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ATTENTION SLIDE SHOW PRESENTER.
        IMPORTANT INFORMATION!
Life! Pass It ON! Is NOT a stand-alone slide show. It
needs a presenter in order for the viewer to get the
complete story. Please click VIEW on your taskbar
then click on NOTES PAGE . When it opens you’ll see
that each slide has notes just below it. The notes
explain how to use each slide, when to click and even
suggested language. You may, of course, use your own
language if you choose to do so as long as it coincides
with what’s on each slide.
                                     © 2012 www.OrganTI.org
Presen ts

  Life!
Pass It On!
              © 2012 www.OrganTI.org
They are dying and they know
   there are not enough
 transplantable organs for
         everyone.
                     © 2012 www.OrganTI.org
Betsy Ross
      (Add a title if you like)
• Liver recipient
• Caregiver
• Mom
• D o n or
                        © 2012 www.OrganTI.org
© 2012 www.OrganTI.org
Annually only 28,000 transplants

  are performed in the United

             States
                      © 2012 www.OrganTI.org
Americans bury or cremate
      about 20,000
  transplantable organs
         yearly.
                   © 2012 www.OrganTI.org
Presen ts

     Life!
Pass It On!
 Written and produced by Bob Aronson
    2007 heart transplant recipient
                                 © 2012 www.OrganTI.org
How many people can one
     donor affect?
Just one blood, tissue or
organ donor can save or
positively affect up to 60
           lives. © 2012 www.OrganTI.org
Face
                                                                  Kidney
              Living donor




                                                                           lungs


                     Caregiver   Kidney recipient with living donor

A new liver


                                                              © 2012 www.OrganTI.org
 113,000 waiting
2 million deaths
 17,000 donors
 7,000 will die waiting
 Becoming a donor costs nothing,
  takes little time and saves lives
                           © 2012 www.OrganTI.org
Register as a Donor Now!
     It’s really easy just go to:

    www.donatelife.net
  And follow the directions
Please -- give the gift of life
                         © 2012 www.OrganTI.org
After you register to be a donor:
 Mark your decision on your driver's license

 Tell your family about your decision
 Tell your physician, faith leader, and friends

 Include donation in your will, and living will

                                © 2012 www.OrganTI.org
The agony of waiting

  There are only about 28, 000
transplants performed each year
           in the U.S.
                     © 2012 www.OrganTI.org
 88,000 waiting for kidneys
 2,200 waiting for kidney/pancreas
 16,000 need liver transplants
 3,200 need hearts
 2,000 need heart/lung combinations
      2011 data courtesy Organ Procurement & Transplantation Network (OPTN)

                                                         © 2012 www.OrganTI.org
“Don't think of organ donation as giving up
 part of yourself to keep a total stranger
 alive. It's really a total stranger giving
 up almost all of themselves to keep part
               of you alive.”
                                © 2012 www.OrganTI.org
“Unless someone like you cares a
whole awful lot, nothing is going to
      get better. It's not.”
            ~Dr. Seuss
                          © 2012 www.OrganTI.org
The Mission of Organ Transplant Initiative is
 to ensure that anyone who needs a blood,
  tissue or organ transplant can get one
     regardless of age, gender, sexual
          preference or religion.
                             © 2012 www.OrganTI.org
Urban Myths are Killing People
Myth:
    Minorities should refuse donation because
    organs may not be given to minority
    patients .
Fact:
  Wrong! Although African Americans comprise
   12% of the population and 12% of kidney donors
   they receive about 21 % of the kidneys donated .

                                   © 2012 www.OrganTI.org
Urban Myths are Killing People
Myth: A traveler has a few drinks with a stranger &
        wakes up in a bathtub full of ice with staples in
        his back & no kidneys .
Fact:
   It never happened. Stop the myth!
   The incision would be on the side not on the back.
   It is impractical, unprofitable & illegal. Without pre -
    transplant testing the kidneys would likely die before
    they could be used.
                                         © 2012 www.OrganTI.org
Urban Myths are Killing People
Myth: If I agree to donate my organs, the
        hospital staff won't work as hard to
        save my life.
Fact:
    You'll be seen by people with a moral
     and legal commitment to save your life.
     They have nothing to do with
     transplantation.
                               © 2012 www.OrganTI.org
Urban Myths are Killing People
M y t h : People can wake up from
brain death

 Fact:
 Unlike coma patients, there is no
  possible recovery from brain death .

                          © 2012 www.OrganTI.org
Medical Definition of Brain Death
 Irreversible brain damage - loss of
  brain function evidenced by
  cessation of breathing and other
  vital reflexes
 Unresponsiveness to stimuli
 Absence of muscle activity
 Flat electroencephalogram

                           © 2012 www.OrganTI.org
The Donation Process
When death is declared, the donor body is
placed on “mechanical organ support” to
maintain blood flow and oxygen until organs
are recovered for transplantation .

