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Assistive Technologies and Rehabilitation


                - Challenges and Solutions -

Jan Albers
senior consultant EPR

AEGIS conference 30 November 2011 / Brussels
                                               1
Structure


   Background

   Major developments and challenges

   Possible approaches and solutions




AEGIS – Brussels, 30 November 2011      2
Background


   Dutch
   Study University Heidelberg
   Director Communication SRH
   Director VT Centre Hoensbroek
   CEO Hoensbroek (SRL / now Adelante)
   Co-founder EPR
   International activities (EU / RI a.o.)



AEGIS – Brussels, 30 November 2011            3
AT and Rehabilitation


   Long common history

   Focus on individual




 AEGIS – Brussels, 30 November 2011   4
AT not new … but new is ….


• Speed of technological developments and their
possible applications


• Context of disability world / rehabilitation



Key: change


AEGIS – Brussels, 30 November 2011                5
The message



           DC + DC                   DO




AEGIS – Brussels, 30 November 2011        6
Environment/context




    Social economic                                   Adapt
      Challenges                                to changing needs
• Finances


                              Modernisation
• Globalisation                               • Understand needs
• Labour market flexibility                   • Flexible responses
• Individualisation                           • New target groups
                                              • New services
• Ageing
                                              • New ways service provision
• Inclusion


                                              Sophisticated and complex
Increasing and diversifying                            services
         demand                                                     7
Context
          Paradigm shift in health and social services

   From public programming to more market-based regulation

Positive & proactive
                                              High level expertise
       approach

                      Modernisation / Change
• Mainstreaming/partnership        • Demonstrate added value
• Inclusion / maximise potential   • Quality assurance
• Empowerment                      • Competition: tendering
• Decentralization                 • Market analysis and orientation




                 Paradigm shift in disability field
                                                                 8
         From medical model to social / consumer model
AT - not a ‘normal’ product




          An assistive product

           A need unexpected and not
           created
AEGIS – Brussels, 30 November 2011     9
AT - not a ‘normal’ product




      An assistive product

                 A product that nobody wants


AEGIS – Brussels, 30 November 2011
                                               10
AT - from individual to environment
   Independent living

   AT not uncontroversial

   Critics about technology driven nature

   Stigmatizing character

   No replacement of communication          11
AEGIS – Brussels, 30 November 2011
AT - Definition
           Any item, piece of equipment or product system,
            whether acquired commercially, modified or
            customized, that is used to increase, maintain or
            improve functional capabilities of individuals with
            disabilities.
            (The   US Assistive Technology Act of 1998, Section 3)




           AT has the potential to help people with disabilities to
            live in the least restrictive environments and attain their
            personal and vocational aspirations.
            (Peterson DB, Murray GC. Ethics and assistive technology service provision. Disability and Rehabilitation:
            Assistive Technology 2006;1:59–67)


  AEGIS – Brussels, 30 November 2011                                                                            12
AT and Telecare
           AT&T = the delivery of health and social care to
            individuals within the home or wider community outside
            formal institutional settings, with the support of devices
            enabled by information and communication
            technologies
            (Tang   P, Curry R, Gann D. Telecare: new ideas for care and support @ home. Bristol: The Policy Press, 2000.)




  AEGIS – Brussels, 30 November 2011
                                                                                                              13
AT and AAL (housing / environment)

• (Semi)independent living elderly and pwd

• Security

• Communication

• Comfort / convenience

• Support

                         Avoid institutionalizing

AEGIS – Brussels, 30 November 2011                  14
AT – universal design
   Universal design strives to be a broad-spectrum
    solution that helps everyone, not just people with
    disabilities and it recognises the importance of how
    things look.

    Assistive technology which is not guided by the
    universal design concept may benefit people with
    disabilities but result in separate and stigmatising
    solutions, for example, a ramp that leads to a separate
    entry to a building from the main stairway..
    (Perry J, Beyer S, Holm S. Assistive technology, telecare and people with intellectial disabilities: ethical
    considerations. J Med Ethics 2009;35:81-86.)


