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         Hono

                   Kara Gay
   2011 el
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   re So
And ard
   Aw
Es say
                                          What	
  I	
  needed	
  from	
  others	
  when	
  I	
  was	
  ill:	
  
                                          Notes	
  from	
  someone	
  who	
  has	
  been	
  there

Please	
  "Understand":

Understand	
  what's	
  going	
  on	
  inside	
  of	
  my	
  head	
  might	
  be	
  different	
  from	
  what's	
  inside	
  of	
  my	
  
heart.


Understand	
  that	
  my	
  emotions	
  are	
  multifaceted	
  and	
  complicated;	
  I	
  am	
  on	
  a	
  constant	
  emotional	
  
roller	
  coaster.


Understand	
  that	
  I	
  worry	
  not	
  only	
  about	
  my	
  medical	
  status	
  but	
  also	
  my	
  social,	
  educational,	
  
spiritual	
  status.


Understand	
  that	
  I	
  see	
  the	
  bills	
  come	
  in	
  the	
  mail	
  and	
  hear	
  the	
  conversations	
  about	
  money;	
  I	
  too	
  
worry	
  about	
  my	
  families'	
  financial	
  hardships	
  created	
  from	
  medical	
  bills.


Understand	
  that	
  anger	
  is	
  going	
  to	
  rear	
  it	
  head	
  at	
  times:	
  anger	
  at	
  God	
  (why	
  me),	
  anger	
  at	
  
parents	
  (why	
  can't	
  you	
  make	
  this	
  go	
  away	
  and	
  protect	
  me);	
  anger	
  at	
  friends	
  (why	
  are	
  you	
  
backing	
  away	
  from	
  me);	
  anger	
  at	
  siblings	
  (why	
  are	
  you	
  still	
  doing	
  all	
  of	
  the	
  normal	
  things	
  when	
  
I	
  can't).


Understand	
  that	
  I	
  feel	
  lonely	
  at	
  times	
  even	
  when	
  surrounded	
  by	
  others:	
  parents	
  who	
  I	
  don't	
  
think	
  can	
  fully	
  understand	
  and	
  friends	
  who	
  come	
  to	
  visit	
  but	
  do	
  not	
  know	
  what	
  to	
  say	
  and	
  
suddenly	
  seem	
  like	
  strangers.
Es say
Understand	
  that	
  I	
  need	
  unconditional	
  support	
  and	
  love	
  at	
  
all	
  times:	
  when	
  I	
  explode	
  with	
  anger,	
  when	
  I	
  pout	
  in	
  
silence,	
  when	
  I	
  am	
  physically	
  exhausted,	
  and,	
  of	
  course,	
  when	
  I	
  am	
  happy	
  and	
  optimistic.


Understand	
  that	
  I	
  need	
  hugs	
  at	
  the	
  right	
  time	
  but	
  given	
  some	
  space	
  at	
  other	
  times.


Understand	
  that	
  I	
  do	
  want	
  to	
  talk	
  but	
  sometimes	
  I	
  just	
  need	
  silence	
  (when	
  I	
  am	
  too	
  
overwhelmed	
  to	
  talk	
  or	
  think	
  about	
  my	
  cancer	
  anymore).


Understand	
  that	
  cancer	
  is	
  an	
  overwhelming	
  diagnosis	
  for	
  a	
  teenager;	
  while	
  I	
  have	
  positively	
  
adapted,	
  cancer	
  did	
  turn	
  my	
  life	
  upside	
  down.


Understand	
  that	
  the	
  scars	
  on	
  both	
  sides	
  of	
  my	
  neck,	
  sternum,	
  and	
  stomach	
  do	
  affect	
  my	
  
physical	
  appearance	
  at	
  an	
  age	
  when	
  appearance	
  is	
  often	
  given	
  too	
  much	
  priority.


Understand	
  that	
  going	
  to	
  the	
  beach	
  in	
  a	
  bikini	
  is	
  hard	
  to	
  deal	
  with	
  at	
  times	
  due	
  to	
  the	
  stares	
  of	
  
strangers	
  (I	
  can	
  tell	
  people	
  are	
  wondering	
  what	
  kind	
  of	
  surgery	
  I	
  must	
  have	
  had	
  or	
  what	
  must	
  
be	
  wrong	
  with	
  me).


Understand	
  how	
  I	
  have	
  grown	
  to	
  accept	
  my	
  body,	
  scars	
  and	
  all;	
  I	
  am	
  not	
  the	
  insecure	
  girl	
  who	
  
wanted	
  to	
  wear	
  only	
  turtle	
  necks	
  in	
  winter	
  or	
  high	
  neck	
  halters	
  in	
  summer.


