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Action for M.E.
 Welfare Reform
Consultation Survey
   October 2008
People still in
employment
Are you currently in paid employment?




                                Yes         No




                            Total Responses: 982
Are you employed by someone else or self-
              employed?



                              Employed by someone else
                              Self-employed




                              Total Responses: 181
Please select the closest match to the
             sector of your current paid employment.
             Agriculture, hunting and forestry
                                        Fishing
                           Mining and quarrying
                                  Manufacturing               5
              Electricity, gas and water supply       1
                                  Construction            3
                           Wholesale and retail                            11
                        Hotels and restaurants        1
       Transport, storage and communication               3
               Banking, finance and insurance                                   14
                                    Real estate                   6
            Public administration and defence                                   14
                                     Education                                                  40
                       Health and social work                                        18
Other community, social and personal services                                   14
                             Domestic services        1
                   International organizations
                                         Other                                                       49

                                                  0                   10             20   30   40    50


                                                      Total Responses: 180
Which of the following best matches the
                 work that you currently do?
           Managerial                11

          Professional                                                                    65

            Technical            10

Academic and research            10

              Clerical                                                          54

     Service and sales                    15

              Manual             9

                Craft        2

                         0           10         20        30          40   50        60        70


                                               Total Responses: 176
How many hours do you currently work
           each week?



                               None
                               1-5 hours
                               6-10 hours
                               11-16 hours
                               17-24 hours
                               25-40 hours
                               Over 40 hours



                          Total Responses: 180
Have you had to change your hours of work as
           a result of your illness?



                                    Yes         No




                                Total Responses: 173
If yes, how many hours did you used to
            work each week?



                                 1-5 hours
                                 6-10 hours
                                 11-16 hours
                                 17-24 hours
                                 25-40 hours
                                 Over 40 hours




                            Total Responses: 142
Comparison of current hours of work
          and former hours of work

Former hours              Current hours




                  1-5 hours     6-10 hours
                  11-16 hours   17-24 hours
                  25-40 hours   Over 40 hours
Have you had to change your employment as a
           result of your illness?



                                   Yes         No




                               Total Responses: 176
If yes, which of the following best
              matches the work that you used to do?
           Managerial                                      17

          Professional                                               30

            Technical        1

Academic and research            4

              Clerical                    10

     Service and sales                    10

              Manual                  9

                Craft


                         0                 10                   20    30


                                     Total Responses: 81
If you have had to change your employment, please
              select the closest match to the sector of your former
                             area of paid employment.
             Agriculture, hunting and forestry    1
                                        Fishing
                           Mining and quarrying
                                  Manufacturing           3
              Electricity, gas and water supply   1
                                  Construction
                           Wholesale and retail                 8
                        Hotels and restaurants    1
       Transport, storage and communication       1
               Banking, finance and insurance                    8
                                    Real estate       2
            Public administration and defence             3
                                     Education                      10
                       Health and social work                   8
Other community, social and personal services         2
                             Domestic services        2
                   International organizations    1
                                         Other                                   27

                                                  0                  10     20        30


                                                      Total Responses: 78
Have you ever had a relapse as a result of your
               employment?



                                      Yes         No




                                  Total Responses: 175
If your current employer has made arrangements to
                   enable you to remain in paid employment, what
                           arrangements have been made?
                  No arrangements                                            40
                     Flexible hours                                                          64
              Working from home                              28
                 Special equipment        9
                     Lighter duties                                     34
                   Frequent breaks                                31
 Support from occupational health                                       34
                        Re-training   2
           Transport to workplace     2
             Allocated car parking        10
  Regular meetings with employer                                  31
                    Buddy at work         10
            Understanding attitude                                                 52
            M.E. awareness training
Time off for medical appointments                                            40
                Quiet place to rest                16
                             Other                                     33

                                      0       10        20        30          40   50   60        70


                                               Total Responses: 168
If further adjustments are required, which of the
                                 following would help?

                   Flexible hours
             Working from home
               Special equipment
                   Lighter duties
                 Frequent breaks
Support from occupational health
                      Re-training
          Transport to workplace
            Allocated car parking
  Regular meetings with employer
                  Buddy at work
           Understanding attitude
          M.E. awareness training
Time off for medical appointments
              Quiet place to rest

                                    0         10                 20         30   40
                                    1st             2nd               3rd
                                          Total Responses: 133
If further adjustments are required, which of the
                                 following would help?

                   Flexible hours                                         25                                    16              8
             Working from home                                                      34                                     17        5
               Special equipment        3           4
                   Lighter duties           6                        10                          8
                 Frequent breaks            6                   5              6
Support from occupational health            5           2        4
                      Re-training 1         4
          Transport to workplace                10                        4             6
            Allocated car parking       3               6             4
  Regular meetings with employer        21
                  Buddy at work         2       4           2
           Understanding attitude                   11                                      15                   17
          M.E. awareness training               8                                  15                      16
Time off for medical appointments           6                        10                              11
              Quiet place to rest                           15                                       13              16

                                    0                                          15                         30                    45       60
                                    1st                                        2nd                                        3rd
                                                                     Total Responses: 133
How far do you travel to work?



                          I work from home
                          0-2 miles
                          3-5 miles
                          6-10 miles
                          11-20 miles
                          Over 20 miles




                       Total Responses: 174
What is your main mode of transport to
                work?



                              I work from home
                              I drive
                              Passenger
                              Taxi
                              Bus or train
                              Cycle
                              Walk
                              Other

                           Total Responses: 171
How long typically, do you spend
      travelling to work?