                             © 2012 www.OrganTI.org
The Donation Process
   In accordance with federal law,
physicians who are responsible for the
  patient’s care prior to brain death
 determination, cannot be part of the
     recovery of organs process.
                         © 2012 www.OrganTI.org
The Donation Process
 Medicare -- hospitals must notify OPO when
  there is a death.
 OPO specialist evaluates suitability as a donor
 If patient is a registered donor next of kin is
  fully informed of situation
 If wishes are unknown coordinator offers
  options                        © 2012 www.OrganTI.org
The Donation Process
 OPO works with hospital to manage clinical
  activities
 Coordinates with (UNOS) and transplant centers
  to match donor’s organs with potential recipients
 Arrange for surgical recovery teams
 Complex process can take a day or more

                                 © 2012 www.OrganTI.org
How Do They Decide Who Gets the Organs?
 OPO gathers enters relevant information on donor in UNOS
  computers
 Recipients list is generated including physical match
  between the two. List has no names, no social status
 Purpose is to choose a recipient who is a good match & with
  good chance of recovery. Also considers time on list.
 Read full policy at http ://www.unos.org

                                        © 2012 www.OrganTI.org
Why the Organ Shortage?
The present donor system depends
  on people voluntarily becoming
             donors.

 While over 90% of Americans think
donation is a good idea about 60 % of
    adults are NOT organ donors
                        © 2012 www.OrganTI.org
Being a Donor in the U.S.
Under current U.S. law you are not an
 organ donor unless you sign up or
 “Opt In.”

Despite being in effect for 25 years
 the gap between supply and demand is
 widening every day.
                          © 2012 www.OrganTI.org
Presumed Consent, an Option
 Proponents claim PC will increase the number of
  transplantable organs and in some countries it
  has.

 Under PC it is presumed that everyone wants to
  be a donor. If you “Opt Out” you would carry a
  “Not a donor” card.
                                 © 2012 www.OrganTI.org
Financial Incentives another option
 It is illegal in the U.S. to buy or sell human
  organs.

 Some suggest giving donors highly regulated
  benefits like tax credits, contributions to
  retirement plans or early access to Medicare.

 Cash payments are distasteful to most people .
                                     © 2012 www.OrganTI.org
Miracles of Science and Technology

Regenerating your own damaged organs

Therapeutic cloning

Mechanical organs

                         © 2012 www.OrganTI.org
Human Organ Regeneration
 The body can already regenerate some of
  its parts, like the liver .
 Stem cells can be grown to repair or replace
  damaged organs or tissues like skin, brain
  cells, spinal cord cells, hearts, lungs, livers,
  kidneys & more.

                                   © 2012 www.OrganTI.org
Therapeutic Cloning
 Still experimental with mixed results. Very
  expensive.
 Duplicates a body part not the entire body
 Could nearly eliminate the organ shortage
 Anti-rejection medicine would be unnecessary
  because the body won’t reject its own genetic
  makeup .
                                © 2012 www.OrganTI.org
Other Potential Benefits
 Leukemia -- clone bone marrow for leukemia
  patients. Could be one of the first benefits of
  therapeutic cloning.
 Cancer – A cure if we learn how to switch cells on
  and off.
 Spinal Cord -- regrow nerves or the entire spinal
  cord when they are injured .
                                    © 2012 www.OrganTI.org
Mechanical Organ Replacements
 Artificial hearts being used & improved
 Implantable artificial kidney is designed
 Bio-lung under development
 Work underway on artificial liver

                             © 2012 www.OrganTI.org
A Paralyzing Paradigm
 If we didn’t systematically
destroy our own organs there
would be no organ shortage .
                     © 2012 www.OrganTI.org
A Paralyzing Paradigm
  Human nature dictates that we will
 almost always seek to treat symptoms
regardless of cost rather than eliminate
    the cause no matter how simple
                           © 2012 www.OrganTI.org
Preventing Organ Failure
A Very Simple, Practical Solution




        Pogo Cartoons were done by the late Walt Kelly
                                                  © 2012 www.OrganTI.org
Keeping Your Organs Healthy
You can’t continually abuse your organs
 and expect them to be healthy.