Understand	
  that	
  I	
  get	
  tired	
  of	
  hearing	
  my	
  cancer	
  enter	
  into	
  so	
  many	
  conversions	
  that	
  my	
  
parents	
  have	
  with	
  others.


Understand	
  that	
  I	
  want	
  to	
  decide	
  my	
  own	
  medical	
  path	
  and	
  have	
  a	
  say	
  in	
  how	
  often	
  and	
  when	
  I	
  
get	
  follow-­‐up	
  scans	
  or	
  needed	
  surgery.
Understand	
  that	
  I	
  place	
  my	
  medical	
  needs	
  on	
  the	
  highest	
  level,	
  but	
  I	
  want	
  to	
  place	
  my	
  current	
  
life	
  needs	
  on	
  a	
  high	
  level	
  (when	
  I	
  want	
  to	
  delay	
  surgery	
  around	
  a	
  test	
  at	
  school	
  that	
  is	
  really	
  
okay)


Understand	
  that	
  I	
  need	
  to	
  challenge	
  myself	
  physically	
  (maybe	
  to	
  prove	
  to	
  myself	
  that	
  I	
  can	
  be	
  
normal):	
  	
  I	
  do	
  not	
  want	
  you	
  to	
  worry	
  when	
  I	
  fly	
  as	
  a	
  high	
  school	
  cheerleader	
  in	
  a	
  stunt;	
  	
  do	
  a	
  
back	
  handspring	
  in	
  a	
  tumbling	
  routine;	
  decide	
  to	
  learn	
  to	
  scuba	
  dive	
  as	
  my	
  senior	
  project.


Understand	
  that	
  I	
  need	
  to	
  experience	
  the	
  challenges	
  of	
  school	
  on	
  my	
  own	
  sometimes:	
  	
  let	
  me	
  
talk	
  to	
  the	
  teachers	
  about	
  my	
  missed	
  classes	
  and	
  assignments	
  and	
  don't	
  rush	
  in	
  to	
  rescue	
  me	
  
or	
  take	
  over	
  for	
  me.


Understand	
  that	
  I	
  still	
  have	
  all	
  of	
  the	
  normal	
  teenager	
  hormonal	
  issues	
  but	
  even	
  more	
  
amplified	
  at	
  times	
  by	
  my	
  cancer.


Understand	
  that	
  I	
  want	
  things	
  to	
  go	
  back	
  the	
  way	
  they	
  used	
  to	
  be	
  (I	
  know	
  intellectually	
  that	
  
this	
  is	
  not	
  possible	
  while	
  emotionally	
  this	
  continues	
  to	
  be	
  such	
  a	
  strong	
  desire).


Understand	
  that	
  I	
  ache	
  because	
  none	
  of	
  the	
  boys	
  ask	
  me	
  out	
  for	
  dates	
  but	
  instead	
  ask	
  my	
  
friends	
  (it	
  hurts	
  that	
  no	
  one	
  really	
  jumps	
  to	
  date	
  a	
  girl	
  with	
  cancer).


Understand	
  that	
  I	
  hate	
  hurting	
  and	
  not	
  knowing	
  why:	
  (is	
  it	
  from	
  internal	
  scar	
  tissue,	
  from	
  
autonomic	
  nervous	
  system	
  damage	
  after	
  surgery,	
  from	
  side	
  effects	
  from	
  chemotherapy,	
  or	
  
from	
  a	
  new	
  tumor?)


Understand	
  how	
  hard	
  it	
  is	
  to	
  have	
  increased	
  dependence	
  on	
  parents	
  just	
  when	
  I	
  was	
  supposed	
  
to	
  be	
  getting	
  more	
  independence.


Understand	
  that	
  my	
  mind	
  often	
  races	
  into	
  the	
  future	
  with	
  stress:	
  	
  How	
  will	
  I	
  keep	
  my	
  grades	
  up	
  
when	
  missing	
  so	
  much	
  school?	
  	
  Will	
  I	
  still	
  be	
  able	
  to	
  go	
  to	
  college	
  or	
  get	
  into	
  the	
  right	
  college	
  
for	
  me?	
  	
  Will	
  anyone	
  ever	
  want	
  to	
  marry	
  me?	
  	
  Will	
  I	
  ever	
  be	
  able	
  to	
  forget	
  about	
  cancer	
  and	
  just	
  
live	
  life	
  like	
  a	
  "normal	
  person"?


