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#hpm
Healthcare Hashtag Twitter Transcript
   From:        Wed Apr 20 17:55:00 PDT 2011
   To:          Wed Apr 20 19:05:00 PDT 2011
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Learn more about #hpm at The Healthcare Hashtag Project




PracticalWisdom                It's almost that time. 4minute count down to tired fingers, wired brain, and collective
                               Wisdom. I can't wait. #HPM
                               Wed Apr 20 17:56:39 PDT 2011




PracticalWisdom                We want others 2 c us competent, not just nice.RT@doclake Powervs.Warmth
                               applies 2 way #hpm prac. interacts @bedsidehttp://is.gd/OI5cqH #HPM
                               Wed Apr 20 18:00:31 PDT 2011




equijada                       Hi everyone. For the next 6 min, I'll be in #hpm tweetchat. Come join the discussion.
                               #hpm
                               Wed Apr 20 18:01:02 PDT 2011




equijada                       @PracticalWisdom Hi Lisa, good to see you here #hpm
                               Wed Apr 20 18:01:25 PDT 2011




PracticalWisdom                Interested Pt Educ.RT@DianeEMeier:RT @ctsinclairNews/Research UPDATES: U.S.
                               FDA Releases Long-Awaited Opioid-REMS http://hpm.md/g2AncC #HPM
                               Wed Apr 20 18:01:26 PDT 2011




RossJeanette                   hi @equijada only 6 minutes? #hpm
                               Wed Apr 20 18:01:54 PDT 2011




KathyKastner                   What about the other 54 minutes :)RT @equijada: Hi everyone. For the next 6 min, I'll
                               be in #hpm tweetchat. Come join the discussion. #hpm
                               Wed Apr 20 18:02:02 PDT 2011




PracticalWisdom                My Pleasure. Thanks for being our Host. RT @equijada: @PracticalWisdom Hi Lisa,
                               good to see you here #HPM
                               Wed Apr 20 18:02:28 PDT 2011




equijada                       @KathyKastner ha, i mean for the next 60 min! #hpm
                               Wed Apr 20 18:02:46 PDT 2011
PracticalWisdom   @KathyKastner @equijada 54 Fun with our Friends. Brain Candy for All #HPM
                  Wed Apr 20 18:03:01 PDT 2011




KathyKastner      Wheewh. worried for a mo RT @equijada: @KathyKastner ha, i mean for the next 60
                  min! #hpm
                  Wed Apr 20 18:03:16 PDT 2011




equijada          @RossJeanette Hi Jeanette! 60 min...thinking faster than I type. Welcome. Good to
                  see you here #hpm
                  Wed Apr 20 18:03:26 PDT 2011




FMDGirl           Hi everyone- listening in. Kari- RN/pt advocate #HPM
                  Wed Apr 20 18:04:10 PDT 2011




KathyKastner      H Lisa ! RT @PracticalWisdom:@equijada 54 Fun with our Friends. Brain Candy for
                  All #HPM
                  Wed Apr 20 18:04:20 PDT 2011




equijada          @FMDGirl Hi Kari, welcome. #hpm
                  Wed Apr 20 18:04:54 PDT 2011




PracticalWisdom   @equijada: Hoping our Man from Down Under will join us tonight. The Rascal
                  @Hughstephens. #HPM
                  Wed Apr 20 18:05:14 PDT 2011




revdoc            Pam Harris MD with Kansas City Hospice; also an ordained minister #hpm
                  Wed Apr 20 18:05:32 PDT 2011




SheyontheBay      Hello all, glad to see you #hpm
                  Wed Apr 20 18:06:31 PDT 2011




equijada          @PracticalWisdom will start with t1 in a min or so. Join us @hughstephens.
                  Welcome Pam. Good to see you #hpm
                  Wed Apr 20 18:06:35 PDT 2011




revdoc            Good to tweet with y'all #hpm
                  Wed Apr 20 18:07:09 PDT 2011




equijada          @SheyontheBay hi, good to see you. long time! #hpm
                  Wed Apr 20 18:07:12 PDT 2011




PracticalWisdom   @KathyKastner I'm always glad to see you. #HPM
                  Wed Apr 20 18:07:34 PDT 2011




teaminspire       Hi everyone--listening in, looking to learn--John Novack, Inspire (online patient
                  support communities) #HPM
                  Wed Apr 20 18:07:45 PDT 2011
hughstephens   @PracticalWisdom @equijada still looking for cat :( might not make #hpm
               Wed Apr 20 18:08:01 PDT 2011




equijada       t1: It's 420! What is the role of marijuana in patients with life threatening illness?
               #happy420 #hpm
               Wed Apr 20 18:08:02 PDT 2011




equijada       For those not familiar with 420 The True Story Of How April 20 Became 'Weed Day'
               http://huff.to/hmP832 #hpm
               Wed Apr 20 18:08:41 PDT 2011




equijada       420 (cannabis culture) - Wikipedia, the free encyclopedia http://bit.ly/f5aOqV #hpm
               Wed Apr 20 18:08:49 PDT 2011




SheyontheBay   @equijada @SheyontheBay yes, sorry about that - lots going on in life!! ;) #hpm
               Wed Apr 20 18:08:57 PDT 2011




equijada       @hughstephens welcome! #hpm
               Wed Apr 20 18:09:06 PDT 2011




revdoc         T1--I am actually not very impressed with Marinol for sx control #hpm
               Wed Apr 20 18:09:12 PDT 2011




FMDGirl        t1- question dear to my heart- close friend passed away from Fredrich ataxia- not
               legal, but only think that helped #HPM
               Wed Apr 20 18:09:41 PDT 2011




KathyKastner   Clearly I need glasses. I put an 'e' in the middle of sx RT @revdoc: T1--I am actually
               not very impressed with Marinol for sx control #hpm
               Wed Apr 20 18:10:19 PDT 2011




revdoc         Although Marinol does help for the wasting syndrome associated with AIDS #hpm
               Wed Apr 20 18:10:21 PDT 2011




SheyontheBay   Dating myself: i remember teaching chemo pts how to smoke a joint, circa 1980!!!
               #hpm
               Wed Apr 20 18:10:23 PDT 2011




equijada       @FMDGirl if you don't mind, can you expand on the experience? what did it help?
               #hpm
               Wed Apr 20 18:10:34 PDT 2011




equijada       I think that data on marinol and marijuana are actually different. Not sure. #hpm
               Wed Apr 20 18:11:27 PDT 2011




revdoc         Can't speak to the effect of Marinol on sex... #hpm
               Wed Apr 20 18:11:43 PDT 2011
equijada       @SheyontheBay was it helpful? #hpm
               Wed Apr 20 18:11:46 PDT 2011




DianeEMeier    RT @doclake: Power poses vs. Warmth poses-good research that applies to the way
               a #hpm practitioner interacts @ the bedside http://is.gd ...
               Wed Apr 20 18:11:49 PDT 2011




revdoc         In Kansas, marijuana is not legal, so we are stuck with Marinol #hpm
               Wed Apr 20 18:12:13 PDT 2011




equijada       Cannabis use in palliative care http://bit.ly/huBHGx A nice review #hpm
               Wed Apr 20 18:12:56 PDT 2011




FMDGirl        Yes, fredrich ataxia causes spasms- traditional meds did not help- up front with docs
               about using it, pts should be able use medically #HPM
               Wed Apr 20 18:13:53 PDT 2011




SheyontheBay   @equijada@SheyontheBayIf they could get past the 'criminality' it helped, esp w/
               nausea.po tabs seemed to get neutralized by gastric jc #hpm
               Wed Apr 20 18:14:17 PDT 2011




equijada       @FMDGirl I hear that a lot from patients taking it. #hpm
               Wed Apr 20 18:14:40 PDT 2011




SheyontheBay   Wasnt legal in Florida either... We ignored the smell of pot wafting down the corridor
               #hpm
               Wed Apr 20 18:15:13 PDT 2011




DianeEMeier    RT @doclake: The New Old Age: A Mother’s Nighttime Rage http://is.gd/ciHsMe
               delirium #hpm
               Wed Apr 20 18:15:24 PDT 2011




equijada       It's legal in CA (I'm in CA). There are so many dispensaries. Many times the pts using
               don't seem legit. Hard to balance. #hpm
               Wed Apr 20 18:16:14 PDT 2011




RossJeanette   thanks for the information on 420. Since marijuana is ilegal in Texas I have no
               experience w/ this. #hpm
               Wed Apr 20 18:17:15 PDT 2011




FMDGirl        Plus- it increases appetite, Dave- my friend wrote a book:http://amzn.to/hYJGVk #HPM
               Wed Apr 20 18:17:28 PDT 2011




drpippa        Only anecdotal evidence Has been helpful for folks. Hard to balance legit use vs illicit
               use. Would prob not feel comfortable rxing #Hpm
               Wed Apr 20 18:17:36 PDT 2011




revdoc         SAME ISSUE WITH OTHER PAIN MEDS RT @equijada: Its legal in CA (Im in CA).
               Many times the pts using dont seem legit. Hard to balance. #hpm
               Wed Apr 20 18:17:58 PDT 2011
drpippa           @equijada Nice choice of topic for the day! #Hpm
                  Wed Apr 20 18:18:03 PDT 2011




equijada          I've let patients use it. I don't have a problem with it. I do get uncomfortable when they
                  are using pot and oxyfast gets lost. #hpm
                  Wed Apr 20 18:18:32 PDT 2011




FMDGirl           @equijada How is it different from managing any other chronic patient that is on pain
                  meds? #HPM
                  Wed Apr 20 18:18:40 PDT 2011




equijada          @FMDGirl thanks for the link. I'm going to check it out. #hpm
                  Wed Apr 20 18:19:02 PDT 2011




SheyontheBay      @equijada Have no idea how it was used or abused in the home. Hospital pts had to
                  provide their own -> no quality control #hpm
                  Wed Apr 20 18:19:04 PDT 2011




revdoc            FDA proposing REMS on ALL opiates because of issues of abuse or diversion
                  http://hpm.md/g2AncC #hpm #hpm
                  Wed Apr 20 18:19:07 PDT 2011




PracticalWisdom   Sorry had internet problems Kerri great to see you. #HPM
                  Wed Apr 20 18:19:22 PDT 2011




equijada          @FMDGirl it's not. I have to risk assess just like opioids. #hpm
                  Wed Apr 20 18:19:35 PDT 2011




BuddhishMD        @NYTimeskrugman Language is so important - it sometimes feels like the world of
                  money and business has completely co-opted our lives. #hpm
                  Wed Apr 20 18:20:13 PDT 2011




equijada          @FMDGirl I think the main difference is basically legal but in terms of prescribing -
                  same as opoioids #hpm
                  Wed Apr 20 18:20:27 PDT 2011




equijada          @drpippa ha! thanks. #hpm
                  Wed Apr 20 18:20:49 PDT 2011




FMDGirl           @equijada pt on ms for cancer- it made him confused and he cut his feeding tube in
                  half without realizing it- thought it was a string #HPM
                  Wed Apr 20 18:20:54 PDT 2011




PracticalWisdom   RT @drpippa: Only anecdotal evid. Has been helpful 4 folks. Hard 2 balance legi use
                  vsillicit use.Would prob not feel comfortable rxing #HPM
                  Wed Apr 20 18:21:10 PDT 2011