AEGIS – Brussels, 30 November 2011                                                                                 15
Experience of rehabilitation
    professionals

   75% of AT professionals believe that
    persons with disability do not receive the
    AT that they need




    Assistive product as a successful solution is
    very knowledge demanding and needs
    professional expertise of various domains

AEGIS – Brussels, 30 November 2011                  16
Critical Success Factors (CSF)
   Knowledge

   Assessment

   Expectations / stigma / acceptance

   Ongoing process

   Sustainability / durability          17
AEGIS – Brussels, 30 November 2011
 Different         skills needed (not only technical)

 Profound           knowledge of market (many and complex
   products)

 National         and international networking

 Involvement              and training of clients

NOTE: lack of sufficient evidence based practice
AEGIS – Brussels, 30 November 2011                       18
 Multidisciplinary                  team - flexible and continuous

 Person-centered                    approach

 Task        analysis (real-life scenarios) and site trials

 documentation                  the assessment

 Education/             training of the team, including the
    client

   Wide scope of knowledge is required to service delivery of AT


AEGIS – Brussels, 30 November 2011                                19
     High or low expectations

     Trial and error process

     AT                        he / she has a disability

     Involvement of users from the very beginning

     Creating informed choices

     Involvement of environment / family

    AEGIS – Brussels, 30 November 2011
                                                            20
   AT is more than a product

   “after sale’ is crucial

   Time lapse between need and provision

   (re)assessment as continuous process

   AT service includes training and ongoing training



AEGIS – Brussels, 30 November 2011                  21
75% of AT devices abandoned within 3 years

Reasons:
 too complex
 no acceptance by users
 no acceptance by environment
 not enough training provided
 bad quality


To do:
 better follow-up
 awareness raising and information
 (re)assessment as ongoing process

  AEGIS – Brussels, 30 November 2011         22
     is like a positive catalyst - it participates in the chemical reaction,
      speeds it up, but is not consumed by the reaction itself – it must be
      there but forgotten!




      Client skill and competency development
      Maximum independence
      Full participation in society / Inclusion


    AEGIS – Brussels, 30 November 2011                                          23
Ethical Issues

   Universal application / access for all

   Privacy

   Data protection

   Delegation of responsibility to machines

   ‘personal’ care vs. technology

   Relation provider / user
                                               24
AEGIS – Brussels, 30 November 2011
Ethical guideliness
   Privacy: access / protection

   Autonomy: decision about use of AT

   Integrity and dignity: respecting individuals as human beings

   Reliability: reliable AT solutions . No threat physical / mental
    health

   E-inclusion: accessible for all user groups

   Benefit for society: use of AT increase quality of life
                                                                25
AEGIS – Brussels, 30 November 2011
Core drivers AT / ICT development
Knowledge disabled end-user

Knowledge diagnostician, (para)medical/technical
 professionals (eastin)

Knowledge rules and procedures of service provider
 systems and reimbursement schemes in Europe

Flexibility in product design (different geographical
 markets)


AEGIS – Brussels, 30 November 2011
                                                         26
Barriers AT / ICT development
Lack of knowledge market

Different interpretations national/regional levels

Lack of coordination involved stakeholders

 Different national SP systems

High prices AT / ICT devices


AEGIS - Brussels, 30 November 2011
                                                      27
Industry key player AT / ICT
   Fragmented interest

   Mainly restricted to specialised niches

   Not recognizing market potential

   Major international industries developed only for US market

   European signal (Inclusion driven calls within FP6 and FP7-first step)

   Appropriate EC legislative framework



AEGIS – Brussels, 30 November 2011
                                                                    28
Purchase of AT / ICT by end user


Medical model
   Disability / physician


Social model
   National legislation / systems / agencies / funding


Consumer model
   Direct contact user - supplier


    AEGIS – Brussels, 30 November 2011                    29
Future role of Rehab SP in AT/ICT (1)

     Participation in R&D

     Alliances with universities, research centers

     Cooperation with industry

     Involvement of own professionals in AT
      development
AEGIS – Brussels, 30 November 2011
                                                      30
Future role of Rehab SP in AT/ICT (2)