Understand	
  that	
  I	
  am	
  in	
  this	
  fight	
  to	
  win	
  over	
  cancer	
  but	
  sometimes	
  I	
  need	
  a	
  break	
  from	
  
hearing	
  the	
  word	
  cancer.


Please,	
  please	
  "Understand":


Understand	
  that	
  I	
  want	
  lots	
  of	
  time	
  to	
  do	
  things	
  and	
  share	
  moments	
  that	
  are	
  not	
  cancer	
  
related.	
  	
  Understand	
  that	
  I	
  so	
  want	
  time	
  to	
  just	
  be	
  a	
  teenager	
  (not	
  a	
  teen	
  with	
  cancer),	
  just	
  to	
  
be	
  a	
  family	
  member	
  (not	
  the	
  daughter	
  or	
  the	
  sister	
  with	
  cancer),	
  just	
  to	
  be	
  a	
  friend	
  (not	
  the	
  
friend	
  with	
  cancer).


Understand	
  that	
  I	
  am	
  determined	
  to	
  achieve	
  all	
  of	
  my	
  educational,	
  career,	
  and	
  personal	
  goals;	
  I	
  
do	
  treasure	
  help	
  in	
  staying	
  focused	
  and	
  positive	
  in	
  my	
  journey	
  to	
  reach	
  those	
  goals.


Understand	
  that	
  I	
  indeed	
  cherish	
  prayers,	
  love,	
  support,	
  and	
  devotion	
  that	
  I	
  receive	
  from	
  
others.


Understand	
  that	
  cancer	
  is	
  just	
  a	
  disease,	
  and	
  it	
  does	
  not	
  define	
  my	
  life.	
  


Understand	
  that	
  I	
  am	
  a	
  person	
  who	
  can	
  and	
  will	
  overcome	
  the	
  obstacles	
  created	
  by	
  cancer.


Understand	
  that	
  I	
  have	
  received	
  many	
  gifts	
  and	
  blessings	
  in	
  life	
  that	
  have	
  come	
  because	
  of	
  the	
  
cancer	
  not	
  just	
  in	
  spite	
  of	
  the	
  cancer.


Understand	
  that	
  I	
  love	
  life,	
  and	
  I	
  will	
  continue	
  to	
  love	
  life,	
  fight	
  cancer,	
  and	
  win!


Understand	
  my	
  whole	
  self!


Understand	
  me!
Understand!

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Honorable Mention Winner- 2011 Andre Sobel Award