PracticalWisdom   RT @FMDGirl: @equijadapton ms 4 cancer- made him confused& he cut his feeding
                  tube in 1/2 without realizing it- thought it was a string #HPM
Wed Apr 20 18:21:48 PDT 2011



equijada          @PracticalWisdom @drpippa @AAHPM doesn't have an official stand on marijuana.
                  Interesting discussion in Vancouver #hpm
                  Wed Apr 20 18:22:02 PDT 2011




PracticalWisdom   Rascal Topic for sure. I knew this would be a good one. RT @drpippa: @equijada
                  Nice choice of topic for the day! #HPM
                  Wed Apr 20 18:22:17 PDT 2011




FMDGirl           easy to balance legal use, RX from an MD- get from a hospital pharmacy #HPM
                  Wed Apr 20 18:22:27 PDT 2011




drpippa           Still disappointed i missed it! RT @equijada: @AAHPM doesnt have an official stand
                  on marijuana. Interesting discussion in Vancouver #Hpm
                  Wed Apr 20 18:23:09 PDT 2011




equijada          RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital
                  pharmacy #hpm
                  Wed Apr 20 18:23:20 PDT 2011




drpippa           RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital
                  pharmacy #Hpm
                  Wed Apr 20 18:23:44 PDT 2011




equijada          Moving on to t2 in a min or so #hpm
                  Wed Apr 20 18:23:52 PDT 2011




PracticalWisdom   @equijada @drpippa @AAHPM T1: When I taught Pharmacology (Basic) 100 years
                  ago Marijuana was complicated Dep/Stim Sometimes Hallacu? #HPM
                  Wed Apr 20 18:24:01 PDT 2011




revdoc            RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital
                  pharmacy [PEOPLE CAN LIE ABOUT SXS USING LEGAL SOURCES] #hpm
                  Wed Apr 20 18:24:10 PDT 2011




hollyby           Hi all! I don't rx it. Still a conflict btwn state & federal law. Not worth my DEA license.
                  #hpm
                  Wed Apr 20 18:24:19 PDT 2011




RossJeanette      @equijada was the MJ discussion in Vancouver a specific session? I bought the
                  Audio recording #hpm
                  Wed Apr 20 18:24:25 PDT 2011




PracticalWisdom   @PracticalWisdom: Is this still true? complicated? #HPM
                  Wed Apr 20 18:24:52 PDT 2011




equijada          RT @hollyby: Hi all! I dont rx it. Still a conflict btwn state & federal law. Not worth my
                  DEA license. #hpm
                  Wed Apr 20 18:24:53 PDT 2011
FMDGirl           I do have a stand I do not use it- I would like to know it is available if I have a terrible
                  stroke, should be MY choice not my states #HPM
                  Wed Apr 20 18:24:57 PDT 2011



hollyby           Lurking tonight, but wanted to say hello! Hugs to all! #hpm
                  Wed Apr 20 18:25:07 PDT 2011




mpf2011           @ctsinclair Have fun. #HPM
                  Wed Apr 20 18:25:08 PDT 2011




PracticalWisdom   Who wants another Hassle!RT @hollyby: Hi all! I dont rx it. Still a conflict btwn state &
                  federal law. Not worth my DEA license. #HPM
                  Wed Apr 20 18:25:27 PDT 2011




ctsinclair        RT @drpippa: Only anecdotal evidence Has been helpful for folks. Hard to balance
                  legit use vs illicit use. Would prob not feel comfortable rxing #Hpm
                  Wed Apr 20 18:25:28 PDT 2011




equijada          @RossJeanette yes, I forget the speakers name. Husband/wife team. Totally
                  supported MJ but data equivocal #hpm
                  Wed Apr 20 18:25:31 PDT 2011




KathyKastner      RT @FMDGirl: I do have a stand I do not use it- I would like to know it is available if I
                  have a terrible stroke, should be MY choice not my states #HPM
                  Wed Apr 20 18:25:43 PDT 2011




mpf2011           RT @hospice_doctor: Aggressive treatment at the end of life, but where is the
                  patient? New blog post: http://hospicedoctor.blogspot.com #palliative #hpm
                  Wed Apr 20 18:25:46 PDT 2011




revdoc            @ctsinclair Thought you were at concert? #hpm
                  Wed Apr 20 18:26:00 PDT 2011




FMDGirl           @revdoc @FMDGirl yes-people lie all the time to get narcs- but that should not
                  prevent people who need pain relief from getting it #HPM
                  Wed Apr 20 18:26:46 PDT 2011




PracticalWisdom   PT Rights!RT @FMDGirl: I do have a stand I do not use it-I would like know it's ava.if I
                  a stroke, should be MY choice not my states #HPM
                  Wed Apr 20 18:26:47 PDT 2011




PracticalWisdom   In the Lobby, Conversation too Good to be left out!RT @revdoc: @ctsinclair Thought
                  you were at concert? #HPM
                  Wed Apr 20 18:27:23 PDT 2011




KathyKastner      RT @FMDGirl: @revdoc @FMDGirl yes-people lie all the time to get narcs- but that
                  should not prevent people who need pain relief from getting it #HPM
                  Wed Apr 20 18:27:32 PDT 2011




equijada          t2 via @mpf2011 and @practicalwisdom - how do you communicate and advocate
                  AD when what's said isn't what's done http://bit.ly/eU8wq5 #hpm
                  Wed Apr 20 18:27:42 PDT 2011
revdoc            @FMDGirl No argument; but having done chronic pain tx for years, it is not as simple
                  as it seems #hpm
                  Wed Apr 20 18:27:59 PDT 2011




FMDGirl           @PracticalWisdom @FMDGirl EXACTLY Lisa- PT RIGHTS! Your better at this
                  tweeting than me ;) #HPM
                  Wed Apr 20 18:28:00 PDT 2011




PracticalWisdom   Nope I'm older have more insurance.RT @FMDGirl:@PracticalWisdom@FMDGirl
                  EXACTLY Lisa-PT RIGHTS! Your better at this tweeting than me ;) #HPM
                  Wed Apr 20 18:28:52 PDT 2011




equijada          @mpf2011 @practicalwisdom In this story, pt was "DNR" but her goals and wishes
                  weren't exactly known #hpm
                  Wed Apr 20 18:28:53 PDT 2011




joshgriffin       RT @FMDGirl: @revdoc @FMDGirl yes-people lie all the time to get narcs- but that
                  should not prevent people who need pain relief from getting it #HPM
                  Wed Apr 20 18:29:02 PDT 2011




FMDGirl           @revdoc @FMDGirl yes, understand it is not easy, but either is living with pain- we
                  must go the extra mile to ensure pt safety #HPM
                  Wed Apr 20 18:29:06 PDT 2011




revdoc            @FMDGirl Unfortunately, my experience with legislation to promote "safety" is that it
                  makes my life a living hell! #hpm
                  Wed Apr 20 18:30:03 PDT 2011




equijada          RT @revdoc: @FMDGirl No argument; but having done chronic pain tx for years, it is
                  not as simple as it seems #hpm
                  Wed Apr 20 18:30:19 PDT 2011




drpippa           T2- I try to get family talking about the person, not the disease. Get an idea of what
                  they were like before. Helps inform #Hpm
                  Wed Apr 20 18:30:54 PDT 2011




PracticalWisdom   @equijada @mpf2011 @practicalwisdom: Frankly this ink unglued me. Why was her
                  DNR not respected? Where was Clergy/Ethics. #HPM
                  Wed Apr 20 18:30:57 PDT 2011




SheyontheBay      T2. In 140 characters?really? #hpm
                  Wed Apr 20 18:31:12 PDT 2011




revdoc            T2 Encourage pt conversation with families, not relying on a piece of paper. Make
                  sure your decision makers KNOW what you want #hpm
                  Wed Apr 20 18:31:18 PDT 2011




equijada          @SheyontheBay lol #hpm
                  Wed Apr 20 18:31:39 PDT 2011




FMDGirl           @revdoc @FMDGirl Agreed!!! That is why you have us nurses to do the paper work-
FMDGirl           @revdoc @FMDGirl Agreed!!! That is why you have us nurses to do the paper work-
                  he he :) #HPM
                  Wed Apr 20 18:31:51 PDT 2011




mpf2011           @equijada How was the pt DNR? She had a signed document?? Noted in Notes?
                  #hpm
                  Wed Apr 20 18:31:59 PDT 2011




PracticalWisdom   T2: If a Pt does everything legally & your desire is not respected What (fill in the Blank)
                  is going on. Seems like ego got in the way #HPM
                  Wed Apr 20 18:32:17 PDT 2011




SheyontheBay      @equijada ;D #hpm
                  Wed Apr 20 18:32:32 PDT 2011




revdoc            T2 Encourage pt conv w/ families, not relying on a piece of paper. Make sure your
                  decision makers KNOW what you want B4 they need info #hpm
                  Wed Apr 20 18:32:38 PDT 2011




equijada          @revdoc It seems when healthcare providers are told to #havethetalk it's interpreted
                  as #signthepaper #hpm
                  Wed Apr 20 18:32:41 PDT 2011




drpippa           RT @revdoc: Encourage pt conversation with families, not relying on a piece of paper.
                  Make sure decision makers KNOW what you want #Hpm
                  Wed Apr 20 18:32:46 PDT 2011




PracticalWisdom   THey Did RT @revdoc: T2 Encourage pt con. w/ families, not relying on a piece of
                  paper. Make sure your decision makers KNOW what Uwant #HPM
                  Wed Apr 20 18:32:56 PDT 2011




FMDGirl           t2 question- did not get the link to work- can some one fill me in? #HPM
                  Wed Apr 20 18:33:07 PDT 2011




revdoc            @FMDGirl @revdoc Unfortunately, I am the housecall doc, so when I show up I AM
                  the IDT! #hpm
                  Wed Apr 20 18:33:09 PDT 2011




equijada          @mpf2011 it was in her advance directive #hpm
                  Wed Apr 20 18:33:15 PDT 2011




PracticalWisdom   http://hospicedoctor.blogspot.com/RT @FMDGirl: t2 question- did not get the link to
                  work- can some one fill me in? #HPM
                  Wed Apr 20 18:33:45 PDT 2011




KathyKastner      I'd LOL but it's true RT @equijada: @revdoc It seems when healthcare providers are
                  told 2 #havethetalk interpreted as #signthepaper #hpm
                  Wed Apr 20 18:33:46 PDT 2011




SheyontheBay      Respectingchoices.org. Worksheet to #havethetalk #hpm
                  Wed Apr 20 18:33:48 PDT 2011
drpippa           So true. RT @equijada: @revdoc It seems when healthcare providers are told to
                  #havethetalk its interpreted as #signthepaper #Hpm
                  Wed Apr 20 18:34:29 PDT 2011




mpf2011           RT @equijada: @mpf2011 it was in her advance directive #hpm | Was the pt
                  conscious? Was family disputing it?
                  Wed Apr 20 18:34:42 PDT 2011




revdoc            T2 Not saying it doesn't happen, but I still think there are more problems not naming
                  DPOA than having AD ignored #hpm
                  Wed Apr 20 18:34:53 PDT 2011




RossJeanette      T2 bringing the person "in to the room" helps me understand better what makes life
                  meaningful and make care recommendations #hpm
                  Wed Apr 20 18:34:59 PDT 2011




equijada          @FMDGirl sorry, try this http://bit.ly/eU8wq5 #hpm
                  Wed Apr 20 18:35:10 PDT 2011




