Raising awareness of rights issues related to Psoriasis at a meeting of the South African Psoriasis Association

1. Health and Human Rights
@ South African Psoriasis Association
General Meeting
February 2014
Veronica Mitchell

2. Psoriasis
What about stigma, discrimination …
Access to health care
?

3. South African
Laws, Policies & Programmes
Personal
experiences
?

4. Frequent violations occur
In the health system
In our communities
Societal prejudice towards difference
Lack of understanding and awareness about disability

5. http://www.underthespotlight.com/

6. Common experiences
Stigma
Discrimination
Judgement
Worried by Aha-Soft from The Noun Project

7. Types of stigma
Doug Souter
General Secretary International Federations of Anti Leprosy, UK
@ IFPA workshop in Madrid 2013

8. Types of stigma e.g.
Enacted
Losing a job
Perceived
Fearful of sexual
relationships
Self
Changing
behaviour
- Social exclusion

9. Stigma
“ a negative response to
human difference

10. Different reactions
Hiding skin
Isolation
Mental health issues
…. we sometimes have choices
Shocked by Aha-Soft from The Noun Project

11. Colle
c
Indiv
idual
s
tive p
soria
sis s
Rights to:
dignity
non-discrimination
freedom (to be ourselves)
uffer
e
rs

12. Access to treatment is a right
Costs
Public health system spending limitations
Medical insurance selection of treatment
Transport

13. Access to treatment is a right
Patents
Power of transnational pharmaceutical groups

14. To
realize our human rights
Raising awareness /
education
Confidence
Collective effort gloabally
Happy by Aha-Soft from The Noun Project

15. Sourcing information
Information at our finger tips
Support & Sharing
e.g. social media
Computer by Dan Hetteix from The Noun Project
Icons by http://dryicons.com

16. Sourcing information
Open Educational Resources (OER)
http://www.uct.ac.za/

17. Sourcing information
https://vula.uct.ac.za/access/content/group/9c29ba04-b1ee-49b9-8c85Computer by Dan Hetteix from The Noun Project
9a468b556ce2/Human%20Rights%20Key/files/dKey.html

18. Importance of empathy and reflection
https://vula.uct.ac.za/access/content/group/9c29ba04-b1ee-49b9-8c85Computer by Dan Hetteix from The Noun Project
9a468b556ce2/Human%20Rights%20Key/files/dKey.html

19. Call for Action
Glob
al mo
v
emen
t
http://www.ifpa-pso.org/web/page.aspx?refid=16

20. World Health Organization
Psoriasis
is a
non-communicable disease
with co-morbidities
that need to be considered
Stacey Stent Illustration
http://opencontent.uct.ac.za/Centre-for-Higher-Education-Development/Centre-for-Educational-Technology/Images-from-Studying-at-University-A-guide-for-first-y

21. South African Psoriasis Association
website
http://www.psoriasis.org.za/

22. Conclusion
Human rights need to be upheld
Global Plan of Action through WHO
Implementation of laws is problematic
Social awareness and education can contribute to
change present attitudes of
stigma and discrimination

23. Thank you
Stethoscope by kesaryvamshi from The Noun Project