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Medicine & Society II

Collecting & Managing
         Data
         Dr Azmi Mohd Tamil
      Dept. of Community Health,
         Faculty of Medicine,
                 UKM

  notes partially based on a lecture by
  Assc. Prof. Dr. Roslina Abd. Manap
Sampling

   Choosing a relatively small subset such
    that it can adequately represent the
    entire spectrum of population subjects
   Aim to extrapolate results back to a
    substantially larger population
   to save time, money, efficiency and
    safety.
SAMPLING

PROBABILITY               NON-
  SAMPLING
 equal chance of being
                           PROBABILITY
  selected                 SAMPLING
  •   simple random,       • convenience,
  •   systematic,
  •
                           • quota,
      stratified,
  •   multistage,          • purposive.
  •   cluster
SAMPLING &
                   TYPE OF POPULATION

   Selection representative of population
   ? sampling methods
      - simple random sampling (may not be
        practical in national study)
      - stratified random sampling
        (in heterogenous pop./stratum)
      - multistage sampling
       (national-state-district-sub district-village)
      - cluster sampling
Data Collection

   Data collection begins after
    deciding on design of study and
    the sampling strategy
Data Collection

   Sample subjects are identified and the
    required individual information is
    obtained in an item-wise and structured
    manner.
Data Collection

   Information is collected on certain
    characteristics, attributes and the
    qualities of interest from the samples
   These data may be quantitative or
    qualitative in nature.
Types of Variables

   Qualitative - categorised based on
    characteristics which differentiate it e.g.
    ethnic - Malay, Chinese, Indian etc.
    Qualitative variables can be classed into
    nominal & ordinal.
   Quantitative - numerical values collected
    by observation, by measurement or by
    counting. Can either be discrete or
    continuous.
Variable
                             Classification
                           Quantitative
Qualitative
                            discrete - from
 Nominal - no rank
                             counting ie no of
  nor specific order
                             children/wives
  e.g. ethnic; M, C, I &
                            continuous - can be in
  O.
 Ordinal - has
                             fractions, from
                             measurement e.g.
  rank/order between
                             blood pressure,
  categories but the
                             haemoglobin level.
  difference cannot be
  measured.
Types of Data


Table 1.1 Exam ples of types of data
                               Quantitative
Continuous                           Discrete
Blood pressure, height, w eight, age Number of children
                                    Number of attacks of asthma per w eek
                               Categorical
Ordinal (Ordered categories)        Nom inal (Unordered categories)
Grade of breast cancer              Sex (male/female)
Better, same, w orse                Alive or dead
Disagree, neutral, agree            Blood group O, A, B, AB

http://www.bmj.com/collections/statsbk/
SO WHAT!


So what’s the big deal about data
             types?
Statistical Tests - Qualitative
Type of Data Dictates Type of
     Analysis - Quantitative
Data Collection Techniques


   Use available information
   Observation
   Interviews
   Questionnaires
   Focus group discussion
Using Available
                                Information

   Existing Records
    •   Hospital records - case notes
    •   National registry of births & deaths
    •   Census data
    •   Data from other surveys
Disadvantages of using
                 existing records

   Incomplete records
   Cause of death may not be verified by a
    physician/MD
   Missing vital information
   Difficult to decipher
   May not be representative of the target
    group - only severe cases go to hosital
Disadvantages of using
                 existing records

   Delayed publication - obsolete data
   Different method of data recording
    between institutions, states, countries,
    making comparison & pooling of data
    incompatible
   Comparisons across time difficult due to
    difference in classification, diagnostic
    tools etc
Advantages of using
                    existing records

   Cheap
   convenient
   in some situations, it is the only data
    source i.e. accidents & suicides
Observation

   Involves systematically selecting,
    watching & recording behaviour and
    characteristics of living beings, objects
    or phenomena
   Done using defined scales
   Participant observation e.g. PEF and
    asthma symptom diary
   Non-participant observation e.g.
    cholesterol levels
Interviews

   Oral questioning of respondents either
    individually or as a group.
   Can be done loosely or highly structured
    using a questionnaire
Administering Written
                  Questionnaires

   Self-administered
   via mail
   by gathering them in one place and
    getting them to fill it up
   hand-delivering and collecting them later
   Large non-response can distort results
Questionnaires

   Influenced by education & attitude of
    respondent esp. for self-administered
   Interviewers need to be trained
   open ended vs close ended
   the need for pre-testing or pilot study
Issues at stake

   Content validity
   Structural validity
   Criterion validity
Content Validity
Construct Validity
Criterion Validity
Focus group discussion

   Selecting relevant parties to the
    research questions at hand and
    discussing with them in focus groups
   examples in your own field of interest?
Source of biases during
                 data collection

