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FALLING THROUGH THE
 GAPS?: FORMULATING
                       Mental Health Law Reform:
                       New Perspectives and
                       Challenges

                       Centre for Disability, Law



   REFORM IN A DUAL-
                       and Policy, National
                       University of Ireland, Galway

                       June 23, 2012

                       Dr Mary Donnelly,



      MODEL SYSTEM
                       Law Faculty,
                       University College Cork
‘PROCESS’ TO DATE

   1992: Paper on Mental Health
   1999: White Paper: A New Mental Health Act
   2001: Enactment of Mental Health Act
   April 2002: Commencement of Par t of MHA and Establishment of
    Mental Health Commission
   2003: Law Reform Commission Consultation Paper: Law and the Elderly
   2005: Law Reform Commission Consultation Paper: Vulnerable Adults
    and the Law: Capacity
   Nov 2006: Commencement of Mental Health Act 2001 in full
   Dec 2006: Law Reform Commission Repor t: Vulnerable Adults and the
    Law
   2008: Scheme of Mental Capacity Bill
   2011: Announcement of Review of Mental Health Act 2001
   201 2: Publication of Mental Capacity Bill – Promised
   22 June 201 2 (yesterday!): publication of Interim Repor t of Steering
    Group on the Review of the Mental Health Act
IN THE MEANTIME … THE WORLD MOVES
                ON
 Expansion of ECHR jurisprudence

 Convention on the Rights of Persons with Disabilities
     Inception
     Drafting
     Negotiations
     Agreement
     Commencement
     Signature
       By Ireland (and 152 other states)
   Ratification
       By 114 states (not including Ireland)
SUPPORTING INERTIA

 Po l it ic al Wi l l

     Other distractions – but only from 2008

     Few votes in mental health reform

     Absence of high profile ‘law and order’ case

 Judi c i a l At t i t ude s

     Mental Health: Generally supportive of ‘the overall scheme and paternalistic
      intent of the legislation’ (Kearns J. in EH v St Vincent’s Hospital [2009] IESC 46)

     Mental Capacity: Less supportive of Lunacy Regulation (Ireland) Act 1871 (see Re
      Francis Dolan [2007] IESC 26) but no decisive kick

     Reluctance to engage with ECHR
AN ALTERNATIVE VIEW OF THE PROCESS

     Mental Health              Mental Capacity
 1992: Green Paper on       2003: LRC: Law and the
  Mental Health               Elderly
 1999: White Paper: A
  New Mental Health Act      2005: LRC: Vulnerable
 2001: Mental Health Act     Adults and the Law:
 April 2002: MHC             Capacity
 2006: MHA commences        2006: LRC Report
 2011: Review of MHA        2008: Scheme of Bill
 2012: Publication of       2012: Publication of
  Interim Review Report
                              Bill????????????????
PERIMETERS OF THE DUAL MODEL

    Mental Health Act              Everyone else
 ‘Patients’: Compulsorily    ‘Voluntary’ inpatients
  Admitted
                              ~ 17,000 people p.a.
 ~2,000 people p.a.           ~6,000 lacking capacity

 Tribunal Review of          High proportion long-stay
  Detention                    patients

 Second Opinion on           No reviews of detention
  Treatment                    or treatment
REFORMING IN A DUAL MODEL SYSTEM
THE RISKS
POLICY DRIVERS

      Mental Health           Mental Capacity
 Best interests/rights    Rights Protection

 Public protection        Supported Decision-
                            making
 Overtly limiting
                           Good on language
 Strong on procedural
  protections              Weak on delivery
FORMULATING REFORM: THE HUMAN
         RIGHTS PERIMETERS


 ECHR: Deprivation of Liberty
   Procedural mechanism required: HL v United Kingdom [2005] 40
    EHRR 32
   Positive Obligation on State: Stork v Germany (2005) 43 EHRR 96
   Requirement to consider alternatives: Stanev v Bulgaria (2012) ECHR
    36760/06


 CRPD
   Equal right to liberty and security of the person: Art 14
   Equal right to Live in the Community: Art 19
   Right to Equal Recognition before the law: Art 12
     Includes a Right to supported decision -making
REFORM OPTIONS

