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looking up the river  Looking Up the River:  The Impact of Race & Ethnicity on Health
objectives  Introduce a framework for understanding racial health inequity in a historical and political context Understand the role of health providers in creating and eliminating racial health inequity Present policy recommendations to eliminate inequity and improve patient outcomes Looking Up the River:  The Impact of Race & Ethnicity on Health
The numbers Looking Up the River:  The Impact of Race & Ethnicity on Health
national racial inequity In 2004, 67% of white Medicare beneficiaries over 65 received flu vaccines, compared with 55% and 45%, respectively, of their Latino and Black counterparts. For pneumonia, only 39% of blacks and 34% of Latinos were vaccinated, compared with 61% of whites. Although one in three Americans is a person of color, blacks, Latinos and Native Americans represent less than 9% of nurses and 6% of physicians and are only 5% of dentists. Physicians of color are more likely to work in disadvantaged communities or communities of color. Looking Up the River:  The Impact of Race & Ethnicity on Health
national racial inequity Native American / Native Alaskan adolescents have the highest rates of attempted suicides and suicide death. Asian Americans account for the highest rates of depression and the second-highest suicide rate among women ages 15–24.  Together, Black women and Latinas account for 82% of reported AIDS cases among women even though they only constitute 24% of the U.S. female population. Black women are nearly four times more likely to die in childbirth than white women because of insufficient prenatal care. Looking Up the River:  The Impact of Race & Ethnicity on Health
national racial inequity Black infants are two to three times more likely than white infants to have low birth weight, which results in higher mortality rates. More than 11 million immigrants were uninsured in 2003, contributing to a quarter of the U.S. uninsured. Between 1998 and 2003, immigrants accounted for 86% of the growth in the uninsured population. Only 1 in 4 pharmacies located in predominantly non-white neighborhoods carry adequate supplies, compared with 72% of pharmacies in predominantly white neighborhoods. Looking Up the River:  The Impact of Race & Ethnicity on Health
oklahoma racial inequity Looking Up the River:  The Impact of Race & Ethnicity on Health
oklahoma racial inequity Looking Up the River:  The Impact of Race & Ethnicity on Health
oklahoma racial inequity Looking Up the River:  The Impact of Race & Ethnicity on Health
history Looking Up the River:  The Impact of Race & Ethnicity on Health
slave health deficit Of the total time that persons of African descent have had a presence in the U.S.: 64.2% of that time was as chattel slavery  26.1% of that time was spent in de jure or Jim Crow segregation.  Only during 9.6% of the total time in the U.S. have African-Americans had full legal status as citizens Thus, from a health perspective, 64.2% of the time was spent in establishing a health deficit, 26.1% in maintaining it, and at no point has it been eliminated.  Looking Up the River:  The Impact of Race & Ethnicity on Health
enduring health deficit Evidence in Oklahoma: Life expectancy of white people during slavery was 20% longerthan that of people of African descent  In Tulsa today, life expectancy in the 74114 ZIP code (90.2% white) is 14 years — or 18% — longer than in 74126 (81.8% people of color) just five miles away Graphic: Tulsa World Looking Up the River:  The Impact of Race & Ethnicity on Health
race as pseudo-science Race, though a social construct, has been misappropriated by science to justify discrimination Racial classifications — including who qualifies as White — have shifted and transformed over time Different groups were granted White status as it became economically beneficial to the majority Looking Up the River:  The Impact of Race & Ethnicity on Health
exploitation Fictional slave diseases Involuntary experimentation Surgical experiments on enslaved people (1932-1972) Tuskegee syphilis experiment (1953-1954) Radioactive iodide testing Plutonium testing (1963) Live cancer cell injections (1970s) Blood sample testing for “genetic criminality” Looking Up the River:  The Impact of Race & Ethnicity on Health
exploitation (1997) Blood substitution experiments Inmate testing Sickle cell debacle Segregation Forced sterilization Unfulfilled social programs Forced institutionalization or internment Patient dumping Looking Up the River:  The Impact of Race & Ethnicity on Health
Where we stand Looking Up the River:  The Impact of Race & Ethnicity on Health
race still matters “Racial/ethnic background affects health status, health insurance coverage, and health care access and quality.  The aggregate data used to produce national averages often mask disparities for people of color — especially those who are poor or near poor.” — Kaiser Family Foundation Looking Up the River:  The Impact of Race & Ethnicity on Health
racial wealth divide Looking Up the River:  The Impact of Race & Ethnicity on Health Lifting as We Climb: Women of Color, Wealth, and American’s Future, Insight Center for Community Economic Development
institutionalized racism Looking Up the River:  The Impact of Race & Ethnicity on Health
continuum of health care Before seeking care Accessing care Treatment Institutionalized racism impacts people of color at each stage of health Looking Up the River:  The Impact of Race & Ethnicity on Health
before seeking care Exposure to environmental toxins Predatory marketing (tobacco, alcohol, drugs) Food scarcity Military recruitment Underrepresentation in research (especially at the intersections) Violence (including domestic violence) Looking Up the River:  The Impact of Race & Ethnicity on Health
