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Appeal Conference 08
1. APPEAL
Training Conference
Herberman Conference Center
Pittsburgh, Pennsylvania
April 18-19, 2008
A Progressive Palliative Care Educational Curriculum for the Care of African Americans at Life’s End
2. COMPASSIONATE CARE FOR ALL PLANNING AND ADVISORY COMMITTEE
David Barnard
Department of Medicine
University of Pittsburgh
Judith Black
Highmark, Inc.
Rashida Brookins
The Islamic Center of Pittsburgh
Thuy Bui
University of Pittsburgh School of Medicine
Rev. Randy Bush
East Liberty Presbyterian Church
Phyllis Chaffin
Presbyterian SeniorCare
Rev. Carol Divens Roth
Community Presbyterian Church of Ben Avon
Annette Dula
Center for Bioethics and Health Law
University of Pittsburgh
Stacey Edick
Chatham University
Andrea Fox
Squirrel Hill Health Center
Rev. Richard Freeman
Pastoral Services
Children’s Hospital of Pittsburgh
Rev. Don Green
Christian Associates of Southwestern Pennsylvania
Fatemeh Hashtroudi
Presbyterian Senior Care
Paige Hepple
Institute to Enhance Palliative Care
University of Pittsburgh
James Joyce
Vitas Hospice
Rev. Darnell Leonard
East End Community Ministries
Ada Milliner
Heritage Valley Health System
Rev. Johnnie Monroe
Grace Memorial Presbyterian Church
Libby Moore
Heritage Valley Health System
Rev. Ed Pehanich
Family Hospice and Palliative Care
Andrew Rind
United Way of Allegheny County
Presented By
Lyn Robertson
UPMC Cancer Centers
Darlene Sampson
Pennsylvania Council on Aging
Department of Aging
Ana Scanlon
Chatham University
Rev. Tom Spencer
Lincoln Avenue Church of God
Rev. Eugene Turner
The Way, Truth, and Life Ministries of Pittsburgh
Rev. John Welch
Pittsburgh Theological Seminary
Nancy Zionts
Jewish Healthcare Foundation
3. MESSAGE OF WELCOME
April 18, 2008
Dear Colleagues:
I am delighted to welcome you to APPEAL (A Progressive Palliative Care
Educational Curriculum for Care of African Americans at Life’s End. There
are several reasons why we are privileged to participate together in this
conference over the next two days.
First and most important, participating in APPEAL signals our recognition that the
promise of state-of-the-art, culturally appropriate palliative care has yet to be fulfilled
for everyone in our community who could benefit from it. The work we will do together
during this conference is a down payment on our continuing professional commitment to
fulfilling the promise of compassionate care for all.
Second, by bringing this nationally recognized curriculum to Pittsburgh, the Coalition
for Quality and the End of Life of Western Pennsylvania (CQEL) is pursuing one of its
major goals for this year, namely to overcome persistent racial and ethnic disparities in
quality and access to palliative care. This goal, which is the primary objective of CQEL’s
2008 campaign, Compassionate Care for All, has also been endorsed in the Final Report
of the Governor’s Task Force on Quality at the End of Life in Pennsylvania. CQEL, whose
members contributed significantly to the work of the Task Force, is proud to do its part to
realize the goals set forth in that Report.
Finally, CQEL and the Institute to Enhance Palliative Care at the University of Pittsburgh
are collaborating with the Duke Institute on Care at the End of Life to present the
Pittsburgh APPEAL Conference. We are pleased to have been invited to join Duke’s
Institute and its distinguished faculty and staff in expanding APPEAL’s reach to health
professionals across the country. Let us dedicate the next two days to making this
collaboration bear fruit in the form of renewed and reinvigorated efforts to ensure
compassionate care for all.
Sincerely,
David Barnard, PhD, JD
Director, Institute to Enhance Palliative Care
Chair, Coalition for Quality at the End of Life
4. April 18, 2008
7:30 a.m. – 8:30 a.m. Continental Breakfast & Registration
8:30 a.m. – 9:30 a.m. Death & Dying in African American Communities: An Overview
Richard Payne, M.D.
9:30 a.m. – 10:15 a.m. Quality End-of-Life Care
AGENDA
Kimberly Johnson, M.D.
