Presentation by Peter Murray for PHR workshop at NI 2009, Helsinki, Finland

1. Web 2.0, Health 2.0
- and what they might mean for PHRs
Peter J. Murray

2. What is Web 2.0?
Web 2.0, refers to a supposed second
generation of Internet-based services
emphasizing
on-line collaboration
AND
sharing among users
●
Ref: An introduction to Web 2.0 (The user's voice in the second generation
●
of the WWW) – Francisco Llaneras Estrada (Nov. 2006)
●
http://www.slideshare.net/kikollan/an-introduction-to-web-20-the-user-role/

3. What is Web 2.0?
• Improved communication & collaboration between
people via social-networking technologies
• Improved communication between separate
software applications (“mash-ups”) via open Web
standards for describing and accessing data, and
• Improved Web interfaces mimicking real-time
responsiveness of desktop applications within a
browser window.
Ref: Social technologies (aka Web 2.0) for ehealth
-Gunther Eysenbach (after Barreto) (March 2008),
www.webcitation.org/5W9GcYyWN

4. … or we can view Web 2.0 as ...
web-applications that get more useful the more
people use them ...
- and apply this to health
(Chris Paton – personal email discussion)

5. http://simplecomplexity.net/natural-language/what-is-web-30/

6. SINI2008 - 18th Annual Summer Institute in Nursing Informatics

7. Web 2.0 claims:
Applications will provide benefit to the international health,
biomedical and nursing informatics communities
- will allow users to interact with a dynamic, multimedia, and
engaging Web platform
- will foster interaction, communities, etc.
- will change the way we work
- will change healthcare, medicine, nursing, informatics

8. Web 2.0 claims:
But ....... are any of these true? do we have any evidence?
How much do health and/or informatics professionals actually use
them?
Plenty of consumers of content – not so many producers or much
real interaction
The 1% rule - if you get a group of 100 people online then one will
create content, 10 will "interact" with it (commenting or offering
improvements) and the other 89 will just view it.

9. What is Health 2.0?
Shreeve:
Health 2.0 is “all about Patient Empowered (not the misnomer
'Consumer Directed') Healthcare
- whereby patients have the information they need to be able to
make rational healthcare decisions”,
- and interoperability of health information will be a crucial
determinant of success or failure of the movement.
O'Grady:
...the most important aspect of using Web 2.0 in health care is the
use of social software, which will promote collaboration between
patients, their caregivers, and health professionals.

11. Health (or Medicine) 2.0 applications, services and
tools are Web-based services for health care consumers,
caregivers, patients, health professionals, and biomedical
researchers, that use Web 2.0 technologies as well as
semantic web and virtual reality tools, to enable and
facilitate specifically social networking, participation,
apomediation, collaboration, and openness within and
between these user groups.
Eysenbach - http://www.jmir.org/2008/3/e22/

14. How is Health 2.0 changing things?

15. How is Health 2.0 changing things?

18. Views from an opportunistic email discussion
1. what will be the main changes to, or implications for,
healthcare as a result of Web 2.0 in the next 5-10 years?
2. what will be the main implications of these changes for
the ways in which health professionals work?
(discussion was mainly about medics – but ? same issues apply
for nurses – what do they imply for informatics?)

19. Healthcare will be more person-centred, and more
personalised
Rise of e-patients will drive change – not the technology
etc.
E-patients' use of everyday technology (smartphones
etc) will demand their use on healthcare
mHealth will be the main channel of interaction
We'll stop thinking of healthcare delivery over the web as
divisible from healthcare delivery overall.

20. Patients are the only node connecting all aspects
of the system.
As a result, human-to-human, participatory
healthcare will be the 'name of the game' for
Health 2.0 and beyond.
Thanks for contributions:
Bertalan Meskó, Jennifer McCabe Gorman,
Francisco J. Grajales III, Luis Luque, Chris Paton,
Margaret Hansen, Scott Erdley, Maarten den Braber