PracticalWisdom   Is this a Legal Doc? Could there be Legal Challenges. RT @equijada: @mpf2011 it
                  was in her advance directive #HPM
                  Wed Apr 20 18:35:19 PDT 2011




PracticalWisdom   RT @drpippa: So true.RT @equijada: @revdoc It seems when healthcare providers
                  are told to #havethetalk its interpreted as #signthepaper #HPM
                  Wed Apr 20 18:35:37 PDT 2011




equijada          @FMDGirl in short - an elderly lady was "DNR" but no mentions of goals, wishes.
                  Received aggressive care dialysis etc that didn't work #hpm
                  Wed Apr 20 18:35:55 PDT 2011




revdoc            As DPOA I did have to bully 4 providers into stopping aggressive care for my father
                  despite my telling them his QOL was unacceptable #hpm
                  Wed Apr 20 18:36:26 PDT 2011




equijada          @revdoc there is good data that DPOA undergo significant stress and don't follow
                  through thus AD. #hpm
                  Wed Apr 20 18:36:35 PDT 2011




equijada          @RossJeanette yes, agree. #hpm
                  Wed Apr 20 18:37:36 PDT 2011




PracticalWisdom   T2: Interesting Quote: How the health care system slants inexorably toward
                  aggressive intervention regardless of the context. #HPM
                  Wed Apr 20 18:37:39 PDT 2011




mpf2011           @PracticalWisdom Here is the blog link: http://hospicedoctor.blogspot.com/ #HPM
                  Wed Apr 20 18:37:40 PDT 2011




equijada          @revdoc tough. You were able to advocate. Most people aren't as strong. #hpm
                  Wed Apr 20 18:38:13 PDT 2011
PracticalWisdom   RT @revdoc:As DPOA I did have 2 bully 4 providers stopping aggressive care 4 my
                  father despite my telling them his QOL was unacceptable #HPM
                  Wed Apr 20 18:38:15 PDT 2011




revdoc            @PracticalWisdom Yes legal provisions for ADs in all states as well as for
                  recognizing ADs legally enacted from others #hpm
                  Wed Apr 20 18:38:23 PDT 2011




FMDGirl           @PracticalWisdom @FMDGirl Thanks Lisa! T2- We do take the Humanity out of
                  charting - why don't we include spiritual assessment in chart #HPM
                  Wed Apr 20 18:38:23 PDT 2011




RossJeanette      T2 sometimes teams pursue certain care b/cause they want to finish what was
                  started eg "need 2 full weeks on vent for pneumonia Rx" #hpm
                  Wed Apr 20 18:38:35 PDT 2011




PracticalWisdom   @mpf2011: Thanks, I read it think FMDGirl Wanted it. #HPM
                  Wed Apr 20 18:38:54 PDT 2011




drpippa           Need to address doc side. Why do so many insist that aggressive, curative is only
                  legit model of care? We can model alternatives #Hpm
                  Wed Apr 20 18:38:55 PDT 2011




revdoc            @equijada @revdoc It was sheer hell. #hpm
                  Wed Apr 20 18:39:12 PDT 2011




equijada          @FMDGirl @PracticalWisdom agree, well said. #hpm
                  Wed Apr 20 18:39:30 PDT 2011




revdoc            Stress on DPOA is often because we don't recognize the dying--we need to teach
                  what dying looks like to learners! #hpm
                  Wed Apr 20 18:39:50 PDT 2011




PracticalWisdom   RT @drpippa: Need 3 address MD side. Why do so many insist aggressive, curative
                  is only legit model of care? We can model alternatives #HPM
                  Wed Apr 20 18:40:01 PDT 2011




equijada          @drpippa modeling is our best model. #hpm
                  Wed Apr 20 18:40:01 PDT 2011




mpf2011           #hpm Unfortunately, even if pts sign an AD, the family hasn't talked to the pt. They
                  don't want to let go despite a "piece of paper."
                  Wed Apr 20 18:40:01 PDT 2011




equijada          t3 coming up in a min or so. #hpm
                  Wed Apr 20 18:40:20 PDT 2011




drpippa           RT @revdoc: Stress on DPOA is often because we dont recognize the dying--we
                  need to teach what dying looks like to learners! #Hpm
need to teach what dying looks like to learners! #Hpm
                  Wed Apr 20 18:40:23 PDT 2011




equijada          RT @revdoc: Stress on DPOA is often because we dont recognize the dying--we
                  need to teach what dying looks like to learners! #hpm
                  Wed Apr 20 18:41:04 PDT 2011




mpf2011           #hpm So much better if the talk is fully documented (and sometimes taped). Family
                  members present too.
                  Wed Apr 20 18:41:07 PDT 2011




drpippa           Deep thoughts for a weds. RT @equijada: @drpippa modeling is our best model.
                  #Hpm
                  Wed Apr 20 18:41:10 PDT 2011




PracticalWisdom   T2: I so Strongly Believe we so need you Pal MD's to gather more
                  Power/Recognition/Understanding to help prevent this from happening. #HPM
                  Wed Apr 20 18:41:27 PDT 2011




revdoc            Not many families would advocate for aggressive care they can't even spell if docs
                  did not tell them their loved ones needed it #hpm
                  Wed Apr 20 18:41:42 PDT 2011




equijada          @drpippa lol! Sincerely, Stuart Handy. #hpm
                  Wed Apr 20 18:41:44 PDT 2011




KathyKastner      Gr8 ideas RT @mpf2011: #hpm So much better if the talk is fully documented (and
                  sometimes taped). Family members present too.
                  Wed Apr 20 18:41:58 PDT 2011




KathyKastner      RT @revdoc: Stress on DPOA is often because we don't recognize the dying--we
                  need to teach what dying looks like to learners! #hpm
                  Wed Apr 20 18:42:19 PDT 2011




mpf2011           @PracticalWisdom When I was an ICU nurse, before becoming an atty, curative tx
                  was the only option. #HPM
                  Wed Apr 20 18:42:30 PDT 2011




gailliardadults   RT @doclake: The New Old Age: A Mother’s Nighttime Rage http://is.gd/ciHsMe
                  delirium #hpm
                  Wed Apr 20 18:42:36 PDT 2011




equijada          @KathyKastner @mpf2011 I end up just placing "quotes" in my note and just type out
                  the narrative. #hpm
                  Wed Apr 20 18:42:48 PDT 2011




PracticalWisdom   RT@KathyKastner:Gr8 ideas RT @mpf2011: #hpmSo much better if talk is fully
                  documented (and sometimes taped). Family members present 2. #HPM
                  Wed Apr 20 18:42:58 PDT 2011




KathyKastner      RT @mpf2011: #hpm So much better if the talk is fully documented (and sometimes
                  taped). Family members present too.#eldercarechat
                  Wed Apr 20 18:43:11 PDT 2011
PracticalWisdom   RT @equijada: @KathyKastner @mpf2011 I end up just placing "quotes" in my note
                  and just type out the narrative. #HPM
                  Wed Apr 20 18:43:29 PDT 2011




mpf2011           @PracticalWisdom I think docs see Palli as "giving up" which is shown by saying
                  "there's nothing more we can do." Should add "to cure." #HPM
                  Wed Apr 20 18:43:46 PDT 2011




equijada          t3: How has caring for those in death and dying effected your personal life? I think
                  about this a lot #hpm
                  Wed Apr 20 18:43:56 PDT 2011




PracticalWisdom   @PracticalWisdom @KathyKastner @mpf2011: Maybe include a section in a
                  persons Facebook Page. #HPM
                  Wed Apr 20 18:44:09 PDT 2011




FMDGirl           health care providers need more education on process of dying, if they are scared of
                  it- they will practice heroic measures #HPM
                  Wed Apr 20 18:44:42 PDT 2011




joshgriffin       RT @FMDGirl: health care providers need more education on process of dying, if they
                  are scared of it- they will practice heroic measures #HPM
                  Wed Apr 20 18:45:11 PDT 2011




KathyKastner      RT @mpf2011: @PracticalWisdom I think docs see Palli as "giving up" which is
                  shown by saying "there's nothing more we can do." Should add "to cure." #HPM
                  Wed Apr 20 18:45:13 PDT 2011




equijada          RT @FMDGirl: health care providers need more education on process of dying, if they
                  are scared of it-they will practice heroic measures #hpm
                  Wed Apr 20 18:45:16 PDT 2011




drpippa           T3 - absoultely would not do what I do if it were not for my personal experiences.
                  #Hpm
                  Wed Apr 20 18:45:27 PDT 2011




PracticalWisdom   @mpf2011 Yes, the Cure sometimes is Enough is Enough. #HPM
                  Wed Apr 20 18:45:28 PDT 2011




mpf2011           #hpm Our culture is trained by tv commercials to believe there is a cure (pill) for
                  everything. We don't accept death well as part of life.
                  Wed Apr 20 18:45:35 PDT 2011




KathyKastner      RT @mpf2011: #hpm Our culture is trained by tv commercials to believe there is a
                  cure (pill) for everything. We don't accept death well as part of life.
                  Wed Apr 20 18:45:52 PDT 2011




equijada          DITTO! It's changed my life RT @drpippa: T3 - absoultely would not do what I do if it
                  were not for my personal experiences. #hpm
                  Wed Apr 20 18:46:10 PDT 2011




                  #HPM There is still a lingering fear of litigation, I think. Despite documentation of pt
#HPM There is still a lingering fear of litigation, I think. Despite documentation of pt
mpf2011           wishes.
                  Wed Apr 20 18:46:20 PDT 2011




FMDGirl           t3 I am no longer afraid of death or dying #HPM
                  Wed Apr 20 18:46:37 PDT 2011




hospiceMTBC       t3: (Hi, folks!) Working in #hpm helps me enjoy the moment & go with the flow more
                  in my life.
                  Wed Apr 20 18:47:33 PDT 2011




revdoc            I elected artificial feed 4 my father s/p ICH, leading to 8.5 yrs of disability, then death
                  from ruptured appy. HPM kept me sane. #hpm
                  Wed Apr 20 18:47:35 PDT 2011




equijada          t3: I've seen love in action. It absolutely blows my mind. #hpm
                  Wed Apr 20 18:47:42 PDT 2011




KathyKastner      RT @Paulflevy: Palli Care on WIHI: Palli Care = Quali Care 21/4,2:- 3PM Eastern
                  TimeGue... http://bit.ly/ggJqEB #hpm
                  Wed Apr 20 18:47:49 PDT 2011




revdoc            RT @FMDGirl: t3 I am no longer afraid of death or dying. THERE ARE A LOT WORSE
                  THINGS THAN DEAD #hpm
                  Wed Apr 20 18:47:55 PDT 2011




FMDGirl           Have learned there can be dignity in death #HPM
                  Wed Apr 20 18:47:58 PDT 2011




mpf2011           #hpm Plus docs tend to focus on their "body system" so nephro says to family
                  "kidneys are better today" and they hear "pt is better."
                  Wed Apr 20 18:48:05 PDT 2011




equijada          @hospiceMTBC hi, welcome. I love the moment. #hpm
                  Wed Apr 20 18:48:16 PDT 2011




KathyKastner      AMEN RT @revdoc: RT @FMDGirl: t3 I am no longer afraid of death or dying. THERE
                  ARE A LOT WORSE THINGS THAN DEAD #hpm
                  Wed Apr 20 18:48:25 PDT 2011




