3月社區居住研討會講義(中英文)
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2011年3月21-22日社區居住研討會,邀請Arduin執行長Jos van Loon主講
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3月社區居住研討會講義(中英文)
- 1. Dr. Jos van Loon, Arduin January 2011 The Deïnstitutionalisation and Current Practice of Arduin. Quality of life and Deïnstitutionalisation
- 2. Dr. Jos van Loon, Arduin January 2011 Arduin 的去機構化與現況 生活品質與 去機構化
- 19. QOL Factor QOL Domain Exemplary QOL Indicators Independence Personal Development Self-Determination Education status, personal skills, adaptive behavior (ADLs IADLs) Choices/decisions, autonomy, personal control, personal goals Social Participation Interpersonal Relations Social Inclusion Rights Social networks, friendships, social activities, interactions, relationships Community integration/participation, community roles, supports Human (respect, dignity, equality) Legal (legal access, due process) Well-Being Emotional Well-Being Physical Well-Being Material Well-Being Safety & security, positive experiences, contentment, self-concept, lack of stress Health Status Nutritional Status Recreation/Physical Exertion Financial status, employment status, housing status, possessions
- 20. 生活品質要素 生活品質領域 生活品質指標範例 獨立 個人發展 自我決策 教育狀態 , 個人技能 , 適應行為 (ADLs IADLs) 選擇 / 決定 , 自治 , 個人掌控 , 個人目標 社會參與 人際關係 社會融合 權利 社交網絡 , 友誼 , 社交活動 , 互動 , 關係 社區 統合 / 參與 , 社區角色 , 支持 人道 ( 尊重 , 尊嚴 , 平等 ) 法律 ( 法律支持 , 正當程序 ) 福祉 情緒福祉 生理 福祉 物質福祉 安全 & 保障 , 正向經驗 , 滿足 , 自我概念 , 免於壓力 健康狀態 營養狀態 娛樂 / 體力消耗 經濟狀態 , 就業情況 , 居住狀態 , 擁有物
- 31. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the decisions made in the management of Arduin. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. Only a facilitating organization remains, focused on support of the self-determining client, focused on supported living. An important motto in shaping this organization is “Normal if possible, special if necessary”. The Model ‘Arduin ’
- 32. 在實際提供所有做決定的支持時 , 要注意解放基礎所代表的意涵 , 並一致的運用在所有做決定時實際 所提供的 支持 . 這選擇突顯捨棄教養 模式 , 而選擇了導向自治與自我引導的管理模式 . 唯有在促進成長的組織 , 才 會持續聚焦在支持服務對象自我決策與支持性居住 . 塑造組織很重要的座右銘 “ 盡可能的一般化 , 若需要亦可 特殊 化 (Normal if possible, special if necessary)”. ‘ Arduin’ 的模式
- 37. The practice of self- determination Leading principle in supporting clients is: “ Everyone can make important decisions in his / her life (with the support of a personal assistant) “ Option of accommodation : the housing bureau Option of work : the vacancy bank The practice of personal development Learning by experience: Participating in the community Academy on QOL: Focused on emancipation and self-determination The practice of inclusion: Normal houses for all clients in the community, not grouped together! Foster families for children Work or daily activities in companies and daycentres in the middle of the community The practice of supports: People live in an house where they want to live themselves and work where they want to work themselves and get the supports they subsequently need.
- 38. 自我決策的作法 支持顧客的重要原則是 : “ ( 在個人助理的支持下 ) 每個人對他 / 她的生活都可以做重要的決定 “ 居住的選擇 : 住宅局 工作的選擇 : 職缺銀行 個人發展的作法 從經驗中學習 : 參與在社區中 生活品質學院 : 著重在解放與自我決策 融合的作法 : 為所有的顧客在社區中提供一般的房舍 , 而非群聚在一起 ! 為兒童提供寄養家庭 工作的公司行號或是日活動中心是在社區的中央 支持的做法 : 人們住在他們想住的地方 , 做想做的工作 , 並獲得所需的支持 .