access to care Health coverage  Existence of providers Historic and de facto segregation  Barriers to access transportation  time off work childcare Absence of trust Looking Up the River:  The Impact of Race & Ethnicity on Health
treatment Lack of true cultural competency  Medicaid & Medicare reimbursement gaps Less time with physicians, lower quality and quantity of visits, fewer diagnostic workups Lack of translators / multilingual care Unacknowledged impact Unintentionally discriminatory policies and practices Looking Up the River:  The Impact of Race & Ethnicity on Health
the script Oklahoma Task Force to Eliminate Health Disparities Looking Up the River:  The Impact of Race & Ethnicity on Health
data committee findings Disparities do exist in Oklahoma  Health disparities occur in the context of broader historic and contemporary social and economic inequality, and possible discrimination in many sectors of Oklahoma life due to lack of understanding of cultural differences. There is currently insufficient data, data collection systems, and resources to identify all of the factors that may contribute both directly and indirectly to health disparities in Oklahoma. Looking Up the River:  The Impact of Race & Ethnicity on Health
challenges of ensuring health care access Developing minority health professionals, including African American and Hispanic medical school graduates and physicians Reducing the high percentage of uninsured persons in the state, most notably Hispanics at 40% Ensuring collaboration and communication between state policymakers and local community stakeholders with diverse cultural backgrounds Developing cultural competence and cultural sensitivity among health professionals Integrating mental health and primary care services Looking Up the River:  The Impact of Race & Ethnicity on Health
challenges of ensuring health care access Developing accessible and accurate data to determine the extent of health access and disparities issues both nationally and locally Improving the socio-economic factors (i.e., education, income, economic development, etc.) contributing to the inability of persons and businesses to afford rising health care costs Reducing the utilization of emergency rooms and trauma centers as a primary source of care Ensuring the availability of adequate services and resources (i.e., physicians, transportation, community health centers, etc.) in communities with the greatest health needs. Looking Up the River:  The Impact of Race & Ethnicity on Health
neutrality of whiteness Looking Up the River:  The Impact of Race & Ethnicity on Health
recommendations A New Way of Thinking Looking Up the River:  The Impact of Race & Ethnicity on Health
broaching Broaching refers to the practitioner’s consideration of race, ethnicity and culture within the clinical setting and for developing treatment plans. The broaching technique is a consistent, well thought out, researched and ongoing attitude of openness with clients with a genuine commitment to continually inviting the client to explore issues of diversity.  Looking Up the River:  The Impact of Race & Ethnicity on Health
examining privilege Health care practitioners are disproportionately White and health care pedagogy has a European bias Public health care clients are disproportionately people of color This disparity introduces white (male, middle class) privilege into the system, and left unexamined, results in practice, policies, and procedures that discriminate against people of color — this is where we can intervene! Looking Up the River:  The Impact of Race & Ethnicity on Health
examining privilege Health care providers and support staff need to reflect on their internalized biases and begin to dismantle the structures of racism we have all absorbed This can be done in racially caucused spaces that are accountable to people of color This is a long-term process that involves investment of time and resources Looking Up the River:  The Impact of Race & Ethnicity on Health
examining privilege Medical schools, health care institutions, and policy makers must evaluate their policies and procedures to determine which ones result in discriminatory impact This must be done in a way that is accountable to people of color Task forces, committees, or ad hoc groups assigned with this task must be completely empowered to effect institutional change Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word The origin of “reparations” is “repair” “Reparations should be viewed as an obligation to make the repairs necessary to correct current harms done by past wrongs. This is a much more expansive view than merely calculating the economic harm and writing a check. Under this view, reparations becomes a process that restores hope and dignity and rebuilds the community.  Reparations, conceived as repair, can help mend the tear in the social fabric for the benefit of both people of color and mainstream America. This view allows for responsibility and action by all parties. It allows for healing to begin by allowing the souls of people of color and Whites to be cleansed.” Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word Eliminate the inequities in disease, illness and death A focus on education and prevention through targeted services The provision of a liveable wage for all persons and families The eradication of environmental hazards in communities of color The elimination of targeting by tobacco and alcohol industries Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word Assure Access to Health Care Assuring universal health care Locating adequate health care facilities within communities of color Assuring competent health care workforce in communities of color Assure health and health care research on issues affecting communities of color Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word Assuring the cultural competence of the health care workforce by requiring health professional schools to train providers from a diverse background all physicians to have a rotation during their internship and externship the focus on providing culturally competent care providers to take continuing educational units in cultural competency health care facilities and managed care organizations to complete and submit on regular basis a cultural competency assessment to a regulatory agency  health care be provided in accordance with realities of the needs of the various "classes" of the Black community.	 Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word Eliminate Racial Discrimination in Health Care and Research through laws that Recognize multiple forms of discrimination Authorize and fund medical testers  Recognize disparate impact Assure fines and regulatory enforcement  Require a health scorecard for agency, provider or facility Looking Up the River:  The Impact of Race & Ethnicity on Health
the “r” word Provide individual and organizational right of action Require data collection and reporting Establish an Equality Health Care Council  Assure adequate fines and regulatory enforcement Pay prevailing plaintiff’s attorney fees Allow punitive damage to fund monitoring and assessment programs Looking Up the River:  The Impact of Race & Ethnicity on Health
resources Looking Up the River:  The Impact of Race & Ethnicity on Health
resources websites VernelliaR. Randall, J.D., homepages.udayton.edu/~randalvr Kaiser Family Foundation, www.kff.org/minorityhealth/disparities.cfm Empowering Marginalized Communities and Serving Vulnerable Populations through Prevention, Best Practices, and Scientific Research, conference, www.tulsa-health.org/community-health/annual-prevention-health-summit/3rd-annual-conference books Dying While Black by Vernellia R. Randall, J.D. The Race Myth by Joseph L. Graves, Jr. An American Health Dilemma: Race, Medicine, and Health Care in the United States by W. Michael Byrd and Linda A. Clayton Gender, Race, Class and Health: Intersectional Approaches edited by Amy J. Schulz  and LeithMullings Tackling Health Inequities Through Public Health Practice: Theory To Action by Richard Hofrichter and Rajiv Bhatia Looking Up the River:  The Impact of Race & Ethnicity on Health
resources articles “Broaching the subjects of race, ethnicity and culture during the counseling process” byDay-Vines et. al. Journal of Counseling and Development, 9/22/2007 “Levels of Racism: A Theoretic Framework and a Gardener’s Tale” by CamaraPhyllis Jones, MD, MPH, PhD, www.citymatch.org/UR_tale.php “Is There a Black, Latino Doctor in the House?” by Gail Zoppo, DiversityInc, 6/15/2010, www.diversityinc.com/article/7779/Is-There-a-Black-Latino-Doctor-in-the-House presentations and additional training Dr. Andrew Jolivette, “HIV/AIDS Health Disparities in Communities of Color: A Personal Narrative,” 11/6/2009, lecture Ethics: A Fresh Look at Discrimination and the Impact of Racism on Therapist and Client, YWCA professional workshop Witnessing Whiteness and Mosaic, YWCAbook discussion groups Looking Up the River:  The Impact of Race & Ethnicity on Health
Questions? Looking Up the River:  The Impact of Race & Ethnicity on Health
Contact information Mana Tahaie Director of Racial Justice YWCA Tulsa (918) 858-2348 mtahaie@ywcatulsa.org Looking Up the River:  The Impact of Race & Ethnicity on Health

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Looking Up the River: The Impact of Race & Ethnicity on Health

  • 1.
  • 2. looking up the river Looking Up the River: The Impact of Race & Ethnicity on Health
  • 3. objectives Introduce a framework for understanding racial health inequity in a historical and political context Understand the role of health providers in creating and eliminating racial health inequity Present policy recommendations to eliminate inequity and improve patient outcomes Looking Up the River: The Impact of Race & Ethnicity on Health
  • 4. The numbers Looking Up the River: The Impact of Race & Ethnicity on Health
  • 5. national racial inequity In 2004, 67% of white Medicare beneficiaries over 65 received flu vaccines, compared with 55% and 45%, respectively, of their Latino and Black counterparts. For pneumonia, only 39% of blacks and 34% of Latinos were vaccinated, compared with 61% of whites. Although one in three Americans is a person of color, blacks, Latinos and Native Americans represent less than 9% of nurses and 6% of physicians and are only 5% of dentists. Physicians of color are more likely to work in disadvantaged communities or communities of color. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 6. national racial inequity Native American / Native Alaskan adolescents have the highest rates of attempted suicides and suicide death. Asian Americans account for the highest rates of depression and the second-highest suicide rate among women ages 15–24. Together, Black women and Latinas account for 82% of reported AIDS cases among women even though they only constitute 24% of the U.S. female population. Black women are nearly four times more likely to die in childbirth than white women because of insufficient prenatal care. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 7. national racial inequity Black infants are two to three times more likely than white infants to have low birth weight, which results in higher mortality rates. More than 11 million immigrants were uninsured in 2003, contributing to a quarter of the U.S. uninsured. Between 1998 and 2003, immigrants accounted for 86% of the growth in the uninsured population. Only 1 in 4 pharmacies located in predominantly non-white neighborhoods carry adequate supplies, compared with 72% of pharmacies in predominantly white neighborhoods. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 8. oklahoma racial inequity Looking Up the River: The Impact of Race & Ethnicity on Health