10:15 a.m. – 10:35 a.m. BREAK
10:35 a.m. -12:05 p.m. Comprehensive Patient Evaluation
Bethsheba Johnson, APN, BC
12:05 p.m. – 1:20 p.m. LUNCH and Action Plan Team Meetings
1:20 p.m. – 2:35 p.m. Culturally Appropriate Communication
Bethsheba Johnson, A.P.N., B.C.
2:35 p.m. – 2:55 p.m. BREAK
2:55 p.m. – 3:55 p.m. Fundamentals of Hospice Care
Ursula Robinson, LCSW, MSW
3:55 p.m. – 4:45 p.m. Local Faculty Q & A Session
Dr. Susan Hunt
4:45 p.m. BREAK - Hors D’Oeuvres
5:30 p.m. Dinner
6:30 p.m.-8:30 p.m. Performance and Discussion
A dramatic reading of Vesta by Open Stage Theatre
Vesta, a warm and often humorous Bryan Harnetiaux play, examines an ordinary family’s ups and downs
as they struggle with the illness and loss of their matriarch, named Vesta. After the production, an
audience talk-back session will explore issues highlighted in the play.
April 19, 2008
8:00 a.m.- 8:30 a.m. Continental Breakfast
8:30 a.m. – 10:00 a.m. Pain Treatment and Racial Disparities
Richard Payne, MD
10:00 a.m. – 10:20 a.m. BREAK
10:20 a.m. – 11:35 a.m. Patient-Centered Decision Making
Kimberly Johnson, MD
11:35 a.m. -12:45 p.m. LUNCH
12:45 p.m. – 2:45 p.m. Spirituality in End-of-Life Care
Kimberly Johnson, MD
Pastor Corey L. Kennard, M.A.C. M.
2:45 p.m. – 3:30 p.m. Faculty Panel Q & A Session
Richard Payne, Kimberly Johnson, Bethsheba Johnson,
Ursula Robinson, and special guest Rev. John C. Welch
5. Dr. Susan Hunt
Dr. Susan Hunt is a General Internist who was the founder of
the University of Pittsburgh’s HIV Center and has maintained
an Internal Medicine Practice throughout her career. She is a
REGIONAL FACULTY
clinician-educator, well-known for excellence in HIV-related care
and Internal Medicine. She now devotes more time to clinical
work and teaching in the Section of Palliative Care and Medical
Ethics and the Division of General Internal Medicine at the
University of Pittsburgh.
A member of the Executive Committee of the Medical Staff, UPMC Presbyterian
Hospital, Dr. Hunt has been recognized for her leadership in health care in
Pittsburgh and has been named to the Pennsylvania Honor Roll of Women. She is a
fellow in the American College of Physicians. She earned her medical degree from
the University of Washington at Seattle and completed residency training in Internal
Medicine at the University of Pittsburgh. She also completed Harvard Medical
School’s, Palliative Care Education and Practice Program.
Rev. John C. Welch
Rev. John C. Welch is the Vice President for Student Services and
Dean of Students at the Pittsburgh Theological Seminary. As a
minister, he served the Bidwell Presbyterian Church in various
ministerial positions from 1999 to 2007 as well as the Victory
Baptist Church and Baptist Temple Church.
He received a Bachelor of Science degree in Chemical
Engineering and Economics from Carnegie-Mellon University
and earned his Masters of Divinity degree from the Pittsburgh Theological
Seminary. He is currently enrolled at Duquesne University pursuing a doctoral
degree in Healthcare Ethics.
Rev. Welch sits on various boards and advisory committees. He served as
Chairperson for the Advisory Board of Centers for Healthy Hearts and Souls,
a spiritual and health-based wellness project meeting the needs of the minority
population with the goal of eliminating health disparities. He has served on the
Advisory Board of the Metro-Urban Institute of Pittsburgh Theological Seminary,
as well as on the Community Research Advisory Board of the University of
Pittsburgh’s Center for Minority Health. Presently Rev. Welch serves as co-Chair of
the Religious Affairs Committee of the Pittsburgh NAACP and is also the President
of the Pittsburgh Interfaith Impact Network. His recent honors include his City
Council appointment to serve on the City of Pittsburgh’s Ethics Hearing Board and
also his recognition by Church Women United, Inc. with their 2007 Human Rights
Award.