You have choices depending on how badly
 you want to enjoy a long, happy and healthy
 life.
                              © 2012 www.OrganTI.org
Almost all of the diseases that affect
      your organs are preventable
   “Most of the solutions for organ disease
  prevention involve changing environmental
influences that may affect personal choices.”
        United States Department of Health and Human Services

                                                 © 2012 www.OrganTI.org
Heart Health Hazards
Smoking
Lack of exercise
                    Change just one of
                     these habits and
Overweight
                        you will be
Poor eating habits      healthier
Too much alcohol
                          © 2012 www.OrganTI.org
K e e p i n g Y o u r L u n g s H e a l t hy
“You will never fully appreciate your

lungs until you have lung disease --

    and then it may be too late.”
             Bob Aronson COPD sufferer

                                     © 2012 www.OrganTI.org
Taking care of your lungs
 Aerobic exercise -- get respiratory rate up to
  20-35 breaths per minute
 Do not smoke or stay in smoky rooms
 Work in well -ventilated areas when around
  cleaning agents, dust or toxic chemicals
 Do breathing exercises -- singing is a great one
                                  © 2012 www.OrganTI.org
Taking care of your liver
 Eat raw fruits , veggies & unprocessed food
 Restrict drugs and alcohol, they can kill your
  liver
 Practice Safe Sex
 Exercise (activity may not be exercise)
 Drink Plenty of water
                                   © 2012 www.OrganTI.org
Taking care of your kidneys
 Check and control blood pressure
 Watch for changes in urine
 Watch for anemia symptoms
 Exercise 30 minutes a day 3 days a week
 Drink lots of water -- pure water
                               © 2012 www.OrganTI.org
If each adult American convinced one
person a year to become an organ donor,
 the supply/demand gap would narrow
             considerably

                            © 2012 www.OrganTI.org
Register as a Donor Now!
     It’s really easy just go to:

    www.donatelife.net
  And follow the directions
Please -- give the gift of life
                         © 2012 www.OrganTI.org
After you register to be a donor:
 Mark your decision on your driver's license

 Tell your family about your decision
 Tell your physician, faith leader, and friends

 Include donation in your will, and living will

                                © 2012 www.OrganTI.org
Has Presen ted

     Life!
Pass It On!
 Written and produced by Bob Aronson
    2007 heart transplant recipient
                                 © 2012 www.OrganTI.org

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Life - pass it on oti slide show 3-21-12

