NEHTA E-Health Transition Data Quality Clinical Safety
1. The National E-Health Transition Authority (NEHTA)
From Data Quality to Clinical Safety
Tatiana Stebakova
19 April 2010
2. Page 2
Role of NEHTA
• NEHTA was set up and funded by Federal, State and
Territory Governments as a separate entity in 2005
• We facilitate and progress e-health for Australia
• Our Board comprises heads of health departments in all
Australian States and Territories
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3. Page 3
E-health foundations
• Right information – Terminology
• Right patient, Right provider – Healthcare Identifiers
• Right technological standards – Secure Messaging
• Complementary legislation – Authentication
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4. Page 4
• Identifiers for Individuals, Providers
and Organisations
• Ensures that the right information is
associated with the right person
• Healthcare Identifiers Bill 2010
legislation currently before parliament
• Operational July 2010 pending
legislation
New Healthcare Identifiers
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5. The Healthcare Identifiers (HI) Service has three primary
core service components:
1. Individual Healthcare Identifier (IHI)
2. Healthcare Provider Identifier – Individual (HPI-I)
3. Healthcare Provider Identifier – Organisation (HPI-O)
Healthcare Identifiers
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7. Page 7
Data quality in healthcare
Click to add text
DQ Impact Clinical Scenario DQ Problem
Clinical
A letter of invitation for the follow-up service or a check-
up was sent to a patient, who recently died from cancer
No Date of Death recorded
Inability to manage patients with chronic diseases Multiple identities
Mismatch of patient’s information No single source of truth
Avoidable
Costs
Increasing costs of mail-outs with little business impact Addresses missing, incorrect or out
of date
Operational costs of data cleansing and manual data
validation
High costs of duplicate resolution
process
Service
efficiency
Diminishing number of patients registered with the
practice
Lack of knowledge on service
demand
Difficulties in inviting people for the service or follow-up Contact details are missing or
incorrect
A new service was created or improved, but there is not
have enough utilization
Inaccurate information
Overestimation of the demand
due to duplicate entries
Change
Management
Difficulties in DQ improvement Data Quality governance is missing.
Too hard
8. HI Service data quality challenges
1. Existing Mental Models on Data Quality
2. Interoperability within Federated
Community
3. Quantification and DQ Measurement
4. Leveraged Solution-Legacy data and
systems
5. Privacy/Legal
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13. Data Quality Framework: Governance
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http://members.ozemail.com.au/~enigman/australia/tas.html
WA DQ Forum
SA DQ Forum
NT DQ Forum
VIC DQ Forum
TAS DQ Forum
DQ Steering Committee
4 members
QLD DQ
Forum
ACT DQ Forum MCA HI
Operations
Review Forum
NEHTA DQ Forum Workgroups
(9 members in each group)
Public and Private Hospitals Workgroup
Trusted Data Sources (TDS) Workgroup
Diagnostics and Pharmacy Workgroup
Primary Care Workgroup (includes allied health)
Jurisdictional Working Party Structure
(5 members - each workgroup representative
and a chair
Public and Private Hospitals Workgroup
Trusted Data Sources (TDS) Workgroup
Diagnostics and Pharmacy Workgroup
Primary Care Workgroup (this will include allied health)
NEHTA DQ Forum Structure:
DQ Forum Director
DQ Technical
Certification and Audit
Group
5 members
DQ Technical
Advisory Group
5 members
DQ Oversight Board
DQ Standards
Advisory Group
5 members
NSW DQ
Forum
14. Data Quality Framework: Dimensions
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1. Semantic
2. Structure
3. Provenance
4. Completeness
5. Consistency
6. Timeliness
7. Accuracy
8. Fitness for Use
9. Quality Rating
15. Data Quality Framework: Standards and
practices
• Structure and format standards for data
exchanges
• Certification of trusted data sources
• Community-wide data standards &
metadata management
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16. Data Quality Framework: Policies &
Protocols
• Policy-based Data Quality management on
a centralised system and community level
• Data validation protocols
• Data provenance management
17. Data Quality Framework: Technology and
operations guidelines (in progress)
• Standardisation of technology components across
the community
• Design and service use guidelines
• Standardised techniques and procedures for data
validation, certification, quality assurance, and
reporting
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18. Data Quality Framework: Performance
measurement- Metrics
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Dimension Characteristic Number of Metrics
