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Ignorance and Misinformation Wreak
              Havoc

   HIV/AIDS in the Workplace in Québec
              René Légaré
            CANAC March 2011
Background


• High rates of discrimination
• Systemic problem
• Difficult to have this issue acknowledged by
  elected representatives
Objectives

•       Test the hypothesis
    –     PLWHIV face discrimination in gaining access to
          and retaining employment


•       Compare persons living with HIV (PLWHIV) to
        persons living with another chronic and
        episodic illness (PLWCEI)
Methodology
• Two surveys:
  – Telephone survey of 1054 Quebecers, margin of error
    ± 3.02% (19 times out of 20)

  – 111 business decision-makers completed an online
    questionnaire, maximum margin of error ± 9.3% (19
    times out of 20)
     • Non-random sample
     • Diversity of respondents enabled a representative portrait of
       business people to be drawn
     • More relevant responses because of the respondents’
       interest
Methodology
• Structure of the telephone survey
  –   Knows or does not know a PLWCEI
  –   Level of knowledge about HIV
  –   Hiring/employment questionnaires
  –   Workplace environnement
       • PLWCEI
       • PLWHIV
  – Hypothetical situations
  – Demographic profile
Methodology

• Online questionnaire
  –   Hiring process
  –   Management of group insurance
  –   Knowledge about HIV
  –   Demographic profile
Telephone Survey

          Knew a PLWCEI or PLWHIV, or lives WCEI


60,00%
50,00%
40,00%
30,00%
20,00%
10,00%
 0,00%
         Knew PLWCEI       Knew PLWHIV        Lives WCEI
Telephone Survey
             Level of knowledge about HIV/AIDS


80
70
60
50
40
30
20
10
 0
     Said Could define HIV/AIDS     Defined them correctly
Telephone Survey
                   Sources of information on HIV


10

9

8

7

6

5
     Health professionals        ASO               Government
Telephone Survey

  Hiring questionnaire
Telephone Survey

                       Hiring questionnaire



     Fear


  Honesty


Obligation


             0    10          20         30   40   50
Telephone Survey
                Workplace environment

100
 90
80
70
60
50                                               No
40                                               Yes
30
20
10
 0
      Works with PLWCEI      Works with PLWHIV
Telephone Survey
                        Workplace environment

50
45
40
35
30
25                                                      PLWCEI
20                                                      PLWHIV
15
10
5
0
     Self‐disclosure    Gossip   Medication     Other
Telephone Survey

Attitude of others employees
Telephone Survey

                    My own attitude

120

100

80

60                                              PLWCEI
                                                PLWHIV
40

20

 0
      Comfortable               Uncomfortable
Telephone Survey

• Hypothetical situations
  – 42% would be concerned if they were to learn that a
    co-worker with whom they have frequent dealings
    was HIV-positive

  – 16% would inform their co-workers
Telephone survey

• Hypothetical situations
  – 44% felt it was important to know if they are working
    with an HIV-positive person
     • Reasons:
        – I have the right to know: 62%
        – I’m afraid of catching it: 29%

  – 78% said that their attitude would not change if they
    learned that they were working with a PLWHIV
Online Survey

• Hiring process
  – 58% of respondents stated that learning that a candidate had a
    chronic disease would influence their decision whether or not to
    hire that person
  – 64% would feel uncomfortable around people with HIV/AIDS
  – 33% thought they would react negatively if they learned that an
    employee living with HIV/AIDS had not disclosed his/her status
    in a hiring questionnaire with a question about the subject
  – 40% would not hire a PLWHIV
Online Survey

• Insurance premiums

  – 33% state that their group insurance premiums increased due to
    the presence of a PLWCEI or PLWHIV

  – 45% state that they knew details of claims made by employees
      • 24% knew the names of people taking medication


  – 77% said that they would try to learn the reasons justifying an
    increase in insurance premiums that would occur following the
    hiring of a new employee
Online Survey

•   Negative reactions to non-disclosure of the HIV-positive status of a
    candidate (33%)

     – “That information should be disclosed. [There would be a] loss of
       confidence in the employee.”
     – “Very upset!!! I would be sure to find out what kinds of recourse we
       have.”
     – “False statement at hiring –seriously weakened relationship of trust.”
     – “I would feel like I had been betrayed.”
     – “Whatever the disease, hiding information gives a very bad impression
       of the candidate, and in any case, the insurance company would
       demand such information.”
     – “In my opinion, it is a false declaration, which would be unpardonable in
       the framework of the work to be done in my department.”
Online Survey

