The document summarizes a study that evaluated the acceptability of a personally controlled health record (PCHR) system called Indivo in a community-based setting. Over 300 participants were involved in formative research activities to understand awareness, beliefs and reactions. The study found moderate awareness of privacy issues and high support for patient autonomy. Results informed guidelines on design improvements, literacy tools, and safety protocols for PCHR systems. Limitations included a lack of detail on methodology and sample selection.

1. CATCH-IT Journal Club Shamsa Jiwani November 9, 2009 HAD5726 MHI Program University of Toronto Weitzman ER, Kaci L, Mandl KD Acceptability of a Personally Controlled Health Record in a Community-Based Setting: Implications for Policy and Design J Med Internet Res 2009;11(2):e14 URL: http://www.jmir.org/2009/2/e14/ doi:10.2196/jmir.1187 PMID:19403467 (Critically Appraised Topics in Communication, Health Informatics and Technology)

3. Weitzman et al. JMIR 2009 1. BACKGROUND

5. Weitzman et al. JMIR 2009

6. Weitzman et al. JMIR 2009

7. Weitzman et al. JMIR 2009 PubMed search for “Personally controlled health record” and “usability” results ONLY two studies!!!

8. Weitzman et al. JMIR 2009 Power

9. Weitzman et al. JMIR 2009 Shifting

10. Weitzman et al. JMIR 2009 Autonomy

11. Weitzman et al. JMIR 2009 And now ...

18. Weitzman et al. JMIR 2009 2. OBJECTIVES AND AIMS OF THE STUDY

20. gene Weitzman et al. JMIR 2009 PHR defined by Markle Foundation Connecting for Health Initiative Group- “ An internet-based set of tools that allows people to access and coordinate their lifelong health information and make appropriate parts available to those who need it. PHRs offer an integrated and comprehensive view of health information, including information people generate themselves " and "The PHR is a single, person-centered system designed to track and support health activities across one’s entire life experience; it is not limited to a single organization or a single health care provider.” Source: The Personal Health Working Group Final Report. July 1, 2003. Markle Foundation. Available at: http://www.connectingforhealth.org/resources/final_phwg_report1.pdf . Source: http://en.wikipedia.org/wiki/Dossia#Dossia.E2.80.99s_PCHR_.28Personally-Controlled_Health_Record.29

21. Weitzman et al. JMIR 2009 3. INTERVENTION, SETTING AND OUTCOME MEASURES

23. Weitzman et al. JMIR 2009 Indivo Architecture Source: http://wiki.patientsknowbest.com/index.php?title=Indivo&highlight=indivo

27. Weitzman et al. JMIR 2009 4. METHODOLOGY

29. Weitzman et al. JMIR 2009 5. RESULTS & CONCLUSIONS

34. Weitzman et al. JMIR 2009 6. LIMITATIONS

36. Weitzman et al. JMIR 2009 7. BLOG COMMENTS, QUESTIONS AND DISCUSSION

45. Thank you CATCH-IT Journal Club Members HAD5726 for comments on the blog- http://ehealth-catchit.blogspot.com/2009/09/acceptability-of-personally-controlled.html Weitzman et al. JMIR 2009