PracticalWisdom   Seen this so many times. Courage Too!RT @FMDGirl: Have learned there can be
                  dignity in death #HPM
                  Wed Apr 20 18:48:43 PDT 2011




PracticalWisdom   RT @equijada: t3: Ive seen love in action. It absolutely blows my mind. #HPM
                  Wed Apr 20 18:48:54 PDT 2011




FMDGirl           @revdoc @FMDGirl you can say that again- why as a society are we so afraid- is
                  because people are afraid of hell? Religion play a part? #HPM
                  Wed Apr 20 18:49:18 PDT 2011
equijada          t3: I've learned about my Higher Power #hpm
                  Wed Apr 20 18:49:24 PDT 2011




PracticalWisdom   RT @equijada: DITTO! Its changed my life RT @drpippa: T3 absoultely would not do
                  what I do if it were not 4 my personal experiences. #HPM
                  Wed Apr 20 18:49:25 PDT 2011




revdoc            I have seen healings, reconciliation, courage, love--I should PAY to do this work. (But
                  don't tell my boss, I have a mortgage) #hpm
                  Wed Apr 20 18:50:21 PDT 2011




PracticalWisdom   Accept the things I cannot change Keeps me balanced. RT @equijada: t3: Ive learned
                  about my Higher Power #HPM
                  Wed Apr 20 18:50:27 PDT 2011




drpippa           Sometimes miracles. RT @equijada: t3: Ive seen love in action. It absolutely blows
                  my mind. #Hpm
                  Wed Apr 20 18:50:38 PDT 2011




equijada          @FMDGirl @revdoc just finished reading Love Wins by Rob Bell re: hell. Religion has
                  done a disservice #hpm
                  Wed Apr 20 18:50:43 PDT 2011




mpf2011           #hpm It is the HPM team that has 2 teach how 2 see pt holistically, rather thn the sum
                  of body systems. LOOK at the pt. not go thru motions.
                  Wed Apr 20 18:50:43 PDT 2011




revdoc            @FMDGirl Not always, but that can be one aspect. People not grounded in anything
                  besides here and now #hpm
                  Wed Apr 20 18:50:59 PDT 2011




revdoc            RT @equijada: just finished reading Love Wins by Rob Bell re: hell. Religion has
                  done a disservice [not all of us are like that!] #hpm
                  Wed Apr 20 18:51:36 PDT 2011




PracticalWisdom   T3: Was a clergy Wife for 13 years. Have seen families in their last moments at Re:
                  worst and best. Learned not to sweat small Stuff #HPM
                  Wed Apr 20 18:51:39 PDT 2011




AmandaBinDC       RT @ctsinclair: Pain-Topics.org News/Research UPDATES: U.S. FDA Releases
                  Long-Awaited Opioid-REMS http://hpm.md/g2AncC #HPM
                  Wed Apr 20 18:51:49 PDT 2011




RossJeanette      T3 I feel very priviledged in working with people at a difficult time. It makes my
                  problems seem minor. #hpm
                  Wed Apr 20 18:51:58 PDT 2011




KathyKastner      RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by Rob Bell re:
                  hell. Religion has done a disservice #hpm
                  Wed Apr 20 18:52:13 PDT 2011




                  Book Club? RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by
Book Club? RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by
PracticalWisdom   Rob Bell re: hell. Religion has done a disservice #HPM
                  Wed Apr 20 18:52:31 PDT 2011




FMDGirl           @revdoc @FMDGirl great point- I brought that up because when I was a child I was
                  so scared of death, sunday school...impressionable #HPM
                  Wed Apr 20 18:52:45 PDT 2011




PracticalWisdom   @equijada @FMDGirl @revdoc: What was the main Lesson? #HPM
                  Wed Apr 20 18:53:02 PDT 2011




SheyontheBay      @equijada wow.... #hpm
                  Wed Apr 20 18:53:05 PDT 2011




hospiceMTBC       T3: Denial=suffering, letting go=peace. #hpm
                  Wed Apr 20 18:53:17 PDT 2011




FMDGirl           @KathyKastner @equijada @FMDGirl @revdoc I will have to read it! #HPM
                  Wed Apr 20 18:53:23 PDT 2011




equijada          @FMDGirl @revdoc totally. #hpm
                  Wed Apr 20 18:53:41 PDT 2011




phlu              RT @doclake: Power poses vs. Warmth poses-good research that applies to the way
                  a #hpm practitioner interacts @ the bedside http://is.gd ...
                  Wed Apr 20 18:53:48 PDT 2011




PracticalWisdom   T3: Learned we can be alive but Dead. #HPM
                  Wed Apr 20 18:54:00 PDT 2011




equijada          @FMDGirl check it out. History is not tragic, in the end, love wins. #hpm
                  Wed Apr 20 18:54:02 PDT 2011




FMDGirl           @hospiceMTBC you said it well #HPM
                  Wed Apr 20 18:54:07 PDT 2011




PracticalWisdom   RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM
                  Wed Apr 20 18:54:21 PDT 2011




revdoc            RT @PracticalWisdom: What was the main Lesson? We have only the present:
                  laugh, love, do your best, don't trade today waiting 4 2morro #hpm
                  Wed Apr 20 18:54:52 PDT 2011




PracticalWisdom   Idea to read book discuss on #HPM later time? RT @FMDGirl: @KathyKastner
                  @equijada @FMDGirl @revdoc I will have to read it! #HPM
                  Wed Apr 20 18:55:00 PDT 2011




                  RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM
RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM
                  Wed Apr 20 18:55:02 PDT 2011
FMDGirl

RossJeanette      got to leave now! goodbye nice tweetchat hosting Earl! #hpm
                  Wed Apr 20 18:55:10 PDT 2011




equijada          @equijada @FMDGirl it's this out of this world love I see at the bedside of death (on
                  occasion). #hpm
                  Wed Apr 20 18:55:36 PDT 2011




FMDGirl           @PracticalWisdom @FMDGirl @KathyKastner @equijada @FMDGirl @revdoc Iam
                  in! #HPM
                  Wed Apr 20 18:55:47 PDT 2011




PracticalWisdom   Thank you! RT @revdoc: RT @PracticalWisdom: We have only the
                  present:laugh/love/do your best, dont trade 2day waiting 4 2morro #HPM
                  Wed Apr 20 18:55:54 PDT 2011




drpippa           Love this idea!RT @PracticalWisdom: Idea to read book discuss on #HPM later
                  time? ! #Hpm
                  Wed Apr 20 18:55:57 PDT 2011




mpf2011           #HPM Sadly, ppl don't know how hard it is to take away treatment once started. If u
                  can't breathe, pee or eat on your own, u r dying!!
                  Wed Apr 20 18:55:58 PDT 2011




equijada          Final thoughts and parting words of wisdom...Thanks all. #hpm
                  Wed Apr 20 18:56:02 PDT 2011




PracticalWisdom   Good Night Thanks RT @RossJeanette: got to leave now! goodbye nice tweetchat
                  hosting Earl! #HPM
                  Wed Apr 20 18:56:07 PDT 2011




equijada          @RossJeanette good to see you again. Thanks for coming. #hpm
                  Wed Apr 20 18:56:18 PDT 2011




FMDGirl           forgiveness and acceptance and death comes peacefully #HPM
                  Wed Apr 20 18:56:43 PDT 2011




PracticalWisdom   @FMDGirl: Lam In? I don't get it? #HPM
                  Wed Apr 20 18:56:46 PDT 2011




KathyKastner      Too true! RT @mpf2011: #HPM Sadly, ppl don't know how hard it is to take away
                  treatment once started. #eldercarechat
                  Wed Apr 20 18:56:57 PDT 2011




PracticalWisdom   RT @KathyKastner: Too true! RT @mpf2011: #HPM Sadly, ppl dont know how hard it
                  is to take away treatment once started. #eldercarechat #HPM
                  Wed Apr 20 18:57:27 PDT 2011
PracticalWisdom   RT @FMDGirl: forgiveness and acceptance and death comes peacefully #HPM
                  Wed Apr 20 18:57:31 PDT 2011




FMDGirl           @PracticalWisdom @FMDGirl opps- I am in- read the book and chat- pick a date :)
                  #HPM
                  Wed Apr 20 18:57:38 PDT 2011




revdoc            Thanks for hosting, Earl! #hpm
                  Wed Apr 20 18:57:42 PDT 2011




equijada          RT @FMDGirl: forgiveness and acceptance and death comes peacefully #hpm
                  Wed Apr 20 18:57:49 PDT 2011




PracticalWisdom   T3: I'm afraid to live in Pain don't think I'm afraid to die. #HPM
                  Wed Apr 20 18:57:53 PDT 2011




hospiceMTBC       Thank you, all, for the work you do & the passion you bring to the bedside. #hpm
                  Wed Apr 20 18:57:55 PDT 2011




equijada          @revdoc thanks for coming. #hpm
                  Wed Apr 20 18:58:28 PDT 2011




PracticalWisdom   @hospiceMTBC: Thank you!!!! #HPM
                  Wed Apr 20 18:58:46 PDT 2011




FMDGirl           RT @hospiceMTBC: Thank you, all, for the work you do & the passion you bring to the
                  bedside. #HPM
                  Wed Apr 20 18:58:51 PDT 2011




drpippa           @equijada thanks for a night of thought and feeling! Great hosting. #Hpm
                  Wed Apr 20 18:58:55 PDT 2011




KathyKastner      Final thoughts: thanks Earl @equijada for gr8 hosting. Thanks to all #hpm-ers for the
                  learning.
                  Wed Apr 20 18:59:13 PDT 2011




mpf2011           #HPM Thanks everyone. Great chat.
                  Wed Apr 20 18:59:15 PDT 2011




equijada          @drpippa thanks! hope to catch you next week. happy week to you. #hpm
                  Wed Apr 20 18:59:32 PDT 2011




FMDGirl           @PracticalWisdom that is why we need to legalize medical marijuana #HPM
                  Wed Apr 20 18:59:41 PDT 2011




equijada          Good night all. Thanks again! #hpm
                  Wed Apr 20 19:00:06 PDT 2011
Wed Apr 20 19:00:06 PDT 2011




kathydavisku      Catrina Lootens and Marilyn Sampilo sentn in great proposal to SDBP on student
                  school reentry for kids with chronic conditions. #pedpc #hpm
                  Wed Apr 20 19:00:13 PDT 2011




KUKidsHP          Catrina Lootens and Marilyn Sampilo sent in great proposal to SDBP on student
                  school reentry for kids with chronic conditions. #pedpc #hpm
                  Wed Apr 20 19:00:13 PDT 2011




PracticalWisdom   So complicated. I'm neutral on this 1 but not Pt RightsRT @FMDGirl:
                  @PracticalWisdom that is why we need to legalize medical marijuana #HPM
                  Wed Apr 20 19:00:28 PDT 2011




revdoc            Goodnight, all! Blessings of Passover and Easter to my Jewish and Christian friends!
                  #hpm
                  Wed Apr 20 19:00:37 PDT 2011




amyrnbsn          RT @FMDGirl: health care providers need more education on process of dying, if they
                  are scared of it- they will practice heroic measures #HPM
                  Wed Apr 20 19:00:44 PDT 2011




FMDGirl           Wow! That was the fastest tweet hour ever- you picked all my favorite topics! Thank
                  you everyone for your wisdom. #HPM
                  Wed Apr 20 19:00:49 PDT 2011