  • 1. Y ou A re rabl e Men tion Hono Kara Gay 2011 el b re So And ard Aw
  • 2. Es say What  I  needed  from  others  when  I  was  ill:   Notes  from  someone  who  has  been  there Please  "Understand": Understand  what's  going  on  inside  of  my  head  might  be  different  from  what's  inside  of  my   heart. Understand  that  my  emotions  are  multifaceted  and  complicated;  I  am  on  a  constant  emotional   roller  coaster. Understand  that  I  worry  not  only  about  my  medical  status  but  also  my  social,  educational,   spiritual  status. Understand  that  I  see  the  bills  come  in  the  mail  and  hear  the  conversations  about  money;  I  too   worry  about  my  families'  financial  hardships  created  from  medical  bills. Understand  that  anger  is  going  to  rear  it  head  at  times:  anger  at  God  (why  me),  anger  at   parents  (why  can't  you  make  this  go  away  and  protect  me);  anger  at  friends  (why  are  you   backing  away  from  me);  anger  at  siblings  (why  are  you  still  doing  all  of  the  normal  things  when   I  can't). Understand  that  I  feel  lonely  at  times  even  when  surrounded  by  others:  parents  who  I  don't   think  can  fully  understand  and  friends  who  come  to  visit  but  do  not  know  what  to  say  and   suddenly  seem  like  strangers.
  • 3. Es say Understand  that  I  need  unconditional  support  and  love  at   all  times:  when  I  explode  with  anger,  when  I  pout  in   silence,  when  I  am  physically  exhausted,  and,  of  course,  when  I  am  happy  and  optimistic. Understand  that  I  need  hugs  at  the  right  time  but  given  some  space  at  other  times. Understand  that  I  do  want  to  talk  but  sometimes  I  just  need  silence  (when  I  am  too   overwhelmed  to  talk  or  think  about  my  cancer  anymore). Understand  that  cancer  is  an  overwhelming  diagnosis  for  a  teenager;  while  I  have  positively   adapted,  cancer  did  turn  my  life  upside  down. Understand  that  the  scars  on  both  sides  of  my  neck,  sternum,  and  stomach  do  affect  my   physical  appearance  at  an  age  when  appearance  is  often  given  too  much  priority. Understand  that  going  to  the  beach  in  a  bikini  is  hard  to  deal  with  at  times  due  to  the  stares  of   strangers  (I  can  tell  people  are  wondering  what  kind  of  surgery  I  must  have  had  or  what  must   be  wrong  with  me). Understand  how  I  have  grown  to  accept  my  body,  scars  and  all;  I  am  not  the  insecure  girl  who   wanted  to  wear  only  turtle  necks  in  winter  or  high  neck  halters  in  summer. Understand  that  I  get  tired  of  hearing  my  cancer  enter  into  so  many  conversions  that  my   parents  have  with  others. Understand  that  I  want  to  decide  my  own  medical  path  and  have  a  say  in  how  often  and  when  I   get  follow-­‐up  scans  or  needed  surgery.
  • 4. Understand  that  I  place  my  medical  needs  on  the  highest  level,  but  I  want  to  place  my  current   life  needs  on  a  high  level  (when  I  want  to  delay  surgery  around  a  test  at  school  that  is  really   okay) Understand  that  I  need  to  challenge  myself  physically  (maybe  to  prove  to  myself  that  I  can  be   normal):    I  do  not  want  you  to  worry  when  I  fly  as  a  high  school  cheerleader  in  a  stunt;    do  a   back  handspring  in  a  tumbling  routine;  decide  to  learn  to  scuba  dive  as  my  senior  project. Understand  that  I  need  to  experience  the  challenges  of  school  on  my  own  sometimes:    let  me   talk  to  the  teachers  about  my  missed  classes  and  assignments  and  don't  rush  in  to  rescue  me   or  take  over  for  me. Understand  that  I  still  have  all  of  the  normal  teenager  hormonal  issues  but  even  more   amplified  at  times  by  my  cancer. Understand  that  I  want  things  to  go  back  the  way  they  used  to  be  (I  know  intellectually  that   this  is  not  possible  while  emotionally  this  continues  to  be  such  a  strong  desire). Understand  that  I  ache  because  none  of  the  boys  ask  me  out  for  dates  but  instead  ask  my   friends  (it  hurts  that  no  one  really  jumps  to  date  a  girl  with  cancer). Understand  that  I  hate  hurting  and  not  knowing  why:  (is  it  from  internal  scar  tissue,  from   autonomic  nervous  system  damage  after  surgery,  from  side  effects  from  chemotherapy,  or   from  a  new  tumor?) Understand  how  hard  it  is  to  have  increased  dependence  on  parents  just  when  I  was  supposed   to  be  getting  more  independence. Understand  that  my  mind  often  races  into  the  future  with  stress:    How  will  I  keep  my  grades  up   when  missing  so  much  school?    Will  I  still  be  able  to  go  to  college  or  get  into  the  right  college  
  • 5. for  me?    Will  anyone  ever  want  to  marry  me?    Will  I  ever  be  able  to  forget  about  cancer  and  just   live  life  like  a  "normal  person"? Understand  that  I  am  in  this  fight  to  win  over  cancer  but  sometimes  I  need  a  break  from   hearing  the  word  cancer. Please,  please  "Understand": Understand  that  I  want  lots  of  time  to  do  things  and  share  moments  that  are  not  cancer   related.    Understand  that  I  so  want  time  to  just  be  a  teenager  (not  a  teen  with  cancer),  just  to   be  a  family  member  (not  the  daughter  or  the  sister  with  cancer),  just  to  be  a  friend  (not  the   friend  with  cancer). Understand  that  I  am  determined  to  achieve  all  of  my  educational,  career,  and  personal  goals;  I   do  treasure  help  in  staying  focused  and  positive  in  my  journey  to  reach  those  goals. Understand  that  I  indeed  cherish  prayers,  love,  support,  and  devotion  that  I  receive  from   others. Understand  that  cancer  is  just  a  disease,  and  it  does  not  define  my  life.   Understand  that  I  am  a  person  who  can  and  will  overcome  the  obstacles  created  by  cancer. Understand  that  I  have  received  many  gifts  and  blessings  in  life  that  have  come  because  of  the   cancer  not  just  in  spite  of  the  cancer. Understand  that  I  love  life,  and  I  will  continue  to  love  life,  fight  cancer,  and  win! Understand  my  whole  self! Understand  me!