  • 1. ATTENTION SLIDE SHOW PRESENTER. IMPORTANT INFORMATION! Life! Pass It ON! Is NOT a stand-alone slide show. It needs a presenter in order for the viewer to get the complete story. Please click VIEW on your taskbar then click on NOTES PAGE . When it opens you’ll see that each slide has notes just below it. The notes explain how to use each slide, when to click and even suggested language. You may, of course, use your own language if you choose to do so as long as it coincides with what’s on each slide. © 2012 www.OrganTI.org
  • 2. Presen ts Life! Pass It On! © 2012 www.OrganTI.org
  • 3. They are dying and they know there are not enough transplantable organs for everyone. © 2012 www.OrganTI.org
  • 4. Betsy Ross (Add a title if you like) • Liver recipient • Caregiver • Mom • D o n or © 2012 www.OrganTI.org
  • 6. Annually only 28,000 transplants are performed in the United States © 2012 www.OrganTI.org
  • 7. Americans bury or cremate about 20,000 transplantable organs yearly. © 2012 www.OrganTI.org
  • 8. Presen ts Life! Pass It On! Written and produced by Bob Aronson 2007 heart transplant recipient © 2012 www.OrganTI.org
  • 9. How many people can one donor affect? Just one blood, tissue or organ donor can save or positively affect up to 60 lives. © 2012 www.OrganTI.org
  • 10. Face Kidney Living donor lungs Caregiver Kidney recipient with living donor A new liver © 2012 www.OrganTI.org
  • 11.  113,000 waiting 2 million deaths  17,000 donors  7,000 will die waiting  Becoming a donor costs nothing, takes little time and saves lives © 2012 www.OrganTI.org
  • 12. Register as a Donor Now! It’s really easy just go to: www.donatelife.net And follow the directions Please -- give the gift of life © 2012 www.OrganTI.org
  • 13. After you register to be a donor:  Mark your decision on your driver's license  Tell your family about your decision  Tell your physician, faith leader, and friends  Include donation in your will, and living will © 2012 www.OrganTI.org
  • 14. The agony of waiting There are only about 28, 000 transplants performed each year in the U.S. © 2012 www.OrganTI.org
  • 15.  88,000 waiting for kidneys  2,200 waiting for kidney/pancreas  16,000 need liver transplants  3,200 need hearts  2,000 need heart/lung combinations 2011 data courtesy Organ Procurement & Transplantation Network (OPTN) © 2012 www.OrganTI.org
  • 16. “Don't think of organ donation as giving up part of yourself to keep a total stranger alive. It's really a total stranger giving up almost all of themselves to keep part of you alive.” © 2012 www.OrganTI.org
  • 17. “Unless someone like you cares a whole awful lot, nothing is going to get better. It's not.” ~Dr. Seuss © 2012 www.OrganTI.org
  • 18. The Mission of Organ Transplant Initiative is to ensure that anyone who needs a blood, tissue or organ transplant can get one regardless of age, gender, sexual preference or religion. © 2012 www.OrganTI.org
  • 19. Urban Myths are Killing People Myth: Minorities should refuse donation because organs may not be given to minority patients . Fact: Wrong! Although African Americans comprise 12% of the population and 12% of kidney donors they receive about 21 % of the kidneys donated . © 2012 www.OrganTI.org
  • 20. Urban Myths are Killing People Myth: A traveler has a few drinks with a stranger & wakes up in a bathtub full of ice with staples in his back & no kidneys . Fact:  It never happened. Stop the myth!  The incision would be on the side not on the back.  It is impractical, unprofitable & illegal. Without pre - transplant testing the kidneys would likely die before they could be used. © 2012 www.OrganTI.org
  • 21. Urban Myths are Killing People Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life. Fact:  You'll be seen by people with a moral and legal commitment to save your life. They have nothing to do with transplantation. © 2012 www.OrganTI.org
  • 22. Urban Myths are Killing People M y t h : People can wake up from brain death Fact:  Unlike coma patients, there is no possible recovery from brain death . © 2012 www.OrganTI.org
  • 23. Medical Definition of Brain Death  Irreversible brain damage - loss of brain function evidenced by cessation of breathing and other vital reflexes  Unresponsiveness to stimuli  Absence of muscle activity  Flat electroencephalogram © 2012 www.OrganTI.org
  • 24. The Donation Process When death is declared, the donor body is placed on “mechanical organ support” to maintain blood flow and oxygen until organs are recovered for transplantation . © 2012 www.OrganTI.org
  • 25. The Donation Process In accordance with federal law, physicians who are responsible for the patient’s care prior to brain death determination, cannot be part of the recovery of organs process. © 2012 www.OrganTI.org
  • 26. The Donation Process  Medicare -- hospitals must notify OPO when there is a death.  OPO specialist evaluates suitability as a donor  If patient is a registered donor next of kin is fully informed of situation  If wishes are unknown coordinator offers options © 2012 www.OrganTI.org
  • 27. The Donation Process  OPO works with hospital to manage clinical activities  Coordinates with (UNOS) and transplant centers to match donor’s organs with potential recipients  Arrange for surgical recovery teams  Complex process can take a day or more © 2012 www.OrganTI.org