FMDGirl           @revdoc thank you for inspiring words, it was a pleasure to meet you. #HPM
                  Wed Apr 20 19:01:32 PDT 2011




revdoc            @FMDGirl @revdoc You too! #hpm
                  Wed Apr 20 19:02:07 PDT 2011




PracticalWisdom   @equijada: Thank you for Hosting tonight. You added your own Flavor/Wisdom.
                  Having different Hosts I think adds a great deal! Thanks #HPM
                  Wed Apr 20 19:02:10 PDT 2011




PracticalWisdom   AGree 100RT @FMDGirl: Wow! That was the fastest tweet hour ever- you picked all
                  my favorite topics! Thank you everyone for your wisdom. #HPM
                  Wed Apr 20 19:02:23 PDT 2011




PracticalWisdom   Agree! RT @FMDGirl: @revdoc thank you for inspiring words, it was a pleasure to
                  meet you. #HPM
                  Wed Apr 20 19:02:33 PDT 2011




PracticalWisdom   @FMDGirl Tonight makes me realize how much I've missed you. O.K. enough mushy
                  Gooshy from me. My Amazing Friend. #HPM
                  Wed Apr 20 19:03:17 PDT 2011




PracticalWisdom   Quaker Girl Say Keeping in the LIght! RT @revdoc: Goodnight, all! Blessings of
                  Passover and Easter to my Jewish and Christian friends! #HPM
                  Wed Apr 20 19:04:21 PDT 2011
FMDGirl   @PracticalWisdom Miss you too! I was so excited when I saw your tweet about #HPM
          I so happy I follow you! Your awesome Lisa!
          Wed Apr 20 19:04:40 PDT 2011

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2011 04 20 hpm tweetchat transcript

