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Can You Hear Me Now?


“The coming Communications
  Crisis in US Healthcare ”

    Plain Talk Conference 2012

     Chris Gibbons, MD MPH
  JOHNS HOPKINS URBAN HEALTH INSTITUTE
“BIG” Problems in US Healthcare

 Cost of Healthcare
 Access to Healthcare
 Prevalence in Chronic Disease
 Increase numbers of Seniors
 Increase in numbers of immigrants and minorities
 Intractable Disparities
 Provider Shortage
 Others????
Which one is the BIGGEST Problem?

 Cost of Healthcare
 Access to Healthcare
 Prevalence in Chronic Disease
 Increase numbers of Seniors
 Increase in numbers of immigrants and minorities
 Intractable Disparities
 Provider Shortage
 ????
The BIGGEST Problem?



Inability to Communicate with
 the Healthcare system
  Definition
           – Inability to understand or be
  understood.
The largest drivers of the Problem?



Poor Health Literacy
Poor English Language Fluency
How big is the Problem?

 2007 Census/ACS
  Does this person speak a language other than
   English at home?
  What is this language?

  How well does this person speak English
  (very     well, well, not well, not at all)
   Peoplespeaking below the “very well” category are
    thought to need English assistance in some situations
How big is the Problem?


 The Voting Rights Act of 1965 uses these criteria to
    determine the need for bilingual election materials.

 Self-reported data on English-speaking ability have
    demonstrated the measure to be highly reliable and usable.


   “How Good Is How Well? An Examination of the Census English-Speaking Ability Question,”
    <http://www.census.gov/population/www/socdemo/lang_use.html>.
How big is the Problem?

 In 2007 55 million people (20% US pop) spoke a language
  other than English at home.
 What are they Speaking?
   Spanish including Spanish, Spanish Creole, and Ladino. (62%)
   Other Indo-European languages including most languages of Europe and the Indic languages of
    India. These include the Germanic languages, such as German, Yiddish, and Dutch; the Scandinavian
    languages, such as Swedish and Norwegian; the Romance languages, such as French, Italian, and
    Portuguese; the Slavic languages, such as Russian, Polish, and Serbo-Croatian; the Indic languages,
    such as Hindi, Gujarati, Punjabi, and Urdu; Celtic languages; Greek; Baltic languages; and Iranian
    languages. (19%)
   Asian and Pacific Island languages include Chinese; Korean; Japanese; Vietnamese; Hmong;
    Khmer; Lao; Thai; Tagalog or Pilipino; the Dravidian languages of India, such as Telugu, Tamil, and
    Malayalam; and other languages of Asia and the Pacific, including the Philippine, Polynesian, and
    Micronesian languages. (15%)
   All Other languages include Uralic languages, such as Hungarian; the Semitic languages, such as
    Arabic and Hebrew; languages of Africa; native North American languages, including the American
    Indian and Alaska native languages; and indigenous languages of Central and South America (4%)
How big is the Problem?

 50% (25 million) of non English Speakers reported that
  they did not speak English “Very Well”

 Proportions were higher among older Spanish speakers
     57% of those aged 41-64
     65% of those over the age of 65


 7 of 17 languages had more than 1 million speakers
     Spanish – 34 million
     Chinese – 2 million
     French, Tagalog, Vietnamese, German, Korean – 1 million
How fast is the Problem changing?


 From 1980-2007
   Vietnamese saw 511% increase

   > 200% increase

     Spanish, Russian, Persian, Chinese, Korean, Tagalog



 Substantial variability across states
   W Virginia (2%), California (43%)

   Southwest and East Coast States had substantial rates

   All 50 states had some increase
Bottom Line

 In 2007
  25 million people were not able to speak
   English Very well
  Their numbers are rapidly increasing

  They are not just in New York, California,
   Florida and Texas
  Most speak Spanish, but also many other
   languages involved
The full Story

 Dialects, slangs, vernaculars, Jargons
    Gullah
    Southern Drawl
    Urban - Phat, Cold, Mad, Badonkadonk
 In 2012 ~ 30 million people with LEP
 Healthcare Reform – 30 million more in
 2014
 Health Literacy?
    40% of Americans can not understand health information
      115 million people
Impact on Healthcare System

 Sites of “care”
  Hospital
  Clinic

  Emergency Room

  Doctor’s Office



  Pharmacy
  School

  Work
Impact on Healthcare System

 Patient
    Trust
    Engagement
    Satisfaction with care
    Healthcare decision making
    Adherence
 Provider
    Patient centeredness
    Readmissions
    Reimbursements
    Outcomes
 System/Population
    Costs
    Waiting times
    Disparities
Impact on Healthcare System

 Add in
  Aging Provider workforce
  Nursing shortage

  Inability to manage “care in the community”



                      Recipe for a
 “Communication Crisis in Healthcare”
What can we do about it?

 Wait for the Healthcare system
 Explore powerful emerging resources
    More U.S. adults used the Internet than doctors to obtain
     health and medical information
    The Internet has considerably more influence over consumer
     health decisions and actions than traditional channels like
     print, TV and radio
    Thousands of Translator Apps (Google, Android and Apple)
        WordLens, Google Translate, many others

 Refuse to accept the status quo
What can we do about it?

