1. Campaign Update:
Professional Conference Liverpool
April 2014
Lynne Regent
CEO, Anaphylaxis Campaign
www.anaphylaxis.org.uk

2. Anaphylaxis Campaign:
We are...
The only UK wide charity solely for those at risk from severe
allergic reactions.
A membership service for individuals, healthcare
professionals, corporates
An information and support provider
- helpline, www.anaphylaxis.org.uk and social media
A patient advocate
An educator
A campaigner

3. Meet the team!

4. • Reaching out to young people
• Broadening our work with clinicians
• Adding to our AllergyWise training programmes
• Influencing implementation of the new European
Food Regulations
• Development of online channels & communications
• Increased campaigning
• Supporting research
www.anaphylaxis.org.uk 10
Our Strategy for 2014

5. • 2012 Survey of 500 15 – 25 year olds
- Results published
- Presentations to BSACI & EAACI
• Addressing the key issues
- carrying and using auto injectors
- lack of specialist support
- food issues e.g. eating out, take-
aways, labelling
• Development and implementation of
projects to address each issue
Reaching out to young people

6. • Clinical and Scientific Panel- New Chair andVice Chair
• Developing Professional membership - now over 500
members
• Facilitating research projects at
Manchester, Southampton, Birmingham, Brighton
,Surrey & more
• Work with iFAAM
• Our own small grants project
Working with Clinicians

7. WorkingWith Clinicians
• Linking withAllergy Clinics –regular contact
• Expert support group programme with
ImperialCollege- 10 leaders across the UK
• Initiative to reach out to Ethnic Groups with
Professor JohnWarner & team
• Work with EAACI/BSACI/BSI
• Fatality & incidence recording

8. • Course for Healthcare Professionals
updated and reaccredited
• Course for GPs and Practice nurses launched
and being taken up across the country
• Course for families and individuals being
updated
• Course developed for Pharmacists with
Boots now proposal to spread it to all
pharmacists
AllergyWiseTraining Programmes

9. • Work on the new
European food
regulations (FIR) before
implementation in 2014
Initiatives with the Food Industry
• Work on thresholds /reference
doses and patient understanding
• Survey on precautionary ‘may
contain’ labelling
• Consumer/patient voice-
addressing current issues
• e.g Alpro/Tesco

10. • Continued development of website responsive to hits and user
demands
- over regularly sees 15 – 20,000 visits a month and growing
• New online initiatives and experiments
- Internal:Tried &Trusted, Outlook now available as an online ‘flip
book’
- External: Google Ad words, expanding social media
• Growing social network communities
- Almost 2,500Twitter followers
- 3000 Facebook ‘likes’
- Growing presence on Linkedin, including our company page and
company group, AllergySavvy: May Contain Facts (please feel
free to join!)
• Increased online presence has lead to more features in
publications, requests for interviews and expertise and more
awareness
Anaphylaxis Campaign Online

11. • New YouTube Channel launched in May 2013:
www.youtube.com/AnaphylaxisCampaign
• Content including:
- Clinical explanation of anaphylaxis with Professor John
Warner
- Emergency care video demonstrating ABCDE procedure
- Interviews with members – families, young people and those
diagnosed later in life
- Information films on the Anaphylaxis Campaign and how to
support us
• Over 4500 total views of our content and increasing
Anaphylaxis Campaign on
YouTube

12. Campaigns in 2014
• Valentine’s Day 2014 Awareness Campaign
– brilliant engagement on social media including over
200 ‘shares’
• Latex Allergy Awareness – numerous pieces of
regional & online press coverage as well as features in
Marie Claire magazine and the Daily Mail’s health
section
• Childrens and Families Bill involvement
• Prescription charges coalition
• Postcard Campaign with the NASG

13. Campaigns
• Young People & adrenaline carrying
rates
• Availability of adrenaline injectors
• Generic adrenaline injectors in Schools
• Working with caterers on the new food
regulations

14. Our 20th Anniversary 2014
• We are celebrating the work of
the Campaign over the last 20
years
• Watch out for special events and
initiatives
• A big thank you to everyone who
has enabled the Anaphylaxis
Campaign to make achievements
– both past and present

15. • Help us to reach the newly diagnosed & raise
awareness of our existence with all your patients
• Renew your membership and encourage others to
join us
• Fundraise or undertake a challenge for us
• Buy your Christmas cards from us
• Donate using payroll giving
• Spread the word!
17
What can you do?

16. Thank you for your on-going support!
Any questions?
Lynne Regent
Anaphylaxis Campaign CEO
lynne.regent@anaphylaxis.org.uk
01252 546100