  • 28. How Do They Decide Who Gets the Organs?  OPO gathers enters relevant information on donor in UNOS computers  Recipients list is generated including physical match between the two. List has no names, no social status  Purpose is to choose a recipient who is a good match & with good chance of recovery. Also considers time on list.  Read full policy at http ://www.unos.org © 2012 www.OrganTI.org
  • 29. Why the Organ Shortage? The present donor system depends on people voluntarily becoming donors. While over 90% of Americans think donation is a good idea about 60 % of adults are NOT organ donors © 2012 www.OrganTI.org
  • 30. Being a Donor in the U.S. Under current U.S. law you are not an organ donor unless you sign up or “Opt In.” Despite being in effect for 25 years the gap between supply and demand is widening every day. © 2012 www.OrganTI.org
  • 31. Presumed Consent, an Option  Proponents claim PC will increase the number of transplantable organs and in some countries it has.  Under PC it is presumed that everyone wants to be a donor. If you “Opt Out” you would carry a “Not a donor” card. © 2012 www.OrganTI.org
  • 32. Financial Incentives another option  It is illegal in the U.S. to buy or sell human organs.  Some suggest giving donors highly regulated benefits like tax credits, contributions to retirement plans or early access to Medicare.  Cash payments are distasteful to most people . © 2012 www.OrganTI.org
  • 33. Miracles of Science and Technology Regenerating your own damaged organs Therapeutic cloning Mechanical organs © 2012 www.OrganTI.org
  • 34. Human Organ Regeneration  The body can already regenerate some of its parts, like the liver .  Stem cells can be grown to repair or replace damaged organs or tissues like skin, brain cells, spinal cord cells, hearts, lungs, livers, kidneys & more. © 2012 www.OrganTI.org
  • 35. Therapeutic Cloning  Still experimental with mixed results. Very expensive.  Duplicates a body part not the entire body  Could nearly eliminate the organ shortage  Anti-rejection medicine would be unnecessary because the body won’t reject its own genetic makeup . © 2012 www.OrganTI.org
  • 36. Other Potential Benefits  Leukemia -- clone bone marrow for leukemia patients. Could be one of the first benefits of therapeutic cloning.  Cancer – A cure if we learn how to switch cells on and off.  Spinal Cord -- regrow nerves or the entire spinal cord when they are injured . © 2012 www.OrganTI.org
  • 37. Mechanical Organ Replacements  Artificial hearts being used & improved  Implantable artificial kidney is designed  Bio-lung under development  Work underway on artificial liver © 2012 www.OrganTI.org
  • 38. A Paralyzing Paradigm If we didn’t systematically destroy our own organs there would be no organ shortage . © 2012 www.OrganTI.org
  • 39. A Paralyzing Paradigm Human nature dictates that we will almost always seek to treat symptoms regardless of cost rather than eliminate the cause no matter how simple © 2012 www.OrganTI.org
  • 40. Preventing Organ Failure A Very Simple, Practical Solution Pogo Cartoons were done by the late Walt Kelly © 2012 www.OrganTI.org
  • 41. Keeping Your Organs Healthy You can’t continually abuse your organs and expect them to be healthy. You have choices depending on how badly you want to enjoy a long, happy and healthy life. © 2012 www.OrganTI.org
  • 42. Almost all of the diseases that affect your organs are preventable “Most of the solutions for organ disease prevention involve changing environmental influences that may affect personal choices.” United States Department of Health and Human Services © 2012 www.OrganTI.org
  • 43. Heart Health Hazards Smoking Lack of exercise Change just one of these habits and Overweight you will be Poor eating habits healthier Too much alcohol © 2012 www.OrganTI.org
  • 44. K e e p i n g Y o u r L u n g s H e a l t hy “You will never fully appreciate your lungs until you have lung disease -- and then it may be too late.” Bob Aronson COPD sufferer © 2012 www.OrganTI.org
  • 45. Taking care of your lungs  Aerobic exercise -- get respiratory rate up to 20-35 breaths per minute  Do not smoke or stay in smoky rooms  Work in well -ventilated areas when around cleaning agents, dust or toxic chemicals  Do breathing exercises -- singing is a great one © 2012 www.OrganTI.org
  • 46. Taking care of your liver  Eat raw fruits , veggies & unprocessed food  Restrict drugs and alcohol, they can kill your liver  Practice Safe Sex  Exercise (activity may not be exercise)  Drink Plenty of water © 2012 www.OrganTI.org
  • 47. Taking care of your kidneys  Check and control blood pressure  Watch for changes in urine  Watch for anemia symptoms  Exercise 30 minutes a day 3 days a week  Drink lots of water -- pure water © 2012 www.OrganTI.org
  • 48. If each adult American convinced one person a year to become an organ donor, the supply/demand gap would narrow considerably © 2012 www.OrganTI.org
  • 49. Register as a Donor Now! It’s really easy just go to: www.donatelife.net And follow the directions Please -- give the gift of life © 2012 www.OrganTI.org
  • 50. After you register to be a donor:  Mark your decision on your driver's license  Tell your family about your decision  Tell your physician, faith leader, and friends  Include donation in your will, and living will © 2012 www.OrganTI.org
  • 51. Has Presen ted Life! Pass It On! Written and produced by Bob Aronson 2007 heart transplant recipient © 2012 www.OrganTI.org

