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Page 17 janet segall
1. A Risk Worth Taking for Change by Janet Segall
Sometimes, when the negative things in your life outweigh the positive, it is often hard to imagine that any-
thing could be good. But it is not uncommon for good, positive things and personal triumphs to come out of
tragedy and uncertainty. I moved around a lot, looking for answers—in and out of relationships that never
worked, sometimes predicated with violence and emotional pain, not realizing until later that I was always
looking for someone to love me and lift me up. I was looking for answers outside myself. I was looking for
others to fix me.
After suffering from agoraphobia for several years—getting better, getting worse again—I made a choice and
took a risk. I left my house and my safety and drove across the country. I was not alone, but what was
important was walking out the door. It was a totally successful experience. I knew that I would be better from that time on.
Even after several years of being diagnosed with a life-threatening, very painful illness and being on very serious drug therapy, I de-
cided to take another risk and I started a foundation for my disease almost single-handedly. I never believed I would be that person.
Sometimes I still don’t believe that I’m that person. But I went from being house-bound to flying by myself around the United States
and across the Atlantic. When the foundation and I parted ways, I decided I still needed to work. It took a lot of time and many rejec-
tions, but then the Wellness & Recovery Center took a chance on me.
My life has been a rollercoaster of emotions. But I’ve learned a lot of lessons through my life and travels. I learned that it is so impor-
tant to listen. I learned that not just saying the words, but working toward positive change is a risk worth taking. You may not always
succeed, but you can say you tried your best and know that sometimes that’s enough. I learned that you can’t control another person.
I learned that words and deeds can hurt, but how you process and react to words and deeds is in your control. I learned that forgiving
yourself and others for just being a human being that makes mistakes and owning it can make you free. Before he died, my partner
used to say that we’re all just passing through so what does it matter. But I say, let’s make a dent in the timeline of life and become
the best people we can be. I believe we are all connected and how we live our lives and help others lives in the universe forever.
Author’s Bio
Janet is a graduate of the State University of New York system. She is the Founder, and was the Director of the Interna-
tional Pemphigus Pemphigoid Foundation, an organization dedicated to helping people living with the rare, autoimmune
diseases pemphigus and pemphigoid. She is also a certified Health Coach, and Hypnotherapist. She is very grateful to
be working at the Consumers' Self Help Wellness & Recover Center North.