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CO-PRODUCTION: A CRITICAL REALIST
   PERSPECTIVE ON CONNECTING
  OLDER PERSONS WITH SERVICES
          AND CHOICE


      DR CHRISTINE STIRLING
     UNIVERSITY OF TASMANIA
OVERVIEW

Co-Production
Critical Realist Concept
The More Things Change…
Benefits of Partnership and Choice
CO-PRODUCTION
Services produced in a reciprocal
 relationship between professionals,
 service users, families and neighbours.
Service users are resources
Services need to interact with neighbourhood level support
Family, neighbourhood, community and civil society are the ‘core economy’ – social capital
Services need to promote idea of equal partnership
Focus on effectiveness not efficiency
(Boyle and Harris 2010)
CO-PRODUCTION BENEFITS
‘Co-production changes all this. It makes the system more efficient,
   more effective and more responsive to community needs. More
   importantly, it makes social care altogether more humane, more
   trustworthy, more valued – and altogether more transforming for
   those who use it.’
Phil Hope – then Minister of State for Care Services UK 2009


‘Co-production shifts the balance of power, responsibility and
   resources from professionals more to individuals, by involving
   people in the delivery of their own services.’ (Boyle and Harris
   2009).
THIS

PEOPLE GETTING
CARE THEY DON’T
WANT AND OTHERS
NOT GETTING CARE
THEY NEED.

“FELT NEED” PROVIDING
A BETTER INDICATOR
FOR DEMENTIA SUPPORT
SERVICES NEED THAN
EXPERT ASSESSMENT?
“Well there’s been five actual assessments and three interviews…
     over the last four months…then there was the day care lady
     came and assessed her and that was fruitless” Carer of
     Person With Dementia

A simple one-item measure of carers’ felt need for more services was
     significantly related to carer stress as measured on the GHQ-30.
65% of carers would like more help from services than they were
     currently receiving (felt need). The statement- ‘I need more help
     from services than I am given’ was positively related to carers’
     GHQ-30 (Spearmans rho = 0.625, p = 0.01).

Qualitative data showed that there are many potential stressors for
      carers, other than those related to the care-giving role.
AGENCY - VISION, SHARED IDEAS, AND SKILLS




                           Change is the result
                           of the Interplay
                           between
                           Agency and Context
CRITICAL REALIST PERSPECTIVE - ICT

AGENCY                     CONTEXT
Vision                     Silicon Valley a hub of
                              innovation
Skills
                           Life circumstances –
Power – as a group            education and
New field – no existing       freedom
  power elites             Venture capital
Consumers – voted          Unknown potential –
  with purchasing             no plan
  power
CRITICAL REALIST PERSPECTIVE – THE +VE FOR
              CHANGE IN HEALTH
AGENCY                  CONTEXT
ICT technologies         System breaking
   helping link          Baby boomers are
   consumers – voice,      ageing
   new power elite       Social media,
Purchasing Power for a     connectivity
  large group            Vast potential from
                           healthy older
                           workforce
RISKS TO CHANGE

AGENCY                   CONTEXT
Existing groups try to   Unwieldy, busy,
   hang onto power         entrenched health
                           system makes
                           change difficult
Many consumers lack
  the skills to access
  and engage
SERVICE REDESIGN
STRATEGIES TO DEVELOP AND MAINTAIN EQUAL
              RELATIONSHIPS
Develop Agency for Consumers – able to
   communicate as a collective, new vision, able to
   be heard.
Listen - Continue to capture the experiences and
   voices of consumers and use this to inform new
   programs. Redefine experts.
Systems and Tools that facilitate agency and
   partnerships
BUILD CONSUMER SKILLS TO NAVIGATE AND
USE THE SYSTEM
PROBLEM                SOLUTION
                       ICT
A complex fractured    Focus on skills
   system              Targeted information
                       Decision making assistance
How to make choices?
REMOVE BARRIERS FOR ACCESS TO SERVICES-
THE NURSE-LED MEMORY CLINIC
                                           SOLUTION -
PROBLEM                                    AGENCY

Difficult to get a diagnosis                Consumers able to self-
                                             refer
Difficult to get information
                                            Free nurse-led cognitive
Referral onto other services                 assessments and
    inconsistent
                                             diagnosis
‘I'd say, "Mum's memory isn't too
      good"; try and not make her look      Follow-up visit to facilitate
      silly in front of them, but, she'd     appropriate referrals to
      say, "Oh, it's better than yours",
      and they'd just laugh with her         community supports such
      and that would be the end of
      that. You know, you couldn't get
                                             as Alzheimer’s Australia,
      anyone to take it very seriously.’     HACC
SERVICES NOT FITTING NEED

    PROBLEM                            SOLUTION
•    Assessment Not Capturing          Power, voice, representation
     Need                               Australia – Consumer
•    Rigid boundaries around             Directed Care Packages
     service provision –                Patients Know Best
           “He’s had four [carers]       website,
and this gentleman will be the fifth
                                         www.patientsknowbest.co
today. So he gets very confused
about who is coming and I have to        m
explain each week.”                     Local Involvement
•    Experts within narrow silos.        Networks
In Conclusion
There is a lot of work to be done to change culture
   so that we have more equal relationships with
   a sharing of power.
REFERENCES
 Boyle, D., & Harris, M. (2009). The Challenge of Co-Production: how equal partnerships between
     professionals and the public are crucial to improving public services. London: NESTA.
 Lloyd and Stirling (in Print Sep 2011). Ambiguous Gain: uncertain benefits of service use for
     dementia carers. Sociology of Health and Illness
 Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., & Robinson, A. (2010). Measuring dementia
      carers' unmet need for services - an exploratory mixed method study. BMC Health Services
      Research, 10(122), EJ.
3 stirling co production and critical realism