Hinweis der Redaktion

  1. Say nothing…the heart will beat…just let the slide sit there for a couple of moments…(Click when ready for next slide)
  2. Allow yourself to be introduced. Say nothing and click this first slide. After a few moments when the audience has had time to digest it say, “This doesn’t have to happen and in the next few minutes I’m going to tell you why and what you can do to help.”Click next slide
  3. My name is and I’m a…(tell a very little about yourself and you can use no more than 4 bullet points below…keep it short but you need to set up your credibility as a speaker with some kind of sympathetic or empathetic language. Change the bullet points to fit your brief bio)Click to next slideThis is a good place to ask the audience for a show of handsHow many of you have had some experience with organ and tissue donation, transplantation or both?How many of you are organ donors or plan to be?Ok…let’s continue (click next slide)
  4. (check the latest figures www.unos.org )Did you know that there are 114,000 people on the national transplant waiting list. They are waiting for lifesaving or enhancing organs and tissue and we’ll be outlining specifically what they are shortly..114,000 people who are waiting. And here’s what most people don’t know. In order to be listed for an organ transplant, a specialist in your disease has to certify to a transplant panel that you have an end-stage disease… and that you will die without a transplant. That means everyone on the list is dying! Medical science has no more tricks up its sleeve. (Click next slide)
  5. ‘and…while 114,00 are waiting there will only be about 28,000 transplants done this year. That means … well you do the math. A whole lot of people are going to get sicker and many will die. Could transplant teams do more transplants? Sure they could…but first they need more organs, and Americans are just not stepping forward as organ donors fast enough. (click for next slide)
  6. Give the audience a few moments to read and digest this information …let some silence do its drama for you….then say”And do you know why this happens? It’s because people either failed to register as donors or because families did not know their loved ones wishes and said no to the request for donation. 20,000 organs gone to waste and perhaps 20,000 lives with them…not to mention the valuable tissue that could have benefited thousands of other people. Click now to main Title slide…and let it play out
  7. Say nothing…the heart will beat…just let the slide sit there for a couple of moments Then (Click to next slide)
  8. (“How many people…..” will appear automatically)…Then you can again ask the audience….for their estimate…get some answers and then click so the 60 lives message pops up.
  9. Just click….and say….These are the faces of real people involved with transplantation. (click next slide)
  10. ( Click and bring up the 113,000 number) As was mentioned earlier that are about 113,000 people on the waiting list but there are less than 30,000 transplants done each year. Obviously a huge gap but wait…the news gets worse. (Click..bring up 2 million deaths) Each year about two million people die in the United states. Let me ask the audience a question…of those two million how many do you think are suitable donors? (tale some guesses then click bring up the 17,000) only 17,000 out of 2 million are suitable for one reason or another. That’s not very many and that’s why we must get beyond depending on donation aloneClick) In the meantime 7,000 of those on the waiting list will die from organ failure and, that figure doesn’t even count the number of people who can’t afford the care that is necessary to even get on the list. We don’t know how many die because they can’t afford the care they need. (Click) becoming a donor is soooooo easy. The obvious way to become one is to have “Organ Donor” put on your drivers license when you renew it but what if you are not up for renewal yet and you want to become a donor? Even easier….go to www.donatelife.net. (Click) the following Donate Life slide is self animated. Just click on it and let it go until you see the donor card. Ask for questions if you like..then(Click) to the next slide
  11. Keep slide up for a few moments and then say, “remember that just signing a donor card may not be enough. Each year thousands of transplantable organs are buried because families said, “No.” It is very important that people know about your decision to become a donor. Click Next slide
  12. Click again when slide comes up. The rest is automatic and each bullet will appear after a 3 second interval. When the slide is fully revealed let it sit there a moment before clicking to the next slide.
  13. Slide comes up and shows agony of waiting…the you say, “ for the last several years the number of transplant operations performed in the U.S. has been static…about 28,000 (click to 28,000 number and old the slide ) but the number of people on the waiting list keeps growing ..today it stands at (give current number) the gap between the number of organs available and the number of patients who need them is growing and we are falling farther and farther behind every day. Let’s look at the breakdown of people on the list and which organ they are waiting for. (Click to next slide)
  14. You need not say anything here If you don’t want to. The data speaks for itself Let each number linger for a moment or two before clicking to the next number. At end of slide after 2,000 need heart lung combo’s hold for a moment or two then (click) to next slide.
  15. Before you click (Click) give people time to read it again after it has scrolled through once. Then (Click) to next slide.
  16. Before you click to the express…say, “There are lots of authorities on organ donation but the one who says it best is one that everyone understands and loves…(Click) then (Click) again after they’ve had a chance to read it.
  17. When this slide comes up…explain that Organ Transplant Initiative is a Facebook group that was started November of 2007 and now has about 2,000 members from around the world. While we are a support group for our members we also provide up to date information about donation/transplantation issues. Our Mission, though, is quite simple (click)…then let them read it and (Click) again for next slide.
  18. Before you click on Myth..you might say, because of a history of discrimination many minorities are suspicious of organ donation. There’s no reason to be…(CLICK) …”That’s not true but a common misperception. Here’s the fact (Click) When slide is done, and they’ve had time to read the Wrong Again fact,Click to next slide and just let it roll through, it has automated animation.
