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The Genomics Policy Process:  Forming Partnerships Between Citizens, Experts, and Policy Makers G. Fowler PhD  K.C. Allison PhD  M. Garland DScRel  University of Minnesota  Oregon Health and Science  University Translating “ELSI”: Ethical, Legal and Social Implications of Genomics,  Case Western Reserve University, May 3, 2008
[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
Geneforum’s 3-Level Strategy ,[object Object],Slide  The Genomics Policy Process Education Engagement Consultation
An Overview of the Geneforum Process Slide  The Genomics Policy Process QOL Community Justice Geneforum Dialogue Genetic Science Genetic Policy Development Democratic Process Public Knowledge Policy Outcome Public Obtains Facts Obtains Values Transmits Facts Transmits Values Provides Facts
Strategies for Promoting Dialogue and Building Community ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
Secretary's Advisory Committee on Genetics, Health, and Society (SACGHS)  Request for public comment on draft  report: Realizing the Promise of  Pharmacogenomics: Opportunities  and Challenges  Slide  The Genomics Policy Process
SACGHS Comment Solicitation  ,[object Object],[object Object],[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
The Geneforum Fact-Value Separation Process ,[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
Partnership Model for Genomic Policy ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
Oregon’s Committee on Genetic Privacy and Research ,[object Object],[object Object],Slide  The Genomics Policy Process
The Need for Policy ,[object Object],[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
New Era of Genomic Science ,[object Object],[object Object],[object Object],Slide  The Genomics Policy Process
The Translation of Genomics Into Public Health Policy:  Core Functions ,[object Object],[object Object],Slide  The Genomics Policy Process
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The Genomics Policy Process w/Notes

  • 1. The Genomics Policy Process: Forming Partnerships Between Citizens, Experts, and Policy Makers G. Fowler PhD K.C. Allison PhD M. Garland DScRel University of Minnesota Oregon Health and Science University Translating “ELSI”: Ethical, Legal and Social Implications of Genomics, Case Western Reserve University, May 3, 2008
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  • 4. An Overview of the Geneforum Process Slide The Genomics Policy Process QOL Community Justice Geneforum Dialogue Genetic Science Genetic Policy Development Democratic Process Public Knowledge Policy Outcome Public Obtains Facts Obtains Values Transmits Facts Transmits Values Provides Facts
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  • 6. Secretary's Advisory Committee on Genetics, Health, and Society (SACGHS) Request for public comment on draft report: Realizing the Promise of Pharmacogenomics: Opportunities and Challenges Slide The Genomics Policy Process
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