  • 1. #hpm Healthcare Hashtag Twitter Transcript From: Wed Apr 20 17:55:00 PDT 2011 To: Wed Apr 20 19:05:00 PDT 2011 Customize transcript dates and layout Learn more about #hpm at The Healthcare Hashtag Project PracticalWisdom It's almost that time. 4minute count down to tired fingers, wired brain, and collective Wisdom. I can't wait. #HPM Wed Apr 20 17:56:39 PDT 2011 PracticalWisdom We want others 2 c us competent, not just nice.RT@doclake Powervs.Warmth applies 2 way #hpm prac. interacts @bedsidehttp://is.gd/OI5cqH #HPM Wed Apr 20 18:00:31 PDT 2011 equijada Hi everyone. For the next 6 min, I'll be in #hpm tweetchat. Come join the discussion. #hpm Wed Apr 20 18:01:02 PDT 2011 equijada @PracticalWisdom Hi Lisa, good to see you here #hpm Wed Apr 20 18:01:25 PDT 2011 PracticalWisdom Interested Pt Educ.RT@DianeEMeier:RT @ctsinclairNews/Research UPDATES: U.S. FDA Releases Long-Awaited Opioid-REMS http://hpm.md/g2AncC #HPM Wed Apr 20 18:01:26 PDT 2011 RossJeanette hi @equijada only 6 minutes? #hpm Wed Apr 20 18:01:54 PDT 2011 KathyKastner What about the other 54 minutes :)RT @equijada: Hi everyone. For the next 6 min, I'll be in #hpm tweetchat. Come join the discussion. #hpm Wed Apr 20 18:02:02 PDT 2011 PracticalWisdom My Pleasure. Thanks for being our Host. RT @equijada: @PracticalWisdom Hi Lisa, good to see you here #HPM Wed Apr 20 18:02:28 PDT 2011 equijada @KathyKastner ha, i mean for the next 60 min! #hpm Wed Apr 20 18:02:46 PDT 2011
  • 2. PracticalWisdom @KathyKastner @equijada 54 Fun with our Friends. Brain Candy for All #HPM Wed Apr 20 18:03:01 PDT 2011 KathyKastner Wheewh. worried for a mo RT @equijada: @KathyKastner ha, i mean for the next 60 min! #hpm Wed Apr 20 18:03:16 PDT 2011 equijada @RossJeanette Hi Jeanette! 60 min...thinking faster than I type. Welcome. Good to see you here #hpm Wed Apr 20 18:03:26 PDT 2011 FMDGirl Hi everyone- listening in. Kari- RN/pt advocate #HPM Wed Apr 20 18:04:10 PDT 2011 KathyKastner H Lisa ! RT @PracticalWisdom:@equijada 54 Fun with our Friends. Brain Candy for All #HPM Wed Apr 20 18:04:20 PDT 2011 equijada @FMDGirl Hi Kari, welcome. #hpm Wed Apr 20 18:04:54 PDT 2011 PracticalWisdom @equijada: Hoping our Man from Down Under will join us tonight. The Rascal @Hughstephens. #HPM Wed Apr 20 18:05:14 PDT 2011 revdoc Pam Harris MD with Kansas City Hospice; also an ordained minister #hpm Wed Apr 20 18:05:32 PDT 2011 SheyontheBay Hello all, glad to see you #hpm Wed Apr 20 18:06:31 PDT 2011 equijada @PracticalWisdom will start with t1 in a min or so. Join us @hughstephens. Welcome Pam. Good to see you #hpm Wed Apr 20 18:06:35 PDT 2011 revdoc Good to tweet with y'all #hpm Wed Apr 20 18:07:09 PDT 2011 equijada @SheyontheBay hi, good to see you. long time! #hpm Wed Apr 20 18:07:12 PDT 2011 PracticalWisdom @KathyKastner I'm always glad to see you. #HPM Wed Apr 20 18:07:34 PDT 2011 teaminspire Hi everyone--listening in, looking to learn--John Novack, Inspire (online patient support communities) #HPM Wed Apr 20 18:07:45 PDT 2011
  • 3. hughstephens @PracticalWisdom @equijada still looking for cat :( might not make #hpm Wed Apr 20 18:08:01 PDT 2011 equijada t1: It's 420! What is the role of marijuana in patients with life threatening illness? #happy420 #hpm Wed Apr 20 18:08:02 PDT 2011 equijada For those not familiar with 420 The True Story Of How April 20 Became 'Weed Day' http://huff.to/hmP832 #hpm Wed Apr 20 18:08:41 PDT 2011 equijada 420 (cannabis culture) - Wikipedia, the free encyclopedia http://bit.ly/f5aOqV #hpm Wed Apr 20 18:08:49 PDT 2011 SheyontheBay @equijada @SheyontheBay yes, sorry about that - lots going on in life!! ;) #hpm Wed Apr 20 18:08:57 PDT 2011 equijada @hughstephens welcome! #hpm Wed Apr 20 18:09:06 PDT 2011 revdoc T1--I am actually not very impressed with Marinol for sx control #hpm Wed Apr 20 18:09:12 PDT 2011 FMDGirl t1- question dear to my heart- close friend passed away from Fredrich ataxia- not legal, but only think that helped #HPM Wed Apr 20 18:09:41 PDT 2011 KathyKastner Clearly I need glasses. I put an 'e' in the middle of sx RT @revdoc: T1--I am actually not very impressed with Marinol for sx control #hpm Wed Apr 20 18:10:19 PDT 2011 revdoc Although Marinol does help for the wasting syndrome associated with AIDS #hpm Wed Apr 20 18:10:21 PDT 2011 SheyontheBay Dating myself: i remember teaching chemo pts how to smoke a joint, circa 1980!!! #hpm Wed Apr 20 18:10:23 PDT 2011 equijada @FMDGirl if you don't mind, can you expand on the experience? what did it help? #hpm Wed Apr 20 18:10:34 PDT 2011 equijada I think that data on marinol and marijuana are actually different. Not sure. #hpm Wed Apr 20 18:11:27 PDT 2011 revdoc Can't speak to the effect of Marinol on sex... #hpm Wed Apr 20 18:11:43 PDT 2011
  • 4. equijada @SheyontheBay was it helpful? #hpm Wed Apr 20 18:11:46 PDT 2011 DianeEMeier RT @doclake: Power poses vs. Warmth poses-good research that applies to the way a #hpm practitioner interacts @ the bedside http://is.gd ... Wed Apr 20 18:11:49 PDT 2011 revdoc In Kansas, marijuana is not legal, so we are stuck with Marinol #hpm Wed Apr 20 18:12:13 PDT 2011 equijada Cannabis use in palliative care http://bit.ly/huBHGx A nice review #hpm Wed Apr 20 18:12:56 PDT 2011 FMDGirl Yes, fredrich ataxia causes spasms- traditional meds did not help- up front with docs about using it, pts should be able use medically #HPM Wed Apr 20 18:13:53 PDT 2011 SheyontheBay @equijada@SheyontheBayIf they could get past the 'criminality' it helped, esp w/ nausea.po tabs seemed to get neutralized by gastric jc #hpm Wed Apr 20 18:14:17 PDT 2011 equijada @FMDGirl I hear that a lot from patients taking it. #hpm Wed Apr 20 18:14:40 PDT 2011 SheyontheBay Wasnt legal in Florida either... We ignored the smell of pot wafting down the corridor #hpm Wed Apr 20 18:15:13 PDT 2011 DianeEMeier RT @doclake: The New Old Age: A Mother’s Nighttime Rage http://is.gd/ciHsMe delirium #hpm Wed Apr 20 18:15:24 PDT 2011 equijada It's legal in CA (I'm in CA). There are so many dispensaries. Many times the pts using don't seem legit. Hard to balance. #hpm Wed Apr 20 18:16:14 PDT 2011 RossJeanette thanks for the information on 420. Since marijuana is ilegal in Texas I have no experience w/ this. #hpm Wed Apr 20 18:17:15 PDT 2011 FMDGirl Plus- it increases appetite, Dave- my friend wrote a book:http://amzn.to/hYJGVk #HPM Wed Apr 20 18:17:28 PDT 2011 drpippa Only anecdotal evidence Has been helpful for folks. Hard to balance legit use vs illicit use. Would prob not feel comfortable rxing #Hpm Wed Apr 20 18:17:36 PDT 2011 revdoc SAME ISSUE WITH OTHER PAIN MEDS RT @equijada: Its legal in CA (Im in CA). Many times the pts using dont seem legit. Hard to balance. #hpm Wed Apr 20 18:17:58 PDT 2011
  • 5. drpippa @equijada Nice choice of topic for the day! #Hpm Wed Apr 20 18:18:03 PDT 2011 equijada I've let patients use it. I don't have a problem with it. I do get uncomfortable when they are using pot and oxyfast gets lost. #hpm Wed Apr 20 18:18:32 PDT 2011 FMDGirl @equijada How is it different from managing any other chronic patient that is on pain meds? #HPM Wed Apr 20 18:18:40 PDT 2011 equijada @FMDGirl thanks for the link. I'm going to check it out. #hpm Wed Apr 20 18:19:02 PDT 2011 SheyontheBay @equijada Have no idea how it was used or abused in the home. Hospital pts had to provide their own -> no quality control #hpm Wed Apr 20 18:19:04 PDT 2011 revdoc FDA proposing REMS on ALL opiates because of issues of abuse or diversion http://hpm.md/g2AncC #hpm #hpm Wed Apr 20 18:19:07 PDT 2011 PracticalWisdom Sorry had internet problems Kerri great to see you. #HPM Wed Apr 20 18:19:22 PDT 2011 equijada @FMDGirl it's not. I have to risk assess just like opioids. #hpm Wed Apr 20 18:19:35 PDT 2011 BuddhishMD @NYTimeskrugman Language is so important - it sometimes feels like the world of money and business has completely co-opted our lives. #hpm Wed Apr 20 18:20:13 PDT 2011 equijada @FMDGirl I think the main difference is basically legal but in terms of prescribing - same as opoioids #hpm Wed Apr 20 18:20:27 PDT 2011 equijada @drpippa ha! thanks. #hpm Wed Apr 20 18:20:49 PDT 2011 FMDGirl @equijada pt on ms for cancer- it made him confused and he cut his feeding tube in half without realizing it- thought it was a string #HPM Wed Apr 20 18:20:54 PDT 2011 PracticalWisdom RT @drpippa: Only anecdotal evid. Has been helpful 4 folks. Hard 2 balance legi use vsillicit use.Would prob not feel comfortable rxing #HPM Wed Apr 20 18:21:10 PDT 2011 PracticalWisdom RT @FMDGirl: @equijadapton ms 4 cancer- made him confused& he cut his feeding tube in 1/2 without realizing it- thought it was a string #HPM
  • 6. Wed Apr 20 18:21:48 PDT 2011 equijada @PracticalWisdom @drpippa @AAHPM doesn't have an official stand on marijuana. Interesting discussion in Vancouver #hpm Wed Apr 20 18:22:02 PDT 2011 PracticalWisdom Rascal Topic for sure. I knew this would be a good one. RT @drpippa: @equijada Nice choice of topic for the day! #HPM Wed Apr 20 18:22:17 PDT 2011 FMDGirl easy to balance legal use, RX from an MD- get from a hospital pharmacy #HPM Wed Apr 20 18:22:27 PDT 2011 drpippa Still disappointed i missed it! RT @equijada: @AAHPM doesnt have an official stand on marijuana. Interesting discussion in Vancouver #Hpm Wed Apr 20 18:23:09 PDT 2011 equijada RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital pharmacy #hpm Wed Apr 20 18:23:20 PDT 2011 drpippa RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital pharmacy #Hpm Wed Apr 20 18:23:44 PDT 2011 equijada Moving on to t2 in a min or so #hpm Wed Apr 20 18:23:52 PDT 2011 PracticalWisdom @equijada @drpippa @AAHPM T1: When I taught Pharmacology (Basic) 100 years ago Marijuana was complicated Dep/Stim Sometimes Hallacu? #HPM Wed Apr 20 18:24:01 PDT 2011 revdoc RT @FMDGirl: easy to balance legal use, RX from an MD- get from a hospital pharmacy [PEOPLE CAN LIE ABOUT SXS USING LEGAL SOURCES] #hpm Wed Apr 20 18:24:10 PDT 2011 hollyby Hi all! I don't rx it. Still a conflict btwn state & federal law. Not worth my DEA license. #hpm Wed Apr 20 18:24:19 PDT 2011 RossJeanette @equijada was the MJ discussion in Vancouver a specific session? I bought the Audio recording #hpm Wed Apr 20 18:24:25 PDT 2011 PracticalWisdom @PracticalWisdom: Is this still true? complicated? #HPM Wed Apr 20 18:24:52 PDT 2011 equijada RT @hollyby: Hi all! I dont rx it. Still a conflict btwn state & federal law. Not worth my DEA license. #hpm Wed Apr 20 18:24:53 PDT 2011
  • 7. FMDGirl I do have a stand I do not use it- I would like to know it is available if I have a terrible stroke, should be MY choice not my states #HPM Wed Apr 20 18:24:57 PDT 2011 hollyby Lurking tonight, but wanted to say hello! Hugs to all! #hpm Wed Apr 20 18:25:07 PDT 2011 mpf2011 @ctsinclair Have fun. #HPM Wed Apr 20 18:25:08 PDT 2011 PracticalWisdom Who wants another Hassle!RT @hollyby: Hi all! I dont rx it. Still a conflict btwn state & federal law. Not worth my DEA license. #HPM Wed Apr 20 18:25:27 PDT 2011 ctsinclair RT @drpippa: Only anecdotal evidence Has been helpful for folks. Hard to balance legit use vs illicit use. Would prob not feel comfortable rxing #Hpm Wed Apr 20 18:25:28 PDT 2011 equijada @RossJeanette yes, I forget the speakers name. Husband/wife team. Totally supported MJ but data equivocal #hpm Wed Apr 20 18:25:31 PDT 2011 KathyKastner RT @FMDGirl: I do have a stand I do not use it- I would like to know it is available if I have a terrible stroke, should be MY choice not my states #HPM Wed Apr 20 18:25:43 PDT 2011 mpf2011 RT @hospice_doctor: Aggressive treatment at the end of life, but where is the patient? New blog post: http://hospicedoctor.blogspot.com #palliative #hpm Wed Apr 20 18:25:46 PDT 2011 revdoc @ctsinclair Thought you were at concert? #hpm Wed Apr 20 18:26:00 PDT 2011 FMDGirl @revdoc @FMDGirl yes-people lie all the time to get narcs- but that should not prevent people who need pain relief from getting it #HPM Wed Apr 20 18:26:46 PDT 2011 PracticalWisdom PT Rights!RT @FMDGirl: I do have a stand I do not use it-I would like know it's ava.if I a stroke, should be MY choice not my states #HPM Wed Apr 20 18:26:47 PDT 2011 PracticalWisdom In the Lobby, Conversation too Good to be left out!RT @revdoc: @ctsinclair Thought you were at concert? #HPM Wed Apr 20 18:27:23 PDT 2011 KathyKastner RT @FMDGirl: @revdoc @FMDGirl yes-people lie all the time to get narcs- but that should not prevent people who need pain relief from getting it #HPM Wed Apr 20 18:27:32 PDT 2011 equijada t2 via @mpf2011 and @practicalwisdom - how do you communicate and advocate AD when what's said isn't what's done http://bit.ly/eU8wq5 #hpm Wed Apr 20 18:27:42 PDT 2011
