourette, dyspraxia, agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 6. General principles of psychotherapeutic work in ASD •  Do not expect narrative awareness or autobiographical memory •  Do not rely on signs of attention •  Simplify language but not ideas •  Look for other communication media •  May be easier to translate and then respond in action e.g. change carer behaviour than to communicate •  Role blurring –  Advocate –  Advisor –  Carer 22 May RSM 2012
  • 7. Autistic syndrome Restricted repetitiveness (DSM-5) Impaired social communication and social interaction (DSM-5) Enter the other’s world, but do not expect intersubjectivity Be aware of the importance of the past and look for commemorative activities Provide predictability (may achieve this through behavioural means e.g. ABC approach) Be aware that anxiety—and frustration– may not be expressed Do not assume that a lack of social interaction is a Language impairment lack of interest Value peer support 22 May RSM 2012
  • 8. Autistic syndrome Restricted repetitiveness (DSM-5) Impaired social communication and social interaction (DSM-5) Consider sameness to be a means of achieving comfort through predictability An increase in repetition may indicate anxiety An appropriate balance must be struck about how much comfort is appropriate Rituals may be commemorative and acts of iImaginative reconstruction that are open to involvement and modification by kindly others Special interests provide quality of life OCD and hoarding involve an additional element of folie de doute, or warding off Rituals may come to be weapons Language impairment 22 May RSM 2012
  • 9. Autistic syndrome Restricted repetitiveness (DSM-5) Impaired social communication and social interaction (DSM-5) Language, verbal IQ, and intellectual disability are correlated Alternative means of communication may be useful People with ID may develop simplifying concepts that can be effective tools e.g. the open and closed face Written language may sometimes be more comprehensible Processing may take longer, but get there in the end Apparent verbal fluency may be deceptive: it’s understanding not language that matters Psychotherapy may be a matter of connecting the dots… Language impairment 22 May RSM 2012
  • 10. Associated conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Learning from the EE literature ADHD Understanding impersistence Cueing attention Tourette, dyspraxia, agnosias Dysexecutive Autistic syndrome How does Dad handle it? Intellectual disability Language impairment 22 May RSM 2012
  • 11. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, Meltdowns are catastrophic reactions. ADHD Information overload, melt downs They can only be prevented when tension Is at an early stage but may then be unrecognizable unless individual Anxiety-related disorder prodrome is known Tourette, dyspraxia, Victimization A sensory assessment may be helpful, agnosias Include but should information demands Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 12. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, The risk of a person with an ASD being bullied is ADHD Information overload, 7 times greater relative to the risk of a neurotypical melt downs child of the same age Anxiety-related disorder Tourette, dyspraxia, agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 13. Consequences of bullying •  Passive failure to be included –  Reduced use of community resources (social exclusion) –  Experience of being unwanted/marginalized •  Active rejection , blaming, scapegoating Painted Bird by Edward –  Stigma as a means of Gafford, inspired by the keeping threatening novel ‘Painted Bird’ by Jerzy Kosiński, itself Other at a distance based on what has been –  Bullying claimed is a fictive war- time experience of the author in Poland
  • 14. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, ADHD Information overload, melt downs Making an impact:uproar, aggression, weaponizing Anxiety-related disorder Containing the risk so that non-reinforcement is Tourette, dyspraxia, possible agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 15. 22 May RSM 2012
  • 16. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, ADHD Information overload, melt downs Identity borrowings Anxiety-related disorder Providing a healthy identity Tourette, dyspraxia, agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 17. Coping with a lack of identity •  Fads •  ‘Obsessive’ relationships •  Lack of identity in many people with ASD –  Adopting identity wholesale –  Joining charismatic groups –  Moving places and work •  Searching for identity –  ‘Transexualism’ –  ‘Aspie’ •  Identities off the peg –  Gangster –  Professor –  Teddy bear 22 May 2012 RSM
  • 18. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, ADHD Information overload, melt downs Anxiety-related disorder Tourette, dyspraxia, agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012
  • 19. ‘Proper’ psychotherapy •  No particular modality is better than another, although person- centered is good •  Limited value for CBT (assumes ‘lexithymia’) •  Do not expect working through •  Social predicaments are relatively less common than in general psychotherapy •  Ruminations may be an issue –  E.g. issues of injustice •  Misunderstandings may be an issue –  E.g ‘You’ll be the death of her” •  May require the reconstruction of another person’s perspective Practical advice may also be required •  22 May RSM 2012
  • 20. The end. Thanks for listening. Slides at www. 22 May RSM 2012
  • 21. Consequential conditions Restricted repetitiveness (DSM-5) Impaired social communication and social interaction Epilepsy (DSM-5) Sensory issues, ADHD Information overload, melt downs Tourette, dyspraxia, agnosias Victimization Marginalization Intellectual disability Language impairment The search for the self 22 May RSM 2012