  • 9. oklahoma racial inequity Looking Up the River: The Impact of Race & Ethnicity on Health
  • 10. oklahoma racial inequity Looking Up the River: The Impact of Race & Ethnicity on Health
  • 11. history Looking Up the River: The Impact of Race & Ethnicity on Health
  • 12. slave health deficit Of the total time that persons of African descent have had a presence in the U.S.: 64.2% of that time was as chattel slavery 26.1% of that time was spent in de jure or Jim Crow segregation. Only during 9.6% of the total time in the U.S. have African-Americans had full legal status as citizens Thus, from a health perspective, 64.2% of the time was spent in establishing a health deficit, 26.1% in maintaining it, and at no point has it been eliminated. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 13. enduring health deficit Evidence in Oklahoma: Life expectancy of white people during slavery was 20% longerthan that of people of African descent In Tulsa today, life expectancy in the 74114 ZIP code (90.2% white) is 14 years — or 18% — longer than in 74126 (81.8% people of color) just five miles away Graphic: Tulsa World Looking Up the River: The Impact of Race & Ethnicity on Health
  • 14. race as pseudo-science Race, though a social construct, has been misappropriated by science to justify discrimination Racial classifications — including who qualifies as White — have shifted and transformed over time Different groups were granted White status as it became economically beneficial to the majority Looking Up the River: The Impact of Race & Ethnicity on Health
  • 15. exploitation Fictional slave diseases Involuntary experimentation Surgical experiments on enslaved people (1932-1972) Tuskegee syphilis experiment (1953-1954) Radioactive iodide testing Plutonium testing (1963) Live cancer cell injections (1970s) Blood sample testing for “genetic criminality” Looking Up the River: The Impact of Race & Ethnicity on Health
  • 16. exploitation (1997) Blood substitution experiments Inmate testing Sickle cell debacle Segregation Forced sterilization Unfulfilled social programs Forced institutionalization or internment Patient dumping Looking Up the River: The Impact of Race & Ethnicity on Health
  • 17. Where we stand Looking Up the River: The Impact of Race & Ethnicity on Health
  • 18. race still matters “Racial/ethnic background affects health status, health insurance coverage, and health care access and quality.  The aggregate data used to produce national averages often mask disparities for people of color — especially those who are poor or near poor.” — Kaiser Family Foundation Looking Up the River: The Impact of Race & Ethnicity on Health
  • 19. racial wealth divide Looking Up the River: The Impact of Race & Ethnicity on Health Lifting as We Climb: Women of Color, Wealth, and American’s Future, Insight Center for Community Economic Development
  • 20. institutionalized racism Looking Up the River: The Impact of Race & Ethnicity on Health
  • 21. continuum of health care Before seeking care Accessing care Treatment Institutionalized racism impacts people of color at each stage of health Looking Up the River: The Impact of Race & Ethnicity on Health
  • 22. before seeking care Exposure to environmental toxins Predatory marketing (tobacco, alcohol, drugs) Food scarcity Military recruitment Underrepresentation in research (especially at the intersections) Violence (including domestic violence) Looking Up the River: The Impact of Race & Ethnicity on Health
  • 23. access to care Health coverage Existence of providers Historic and de facto segregation Barriers to access transportation time off work childcare Absence of trust Looking Up the River: The Impact of Race & Ethnicity on Health
  • 24. treatment Lack of true cultural competency Medicaid & Medicare reimbursement gaps Less time with physicians, lower quality and quantity of visits, fewer diagnostic workups Lack of translators / multilingual care Unacknowledged impact Unintentionally discriminatory policies and practices Looking Up the River: The Impact of Race & Ethnicity on Health
  • 25. the script Oklahoma Task Force to Eliminate Health Disparities Looking Up the River: The Impact of Race & Ethnicity on Health
  • 26. data committee findings Disparities do exist in Oklahoma Health disparities occur in the context of broader historic and contemporary social and economic inequality, and possible discrimination in many sectors of Oklahoma life due to lack of understanding of cultural differences. There is currently insufficient data, data collection systems, and resources to identify all of the factors that may contribute both directly and indirectly to health disparities in Oklahoma. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 27. challenges of ensuring health care access Developing minority health professionals, including African American and Hispanic medical school graduates and physicians Reducing the high percentage of uninsured persons in the state, most notably Hispanics at 40% Ensuring collaboration and communication between state policymakers and local community stakeholders with diverse cultural backgrounds Developing cultural competence and cultural sensitivity among health professionals Integrating mental health and primary care services Looking Up the River: The Impact of Race & Ethnicity on Health
  • 28. challenges of ensuring health care access Developing accessible and accurate data to determine the extent of health access and disparities issues both nationally and locally Improving the socio-economic factors (i.e., education, income, economic development, etc.) contributing to the inability of persons and businesses to afford rising health care costs Reducing the utilization of emergency rooms and trauma centers as a primary source of care Ensuring the availability of adequate services and resources (i.e., physicians, transportation, community health centers, etc.) in communities with the greatest health needs. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 29. neutrality of whiteness Looking Up the River: The Impact of Race & Ethnicity on Health