  19. There are many myths surrounding Organ Donation and I want to take some time here to dispel some of the more serious misconceptions. First this one(click) (the myth will come up with the explanation. When done you (click) again and fact shows up with the first bullet. Then you must click again for each of the two following bullets. You can use ad-lib short comments with teach of these fact bullet points…for example…on the first one “It never happened” you can add, there is no evidence anywhere in this country (the U.S.) that anything even remotely resembling this myth has ever happened. Click to next slide
  20. When slide comes up you can say, “Here’s Myth number two and it is a very common, albeit untrue belief. (Click to myth) then say, “nothing could be farther from the truth…(Click) Fact comes up followed by “You’ll be seen….)Click to next slide
  21. When slide comes up you can say, “here’s still another myth that prevents people from becoming organ and tissue donors.” (Click)…after they’ve had a moment to absorb the screen language(Click) fact and Unlike coma patients…will come up. Let them read it and say, “Brain death is not like a coma and it’s not like being in a vegetative state either because…(Click) vegetative data comes up. “Brain death is determined after several neurological and other tests are performed by highly qualified physicians and their teams. Neither the brain death experts nor the transplant team are associated with the medical team that gave the initial care. They only get involved when the original medical team determines that all life saving measures have been exhausted.”(Click to next slide)
  22. Let slide come up but before you click on definition say, “People always ask about brain death…what is it? Here is the commonly accepted word-wide definition.” (Click) let them read it…give plenty of time…this is a very important slide. (while I don’t often recommend that presenters read a slide to an audience, this might be one of those times. It will have added impact if you read it out loud as it appears).(Click to next slide)
  23. Before clicking on language here, you can say “If the person is dead why are they are life support after they’ve been declared dead? Well, they are not placed on life support because there is no life there…the support mechanism is for their organs. Click on “organ support” language
  24. Click on federal law language then say, “This restriction is just another guarantee that if you go to the hospital the people there will do everything humanly possible to save your life.” Click next slide
  25. The myths that persist need to be thoroughly destroyed so let me take a minute or two to discuss the entire donation process. First…Click “When there is a death the hospital by law, must notify the organ procurement organization, known as an OPO, that a death has taken place.Click “ A specially trained OPO staff person evaluates the suitability of the donors organs for transplantation…remember very few people who die are suitable donors..the number is about 2%.Click “ If the patient is registered as a donor another specially trained OPO representative will fully inform the family or significant others about the situation and the patients wishes.Click Finally…if the wishes of the patient are unknown the OPO coordinator will talk with the family about donation options which include not only donation of tissue and organs but perhaps whole body donation for medical and scientific education purposes.Click next slide
  26. Click if it has been determined that the patient is a suitable donor and the family agrees then the OPO begins the process to make it happen.Click The coordination effort is long and complex but must be done fairly quickly to be sure the donor organs remain viable.Click Now is the time that the surgical organ recovery teams are called in. Up until this point they did not know about the patient or that death had been declared.Click You can probably see as a result of listening to me that the process is long, involved and takes a while. Click next slide.
  27. This is the question everyone has on the tips of their tongues. Click first bullet…All of the information that is available about the donor and people on the waiting list is fed to the computers. The matching information is very technical and comprehensive because with such an acute organ shortage it is important that every organ go to the best possible matching patient. Click Potential recipients list is generated based on matching criteria. Please note no one’s name is on the list and no one’s social status is either. The system can’t discriminate because it is blind.Click ….no need to say anything on this bulletClick a great deal of time and effort from some very smart people including surgeons, coordinators, ethicists, patients and public members went into developing the policy and it is constantly under review.
  28. When this slide has completed and before you click to the next one you could, if time permits, ask the audience why they think this is true. Why the very low donation rate? You can say, “All good answers and no on knows for sure but we suspect that while patients feel a real urgency for attracting new donors, the donors themselves don’t feel any urgency at all because they don’t‘ think they are going to die any time soon, so what’s the rush? We have to instill in others the sense of urgency because no one knows how long they will live and it would be a terrible thing to “intend” to be an organ donor but die before you get around to doing it. (Click…next slide)
  29. Before you click to enter the bullet points you can say, “When the first transplant surgeries were done there were far more organs available than there were patients who needed them. But as time went on and the surgeries became more common and more refined the demand soon outstripped the supply. In 1968 The United States adopted the Uniform Anatomical Gifts act which set the standards for donation that we still follow today. Here’s what our system allows for(Click) first bullet, click again for second bullet. Before you go to the next slide you can say….”So if we aren’t getting enough organs what can we do about it? Well, there are several options. One, that is most commonly discussed and that has been adopted in several countries is called,(Click) Presumed consent next slide.
  30. “So what is Presumed consent? (Click) first bullet, Spain has had an incredible increase in donations as a result of changing to PC but they still fall well short of meeting the demand” Click next bullet. “PC has been discussed a lot I the country but always rejected for “Ethical” reasons. I can’t speak to those reasons but one might ask, this, how ethical is it to continue to let people die who are on the waiting list. Obviously it can be a very sensitive debate.(Click) next slide
  31. One of the most controversial of the options is offering some kind of payment to organ donors. (Click first bullet) Call them incentives or compensation opponents say it’s the same as selling organs. But … proponents say that the incentive might be something different (Click second bullet). And then of course there are cash payments (click) and no one seems to want to touch that one. Although, consider this, women sell their eggs and men sell their sperm regularly and almost no one ever objects. (click next slide)