  • 8. revdoc @FMDGirl No argument; but having done chronic pain tx for years, it is not as simple as it seems #hpm Wed Apr 20 18:27:59 PDT 2011 FMDGirl @PracticalWisdom @FMDGirl EXACTLY Lisa- PT RIGHTS! Your better at this tweeting than me ;) #HPM Wed Apr 20 18:28:00 PDT 2011 PracticalWisdom Nope I'm older have more insurance.RT @FMDGirl:@PracticalWisdom@FMDGirl EXACTLY Lisa-PT RIGHTS! Your better at this tweeting than me ;) #HPM Wed Apr 20 18:28:52 PDT 2011 equijada @mpf2011 @practicalwisdom In this story, pt was "DNR" but her goals and wishes weren't exactly known #hpm Wed Apr 20 18:28:53 PDT 2011 joshgriffin RT @FMDGirl: @revdoc @FMDGirl yes-people lie all the time to get narcs- but that should not prevent people who need pain relief from getting it #HPM Wed Apr 20 18:29:02 PDT 2011 FMDGirl @revdoc @FMDGirl yes, understand it is not easy, but either is living with pain- we must go the extra mile to ensure pt safety #HPM Wed Apr 20 18:29:06 PDT 2011 revdoc @FMDGirl Unfortunately, my experience with legislation to promote "safety" is that it makes my life a living hell! #hpm Wed Apr 20 18:30:03 PDT 2011 equijada RT @revdoc: @FMDGirl No argument; but having done chronic pain tx for years, it is not as simple as it seems #hpm Wed Apr 20 18:30:19 PDT 2011 drpippa T2- I try to get family talking about the person, not the disease. Get an idea of what they were like before. Helps inform #Hpm Wed Apr 20 18:30:54 PDT 2011 PracticalWisdom @equijada @mpf2011 @practicalwisdom: Frankly this ink unglued me. Why was her DNR not respected? Where was Clergy/Ethics. #HPM Wed Apr 20 18:30:57 PDT 2011 SheyontheBay T2. In 140 characters?really? #hpm Wed Apr 20 18:31:12 PDT 2011 revdoc T2 Encourage pt conversation with families, not relying on a piece of paper. Make sure your decision makers KNOW what you want #hpm Wed Apr 20 18:31:18 PDT 2011 equijada @SheyontheBay lol #hpm Wed Apr 20 18:31:39 PDT 2011 FMDGirl @revdoc @FMDGirl Agreed!!! That is why you have us nurses to do the paper work-
  • 9. FMDGirl @revdoc @FMDGirl Agreed!!! That is why you have us nurses to do the paper work- he he :) #HPM Wed Apr 20 18:31:51 PDT 2011 mpf2011 @equijada How was the pt DNR? She had a signed document?? Noted in Notes? #hpm Wed Apr 20 18:31:59 PDT 2011 PracticalWisdom T2: If a Pt does everything legally & your desire is not respected What (fill in the Blank) is going on. Seems like ego got in the way #HPM Wed Apr 20 18:32:17 PDT 2011 SheyontheBay @equijada ;D #hpm Wed Apr 20 18:32:32 PDT 2011 revdoc T2 Encourage pt conv w/ families, not relying on a piece of paper. Make sure your decision makers KNOW what you want B4 they need info #hpm Wed Apr 20 18:32:38 PDT 2011 equijada @revdoc It seems when healthcare providers are told to #havethetalk it's interpreted as #signthepaper #hpm Wed Apr 20 18:32:41 PDT 2011 drpippa RT @revdoc: Encourage pt conversation with families, not relying on a piece of paper. Make sure decision makers KNOW what you want #Hpm Wed Apr 20 18:32:46 PDT 2011 PracticalWisdom THey Did RT @revdoc: T2 Encourage pt con. w/ families, not relying on a piece of paper. Make sure your decision makers KNOW what Uwant #HPM Wed Apr 20 18:32:56 PDT 2011 FMDGirl t2 question- did not get the link to work- can some one fill me in? #HPM Wed Apr 20 18:33:07 PDT 2011 revdoc @FMDGirl @revdoc Unfortunately, I am the housecall doc, so when I show up I AM the IDT! #hpm Wed Apr 20 18:33:09 PDT 2011 equijada @mpf2011 it was in her advance directive #hpm Wed Apr 20 18:33:15 PDT 2011 PracticalWisdom http://hospicedoctor.blogspot.com/RT @FMDGirl: t2 question- did not get the link to work- can some one fill me in? #HPM Wed Apr 20 18:33:45 PDT 2011 KathyKastner I'd LOL but it's true RT @equijada: @revdoc It seems when healthcare providers are told 2 #havethetalk interpreted as #signthepaper #hpm Wed Apr 20 18:33:46 PDT 2011 SheyontheBay Respectingchoices.org. Worksheet to #havethetalk #hpm Wed Apr 20 18:33:48 PDT 2011
  • 10. drpippa So true. RT @equijada: @revdoc It seems when healthcare providers are told to #havethetalk its interpreted as #signthepaper #Hpm Wed Apr 20 18:34:29 PDT 2011 mpf2011 RT @equijada: @mpf2011 it was in her advance directive #hpm | Was the pt conscious? Was family disputing it? Wed Apr 20 18:34:42 PDT 2011 revdoc T2 Not saying it doesn't happen, but I still think there are more problems not naming DPOA than having AD ignored #hpm Wed Apr 20 18:34:53 PDT 2011 RossJeanette T2 bringing the person "in to the room" helps me understand better what makes life meaningful and make care recommendations #hpm Wed Apr 20 18:34:59 PDT 2011 equijada @FMDGirl sorry, try this http://bit.ly/eU8wq5 #hpm Wed Apr 20 18:35:10 PDT 2011 PracticalWisdom Is this a Legal Doc? Could there be Legal Challenges. RT @equijada: @mpf2011 it was in her advance directive #HPM Wed Apr 20 18:35:19 PDT 2011 PracticalWisdom RT @drpippa: So true.RT @equijada: @revdoc It seems when healthcare providers are told to #havethetalk its interpreted as #signthepaper #HPM Wed Apr 20 18:35:37 PDT 2011 equijada @FMDGirl in short - an elderly lady was "DNR" but no mentions of goals, wishes. Received aggressive care dialysis etc that didn't work #hpm Wed Apr 20 18:35:55 PDT 2011 revdoc As DPOA I did have to bully 4 providers into stopping aggressive care for my father despite my telling them his QOL was unacceptable #hpm Wed Apr 20 18:36:26 PDT 2011 equijada @revdoc there is good data that DPOA undergo significant stress and don't follow through thus AD. #hpm Wed Apr 20 18:36:35 PDT 2011 equijada @RossJeanette yes, agree. #hpm Wed Apr 20 18:37:36 PDT 2011 PracticalWisdom T2: Interesting Quote: How the health care system slants inexorably toward aggressive intervention regardless of the context. #HPM Wed Apr 20 18:37:39 PDT 2011 mpf2011 @PracticalWisdom Here is the blog link: http://hospicedoctor.blogspot.com/ #HPM Wed Apr 20 18:37:40 PDT 2011 equijada @revdoc tough. You were able to advocate. Most people aren't as strong. #hpm Wed Apr 20 18:38:13 PDT 2011
  • 11. PracticalWisdom RT @revdoc:As DPOA I did have 2 bully 4 providers stopping aggressive care 4 my father despite my telling them his QOL was unacceptable #HPM Wed Apr 20 18:38:15 PDT 2011 revdoc @PracticalWisdom Yes legal provisions for ADs in all states as well as for recognizing ADs legally enacted from others #hpm Wed Apr 20 18:38:23 PDT 2011 FMDGirl @PracticalWisdom @FMDGirl Thanks Lisa! T2- We do take the Humanity out of charting - why don't we include spiritual assessment in chart #HPM Wed Apr 20 18:38:23 PDT 2011 RossJeanette T2 sometimes teams pursue certain care b/cause they want to finish what was started eg "need 2 full weeks on vent for pneumonia Rx" #hpm Wed Apr 20 18:38:35 PDT 2011 PracticalWisdom @mpf2011: Thanks, I read it think FMDGirl Wanted it. #HPM Wed Apr 20 18:38:54 PDT 2011 drpippa Need to address doc side. Why do so many insist that aggressive, curative is only legit model of care? We can model alternatives #Hpm Wed Apr 20 18:38:55 PDT 2011 revdoc @equijada @revdoc It was sheer hell. #hpm Wed Apr 20 18:39:12 PDT 2011 equijada @FMDGirl @PracticalWisdom agree, well said. #hpm Wed Apr 20 18:39:30 PDT 2011 revdoc Stress on DPOA is often because we don't recognize the dying--we need to teach what dying looks like to learners! #hpm Wed Apr 20 18:39:50 PDT 2011 PracticalWisdom RT @drpippa: Need 3 address MD side. Why do so many insist aggressive, curative is only legit model of care? We can model alternatives #HPM Wed Apr 20 18:40:01 PDT 2011 equijada @drpippa modeling is our best model. #hpm Wed Apr 20 18:40:01 PDT 2011 mpf2011 #hpm Unfortunately, even if pts sign an AD, the family hasn't talked to the pt. They don't want to let go despite a "piece of paper." Wed Apr 20 18:40:01 PDT 2011 equijada t3 coming up in a min or so. #hpm Wed Apr 20 18:40:20 PDT 2011 drpippa RT @revdoc: Stress on DPOA is often because we dont recognize the dying--we need to teach what dying looks like to learners! #Hpm
  • 12. need to teach what dying looks like to learners! #Hpm Wed Apr 20 18:40:23 PDT 2011 equijada RT @revdoc: Stress on DPOA is often because we dont recognize the dying--we need to teach what dying looks like to learners! #hpm Wed Apr 20 18:41:04 PDT 2011 mpf2011 #hpm So much better if the talk is fully documented (and sometimes taped). Family members present too. Wed Apr 20 18:41:07 PDT 2011 drpippa Deep thoughts for a weds. RT @equijada: @drpippa modeling is our best model. #Hpm Wed Apr 20 18:41:10 PDT 2011 PracticalWisdom T2: I so Strongly Believe we so need you Pal MD's to gather more Power/Recognition/Understanding to help prevent this from happening. #HPM Wed Apr 20 18:41:27 PDT 2011 revdoc Not many families would advocate for aggressive care they can't even spell if docs did not tell them their loved ones needed it #hpm Wed Apr 20 18:41:42 PDT 2011 equijada @drpippa lol! Sincerely, Stuart Handy. #hpm Wed Apr 20 18:41:44 PDT 2011 KathyKastner Gr8 ideas RT @mpf2011: #hpm So much better if the talk is fully documented (and sometimes taped). Family members present too. Wed Apr 20 18:41:58 PDT 2011 KathyKastner RT @revdoc: Stress on DPOA is often because we don't recognize the dying--we need to teach what dying looks like to learners! #hpm Wed Apr 20 18:42:19 PDT 2011 mpf2011 @PracticalWisdom When I was an ICU nurse, before becoming an atty, curative tx was the only option. #HPM Wed Apr 20 18:42:30 PDT 2011 gailliardadults RT @doclake: The New Old Age: A Mother’s Nighttime Rage http://is.gd/ciHsMe delirium #hpm Wed Apr 20 18:42:36 PDT 2011 equijada @KathyKastner @mpf2011 I end up just placing "quotes" in my note and just type out the narrative. #hpm Wed Apr 20 18:42:48 PDT 2011 PracticalWisdom RT@KathyKastner:Gr8 ideas RT @mpf2011: #hpmSo much better if talk is fully documented (and sometimes taped). Family members present 2. #HPM Wed Apr 20 18:42:58 PDT 2011 KathyKastner RT @mpf2011: #hpm So much better if the talk is fully documented (and sometimes taped). Family members present too.#eldercarechat Wed Apr 20 18:43:11 PDT 2011
  • 13. PracticalWisdom RT @equijada: @KathyKastner @mpf2011 I end up just placing "quotes" in my note and just type out the narrative. #HPM Wed Apr 20 18:43:29 PDT 2011 mpf2011 @PracticalWisdom I think docs see Palli as "giving up" which is shown by saying "there's nothing more we can do." Should add "to cure." #HPM Wed Apr 20 18:43:46 PDT 2011 equijada t3: How has caring for those in death and dying effected your personal life? I think about this a lot #hpm Wed Apr 20 18:43:56 PDT 2011 PracticalWisdom @PracticalWisdom @KathyKastner @mpf2011: Maybe include a section in a persons Facebook Page. #HPM Wed Apr 20 18:44:09 PDT 2011 FMDGirl health care providers need more education on process of dying, if they are scared of it- they will practice heroic measures #HPM Wed Apr 20 18:44:42 PDT 2011 joshgriffin RT @FMDGirl: health care providers need more education on process of dying, if they are scared of it- they will practice heroic measures #HPM Wed Apr 20 18:45:11 PDT 2011 KathyKastner RT @mpf2011: @PracticalWisdom I think docs see Palli as "giving up" which is shown by saying "there's nothing more we can do." Should add "to cure." #HPM Wed Apr 20 18:45:13 PDT 2011 equijada RT @FMDGirl: health care providers need more education on process of dying, if they are scared of it-they will practice heroic measures #hpm Wed Apr 20 18:45:16 PDT 2011 drpippa T3 - absoultely would not do what I do if it were not for my personal experiences. #Hpm Wed Apr 20 18:45:27 PDT 2011 PracticalWisdom @mpf2011 Yes, the Cure sometimes is Enough is Enough. #HPM Wed Apr 20 18:45:28 PDT 2011 mpf2011 #hpm Our culture is trained by tv commercials to believe there is a cure (pill) for everything. We don't accept death well as part of life. Wed Apr 20 18:45:35 PDT 2011 KathyKastner RT @mpf2011: #hpm Our culture is trained by tv commercials to believe there is a cure (pill) for everything. We don't accept death well as part of life. Wed Apr 20 18:45:52 PDT 2011 equijada DITTO! It's changed my life RT @drpippa: T3 - absoultely would not do what I do if it were not for my personal experiences. #hpm Wed Apr 20 18:46:10 PDT 2011 #HPM There is still a lingering fear of litigation, I think. Despite documentation of pt