•   Accommodating reactions to non-disclosure of a candidate’s HIV-
    positive status (33%)

    – “It would definitely be necessary to sit down with that employee to make
      him understand that honesty and transparency reign at our company.
      Afterward, it would be a good idea to set up an appropriate prevention
      process, given the employee’s medical condition. Once it has been
      established, we would also have to inform the employee of the process
      to make him aware of the possible implications and to determine
      whether he is comfortable with it. The objective would be to respect the
      employee with HIV/AIDS, while taking preventive measures to protect
      the other employees in the company.”
    – “If he were a high-quality candidate, I would take into consideration the
      stage of his disease. I would discuss the frequency of treatment with
      him and see whether it was incompatible with the work to be done.”
Online Survey

•   The person living with HIV is responsible for the social perceptions
    about HIV

     – “I don’t know, but that would probably tell me something about his level
       of integrity. But, it’s his private life and if it doesn’t negatively affect his
       tasks, he could function very well despite it.”
     – “If that person is serious and reasonable, she would disclose her status
       even if no one asked.”
     – “Makes no difference to me, since I wouldn’t ask a specific question
       about it. What counts for me is trustworthiness and integrity, so I would
       expect the candidate to be honest.”
     – “I would understand the situation and his fear, given the frequent
       prejudices against HIV/AIDS, but I would wonder—if he lied about that,
       did he also lie about other things.”
Discussion

• Level of knowledge when it comes to talking
  about HIV in the workplace
• Education curriculum of all health professionals
• Employment or hiring questionnaires
• Workplace environment
• PLWHIV responsible for social perceptions
Conclusion

• PLWHIV and PLWCEI may experience
  discrimination in gaining access to and retaining
  employment
  – Systemic problems
• PLWHIV face more stigmatization in the
  population than PLWCEI
• Ignorance and misinformation still quite high
Acknowledgements
• My colleagues
  –   Stéphanie Claivaz-Loranger
  –   Gayas Fadel
  –   Mélina Bernier
  –   Marianne Beaulieu
• Axiome Marketing
• Bristol Myers-Squibb Canada
  – Unconditional funding

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Ignorance and misinformation wreak havoc canac2011