    Cooperation with mainstream organizations

    Empowerment of service users

    Training of service users

                  AT is a challenge but even more an opportunity

AEGIS – Brussels, 30 November 2011
                                                           31
The message



         DC + DC                      DO




 AEGIS – Brussels, 30 November 2011
                                           32

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Day 2 jan albers presentation aegis (final)

  • 1. Assistive Technologies and Rehabilitation - Challenges and Solutions - Jan Albers senior consultant EPR AEGIS conference 30 November 2011 / Brussels 1
  • 2. Structure  Background  Major developments and challenges  Possible approaches and solutions AEGIS – Brussels, 30 November 2011 2
  • 3. Background  Dutch  Study University Heidelberg  Director Communication SRH  Director VT Centre Hoensbroek  CEO Hoensbroek (SRL / now Adelante)  Co-founder EPR  International activities (EU / RI a.o.) AEGIS – Brussels, 30 November 2011 3
  • 4. AT and Rehabilitation  Long common history  Focus on individual AEGIS – Brussels, 30 November 2011 4
  • 5. AT not new … but new is …. • Speed of technological developments and their possible applications • Context of disability world / rehabilitation Key: change AEGIS – Brussels, 30 November 2011 5
  • 6. The message DC + DC DO AEGIS – Brussels, 30 November 2011 6
  • 7. Environment/context Social economic Adapt Challenges to changing needs • Finances Modernisation • Globalisation • Understand needs • Labour market flexibility • Flexible responses • Individualisation • New target groups • New services • Ageing • New ways service provision • Inclusion Sophisticated and complex Increasing and diversifying services demand 7
  • 8. Context Paradigm shift in health and social services From public programming to more market-based regulation Positive & proactive High level expertise approach Modernisation / Change • Mainstreaming/partnership • Demonstrate added value • Inclusion / maximise potential • Quality assurance • Empowerment • Competition: tendering • Decentralization • Market analysis and orientation Paradigm shift in disability field 8 From medical model to social / consumer model
  • 9. AT - not a ‘normal’ product  An assistive product A need unexpected and not created AEGIS – Brussels, 30 November 2011 9
  • 10. AT - not a ‘normal’ product  An assistive product A product that nobody wants AEGIS – Brussels, 30 November 2011 10
  • 11. AT - from individual to environment  Independent living  AT not uncontroversial  Critics about technology driven nature  Stigmatizing character  No replacement of communication 11 AEGIS – Brussels, 30 November 2011
  • 12. AT - Definition  Any item, piece of equipment or product system, whether acquired commercially, modified or customized, that is used to increase, maintain or improve functional capabilities of individuals with disabilities. (The US Assistive Technology Act of 1998, Section 3)  AT has the potential to help people with disabilities to live in the least restrictive environments and attain their personal and vocational aspirations. (Peterson DB, Murray GC. Ethics and assistive technology service provision. Disability and Rehabilitation: Assistive Technology 2006;1:59–67) AEGIS – Brussels, 30 November 2011 12
  • 13. AT and Telecare  AT&T = the delivery of health and social care to individuals within the home or wider community outside formal institutional settings, with the support of devices enabled by information and communication technologies (Tang P, Curry R, Gann D. Telecare: new ideas for care and support @ home. Bristol: The Policy Press, 2000.) AEGIS – Brussels, 30 November 2011 13
  • 14. AT and AAL (housing / environment) • (Semi)independent living elderly and pwd • Security • Communication • Comfort / convenience • Support Avoid institutionalizing AEGIS – Brussels, 30 November 2011 14
  • 15. AT – universal design  Universal design strives to be a broad-spectrum solution that helps everyone, not just people with disabilities and it recognises the importance of how things look. Assistive technology which is not guided by the universal design concept may benefit people with disabilities but result in separate and stigmatising solutions, for example, a ramp that leads to a separate entry to a building from the main stairway.. (Perry J, Beyer S, Holm S. Assistive technology, telecare and people with intellectial disabilities: ethical considerations. J Med Ethics 2009;35:81-86.) AEGIS – Brussels, 30 November 2011 15