  • 30. recommendations A New Way of Thinking Looking Up the River: The Impact of Race & Ethnicity on Health
  • 31. broaching Broaching refers to the practitioner’s consideration of race, ethnicity and culture within the clinical setting and for developing treatment plans. The broaching technique is a consistent, well thought out, researched and ongoing attitude of openness with clients with a genuine commitment to continually inviting the client to explore issues of diversity. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 32. examining privilege Health care practitioners are disproportionately White and health care pedagogy has a European bias Public health care clients are disproportionately people of color This disparity introduces white (male, middle class) privilege into the system, and left unexamined, results in practice, policies, and procedures that discriminate against people of color — this is where we can intervene! Looking Up the River: The Impact of Race & Ethnicity on Health
  • 33. examining privilege Health care providers and support staff need to reflect on their internalized biases and begin to dismantle the structures of racism we have all absorbed This can be done in racially caucused spaces that are accountable to people of color This is a long-term process that involves investment of time and resources Looking Up the River: The Impact of Race & Ethnicity on Health
  • 34. examining privilege Medical schools, health care institutions, and policy makers must evaluate their policies and procedures to determine which ones result in discriminatory impact This must be done in a way that is accountable to people of color Task forces, committees, or ad hoc groups assigned with this task must be completely empowered to effect institutional change Looking Up the River: The Impact of Race & Ethnicity on Health
  • 35. the “r” word The origin of “reparations” is “repair” “Reparations should be viewed as an obligation to make the repairs necessary to correct current harms done by past wrongs. This is a much more expansive view than merely calculating the economic harm and writing a check. Under this view, reparations becomes a process that restores hope and dignity and rebuilds the community. Reparations, conceived as repair, can help mend the tear in the social fabric for the benefit of both people of color and mainstream America. This view allows for responsibility and action by all parties. It allows for healing to begin by allowing the souls of people of color and Whites to be cleansed.” Looking Up the River: The Impact of Race & Ethnicity on Health
  • 36. the “r” word Eliminate the inequities in disease, illness and death A focus on education and prevention through targeted services The provision of a liveable wage for all persons and families The eradication of environmental hazards in communities of color The elimination of targeting by tobacco and alcohol industries Looking Up the River: The Impact of Race & Ethnicity on Health
  • 37. the “r” word Assure Access to Health Care Assuring universal health care Locating adequate health care facilities within communities of color Assuring competent health care workforce in communities of color Assure health and health care research on issues affecting communities of color Looking Up the River: The Impact of Race & Ethnicity on Health
  • 38. the “r” word Assuring the cultural competence of the health care workforce by requiring health professional schools to train providers from a diverse background all physicians to have a rotation during their internship and externship the focus on providing culturally competent care providers to take continuing educational units in cultural competency health care facilities and managed care organizations to complete and submit on regular basis a cultural competency assessment to a regulatory agency health care be provided in accordance with realities of the needs of the various "classes" of the Black community. Looking Up the River: The Impact of Race & Ethnicity on Health
  • 39. the “r” word Eliminate Racial Discrimination in Health Care and Research through laws that Recognize multiple forms of discrimination Authorize and fund medical testers Recognize disparate impact Assure fines and regulatory enforcement Require a health scorecard for agency, provider or facility Looking Up the River: The Impact of Race & Ethnicity on Health
  • 40. the “r” word Provide individual and organizational right of action Require data collection and reporting Establish an Equality Health Care Council Assure adequate fines and regulatory enforcement Pay prevailing plaintiff’s attorney fees Allow punitive damage to fund monitoring and assessment programs Looking Up the River: The Impact of Race & Ethnicity on Health
  • 41. resources Looking Up the River: The Impact of Race & Ethnicity on Health
  • 42. resources websites VernelliaR. Randall, J.D., homepages.udayton.edu/~randalvr Kaiser Family Foundation, www.kff.org/minorityhealth/disparities.cfm Empowering Marginalized Communities and Serving Vulnerable Populations through Prevention, Best Practices, and Scientific Research, conference, www.tulsa-health.org/community-health/annual-prevention-health-summit/3rd-annual-conference books Dying While Black by Vernellia R. Randall, J.D. The Race Myth by Joseph L. Graves, Jr. An American Health Dilemma: Race, Medicine, and Health Care in the United States by W. Michael Byrd and Linda A. Clayton Gender, Race, Class and Health: Intersectional Approaches edited by Amy J. Schulz and LeithMullings Tackling Health Inequities Through Public Health Practice: Theory To Action by Richard Hofrichter and Rajiv Bhatia Looking Up the River: The Impact of Race & Ethnicity on Health