 Apply the MHA to all admissions of people lacking capacity



 Imitate England/Wales Deprivation of Liberty Safeguards



 Normative shift to patient -centred assessment of reform
APPLYING THE MHA

         Advantages                Disadvantages
 Neat                        Limited suitability for
                               non-objecting people

 (Probably) ECHR             Question re value of
  compliant - although         tribunal hearing if person
  question re alternatives     lacks capacity to instruct
                               lawyer

                              Treatment protections
                               come very late - 3
                               months for medication
DEPRIVATION OF LIBERT Y SAFEGUARDS

Qualifying Requirements                                      Assessments
 Ove r 1 8 ;
 Suf fe r fro m a m e n t a l di s o rde r;
                                                        An age assessment
 La c k c a pa c i t y to de c i de a bo ut            A mental health
  a dm i ssion
 Adm i ssion m us t be i n h e r be s t
                                                         assessment;
  i n te rest s;                                        A mental capacity
 S/ h e m us t n ot be i n e ligible fo r
  a dm i ssion be c a us e t h e a dm i ssion            assessment;
  c o n fl ic t s w i t h a pre - ex i s t ing
  c o m pul sor y powe r un de r t h e M H A            A best interests
 S/ h e m us t n ot o bj e c t to a dm i s sio n
  o r to t re a t m e n t ( i n c luding t h ro ug h
                                                         assessment;
  a n a dva n c e de c i s ion to t h i s e f fe c t
  o r t h ro ug h a c o ur t - a ppo i n te d
                                                        An eligibility assessment;
  de put y o r t h e do n n e e o f a l a s t i ng
  powe r o f a t to rn ey ) .
                                                        A no refusals
                                                         assessment.
DOLS: THE PROBLEMS

 A technical solution to a human rights problem

 Complex, confusing, lack of understanding

 New gaps created

 Limited role for representative - Clear power imbalance: see
  London Borough of Hillingdon v Near y [2011] EWCP 1377
  (COP)

 No specific protections on treatment
STANDPOINT
SOME SUGGESTIONS

 Seek to avoid the dangers of technicalities

 Enhance the functions of the representative:
  Everyone needs someone in their corner



 Introduce specific oversight measures on ECT/long term
  medication

 Develop support framework
THE MHA INTERIM REPORT: KEY
            RECOMMENDATIONS
 Rights-Based Approach with Right of Autonomy/Self -
  determination as key
 Increase in focus of inspectorate – including community
  based care
 Recovery as a guiding principle
 Introduction of Mental Health Advance Directives
 Consider expansion of Advocacy – inc for children
 Stand alone provisions on children
 Removal of ‘unwilling’ from ss. 59 and 60
 Procedural Recommendations around Tribunals
INTERIM REPORT: DEALING WITH THE
            DUAL MODEL
 Anticipation that many of shortcomings of MHA 2001 re
  capacity will be addressed

 Steering Group ‘met with’ Department of Justice and Equality
   Two meeting: 16 Sept 2011 and 20 Jan 2012


 Shared Recognition of need to ‘dovetail’ with Mental Capacity
  Bill
DEFINING ‘VOLUNTARY’ PATIENTS


 ‘Voluntary’ means:

   person who consents on his/her own behalf or with the
  support of others to admission
or
  On whose behalf a Personal Guardian appointed under the
  proposed capacity legislation consents to such admission

Key issue: what will the Personal Guardian’s powers/obligations
 be under the MCB?
PROTECTIONS FOR VOLUNTARY PATIENTS


 No need for external oversight where patient has capacity and
  consents

 Patients with a Personal Guardian: Protections provided under
  capacity legislation will provide suf ficient protection of the
  rights of individual

 Patients with fluctuating capacity: level of external oversight

 Inspectorate power of referral to Tribunal

 Information provision re legal rights
CHANGING STATUS: VOLUNTARY TO
            INVOLUNTARY
 Should not be undertaken lightly

 Acceptance of need for treatment should be implicit in
  voluntary admission

 Voluntary patients should be allowed leave – subject to 12
  hour holding power
CONSENT AND INCAPACIT Y

 Patients who are ‘unable’ to give consent – needs
  examination light of capacity legislation



 ‘The Group is hopeful that the protections provided to patients
  under that legislation will be suf ficient and no further
  protections will be required under mental health legislation’
END GAME


 Beware empty rhetoric

 Details matter

 What is going to be delivered?