6. The Coalition for Quality at the End of Life (CQEL)’s mission is to improve palliative and end-of-
life care for people in Western Pennsylvania by identifying and collaborating with key stakeholder
groups. CQEL works to achieve its mission by engaging the community to increase demand for
better palliative and end-of-life care, building capacity among local health care institutions to
deliver better care, focusing attention on the regulatory and financial barriers to quality care, and
by establishing community measures.
CQEL is made up of leading health systems, providers, insurers, citizen groups, governmental
agencies, and philanthropic, faith-based, and professional organizations concerned about the
quality of care that is available to seriously ill and dying people and their families in Western
Pennsylvania. The Institute to Enhance Palliative Care at the University of Pittsburgh convenes and
is the coalition’s administrative home. CQEL is a committed group of regional health care leaders
and stakeholders, who have joined together to catalyze improved care of critically ill and dying
people and their families in our region.
Organizational Members
Institute to Enhance Palliative Care, University of
Allegheny County Bar Association
Pittsburgh
Allegheny County Department of Human Services,
Jewish Healthcare Foundation
Area Agency on Aging
Magee Women’s Hospital of UPMC
Allegheny County Medical Society
Medical Ethics and Palliative Care Program, UPMC
Allegheny General Hospital, West Penn Allegheny
Shadyside
Health System
Mercy Hospital of Pittsburgh, Pittsburgh Mercy
Bethany Hospice
Health System
Celtic Healthcare
Oncology Nursing Society
Center for Minority Health, University of Pittsburgh
Pediatric Palliative Care Coalition
Children’s Hospital of Pittsburgh
Persad Center, Inc.
City of Pittsburgh, Department of Public Safety, EMS
Pittsburgh Ohio Valley General Hospital
Comprehensive Palliative Care Program, UPMC
Presbyterian SeniorCare
Presbyterian-Montefiore
Sewickley Valley Hospital
Department of Aging, Commonwealth of
Southwestern Pennsylvania Partnership on Aging
Pennsylvania
St. Clair Hospital, Cancer Center
Department of Emergency Medicine, University of
State of Pennsylvania, Department of Health
Pittsburgh
Take Charge of Your Life Partnership
Eastern Area Adult Services
The Children’s Home
Elder Law Offices of Petrich & Sykes, LLC
Tri Community South EMS
Family Hospice and Palliative Care
United Way of Allegheny County
Forbes Hospice
UPMC Cancer Centers
Good Grief Center
UPMC Health Plan
Health America
UPMC PreHospital Care
Helping Hands-Healing Hearts
Vintage, Inc.
Highmark Caring Place, Highmark Caring
Vitas Hospice
Foundation
Washington Hospital and Hospice
Highmark Blue Cross Blue Shield
West Penn Hospital, West Penn Allegheny Health
Hospice and Palliative Nurses Association
System
Hospital Council of Western Pennsylvania
Institute on Aging, University of Pittsburgh
7. PARTNERS IN CONSERVATION: THE ARTISAN PROJECT
Your conference bag was handcrafted by a women’s sewing co-operative in Rwanda, Africa.
These women are genocide survivors and members of Partners In Conservation’s (PIC)
Artisan Project of the Columbus Zoo. The money earned from sewing these bags enables the
artisans to care for their families without using forest resources and will make it possible for
these women to pay the primary school fees for their children for one full year.
PIC was initiated in 1991 by staff and docents at the Columbus Zoo and Aquarium. The
project’s name was selected and two main goals identified: to create holistic educational
programs for children and adults that addressed wildlife and the needs of local people and
to raise money to benefit both conservation and humanitarian projects.
To economically assist local people, PIC started an Artisan Project with one artisan
cooperative in 1995. The successful Artisan Project continues to operate using fair trade
practices. PIC is currently working with 400 people from sixteen co-ops; these men and
women can now care for their families without using forest resources.
For more information about the Artisan Project, please contact:
Partners In Conservation
Columbus Zoo and Aquarium
Phone: 614-724-3619
e-mail: Debbie.Elder@columbuszoo.org
8. Thank you for your support!
LEAd SPonSorS
Jewish Healthcare Foundation
Pennsylvania Department of Aging
UPMC Health Plan
SPonSorS
Highmark Blue Cross Blue Shield
University of Pittsburgh Cancer Institute
W.I. Patterson Charitable Trust
SuPPortErS
The Fine Foundation
Open Stage Theater
Pittsburgh Theological Seminary
Presbyterian Senior Care
Take Charge of Your Life Partnership