   Defective instruments
    • close ended questions with poor choice of
      options
    • open ended questions with no guidelines
    • vaguely-phrased questions
    • illogical sequences of questions
    • weighing scales that are not standardised
Source of biases during
                 data collection

   Observer bias
    • reporting of radiographs
   Effect of interview on respondent
   Attitude of respondent
    • cough may be ignored by a smoker
    • stigmatised diseases may not be disclosed
Plan for data collection

   Permission to proceed
   Logistics - who will collect what, when
    and with what resources
   Quality control
Quality of Data

   How well do the variables designed for
    the study represent the phenomena of
    interest?
   E.g. How well does FBS represent
    control of diabetes
Accuracy & Reliability

   Accuracy - the degree which a
    measurement actually measures the
    measures the characteristic it is
    supposed to measure
   Reliability is the consistency of replicate
    measures
Reliability
Reliability & Accuracy
Accuracy & Reliability

   Both are reduced by random error and
    systematic error from the same sources
    of variability;
    • the data collectors
    • the respondents
    • the instrument
Strategies to enhance
              accuracy & reliability

   Standardise procedures and
    measurement methods
   training & certifying the data collectors
   Repetition
   Blinding
Data handling

   Check the data gathered
   storing of data - backup, backup &
    backup some more!
Data Management

   Data processing
    •   Categorising
    •   Coding
    •   Data entry
    •   Verification/validation
Labels & Coding
Variable Labels

•   Unique
•   Not more than 8 characters
•   Consists of letters and numbers only
•   Begins with a letter instead of a number.
•   Try to give a label that means something
Coding

• Determine the coding to be used for each
  variable.
• For qualitative variables, it is recommended
  to use numerical-codes to represent the
  groups; eg. 1 = male and 2 = female, this
  will also simplify the data entry process.
  The “danger” of using string/text is that a
  small “male” is different from a big “Male”,
• see Table I.
Coding for Dichotomus
                       Variable

   It is advisable to use
    1=present, 0=absent.
   Or 1=higher risk, 0=lower risk
Coding for Missing Value

   @ blank responses
   Usually required only for qualitative
    variables
   Conventionally coded using a value that
    is not part of a valid response. For
    example;
    • Gender; M=1, F=2, MV=9
    • Ethnic in East Malaysia; Codes 1 till 14 for
      races, MV=99
Advantage of Coding

   Reduce time for “data entry”.
   Make analysis possible e.g. SPSS wont
    analyse string responses of more than 8
    characters
   Need a proper coding manual
   How to define variables and coding for
    application such as SPSS and Excel are
    available at the dept website
    http://161.142.92.104/spss/
    http://161.142.92.104/excel/
Data Entry
“Data Entry”
Data Entry

   Independent operator verification
   Random check of data entered against
    the original
   <5% error by convention
   Some checks are built-in by the
    software i.e. EpiInfo
Thank you!




Gracias!

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Data collection & management