                            Less than 5 minutes
                            5-15 minutes
                            16-30 minutes
                            30 minutes - 1 hour
                            1 hour - 2 hours
                            More than 2 hours




                         Total Responses: 169
How would you describe how supportive
your employer is in relation to your M.E.?




                               Very supportive
                               Supportive
                               Neither supportive nor unsupportive
                               Unsupportive
                               Hostile
                               I am self-employed




                              Total Responses: 170
How well informed would you say your
 employer is in relation to your M.E.?




                              Very well informed
                              Quite well informed
                              Less informed than they should be
                              Not informed
                              Misinformed
                              I am self-employed




                            Total Responses: 171

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Welfare Reform Consultation Survey - People in Employment

  • 1. Action for M.E. Welfare Reform Consultation Survey October 2008
  • 3. Are you currently in paid employment? Yes No Total Responses: 982
  • 4. Are you employed by someone else or self- employed? Employed by someone else Self-employed Total Responses: 181
  • 5. Please select the closest match to the sector of your current paid employment. Agriculture, hunting and forestry Fishing Mining and quarrying Manufacturing 5 Electricity, gas and water supply 1 Construction 3 Wholesale and retail 11 Hotels and restaurants 1 Transport, storage and communication 3 Banking, finance and insurance 14 Real estate 6 Public administration and defence 14 Education 40 Health and social work 18 Other community, social and personal services 14 Domestic services 1 International organizations Other 49 0 10 20 30 40 50 Total Responses: 180
  • 6. Which of the following best matches the work that you currently do? Managerial 11 Professional 65 Technical 10 Academic and research 10 Clerical 54 Service and sales 15 Manual 9 Craft 2 0 10 20 30 40 50 60 70 Total Responses: 176
  • 7. How many hours do you currently work each week? None 1-5 hours 6-10 hours 11-16 hours 17-24 hours 25-40 hours Over 40 hours Total Responses: 180
  • 8. Have you had to change your hours of work as a result of your illness? Yes No Total Responses: 173
  • 9. If yes, how many hours did you used to work each week? 1-5 hours 6-10 hours 11-16 hours 17-24 hours 25-40 hours Over 40 hours Total Responses: 142
  • 10. Comparison of current hours of work and former hours of work Former hours Current hours 1-5 hours 6-10 hours 11-16 hours 17-24 hours 25-40 hours Over 40 hours
  • 11. Have you had to change your employment as a result of your illness? Yes No Total Responses: 176
  • 12. If yes, which of the following best matches the work that you used to do? Managerial 17 Professional 30 Technical 1 Academic and research 4 Clerical 10 Service and sales 10 Manual 9 Craft 0 10 20 30 Total Responses: 81
  • 13. If you have had to change your employment, please select the closest match to the sector of your former area of paid employment. Agriculture, hunting and forestry 1 Fishing Mining and quarrying Manufacturing 3 Electricity, gas and water supply 1 Construction Wholesale and retail 8 Hotels and restaurants 1 Transport, storage and communication 1 Banking, finance and insurance 8 Real estate 2 Public administration and defence 3 Education 10 Health and social work 8 Other community, social and personal services 2 Domestic services 2 International organizations 1 Other 27 0 10 20 30 Total Responses: 78
  • 14. Have you ever had a relapse as a result of your employment? Yes No Total Responses: 175
  • 15. If your current employer has made arrangements to enable you to remain in paid employment, what arrangements have been made? No arrangements 40 Flexible hours 64 Working from home 28 Special equipment 9 Lighter duties 34 Frequent breaks 31 Support from occupational health 34 Re-training 2 Transport to workplace 2 Allocated car parking 10 Regular meetings with employer 31 Buddy at work 10 Understanding attitude 52 M.E. awareness training Time off for medical appointments 40 Quiet place to rest 16 Other 33 0 10 20 30 40 50 60 70 Total Responses: 168
  • 16. If further adjustments are required, which of the following would help? Flexible hours Working from home Special equipment Lighter duties Frequent breaks Support from occupational health Re-training Transport to workplace Allocated car parking Regular meetings with employer Buddy at work Understanding attitude M.E. awareness training Time off for medical appointments Quiet place to rest 0 10 20 30 40 1st 2nd 3rd Total Responses: 133
  • 17. If further adjustments are required, which of the following would help? Flexible hours 25 16 8 Working from home 34 17 5 Special equipment 3 4 Lighter duties 6 10 8 Frequent breaks 6 5 6 Support from occupational health 5 2 4 Re-training 1 4 Transport to workplace 10 4 6 Allocated car parking 3 6 4 Regular meetings with employer 21 Buddy at work 2 4 2 Understanding attitude 11 15 17 M.E. awareness training 8 15 16 Time off for medical appointments 6 10 11 Quiet place to rest 15 13 16 0 15 30 45 60 1st 2nd 3rd Total Responses: 133
  • 18. How far do you travel to work? I work from home 0-2 miles 3-5 miles 6-10 miles 11-20 miles Over 20 miles Total Responses: 174
  • 19. What is your main mode of transport to work? I work from home I drive Passenger Taxi Bus or train Cycle Walk Other Total Responses: 171
  • 20. How long typically, do you spend travelling to work? Less than 5 minutes 5-15 minutes 16-30 minutes 30 minutes - 1 hour 1 hour - 2 hours More than 2 hours Total Responses: 169
  • 21. How would you describe how supportive your employer is in relation to your M.E.? Very supportive Supportive Neither supportive nor unsupportive Unsupportive Hostile I am self-employed Total Responses: 170
  • 22. How well informed would you say your employer is in relation to your M.E.? Very well informed Quite well informed Less informed than they should be Not informed Misinformed I am self-employed Total Responses: 171