- 45. How it was: A Map with the care-plan A meeting amongst Professionals The professionals decided How it is: A Personal Plan, internet-based Dialogue with the clients What do you want? How do you want it? The Personal Plan From a “care-plan” to a Personal Plan
- 46. 以前是 : 照顧計畫的地圖 專業間的會議 專業做決定 現在是 : 個人計畫 , 以網際網路為基礎 與顧客間的對話 你想要什麼 ? 如何的想 ? 個人計畫 從 “ 照顧計畫 ” 到個人計畫
- 49. Academy on Quality of Life Many courses for clients ánd for workers within all the domains of Quality of Life
- 50. 生活品質學院 ( Academy on Quality of Life ) 為顧客與工作人員 依生活品質的所有領域 開設許多課程
- 59. Quality of Care Focus vs. Quality of Life Focus Quality of Care Focus Quality of Life Focus Perspective Provider Person in his natural network Interest Process Outcomes Content Management of care systems Support and its effects on a personal life Typical criteria for Evaluation Efficiency, cost-effectiveness, planning, consumer satisfaction Long term value-based outcomes on inclusion, personal development and self- determination Structures Actual care systems only need improvement Support needs to serve a persons case, even if this means that alternative structures have to be found
- 60. 照顧品質 vs. 生活品質 著重在照顧品質 聚焦在生活品質 觀點 提供者 個人在他 的 自然網絡 關注 過程 成果 內容 照顧系統的管理 對個 人 生 活 的支持與其成效 評估標準 效率 , 成本效益 , 計畫 , 顧客滿意度 以價值觀為基礎的長期成果是建立在融合 , 自我發展與自我決策 架構 只需要改善實際的照顧系統 支持是以個人所需的 , 即使可能需要 在 結構上 做 改變
- 131. Personal Outcomes Scale A Scale to Assess an Individual’s Quality of Life Dr. Jos van Loon Prof.dr. Geert van Hove Prof.dr. Robert Schalock Lic. Claudia Claes 2008
- 132. 個人成果量表 評估個人生活品質的量表 Dr. Jos van Loon Prof.dr. Geert van Hove Prof.dr. Robert Schalock Lic. Claudia Claes 2008
- 133. Example of a POS Profile of an Organisation
- 134. 以一個組織為例其個人成果量表側面圖
- 135. Example of a POS Profile of a location
- 136. 以一個地點為例其個人成果量表側面圖
- 137. Example of a POS Profile of a client
- 138. 以一個顧客為例其個人成果量表側面圖
- 139. QOL, attitude and behavioral support
- 140. 生活品質、態度及行為支持
- 141. Paulo Freire “ Education can never be neutral. Either it is an instrument for liberation of man, or it is an instrument for enslaving, drilling him for oppression"(Freire, 1985).
- 142. 保羅弗雷勒 ( Paulo Freire ) “ 教育永遠不可能是中立的 . 若不是作為爭取解放的工具 , 就是為了奴役與壓迫 "(Freire, 1985).
- 143. John McGee, Gentle Teaching A morality of consequences vs. a morality of connectedness
- 144. 溫柔教學法 ( John McGee ) 道德後果 vs. 道德連結
- 171. Thank you very much for your attention! [email_address]
Hinweis der Redaktion
- On a large scale people with intellectual disabilities are going through a process of emancipation and growing awareness. Fundamental moves are being made in the development from a position of dependence of many years’ standing towards one of self-determination. In the last decade, this development is also going on in the Netherlands.
- On a large scale people with intellectual disabilities are going through a process of emancipation and growing awareness. Fundamental moves are being made in the development from a position of dependence of many years’ standing towards one of self-determination. In the last decade, this development is also going on in the Netherlands.
- In Arduin a former institute, a day nursery and a day centre for adults, have merged. At present Arduin, an independent organization since 1 January 1996, has about 600 clients. In 1994, when the organization formerly known as Vijvervreugd came under new management, there was insufficient quality of care in several respects. An independent study, carried out by Prof. G. Van Hove from the department of special education at the University of Gent (Belgium), reached the conclusion that 35% of the inhabitants of the former Vijvervreugd had fallen through the care net. Arduin became an independent organization and a course of action with the title ‘Het gaat nu echt gebeuren’ (‘It really is going to happen now’) was drawn up.
- In Arduin a former institute, a day nursery and a day centre for adults, have merged. At present Arduin, an independent organization since 1 January 1996, has about 600 clients. In 1994, when the organization formerly known as Vijvervreugd came under new management, there was insufficient quality of care in several respects. An independent study, carried out by Prof. G. Van Hove from the department of special education at the University of Gent (Belgium), reached the conclusion that 35% of the inhabitants of the former Vijvervreugd had fallen through the care net. Arduin became an independent organization and a course of action with the title ‘Het gaat nu echt gebeuren’ (‘It really is going to happen now’) was drawn up.
- The backgrounds for this development are found in he changing views on the nature of mental disability (the definition by the American Association on Mental Retardation, AAMR (1992); disability studies), criticism of institutional care throughout the years (Rosenberg,1994; John O’Brien and Connie Lyle O’Brien,1993; Van Gennep, 1976; Van Hove, G.,1996; Erving Goffman, 1962; Vreeke, Janssen, Resnick and Stolk,1998), the Universal Declaration of Rights etc. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the resolutions made. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. It is however crucial that a good alternative is introduced in the shape of a service directed towards the support of people with intellectual disabilities.
- The backgrounds for this development are found in he changing views on the nature of mental disability (the definition by the American Association on Mental Retardation, AAMR (1992); disability studies), criticism of institutional care throughout the years (Rosenberg,1994; John O’Brien and Connie Lyle O’Brien,1993; Van Gennep, 1976; Van Hove, G.,1996; Erving Goffman, 1962; Vreeke, Janssen, Resnick and Stolk,1998), the Universal Declaration of Rights etc. With respect to the actual provision of support, it is important that the implications of the emancipation cornerstone are carried through consistently in all of the resolutions made. This was accentuated in the choice to dismantle the institution, as well as in choosing a coaching style of management directed towards autonomy and self-direction. It is however crucial that a good alternative is introduced in the shape of a service directed towards the support of people with intellectual disabilities.