  • 43. resources articles “Broaching the subjects of race, ethnicity and culture during the counseling process” byDay-Vines et. al. Journal of Counseling and Development, 9/22/2007 “Levels of Racism: A Theoretic Framework and a Gardener’s Tale” by CamaraPhyllis Jones, MD, MPH, PhD, www.citymatch.org/UR_tale.php “Is There a Black, Latino Doctor in the House?” by Gail Zoppo, DiversityInc, 6/15/2010, www.diversityinc.com/article/7779/Is-There-a-Black-Latino-Doctor-in-the-House presentations and additional training Dr. Andrew Jolivette, “HIV/AIDS Health Disparities in Communities of Color: A Personal Narrative,” 11/6/2009, lecture Ethics: A Fresh Look at Discrimination and the Impact of Racism on Therapist and Client, YWCA professional workshop Witnessing Whiteness and Mosaic, YWCAbook discussion groups Looking Up the River: The Impact of Race & Ethnicity on Health
  • 44. Questions? Looking Up the River: The Impact of Race & Ethnicity on Health
  • 45. Contact information Mana Tahaie Director of Racial Justice YWCA Tulsa (918) 858-2348 mtahaie@ywcatulsa.org Looking Up the River: The Impact of Race & Ethnicity on Health

Hinweis der Redaktion

  1. Let’s start with the title of this presentation[River allegory]I think too often in the helping professions (including non-profits, social services, health providers, etc) we get caught up in fixing the visible symptoms of the problem. It’s understandable: they’re easier to identify, quantify, and address. But I would like to suggest today that we need to spend at least part of our time identifying and eliminating the root causes of the health inequities we’re trying to address. This is harder to do for several reasons:Our educational system hasn’t done a great job of fully conveying our history, especially the uglier bits, so we have little context to understand why things are the way they areWe’re not generally taught as a culture to think systemically: this is woven into our American mythology, when we learn about rugged individualism and personal choice, bootstraps and self-reliance. All these social narratives frame the way that we see the world, and shape how we solve social problems. It’s challenging to unscript from these frames and look at things in a different way.Finally, it can be uncomfortable, even painful, to examine our collective experience this way. On some level, we know that it’s easier to look at disparities and disadvantage as the problem of POC, and ignore the privilege and advantage that benefits the majority (in the case of race, white people, but privilege exists across identities). We’re ill equipped to discuss these issues and too often these conversations lead to feelings of guilt, shame, betrayal — all completely understandable, but also completely unproductive and inadequate in bringing about genuine solutions. So today I invite and challenge you to leave the scripts and turn off the autopilot when it comes to race.We have so effectively stigmatized bias and racism as a society — swung the pendulum of acceptance so far in the opposite direction — that we’ve cut ourselves off at the knees when it comes to dealing with the actual impact of race. We brag about being colorblind, claim that those who speak about race are the true racists, dismiss any attempts to address racial disparities as political correctness. Meanwhile, our communities become increasingly segregated, tensions continue to rise, and we keep talking past one another. Study after study shoes that this approach isn’t helpful.
  2. I’ve been asked to do this in 45 minutes, so please bear with me as I go through a lot of material very quickly. The good news is that I will post this presentation and additional resources to my blog, which you can find at www.TulsasJourney.org. I’ll send that link to Marisa to distribute to the list as well, so for now, feel free to absorb the information with the peace of mind that I’ll be in your hands later.I would also as that you take notes on questions as they arise so hopefully we can address them all at the end. Also, please be mindful that if there are things that challenge you today, it’s probably because I’m going against the script we’ve all been taught. That’s okay: discomfort is where learning happens. One of the ways we’re taught to consider challenging issues is through a didactic lens — either/or thinking rather than both/and thinking — if something in this presentation gets you into that mindset, I encourage you to examine what it is that got you into that mode: that’s a growing edge to work on when you leave today.
  3. We’ve all heard these stats, right? Nationally and within our state, people of color face dramatic health inequities from cradle to grave.
  4. I want to point out that while we’re talking about race today, it’s important to remember that the intersections of identity are vital to understanding this complex challenge. That is to say, that adding age, class, gender and gender identity, sexual orientation, national origin, physical ability, and other identities into the mix exacerbates existing inequities several times over. Take a transgender woman of color — she has several identities that are underserved or abused by our health systems, and framing her identity along racial lines alone tells only part of her story.
  5. You can see in these statistics that women of color experience racial bias and gender bias, as a result of being often invisible to the health care system.
  6. In Oklahoma, as we know, the major health indicators tell a similar, if not worse, story. These charts demonstrate how white people, though in the majority, experience lower than average rates of infant mortality, AIDS deaths,
.