Semantic Data Definitions 3
Name Ambiguity 3
Structure Structural Consistency 22
Provenance Originating Data Source 3
Completeness Optionality 41
Population density 35
Consistency Capture and collection 14
Presentation 4
Currency Age/Freshness 17
Temporal 1
Time of Release 1
Timeliness Accessibility 3
Response Time 3
Accuracy Precision 15
Value Range 44
Fitness for Use Coverage 49
Identifier Uniqueness 40
Search and match 27
19. Summary: Best Advice
1. Data quality means clinical safety in healthcare systems.
2. Write clear and detailed DQ requirements, measurements and KPIs .
3. Make sure they are included in the design and operational contract.
4. Define a clear DQ Strategy and Blueprint. Try to involve the best DQ practitioners.
5. Focus on the quality of attributes, which are strategic for your business.
6. Define a capability maturity model and a roadmap on how to achieve the desired level of maturity.
7. Participate in all specification reviews to ensure that strategic quality components, e.g. information
validation, are addressed in design and operational policies.
8. Know the systems design well. Precise knowledge will help you to develop DQ architecture.
9. Do not compromise on data standards – it will save you money on the system integration.
10. Be brave and persistent.
11. http://www.telegraph.co.uk/news/newsvideo/7577801/Organ-donor-register-blunder
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So in this environment, with pressure for health reform, the National E-Health Transition Authority is working across the health sector to introduce the best e-health technology for Australia.
NEHTA was set up and funded by Federal, State and Territory Governments as a separate and not-for-profit entity in 2005.
As a collaborative vehicle, we have responsibility for many projects, all aimed at establishing the foundations for the widespread adoption of e-health.
Our Board comprises the heads of health departments in all jurisdictions led by an independent chair, David Gonski – who is well recognised in business and is the Chairman of the Stock Exchange.
The governments of Australia recognise that electronic health (e-health) and an Individual Electronic Health Record (IEHR) are vital to the achievement of major health reform in the next decade.
Right information – described using common formats and terminology – so that everyone is ‘speaking the same language’
Common data groups agreed
SNOMED CT and Australian Medicines Terminology (AMT) nationally available
Working with major vendors to implement AMT and Emergency term set
Right Patient, Right provider - Unique identification of patients/consumers, individual providers and institutional providers.
New Zealand already has unique identifiers in place
Australia is building its health identifier service – operational by mid 2010
Consultation on underpinning legislation
Underpins most ehealth communication
Right technological standards – for security
HL7 CDA and Web services preferred way forward
Working with community - PIP incentives
Two jurisdictions moving to implement Statewide solutions
Complementary legislation – for privacy
Services based on PKI
Delivered in same time frame
Jurisdictions working with NEHTA on implementation, including single sign-on
Ultimately building to Electronic records – for patients/consumers
Earlier this year we set some key targets to achieve this year.
The primary one was the development of healthcare identifiers by December, in time to use these live by June 2010.
We contracted Medicare to complete this contract and we are on schedule for delivery.
There will be three unique healthcare identifiers:
An IHI is a unique 16 digit number that will be assigned to each Australian resident and others seeking healthcare in Australia. IHIs will be used in health information records alongside the person’s name and date of birth. (Number randomly generated.)
A HPI-I will be used by healthcare providers and other health personnel involved in patient care. HPI-Is will enable consistent and up-to-date access to patient health information, and identification of healthcare providers.
A HPI-O will identify the organisation (such as the hospital or health clinic) where care is provided. HPI-Os will enable accurate transmission of communications between healthcare providers and organisations.
There will be three unique healthcare identifiers:
An IHI is a unique 16 digit number that will be assigned to each Australian resident and others seeking healthcare in Australia. IHIs will be used in health information records alongside the person’s name and date of birth. (Number randomly generated.)
A HPI-I will be used by healthcare providers and other health personnel involved in patient care. HPI-Is will enable consistent and up-to-date access to patient health information, and identification of healthcare providers.
A HPI-O will identify the organisation (such as the hospital or health clinic) where care is provided. HPI-Os will enable accurate transmission of communications between healthcare providers and organisations.
the Healthcare Identifiers Bill 2010,
with the Government now adjourning the debate of the Bill to parliament’s
first sitting day of the winter sittings – May 11.