 Importance of holding elected representatives to account

 Law reform is not the end – Monitoring Matters

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Falling through the gaps, Dr Mary Donnelly

  • 1. FALLING THROUGH THE GAPS?: FORMULATING Mental Health Law Reform: New Perspectives and Challenges Centre for Disability, Law REFORM IN A DUAL- and Policy, National University of Ireland, Galway June 23, 2012 Dr Mary Donnelly, MODEL SYSTEM Law Faculty, University College Cork
  • 2. ‘PROCESS’ TO DATE  1992: Paper on Mental Health  1999: White Paper: A New Mental Health Act  2001: Enactment of Mental Health Act  April 2002: Commencement of Par t of MHA and Establishment of Mental Health Commission  2003: Law Reform Commission Consultation Paper: Law and the Elderly  2005: Law Reform Commission Consultation Paper: Vulnerable Adults and the Law: Capacity  Nov 2006: Commencement of Mental Health Act 2001 in full  Dec 2006: Law Reform Commission Repor t: Vulnerable Adults and the Law  2008: Scheme of Mental Capacity Bill  2011: Announcement of Review of Mental Health Act 2001  201 2: Publication of Mental Capacity Bill – Promised  22 June 201 2 (yesterday!): publication of Interim Repor t of Steering Group on the Review of the Mental Health Act
  • 3. IN THE MEANTIME … THE WORLD MOVES ON  Expansion of ECHR jurisprudence  Convention on the Rights of Persons with Disabilities  Inception  Drafting  Negotiations  Agreement  Commencement  Signature  By Ireland (and 152 other states)  Ratification  By 114 states (not including Ireland)
  • 4. SUPPORTING INERTIA  Po l it ic al Wi l l  Other distractions – but only from 2008  Few votes in mental health reform  Absence of high profile ‘law and order’ case  Judi c i a l At t i t ude s  Mental Health: Generally supportive of ‘the overall scheme and paternalistic intent of the legislation’ (Kearns J. in EH v St Vincent’s Hospital [2009] IESC 46)  Mental Capacity: Less supportive of Lunacy Regulation (Ireland) Act 1871 (see Re Francis Dolan [2007] IESC 26) but no decisive kick  Reluctance to engage with ECHR
  • 5. AN ALTERNATIVE VIEW OF THE PROCESS Mental Health Mental Capacity  1992: Green Paper on  2003: LRC: Law and the Mental Health Elderly  1999: White Paper: A New Mental Health Act  2005: LRC: Vulnerable  2001: Mental Health Act Adults and the Law:  April 2002: MHC Capacity  2006: MHA commences  2006: LRC Report  2011: Review of MHA  2008: Scheme of Bill  2012: Publication of  2012: Publication of Interim Review Report Bill????????????????
  • 6. PERIMETERS OF THE DUAL MODEL Mental Health Act Everyone else  ‘Patients’: Compulsorily  ‘Voluntary’ inpatients Admitted  ~ 17,000 people p.a.  ~2,000 people p.a. ~6,000 lacking capacity  Tribunal Review of  High proportion long-stay Detention patients  Second Opinion on  No reviews of detention Treatment or treatment
  • 7. REFORMING IN A DUAL MODEL SYSTEM
  • 9. POLICY DRIVERS Mental Health Mental Capacity  Best interests/rights  Rights Protection  Public protection  Supported Decision- making  Overtly limiting  Good on language  Strong on procedural protections  Weak on delivery
  • 10. FORMULATING REFORM: THE HUMAN RIGHTS PERIMETERS  ECHR: Deprivation of Liberty  Procedural mechanism required: HL v United Kingdom [2005] 40 EHRR 32  Positive Obligation on State: Stork v Germany (2005) 43 EHRR 96  Requirement to consider alternatives: Stanev v Bulgaria (2012) ECHR 36760/06  CRPD  Equal right to liberty and security of the person: Art 14  Equal right to Live in the Community: Art 19  Right to Equal Recognition before the law: Art 12  Includes a Right to supported decision -making
  • 11. REFORM OPTIONS  Apply the MHA to all admissions of people lacking capacity  Imitate England/Wales Deprivation of Liberty Safeguards  Normative shift to patient -centred assessment of reform