  • 1. Medicine & Society II Collecting & Managing Data Dr Azmi Mohd Tamil Dept. of Community Health, Faculty of Medicine, UKM notes partially based on a lecture by Assc. Prof. Dr. Roslina Abd. Manap
  • 2. Sampling  Choosing a relatively small subset such that it can adequately represent the entire spectrum of population subjects  Aim to extrapolate results back to a substantially larger population  to save time, money, efficiency and safety.
  • 3. SAMPLING PROBABILITY NON- SAMPLING  equal chance of being PROBABILITY selected SAMPLING • simple random, • convenience, • systematic, • • quota, stratified, • multistage, • purposive. • cluster
  • 4. SAMPLING & TYPE OF POPULATION  Selection representative of population  ? sampling methods - simple random sampling (may not be practical in national study) - stratified random sampling (in heterogenous pop./stratum) - multistage sampling (national-state-district-sub district-village) - cluster sampling
  • 5. Data Collection  Data collection begins after deciding on design of study and the sampling strategy
  • 6. Data Collection  Sample subjects are identified and the required individual information is obtained in an item-wise and structured manner.
  • 7. Data Collection  Information is collected on certain characteristics, attributes and the qualities of interest from the samples  These data may be quantitative or qualitative in nature.
  • 8. Types of Variables  Qualitative - categorised based on characteristics which differentiate it e.g. ethnic - Malay, Chinese, Indian etc. Qualitative variables can be classed into nominal & ordinal.  Quantitative - numerical values collected by observation, by measurement or by counting. Can either be discrete or continuous.
  • 9. Variable Classification Quantitative Qualitative  discrete - from  Nominal - no rank counting ie no of nor specific order children/wives e.g. ethnic; M, C, I &  continuous - can be in O.  Ordinal - has fractions, from measurement e.g. rank/order between blood pressure, categories but the haemoglobin level. difference cannot be measured.
  • 10. Types of Data Table 1.1 Exam ples of types of data Quantitative Continuous Discrete Blood pressure, height, w eight, age Number of children Number of attacks of asthma per w eek Categorical Ordinal (Ordered categories) Nom inal (Unordered categories) Grade of breast cancer Sex (male/female) Better, same, w orse Alive or dead Disagree, neutral, agree Blood group O, A, B, AB http://www.bmj.com/collections/statsbk/
  • 11. SO WHAT! So what’s the big deal about data types?
  • 12. Statistical Tests - Qualitative
  • 13. Type of Data Dictates Type of Analysis - Quantitative
  • 14. Data Collection Techniques  Use available information  Observation  Interviews  Questionnaires  Focus group discussion
  • 15. Using Available Information  Existing Records • Hospital records - case notes • National registry of births & deaths • Census data • Data from other surveys
  • 16. Disadvantages of using existing records  Incomplete records  Cause of death may not be verified by a physician/MD  Missing vital information  Difficult to decipher  May not be representative of the target group - only severe cases go to hosital
  • 17. Disadvantages of using existing records  Delayed publication - obsolete data  Different method of data recording between institutions, states, countries, making comparison & pooling of data incompatible  Comparisons across time difficult due to difference in classification, diagnostic tools etc
  • 18. Advantages of using existing records  Cheap  convenient  in some situations, it is the only data source i.e. accidents & suicides
  • 19. Observation  Involves systematically selecting, watching & recording behaviour and characteristics of living beings, objects or phenomena  Done using defined scales  Participant observation e.g. PEF and asthma symptom diary  Non-participant observation e.g. cholesterol levels
  • 20. Interviews  Oral questioning of respondents either individually or as a group.  Can be done loosely or highly structured using a questionnaire
  • 21. Administering Written Questionnaires  Self-administered  via mail  by gathering them in one place and getting them to fill it up  hand-delivering and collecting them later  Large non-response can distort results
  • 22. Questionnaires  Influenced by education & attitude of respondent esp. for self-administered  Interviewers need to be trained  open ended vs close ended  the need for pre-testing or pilot study
  • 23. Issues at stake  Content validity  Structural validity  Criterion validity
  • 27. Focus group discussion  Selecting relevant parties to the research questions at hand and discussing with them in focus groups  examples in your own field of interest?
  • 28. Source of biases during data collection  Defective instruments • close ended questions with poor choice of options • open ended questions with no guidelines • vaguely-phrased questions • illogical sequences of questions • weighing scales that are not standardised
  • 29. Source of biases during data collection  Observer bias • reporting of radiographs  Effect of interview on respondent  Attitude of respondent • cough may be ignored by a smoker • stigmatised diseases may not be disclosed
  • 30. Plan for data collection  Permission to proceed  Logistics - who will collect what, when and with what resources  Quality control
  • 31. Quality of Data  How well do the variables designed for the study represent the phenomena of interest?  E.g. How well does FBS represent control of diabetes
  • 32.
  • 33. Accuracy & Reliability  Accuracy - the degree which a measurement actually measures the measures the characteristic it is supposed to measure  Reliability is the consistency of replicate measures
  • 36. Accuracy & Reliability  Both are reduced by random error and systematic error from the same sources of variability; • the data collectors • the respondents • the instrument
  • 37. Strategies to enhance accuracy & reliability  Standardise procedures and measurement methods  training & certifying the data collectors  Repetition  Blinding
  • 38. Data handling  Check the data gathered  storing of data - backup, backup & backup some more!
  • 39. Data Management  Data processing • Categorising • Coding • Data entry • Verification/validation
  • 41. Variable Labels • Unique • Not more than 8 characters • Consists of letters and numbers only • Begins with a letter instead of a number. • Try to give a label that means something
  • 42. Coding • Determine the coding to be used for each variable. • For qualitative variables, it is recommended to use numerical-codes to represent the groups; eg. 1 = male and 2 = female, this will also simplify the data entry process. The “danger” of using string/text is that a small “male” is different from a big “Male”, • see Table I.
  • 43.
  • 44. Coding for Dichotomus Variable  It is advisable to use 1=present, 0=absent.  Or 1=higher risk, 0=lower risk
  • 45. Coding for Missing Value  @ blank responses  Usually required only for qualitative variables  Conventionally coded using a value that is not part of a valid response. For example; • Gender; M=1, F=2, MV=9 • Ethnic in East Malaysia; Codes 1 till 14 for races, MV=99
  • 46. Advantage of Coding  Reduce time for “data entry”.  Make analysis possible e.g. SPSS wont analyse string responses of more than 8 characters  Need a proper coding manual  How to define variables and coding for application such as SPSS and Excel are available at the dept website http://161.142.92.104/spss/ http://161.142.92.104/excel/
  • 49. Data Entry  Independent operator verification  Random check of data entered against the original  <5% error by convention  Some checks are built-in by the software i.e. EpiInfo