  7. 
poverty, reliance on Medicaid, and lack of insurance than people of color
  8. Viewed together, you’ll notice how POC consistently experience poorer than average health than their white counterparts (second column) or the statewide average (first column)I’ll post a detailed fact sheet on my blog with this presentation with many more local statistics.
  9. So, how did we get here? It’s easy to look at the data and make assumptions based on the received narrative I spoke about a few minutes ago: if as Americans we believe that your life is a sum of your own personal choices and those choices alone, it’s a rational conclusion to say that people of color exercise bad judgment, make poor choices, and therefore reap what they sow. And of course, health status is caused by complex interaction of many factors, including individual behavior. However, recognizing the importance of individual behavior in health status does not at all minimize the need to focus on systemic influences such as poverty and racism. Focusing on behavior alone limits our understanding of history, context, and systemic causes. It also limits our ability to see people as fully human and capable of making rational decisions — we often apply our own worldview to other people’s experiences, which can lead to paternalistic thinking and diagnoses. When we become more aware of people’s historical context, we begin to see that the choices they make are completely logical given their experiences, and we can become much more effective in our work. **Before I go any further, I want to say that while I have aggregated this information myself, I have relied heavily on the work of experts in the field of race and health, specifically on Vernellia Randall, whose excellent book Dying While Black informed much of this presentation. **Let’s take a few minutes and examine the history of health in the U.S.
  10. Again, we are often distracted from an honest discussion around race by discussions on socieoeconomic class. And indeed, race is a strong determinant of social class —In the US, race is a major determinate of social class because of how our economic systems were designed and laws were established regarding wealth acquisitionBut more importantly, when controlling for economic status, racial inequities persist
  11. Race still matters because it is part of our collective consciousness, it permeates how we see and understand our environment. Most of the time, when someone says racism, they’re talking about what I call “old school” racism — lynch mobs and white hoods. Now, we know that that form still exists — in fact, for a lot of reasons, it’s on the rise since 2001 — but that’s not the form that is most prevalent in 2010. Instead, racism has become more obscure, less easy to identify (though no less harmful) — because it has become codified in how our institutions operate. This is what we call institutional racism.What makes this form most insidious is that it doesn’t need bad intent to operate. That is to say, because racism is in the DNA of our institutions (because, after all, all our modern social systems originated during a period of white supremacy), it has it’s own inertia. So it’s much more challenging to identify a culprit because there often isn’t one: rather, it works quietly in the background of our society, and is often invisible to everyone but those it impact.Consider this example:May not be intentional, but it mattersCoded messages So you can see how we can get wrapped up in the idea of intent and miss the point entirely: focusing on intent abdicates accountability, it allows unintentional discrimination to go unchecked, because it’s easy to say that because the institution didn’t intend to discriminate, it’s not responsible for discriminatory outcomes. One of the central tenets of social justice is that privilege renders invisible the impact of our actions, which makes intent less important. Example: even if an office doesn't intend to be inaccessible to people with limited mobility, they may still not have wheelchair ramps. Intent doesn't matter when outcome demonstrates discrimination.
  12. So, what does this all have to do with health care? Well, I submit that along the continuum of health care (before seeking care, attempting to access care, and treatment), institutional racism is always present. In some ways, this may seem overwhelming. I hope that by the end of this presentation, you’ll instead feel inspired because once a problem is clearly diagnosed, the solutions become easier to identify and implement. We don’t have to do it all right now, but we do need to recognize where our current strategies are falling short because of an inaccurate assessment of the problem.
  13. Toxins studies have concluded that race more than poverty, land values, or home ownership is a predictor as to the location of hazardous facilitiesRace is independent of class in the distribution of air pollution, contaminated fish consumption, location of municipal landfills and incinerators, abandoned toxic waste dumps, cleanup of superfund sites, lead poisoning in children, and asthmaAfrican Americans are disproportionately represented in jobs with the highest environmental hazards, such as fast food and pesticide-intensive farm labor, rubber making, coke production, battery manufacturing, lead plating and smelting, and industrial launderingThe blood lead levels in urban African-American children under the age of five significantly exceed the levels found in white children of the same age living in the same cities. This disparity persisted across income levels.