  • 12. APPLYING THE MHA Advantages Disadvantages  Neat  Limited suitability for non-objecting people  (Probably) ECHR  Question re value of compliant - although tribunal hearing if person question re alternatives lacks capacity to instruct lawyer  Treatment protections come very late - 3 months for medication
  • 13. DEPRIVATION OF LIBERT Y SAFEGUARDS Qualifying Requirements Assessments  Ove r 1 8 ;  Suf fe r fro m a m e n t a l di s o rde r;  An age assessment  La c k c a pa c i t y to de c i de a bo ut  A mental health a dm i ssion  Adm i ssion m us t be i n h e r be s t assessment; i n te rest s;  A mental capacity  S/ h e m us t n ot be i n e ligible fo r a dm i ssion be c a us e t h e a dm i ssion assessment; c o n fl ic t s w i t h a pre - ex i s t ing c o m pul sor y powe r un de r t h e M H A  A best interests  S/ h e m us t n ot o bj e c t to a dm i s sio n o r to t re a t m e n t ( i n c luding t h ro ug h assessment; a n a dva n c e de c i s ion to t h i s e f fe c t o r t h ro ug h a c o ur t - a ppo i n te d  An eligibility assessment; de put y o r t h e do n n e e o f a l a s t i ng powe r o f a t to rn ey ) .  A no refusals assessment.
  • 14. DOLS: THE PROBLEMS  A technical solution to a human rights problem  Complex, confusing, lack of understanding  New gaps created  Limited role for representative - Clear power imbalance: see London Borough of Hillingdon v Near y [2011] EWCP 1377 (COP)  No specific protections on treatment
  • 16. SOME SUGGESTIONS  Seek to avoid the dangers of technicalities  Enhance the functions of the representative: Everyone needs someone in their corner  Introduce specific oversight measures on ECT/long term medication  Develop support framework
  • 17. THE MHA INTERIM REPORT: KEY RECOMMENDATIONS  Rights-Based Approach with Right of Autonomy/Self - determination as key  Increase in focus of inspectorate – including community based care  Recovery as a guiding principle  Introduction of Mental Health Advance Directives  Consider expansion of Advocacy – inc for children  Stand alone provisions on children  Removal of ‘unwilling’ from ss. 59 and 60  Procedural Recommendations around Tribunals
  • 18. INTERIM REPORT: DEALING WITH THE DUAL MODEL  Anticipation that many of shortcomings of MHA 2001 re capacity will be addressed  Steering Group ‘met with’ Department of Justice and Equality  Two meeting: 16 Sept 2011 and 20 Jan 2012  Shared Recognition of need to ‘dovetail’ with Mental Capacity Bill
  • 19. DEFINING ‘VOLUNTARY’ PATIENTS  ‘Voluntary’ means: person who consents on his/her own behalf or with the support of others to admission or On whose behalf a Personal Guardian appointed under the proposed capacity legislation consents to such admission Key issue: what will the Personal Guardian’s powers/obligations be under the MCB?
  • 20. PROTECTIONS FOR VOLUNTARY PATIENTS  No need for external oversight where patient has capacity and consents  Patients with a Personal Guardian: Protections provided under capacity legislation will provide suf ficient protection of the rights of individual  Patients with fluctuating capacity: level of external oversight  Inspectorate power of referral to Tribunal  Information provision re legal rights
  • 21. CHANGING STATUS: VOLUNTARY TO INVOLUNTARY  Should not be undertaken lightly  Acceptance of need for treatment should be implicit in voluntary admission  Voluntary patients should be allowed leave – subject to 12 hour holding power
  • 22. CONSENT AND INCAPACIT Y  Patients who are ‘unable’ to give consent – needs examination light of capacity legislation  ‘The Group is hopeful that the protections provided to patients under that legislation will be suf ficient and no further protections will be required under mental health legislation’
  • 23. END GAME  Beware empty rhetoric  Details matter  What is going to be delivered?  Importance of holding elected representatives to account  Law reform is not the end – Monitoring Matters