  • 16. Experience of rehabilitation professionals  75% of AT professionals believe that persons with disability do not receive the AT that they need Assistive product as a successful solution is very knowledge demanding and needs professional expertise of various domains AEGIS – Brussels, 30 November 2011 16
  • 17. Critical Success Factors (CSF)  Knowledge  Assessment  Expectations / stigma / acceptance  Ongoing process  Sustainability / durability 17 AEGIS – Brussels, 30 November 2011
  • 18.  Different skills needed (not only technical)  Profound knowledge of market (many and complex products)  National and international networking  Involvement and training of clients NOTE: lack of sufficient evidence based practice AEGIS – Brussels, 30 November 2011 18
  • 19.  Multidisciplinary team - flexible and continuous  Person-centered approach  Task analysis (real-life scenarios) and site trials  documentation the assessment  Education/ training of the team, including the client  Wide scope of knowledge is required to service delivery of AT AEGIS – Brussels, 30 November 2011 19
  • 20. High or low expectations  Trial and error process  AT he / she has a disability  Involvement of users from the very beginning  Creating informed choices  Involvement of environment / family AEGIS – Brussels, 30 November 2011 20
  • 21. AT is more than a product  “after sale’ is crucial  Time lapse between need and provision  (re)assessment as continuous process  AT service includes training and ongoing training AEGIS – Brussels, 30 November 2011 21
  • 22. 75% of AT devices abandoned within 3 years Reasons:  too complex  no acceptance by users  no acceptance by environment  not enough training provided  bad quality To do:  better follow-up  awareness raising and information  (re)assessment as ongoing process AEGIS – Brussels, 30 November 2011 22
  • 23. is like a positive catalyst - it participates in the chemical reaction, speeds it up, but is not consumed by the reaction itself – it must be there but forgotten!  Client skill and competency development  Maximum independence  Full participation in society / Inclusion AEGIS – Brussels, 30 November 2011 23
  • 24. Ethical Issues  Universal application / access for all  Privacy  Data protection  Delegation of responsibility to machines  ‘personal’ care vs. technology  Relation provider / user 24 AEGIS – Brussels, 30 November 2011
  • 25. Ethical guideliness  Privacy: access / protection  Autonomy: decision about use of AT  Integrity and dignity: respecting individuals as human beings  Reliability: reliable AT solutions . No threat physical / mental health  E-inclusion: accessible for all user groups  Benefit for society: use of AT increase quality of life 25 AEGIS – Brussels, 30 November 2011
  • 26. Core drivers AT / ICT development Knowledge disabled end-user Knowledge diagnostician, (para)medical/technical professionals (eastin) Knowledge rules and procedures of service provider systems and reimbursement schemes in Europe Flexibility in product design (different geographical markets) AEGIS – Brussels, 30 November 2011 26
  • 27. Barriers AT / ICT development Lack of knowledge market Different interpretations national/regional levels Lack of coordination involved stakeholders  Different national SP systems High prices AT / ICT devices AEGIS - Brussels, 30 November 2011 27
  • 28. Industry key player AT / ICT  Fragmented interest  Mainly restricted to specialised niches  Not recognizing market potential  Major international industries developed only for US market  European signal (Inclusion driven calls within FP6 and FP7-first step)  Appropriate EC legislative framework AEGIS – Brussels, 30 November 2011 28
  • 29. Purchase of AT / ICT by end user Medical model  Disability / physician Social model  National legislation / systems / agencies / funding Consumer model  Direct contact user - supplier AEGIS – Brussels, 30 November 2011 29
  • 30. Future role of Rehab SP in AT/ICT (1)  Participation in R&D  Alliances with universities, research centers  Cooperation with industry  Involvement of own professionals in AT development AEGIS – Brussels, 30 November 2011 30
  • 31. Future role of Rehab SP in AT/ICT (2)  Cooperation with mainstream organizations  Empowerment of service users  Training of service users AT is a challenge but even more an opportunity AEGIS – Brussels, 30 November 2011 31
  • 32. The message DC + DC DO AEGIS – Brussels, 30 November 2011 32