  14. 25% of African-Americans have no source of health coverage (independent of class)the number of uninsured African-Americans is increasingracial barriers to employment are one explanation for the significant difference in insurance coverageAfrican-American is more likely to be in a lower paying job which does not provide employer-based health insurancehigher percentage of African-American families with only one adultlocating adequate health care facilities within the Black communityFacilities serving African American communities are relocating to white neighborhoodsPrivatization of hospitals Lack of early access to health care increases health problems over timeassuring competent health care workforce in black communitiesWithout physicians and providers in their communities, African-Americans are likely to delay seeking health careAfrican-Americans are seriously under-represented in every health care professionsThis lack of African-American voice leads to increased ignorance on the part of European-Americans regarding issues pertaining to African-American healthThis lack of African-American representation in health care is traceable to slavery, racism and segregationTrustSyphilis testinginvoluntary sterilizationForced institutionalization
  15. assuring the cultural competence of the health care workforceAssumptions of the middle- class, middle-aged, European American system:the system focuses on individual autonomy rather than family involvementassumes a basic trust in the health care system instead of distrustrelies on a western European American concept of communicationsIt is built on a western European concept of wellness, illness and health careOne barrier to culturally competent care is the physicians' own negative perceptions about African Americans. Because they have differing needs and problems in accessing care, physicians may see African Americans as less compliant and more difficult to care for.Through reparations culturally competent care can be assure by requiring: health professional schools to train providers from a diverse backgroundall physicians to have a rotation during their internship and externship the focus on providing culturally competent careproviders to take continuing educational units in cultural competencyhealth care facilities and managed care organizations to complete and submit on regular basis a cultural competency assessment to a regulatory agency health care be provided in accordance with realities of the needs of the various "classes" of the Black community.increasing the knowledge about health and health of black persons and translating it into effective clinical practiceThe health condition of African Americans will continue to suffer until they are included in all types of health research. The information from that research has to be translated into clinical practice without becoming just another stereotype.Racial inequality persists despite laws against racial discrimination, in significant part because of the inadequacy of Title VI. As long as the law requires a conscious discriminatory purpose for disparate treatment liability, individual discrimination claims cannot address the issue of unconscious prejudice.Our legal system has had particular difficulty addressing issues of "unthinking discrimination", that is discrimination that results from acting on biases and stereotypes. Office of Civil Right's ("OCR") Title VI enforcement effort has produced little consistent data for evaluating Title VI compliancethere has been "little uniformity in how different states handle Title VI requirements, little guidance, little analysis of the information collected by this process, no research and developmentTitle VI lacks specific definitions of prohibited discrimination and acceptable remedial actionOCR has relied on individual complaints as a means of enforcement which is particularly troubling where most discrimination and even harm is hidden from the individualOur health care system presents several additional problemsPeople of color will be totally unaware that the provider or institution has discriminated against thembecause of the very specialized knowledge required in medical care, individuals may be totally unaware that they have been injured by the providerOur health care system, through managed care, has actually built in incentives which encourage "unconscious" discrimination
  16. Notice how the language of race is noticeably absent. I don’t think this is an accident — but I also don’t think it’s intentional. How is that possible? I think it’s because we’ve thwarted our own ability to talk about race in honest ways. We’re afraid that talking about race makes us racist, that we should instead be colorblind, so we couch things in terms of “cultural competency” — which is entirely about understanding “the other”. In fact, the very word “culture” is loaded: how many people consider white to be a race, or think about whiteness as a culture? We don’t think of the standard training we receive as cultural competency in service white people, but that’s precisely what it is. So what happens is that we focus externally rather than internally. We think of spaces as racialized only when POC enter them — instead of realizing that whiteness is a racial construct as well, one which we rarely examine, but that has as much cultural baggage as any other racial identity.
  17. Because that identity is normalized — because we see whiteness as standard or neutral (think of “flesh colored” or “nude” bandaids, “normal hair” shampoo,
  18. a focus on education and prevention through targeted servicesdiabetescardiovascular diseasematernal and infant mortalityHIV/AIDScanceroral healthmental healthdrug, alcohol and tobacco addictionasthma violence (including domestic violence).the provision of a liveable wage for all persons and familiesPoverty effects housing choice, job choice, food and educationThe San Francisco Department of Public Health reported livable wages diminish mortality rates, decrease unnecessary hospitalization of the poor, eliminate some costs associated with caring for the homeless, and saved lives
  19. Through reparations culturally competent care can be assure by requiring: health professional schools to train providers from a diverse backgroundall physicians to have a rotation during their internship and externship the focus on providing culturally competent careproviders to take continuing educational units in cultural competencyhealth care facilities and managed care organizations to complete and submit on regular basis a cultural competency assessment to a regulatory agency health care be provided in accordance with realities of the needs of the various "classes" of the Black community.
  20. As the United States Commission on Civil Rights foundThere is substantial evidence that discrimination in health care delivery, financing and research continues to exist. Such evidence suggests that Federal laws designed to address inequality in health care have not been adequately enforced by federal agencies. . . [Such failure has] . . . resulted in a failure to remove the historical barriers to access to quality health care for women and minorities, which, in turn has perpetuated these barriers.
  21. As the United States Commission on Civil Rights foundThere is substantial evidence that discrimination in health care delivery, financing and research continues to exist. Such evidence suggests that Federal laws designed to address inequality in health care have not been adequately enforced by federal agencies. . . [Such failure has] . . . resulted in a failure to remove the historical barriers to access to quality health care for women and minorities, which, in turn has perpetuated these barriers.