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3 stirling co production and critical realism

  • 1. CO-PRODUCTION: A CRITICAL REALIST PERSPECTIVE ON CONNECTING OLDER PERSONS WITH SERVICES AND CHOICE DR CHRISTINE STIRLING UNIVERSITY OF TASMANIA
  • 2. OVERVIEW Co-Production Critical Realist Concept The More Things Change… Benefits of Partnership and Choice
  • 3. CO-PRODUCTION Services produced in a reciprocal relationship between professionals, service users, families and neighbours. Service users are resources Services need to interact with neighbourhood level support Family, neighbourhood, community and civil society are the ‘core economy’ – social capital Services need to promote idea of equal partnership Focus on effectiveness not efficiency (Boyle and Harris 2010)
  • 4. CO-PRODUCTION BENEFITS ‘Co-production changes all this. It makes the system more efficient, more effective and more responsive to community needs. More importantly, it makes social care altogether more humane, more trustworthy, more valued – and altogether more transforming for those who use it.’ Phil Hope – then Minister of State for Care Services UK 2009 ‘Co-production shifts the balance of power, responsibility and resources from professionals more to individuals, by involving people in the delivery of their own services.’ (Boyle and Harris 2009).
  • 5. THIS PEOPLE GETTING CARE THEY DON’T WANT AND OTHERS NOT GETTING CARE THEY NEED. “FELT NEED” PROVIDING A BETTER INDICATOR FOR DEMENTIA SUPPORT SERVICES NEED THAN EXPERT ASSESSMENT?
  • 6. “Well there’s been five actual assessments and three interviews… over the last four months…then there was the day care lady came and assessed her and that was fruitless” Carer of Person With Dementia A simple one-item measure of carers’ felt need for more services was significantly related to carer stress as measured on the GHQ-30. 65% of carers would like more help from services than they were currently receiving (felt need). The statement- ‘I need more help from services than I am given’ was positively related to carers’ GHQ-30 (Spearmans rho = 0.625, p = 0.01). Qualitative data showed that there are many potential stressors for carers, other than those related to the care-giving role.
  • 7. AGENCY - VISION, SHARED IDEAS, AND SKILLS Change is the result of the Interplay between Agency and Context
  • 8. CRITICAL REALIST PERSPECTIVE - ICT AGENCY CONTEXT Vision Silicon Valley a hub of innovation Skills Life circumstances – Power – as a group education and New field – no existing freedom power elites Venture capital Consumers – voted Unknown potential – with purchasing no plan power
  • 9. CRITICAL REALIST PERSPECTIVE – THE +VE FOR CHANGE IN HEALTH AGENCY CONTEXT ICT technologies System breaking helping link Baby boomers are consumers – voice, ageing new power elite Social media, Purchasing Power for a connectivity large group Vast potential from healthy older workforce
  • 10. RISKS TO CHANGE AGENCY CONTEXT Existing groups try to Unwieldy, busy, hang onto power entrenched health system makes change difficult Many consumers lack the skills to access and engage
  • 12. STRATEGIES TO DEVELOP AND MAINTAIN EQUAL RELATIONSHIPS Develop Agency for Consumers – able to communicate as a collective, new vision, able to be heard. Listen - Continue to capture the experiences and voices of consumers and use this to inform new programs. Redefine experts. Systems and Tools that facilitate agency and partnerships
  • 13. BUILD CONSUMER SKILLS TO NAVIGATE AND USE THE SYSTEM PROBLEM SOLUTION ICT A complex fractured Focus on skills system Targeted information Decision making assistance How to make choices?
  • 14. REMOVE BARRIERS FOR ACCESS TO SERVICES- THE NURSE-LED MEMORY CLINIC SOLUTION - PROBLEM AGENCY Difficult to get a diagnosis  Consumers able to self- refer Difficult to get information  Free nurse-led cognitive Referral onto other services assessments and inconsistent diagnosis ‘I'd say, "Mum's memory isn't too good"; try and not make her look  Follow-up visit to facilitate silly in front of them, but, she'd appropriate referrals to say, "Oh, it's better than yours", and they'd just laugh with her community supports such and that would be the end of that. You know, you couldn't get as Alzheimer’s Australia, anyone to take it very seriously.’ HACC
  • 15. SERVICES NOT FITTING NEED PROBLEM SOLUTION • Assessment Not Capturing Power, voice, representation Need  Australia – Consumer • Rigid boundaries around Directed Care Packages service provision –  Patients Know Best “He’s had four [carers] website, and this gentleman will be the fifth www.patientsknowbest.co today. So he gets very confused about who is coming and I have to m explain each week.”  Local Involvement • Experts within narrow silos. Networks
  • 16. In Conclusion There is a lot of work to be done to change culture so that we have more equal relationships with a sharing of power.
  • 17. REFERENCES Boyle, D., & Harris, M. (2009). The Challenge of Co-Production: how equal partnerships between professionals and the public are crucial to improving public services. London: NESTA. Lloyd and Stirling (in Print Sep 2011). Ambiguous Gain: uncertain benefits of service use for dementia carers. Sociology of Health and Illness Stirling, C., Andrews, S., Croft, T., Vickers, J., Turner, P., & Robinson, A. (2010). Measuring dementia carers' unmet need for services - an exploratory mixed method study. BMC Health Services Research, 10(122), EJ.