  32. Before you click on the first bullet you can say, “ In discussing altruistic and presumed consent organ donation along with the possibility of incentives, we’ve been talking about political or social solutions to the problem. But there are other solutions as well and they hold great promise. (Click first bullet. Did you know that the Salamander and the Newt, two amphibian animals, can regenerate their own limbs, eyes, faces? Scientists have been curious about that for along time and they are looking into doing it with humans. We can already regenerate our own liver so maybe…..? (Click second bullet. Therapeutic cloning is not to be confused with whole body cloning because it isn’t the same at all. Therapeutic cloning would reproduce organs like livers, kidneys and hearts. And finally click third bullet) Mechanical organs.(click next slide)
  33. Click…first bullet liver. “People have two kidneys so they can donate one and still live a healthy life but, we only have one liver. Yet,people can donate a part of their liver because if it is healthy it will regenerate in both bodies so that in time, both the donor and the recipient will have fully functioning livers.. click second bullet. Lots of controversy surrounding embryonic stem cells but none about adult stem cells and a good deal of progress is being made in both areas right now.(click next slide)
  34. So let’s look at Therapeutic cloning. Remember now, this is about cloning organs, that’s all. Click first bulleted…don’t need to say much about this. Click, second bullet. Sometimes you need to say things a few times to be sure everyone understands and gets the message. Click third bullet. “This is the really neat part. If therapeutic cloning works we won’t need any more human donors or mechanical devices. That would be equivilent to a modern day miracle. (click fourth bullet) and with no anti rejection medicine needed guess what happens to your cost of healthcare(click next slide)
  35. Briefly…some other potential benefits of Therapeutic cloning. (Just click away till the end of the slide. Make comments where you feel appropriate.Click to next slide
  36. Click first bullet…Artificial hearts have been around in one form or another for quite some time and they work. Unfortunately we don’t have one yet that is implantable and forgetable but they’re working on it. Left Ventricular Assist Devices, LVADs as they are known, can keep heart failure victims alive for a long time but the goal is still to get a heart transplant.(Click) second bullet While the implantable kidney has been designed its still a long way from being implantable but progress continues and technology is moving so fast we could hear of a successful trial before too long. The pressure is really on for the kidney because the great majority of people on the national transplant list are kidney patients. (click) third bullet. The Bio Lung is not only under development they have reached the point where it can function on plain air not just oxygen as previous mechanisms did. This holds great promise but still not implantable. And finally (Click…fourth bullet) the artificial liver. It will be interesting to see which comes first, the artificial liver or the regenerating liver. The liver is one of the few human organs that has regenerative powers so it could come sooner than we think. (Click next slide)
  37. Just let the slide come up and sit there for a moment or two then say, “We are our own worst enemies because we just don’t take very good care of ourselves. (click next slide)
  38. This slide is self explanatory. The symptom of obesity is diabetes but people would rather treat the diabetes than make the effort to lose weight….it’s not a criticism, it’s human nature. (click next slide)
  39. I don’t think I need to say anything about this one.Click to next slide
  40. Just let this slide pop up and speak for itself. After giving the audience time to read it say: There is a way to diminish the need for organs that almost no one talks about and that is to take better care of ourselves and to stop behavior that could be harmful to one or more of your organs. (click for next slide)
  41. Before you click on the language here, just say this “Here’s a sobering note”Click and let them read it.
  42. Ok…let’s get specific. Let’s talk about the heart and what the hazards are…nothing new here…(the bullets will role automatically once youclick on the first one. When done with the bullets say, “Nothing new in any of those items but how many of you can honestly say you are doing everything right?...I don’t need an answer, you need to answer that for your selves. Think about this(click on change one of these habits….) and let the slide sit for a moment before clicking to the next slide.
  43. So much for the heart…now the lungs. Do you know what it’s like to be totally out of breath or to have congestion where you can hardly breathe. Some people live like that all the time. (click on the you will never full appreciate….) wait until they read it…you can ask at any time…”Any comments?” thenclick to next slide.
  44. Here are some things you can do to help your lungs and to prevent lung disease as you get older. After you Click the first bullet the rest will roll automatically. After the last bullet say…”That singing you do when you are alone in the car or in the shower…it’s actually good for you…you may look silly to the driver next to you but its great lung exercise so sing at the top of your lungs…just be sure the windows are closed.Click to Next Slide
  45. Ok, we’ve covered heart and lungs, what about the liver? Click on the first bullet and the rest will come up automatically. If they ask about activity vs exercise tell them that washing the dishes is activity, exercise is a brisk half mile walk. And, of course, water is the great cleanser there is nothing better that we can drink. (click next slide)
  46. You have two kidneys but don’t get over confident. It doesn’t mean you have one to waste you have to take care of both of them and here’s how. Click on each bullet and comment between if you like. When doneclick to next slide….
  47. I want to leave you with this thought. Click on final item. Let sit for a moment and say, “in a moment I’ll take a few questions but first let me repeat the information about organ donationClick to next slide.
  48. Let them look at it a minute and thenclick to next slide
  49. Thank you for your kind attention…now if you have any questions I’ll do my best to answer them.Click to final slide and leave it up during the Q and A session.
  50. Say nothing…the heart will beat…just let the slide sit there for a couple of moments