  • 1. Ignorance and Misinformation Wreak Havoc HIV/AIDS in the Workplace in Québec René Légaré CANAC March 2011
  • 2. Background • High rates of discrimination • Systemic problem • Difficult to have this issue acknowledged by elected representatives
  • 3. Objectives • Test the hypothesis – PLWHIV face discrimination in gaining access to and retaining employment • Compare persons living with HIV (PLWHIV) to persons living with another chronic and episodic illness (PLWCEI)
  • 4. Methodology • Two surveys: – Telephone survey of 1054 Quebecers, margin of error ± 3.02% (19 times out of 20) – 111 business decision-makers completed an online questionnaire, maximum margin of error ± 9.3% (19 times out of 20) • Non-random sample • Diversity of respondents enabled a representative portrait of business people to be drawn • More relevant responses because of the respondents’ interest
  • 5. Methodology • Structure of the telephone survey – Knows or does not know a PLWCEI – Level of knowledge about HIV – Hiring/employment questionnaires – Workplace environnement • PLWCEI • PLWHIV – Hypothetical situations – Demographic profile
  • 6. Methodology • Online questionnaire – Hiring process – Management of group insurance – Knowledge about HIV – Demographic profile
  • 7. Telephone Survey Knew a PLWCEI or PLWHIV, or lives WCEI 60,00% 50,00% 40,00% 30,00% 20,00% 10,00% 0,00% Knew PLWCEI Knew PLWHIV Lives WCEI
  • 8. Telephone Survey Level of knowledge about HIV/AIDS 80 70 60 50 40 30 20 10 0 Said Could define HIV/AIDS Defined them correctly
  • 9. Telephone Survey Sources of information on HIV 10 9 8 7 6 5 Health professionals ASO Government
  • 10. Telephone Survey Hiring questionnaire
  • 11. Telephone Survey Hiring questionnaire Fear Honesty Obligation 0 10 20 30 40 50
  • 12. Telephone Survey Workplace environment 100 90 80 70 60 50 No 40 Yes 30 20 10 0 Works with PLWCEI Works with PLWHIV
  • 13. Telephone Survey Workplace environment 50 45 40 35 30 25 PLWCEI 20 PLWHIV 15 10 5 0 Self‐disclosure Gossip Medication Other
  • 14. Telephone Survey Attitude of others employees
  • 15. Telephone Survey My own attitude 120 100 80 60 PLWCEI PLWHIV 40 20 0 Comfortable Uncomfortable
  • 16. Telephone Survey • Hypothetical situations – 42% would be concerned if they were to learn that a co-worker with whom they have frequent dealings was HIV-positive – 16% would inform their co-workers
  • 17. Telephone survey • Hypothetical situations – 44% felt it was important to know if they are working with an HIV-positive person • Reasons: – I have the right to know: 62% – I’m afraid of catching it: 29% – 78% said that their attitude would not change if they learned that they were working with a PLWHIV
  • 18. Online Survey • Hiring process – 58% of respondents stated that learning that a candidate had a chronic disease would influence their decision whether or not to hire that person – 64% would feel uncomfortable around people with HIV/AIDS – 33% thought they would react negatively if they learned that an employee living with HIV/AIDS had not disclosed his/her status in a hiring questionnaire with a question about the subject – 40% would not hire a PLWHIV
  • 19. Online Survey • Insurance premiums – 33% state that their group insurance premiums increased due to the presence of a PLWCEI or PLWHIV – 45% state that they knew details of claims made by employees • 24% knew the names of people taking medication – 77% said that they would try to learn the reasons justifying an increase in insurance premiums that would occur following the hiring of a new employee
  • 20. Online Survey • Negative reactions to non-disclosure of the HIV-positive status of a candidate (33%) – “That information should be disclosed. [There would be a] loss of confidence in the employee.” – “Very upset!!! I would be sure to find out what kinds of recourse we have.” – “False statement at hiring –seriously weakened relationship of trust.” – “I would feel like I had been betrayed.” – “Whatever the disease, hiding information gives a very bad impression of the candidate, and in any case, the insurance company would demand such information.” – “In my opinion, it is a false declaration, which would be unpardonable in the framework of the work to be done in my department.”
  • 21. Online Survey • Accommodating reactions to non-disclosure of a candidate’s HIV- positive status (33%) – “It would definitely be necessary to sit down with that employee to make him understand that honesty and transparency reign at our company. Afterward, it would be a good idea to set up an appropriate prevention process, given the employee’s medical condition. Once it has been established, we would also have to inform the employee of the process to make him aware of the possible implications and to determine whether he is comfortable with it. The objective would be to respect the employee with HIV/AIDS, while taking preventive measures to protect the other employees in the company.” – “If he were a high-quality candidate, I would take into consideration the stage of his disease. I would discuss the frequency of treatment with him and see whether it was incompatible with the work to be done.”
  • 22. Online Survey • The person living with HIV is responsible for the social perceptions about HIV – “I don’t know, but that would probably tell me something about his level of integrity. But, it’s his private life and if it doesn’t negatively affect his tasks, he could function very well despite it.” – “If that person is serious and reasonable, she would disclose her status even if no one asked.” – “Makes no difference to me, since I wouldn’t ask a specific question about it. What counts for me is trustworthiness and integrity, so I would expect the candidate to be honest.” – “I would understand the situation and his fear, given the frequent prejudices against HIV/AIDS, but I would wonder—if he lied about that, did he also lie about other things.”
  • 23. Discussion • Level of knowledge when it comes to talking about HIV in the workplace • Education curriculum of all health professionals • Employment or hiring questionnaires • Workplace environment • PLWHIV responsible for social perceptions
  • 24. Conclusion • PLWHIV and PLWCEI may experience discrimination in gaining access to and retaining employment – Systemic problems • PLWHIV face more stigmatization in the population than PLWCEI • Ignorance and misinformation still quite high
  • 25. Acknowledgements • My colleagues – Stéphanie Claivaz-Loranger – Gayas Fadel – Mélina Bernier – Marianne Beaulieu • Axiome Marketing • Bristol Myers-Squibb Canada – Unconditional funding