  • 14. #HPM There is still a lingering fear of litigation, I think. Despite documentation of pt mpf2011 wishes. Wed Apr 20 18:46:20 PDT 2011 FMDGirl t3 I am no longer afraid of death or dying #HPM Wed Apr 20 18:46:37 PDT 2011 hospiceMTBC t3: (Hi, folks!) Working in #hpm helps me enjoy the moment & go with the flow more in my life. Wed Apr 20 18:47:33 PDT 2011 revdoc I elected artificial feed 4 my father s/p ICH, leading to 8.5 yrs of disability, then death from ruptured appy. HPM kept me sane. #hpm Wed Apr 20 18:47:35 PDT 2011 equijada t3: I've seen love in action. It absolutely blows my mind. #hpm Wed Apr 20 18:47:42 PDT 2011 KathyKastner RT @Paulflevy: Palli Care on WIHI: Palli Care = Quali Care 21/4,2:- 3PM Eastern TimeGue... http://bit.ly/ggJqEB #hpm Wed Apr 20 18:47:49 PDT 2011 revdoc RT @FMDGirl: t3 I am no longer afraid of death or dying. THERE ARE A LOT WORSE THINGS THAN DEAD #hpm Wed Apr 20 18:47:55 PDT 2011 FMDGirl Have learned there can be dignity in death #HPM Wed Apr 20 18:47:58 PDT 2011 mpf2011 #hpm Plus docs tend to focus on their "body system" so nephro says to family "kidneys are better today" and they hear "pt is better." Wed Apr 20 18:48:05 PDT 2011 equijada @hospiceMTBC hi, welcome. I love the moment. #hpm Wed Apr 20 18:48:16 PDT 2011 KathyKastner AMEN RT @revdoc: RT @FMDGirl: t3 I am no longer afraid of death or dying. THERE ARE A LOT WORSE THINGS THAN DEAD #hpm Wed Apr 20 18:48:25 PDT 2011 PracticalWisdom Seen this so many times. Courage Too!RT @FMDGirl: Have learned there can be dignity in death #HPM Wed Apr 20 18:48:43 PDT 2011 PracticalWisdom RT @equijada: t3: Ive seen love in action. It absolutely blows my mind. #HPM Wed Apr 20 18:48:54 PDT 2011 FMDGirl @revdoc @FMDGirl you can say that again- why as a society are we so afraid- is because people are afraid of hell? Religion play a part? #HPM Wed Apr 20 18:49:18 PDT 2011
  • 15. equijada t3: I've learned about my Higher Power #hpm Wed Apr 20 18:49:24 PDT 2011 PracticalWisdom RT @equijada: DITTO! Its changed my life RT @drpippa: T3 absoultely would not do what I do if it were not 4 my personal experiences. #HPM Wed Apr 20 18:49:25 PDT 2011 revdoc I have seen healings, reconciliation, courage, love--I should PAY to do this work. (But don't tell my boss, I have a mortgage) #hpm Wed Apr 20 18:50:21 PDT 2011 PracticalWisdom Accept the things I cannot change Keeps me balanced. RT @equijada: t3: Ive learned about my Higher Power #HPM Wed Apr 20 18:50:27 PDT 2011 drpippa Sometimes miracles. RT @equijada: t3: Ive seen love in action. It absolutely blows my mind. #Hpm Wed Apr 20 18:50:38 PDT 2011 equijada @FMDGirl @revdoc just finished reading Love Wins by Rob Bell re: hell. Religion has done a disservice #hpm Wed Apr 20 18:50:43 PDT 2011 mpf2011 #hpm It is the HPM team that has 2 teach how 2 see pt holistically, rather thn the sum of body systems. LOOK at the pt. not go thru motions. Wed Apr 20 18:50:43 PDT 2011 revdoc @FMDGirl Not always, but that can be one aspect. People not grounded in anything besides here and now #hpm Wed Apr 20 18:50:59 PDT 2011 revdoc RT @equijada: just finished reading Love Wins by Rob Bell re: hell. Religion has done a disservice [not all of us are like that!] #hpm Wed Apr 20 18:51:36 PDT 2011 PracticalWisdom T3: Was a clergy Wife for 13 years. Have seen families in their last moments at Re: worst and best. Learned not to sweat small Stuff #HPM Wed Apr 20 18:51:39 PDT 2011 AmandaBinDC RT @ctsinclair: Pain-Topics.org News/Research UPDATES: U.S. FDA Releases Long-Awaited Opioid-REMS http://hpm.md/g2AncC #HPM Wed Apr 20 18:51:49 PDT 2011 RossJeanette T3 I feel very priviledged in working with people at a difficult time. It makes my problems seem minor. #hpm Wed Apr 20 18:51:58 PDT 2011 KathyKastner RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by Rob Bell re: hell. Religion has done a disservice #hpm Wed Apr 20 18:52:13 PDT 2011 Book Club? RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by
  • 16. Book Club? RT @equijada: @FMDGirl @revdoc just finished reading Love Wins by PracticalWisdom Rob Bell re: hell. Religion has done a disservice #HPM Wed Apr 20 18:52:31 PDT 2011 FMDGirl @revdoc @FMDGirl great point- I brought that up because when I was a child I was so scared of death, sunday school...impressionable #HPM Wed Apr 20 18:52:45 PDT 2011 PracticalWisdom @equijada @FMDGirl @revdoc: What was the main Lesson? #HPM Wed Apr 20 18:53:02 PDT 2011 SheyontheBay @equijada wow.... #hpm Wed Apr 20 18:53:05 PDT 2011 hospiceMTBC T3: Denial=suffering, letting go=peace. #hpm Wed Apr 20 18:53:17 PDT 2011 FMDGirl @KathyKastner @equijada @FMDGirl @revdoc I will have to read it! #HPM Wed Apr 20 18:53:23 PDT 2011 equijada @FMDGirl @revdoc totally. #hpm Wed Apr 20 18:53:41 PDT 2011 phlu RT @doclake: Power poses vs. Warmth poses-good research that applies to the way a #hpm practitioner interacts @ the bedside http://is.gd ... Wed Apr 20 18:53:48 PDT 2011 PracticalWisdom T3: Learned we can be alive but Dead. #HPM Wed Apr 20 18:54:00 PDT 2011 equijada @FMDGirl check it out. History is not tragic, in the end, love wins. #hpm Wed Apr 20 18:54:02 PDT 2011 FMDGirl @hospiceMTBC you said it well #HPM Wed Apr 20 18:54:07 PDT 2011 PracticalWisdom RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM Wed Apr 20 18:54:21 PDT 2011 revdoc RT @PracticalWisdom: What was the main Lesson? We have only the present: laugh, love, do your best, don't trade today waiting 4 2morro #hpm Wed Apr 20 18:54:52 PDT 2011 PracticalWisdom Idea to read book discuss on #HPM later time? RT @FMDGirl: @KathyKastner @equijada @FMDGirl @revdoc I will have to read it! #HPM Wed Apr 20 18:55:00 PDT 2011 RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM
  • 17. RT @hospiceMTBC: T3: Denial=suffering, letting go=peace. #HPM Wed Apr 20 18:55:02 PDT 2011 FMDGirl RossJeanette got to leave now! goodbye nice tweetchat hosting Earl! #hpm Wed Apr 20 18:55:10 PDT 2011 equijada @equijada @FMDGirl it's this out of this world love I see at the bedside of death (on occasion). #hpm Wed Apr 20 18:55:36 PDT 2011 FMDGirl @PracticalWisdom @FMDGirl @KathyKastner @equijada @FMDGirl @revdoc Iam in! #HPM Wed Apr 20 18:55:47 PDT 2011 PracticalWisdom Thank you! RT @revdoc: RT @PracticalWisdom: We have only the present:laugh/love/do your best, dont trade 2day waiting 4 2morro #HPM Wed Apr 20 18:55:54 PDT 2011 drpippa Love this idea!RT @PracticalWisdom: Idea to read book discuss on #HPM later time? ! #Hpm Wed Apr 20 18:55:57 PDT 2011 mpf2011 #HPM Sadly, ppl don't know how hard it is to take away treatment once started. If u can't breathe, pee or eat on your own, u r dying!! Wed Apr 20 18:55:58 PDT 2011 equijada Final thoughts and parting words of wisdom...Thanks all. #hpm Wed Apr 20 18:56:02 PDT 2011 PracticalWisdom Good Night Thanks RT @RossJeanette: got to leave now! goodbye nice tweetchat hosting Earl! #HPM Wed Apr 20 18:56:07 PDT 2011 equijada @RossJeanette good to see you again. Thanks for coming. #hpm Wed Apr 20 18:56:18 PDT 2011 FMDGirl forgiveness and acceptance and death comes peacefully #HPM Wed Apr 20 18:56:43 PDT 2011 PracticalWisdom @FMDGirl: Lam In? I don't get it? #HPM Wed Apr 20 18:56:46 PDT 2011 KathyKastner Too true! RT @mpf2011: #HPM Sadly, ppl don't know how hard it is to take away treatment once started. #eldercarechat Wed Apr 20 18:56:57 PDT 2011 PracticalWisdom RT @KathyKastner: Too true! RT @mpf2011: #HPM Sadly, ppl dont know how hard it is to take away treatment once started. #eldercarechat #HPM Wed Apr 20 18:57:27 PDT 2011
  • 18. PracticalWisdom RT @FMDGirl: forgiveness and acceptance and death comes peacefully #HPM Wed Apr 20 18:57:31 PDT 2011 FMDGirl @PracticalWisdom @FMDGirl opps- I am in- read the book and chat- pick a date :) #HPM Wed Apr 20 18:57:38 PDT 2011 revdoc Thanks for hosting, Earl! #hpm Wed Apr 20 18:57:42 PDT 2011 equijada RT @FMDGirl: forgiveness and acceptance and death comes peacefully #hpm Wed Apr 20 18:57:49 PDT 2011 PracticalWisdom T3: I'm afraid to live in Pain don't think I'm afraid to die. #HPM Wed Apr 20 18:57:53 PDT 2011 hospiceMTBC Thank you, all, for the work you do & the passion you bring to the bedside. #hpm Wed Apr 20 18:57:55 PDT 2011 equijada @revdoc thanks for coming. #hpm Wed Apr 20 18:58:28 PDT 2011 PracticalWisdom @hospiceMTBC: Thank you!!!! #HPM Wed Apr 20 18:58:46 PDT 2011 FMDGirl RT @hospiceMTBC: Thank you, all, for the work you do & the passion you bring to the bedside. #HPM Wed Apr 20 18:58:51 PDT 2011 drpippa @equijada thanks for a night of thought and feeling! Great hosting. #Hpm Wed Apr 20 18:58:55 PDT 2011 KathyKastner Final thoughts: thanks Earl @equijada for gr8 hosting. Thanks to all #hpm-ers for the learning. Wed Apr 20 18:59:13 PDT 2011 mpf2011 #HPM Thanks everyone. Great chat. Wed Apr 20 18:59:15 PDT 2011 equijada @drpippa thanks! hope to catch you next week. happy week to you. #hpm Wed Apr 20 18:59:32 PDT 2011 FMDGirl @PracticalWisdom that is why we need to legalize medical marijuana #HPM Wed Apr 20 18:59:41 PDT 2011 equijada Good night all. Thanks again! #hpm Wed Apr 20 19:00:06 PDT 2011
  • 19. Wed Apr 20 19:00:06 PDT 2011 kathydavisku Catrina Lootens and Marilyn Sampilo sentn in great proposal to SDBP on student school reentry for kids with chronic conditions. #pedpc #hpm Wed Apr 20 19:00:13 PDT 2011 KUKidsHP Catrina Lootens and Marilyn Sampilo sent in great proposal to SDBP on student school reentry for kids with chronic conditions. #pedpc #hpm Wed Apr 20 19:00:13 PDT 2011 PracticalWisdom So complicated. I'm neutral on this 1 but not Pt RightsRT @FMDGirl: @PracticalWisdom that is why we need to legalize medical marijuana #HPM Wed Apr 20 19:00:28 PDT 2011 revdoc Goodnight, all! Blessings of Passover and Easter to my Jewish and Christian friends! #hpm Wed Apr 20 19:00:37 PDT 2011 amyrnbsn RT @FMDGirl: health care providers need more education on process of dying, if they are scared of it- they will practice heroic measures #HPM Wed Apr 20 19:00:44 PDT 2011 FMDGirl Wow! That was the fastest tweet hour ever- you picked all my favorite topics! Thank you everyone for your wisdom. #HPM Wed Apr 20 19:00:49 PDT 2011 FMDGirl @revdoc thank you for inspiring words, it was a pleasure to meet you. #HPM Wed Apr 20 19:01:32 PDT 2011 revdoc @FMDGirl @revdoc You too! #hpm Wed Apr 20 19:02:07 PDT 2011 PracticalWisdom @equijada: Thank you for Hosting tonight. You added your own Flavor/Wisdom. Having different Hosts I think adds a great deal! Thanks #HPM Wed Apr 20 19:02:10 PDT 2011 PracticalWisdom AGree 100RT @FMDGirl: Wow! That was the fastest tweet hour ever- you picked all my favorite topics! Thank you everyone for your wisdom. #HPM Wed Apr 20 19:02:23 PDT 2011 PracticalWisdom Agree! RT @FMDGirl: @revdoc thank you for inspiring words, it was a pleasure to meet you. #HPM Wed Apr 20 19:02:33 PDT 2011 PracticalWisdom @FMDGirl Tonight makes me realize how much I've missed you. O.K. enough mushy Gooshy from me. My Amazing Friend. #HPM Wed Apr 20 19:03:17 PDT 2011 PracticalWisdom Quaker Girl Say Keeping in the LIght! RT @revdoc: Goodnight, all! Blessings of Passover and Easter to my Jewish and Christian friends! #HPM Wed Apr 20 19:04:21 PDT 2011
  • 20. FMDGirl @PracticalWisdom Miss you too! I was so excited when I saw your tweet about #HPM I so happy I follow you! Your awesome Lisa! Wed Apr 20 19:04:40 PDT 2011