 Refuse the status quo in health communication
    Now – one time, paper based, word dense communication
    Future - Paper +
      Electronic information – thumb drives etc
        Take anywhere

      On Demand health information – 1-800 xxx xxxx
        Obtain anytime

      Video based vs. Graphic Based information
        Culturally appropriate

      Cloud based web services information
        Access by any device

      PN & CHW based services
Bottom Line

 Refuse Status quo
 Utilize available emerging tools & technologies
 Request/Inform
 Advocate
   City, state and government Reps

 Organize
     Information support groups
       “Patients like me”
       “Cure together”

 Let your voice be heard
   Editorials, Blogs, Petitions
Be Part of the Solution


 Prepare to be the advisors and expert
 consultants they will need.

 Design our own new innovative solutions.


 Prepare to be tomorrows designers and
 developers.
Thank You




Together, we will find the “cure” for
the coming “communications crisis”.

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Chris Gibbons - The coming communication crisis in U.S. healthcare

  • 1. Can You Hear Me Now? “The coming Communications Crisis in US Healthcare ” Plain Talk Conference 2012 Chris Gibbons, MD MPH JOHNS HOPKINS URBAN HEALTH INSTITUTE
  • 2. “BIG” Problems in US Healthcare  Cost of Healthcare  Access to Healthcare  Prevalence in Chronic Disease  Increase numbers of Seniors  Increase in numbers of immigrants and minorities  Intractable Disparities  Provider Shortage  Others????
  • 3. Which one is the BIGGEST Problem?  Cost of Healthcare  Access to Healthcare  Prevalence in Chronic Disease  Increase numbers of Seniors  Increase in numbers of immigrants and minorities  Intractable Disparities  Provider Shortage  ????
  • 4. The BIGGEST Problem? Inability to Communicate with the Healthcare system  Definition – Inability to understand or be understood.
  • 5. The largest drivers of the Problem? Poor Health Literacy Poor English Language Fluency
  • 6. How big is the Problem?  2007 Census/ACS  Does this person speak a language other than English at home?  What is this language?  How well does this person speak English (very well, well, not well, not at all)  Peoplespeaking below the “very well” category are thought to need English assistance in some situations
  • 7. How big is the Problem?  The Voting Rights Act of 1965 uses these criteria to determine the need for bilingual election materials.  Self-reported data on English-speaking ability have demonstrated the measure to be highly reliable and usable.  “How Good Is How Well? An Examination of the Census English-Speaking Ability Question,” <http://www.census.gov/population/www/socdemo/lang_use.html>.
  • 8. How big is the Problem?  In 2007 55 million people (20% US pop) spoke a language other than English at home.  What are they Speaking?  Spanish including Spanish, Spanish Creole, and Ladino. (62%)  Other Indo-European languages including most languages of Europe and the Indic languages of India. These include the Germanic languages, such as German, Yiddish, and Dutch; the Scandinavian languages, such as Swedish and Norwegian; the Romance languages, such as French, Italian, and Portuguese; the Slavic languages, such as Russian, Polish, and Serbo-Croatian; the Indic languages, such as Hindi, Gujarati, Punjabi, and Urdu; Celtic languages; Greek; Baltic languages; and Iranian languages. (19%)  Asian and Pacific Island languages include Chinese; Korean; Japanese; Vietnamese; Hmong; Khmer; Lao; Thai; Tagalog or Pilipino; the Dravidian languages of India, such as Telugu, Tamil, and Malayalam; and other languages of Asia and the Pacific, including the Philippine, Polynesian, and Micronesian languages. (15%)  All Other languages include Uralic languages, such as Hungarian; the Semitic languages, such as Arabic and Hebrew; languages of Africa; native North American languages, including the American Indian and Alaska native languages; and indigenous languages of Central and South America (4%)
  • 9. How big is the Problem?  50% (25 million) of non English Speakers reported that they did not speak English “Very Well”  Proportions were higher among older Spanish speakers  57% of those aged 41-64  65% of those over the age of 65  7 of 17 languages had more than 1 million speakers  Spanish – 34 million  Chinese – 2 million  French, Tagalog, Vietnamese, German, Korean – 1 million
  • 10. How fast is the Problem changing?  From 1980-2007  Vietnamese saw 511% increase  > 200% increase  Spanish, Russian, Persian, Chinese, Korean, Tagalog  Substantial variability across states  W Virginia (2%), California (43%)  Southwest and East Coast States had substantial rates  All 50 states had some increase
  • 11. Bottom Line  In 2007  25 million people were not able to speak English Very well  Their numbers are rapidly increasing  They are not just in New York, California, Florida and Texas  Most speak Spanish, but also many other languages involved
  • 12. The full Story  Dialects, slangs, vernaculars, Jargons  Gullah  Southern Drawl  Urban - Phat, Cold, Mad, Badonkadonk  In 2012 ~ 30 million people with LEP  Healthcare Reform – 30 million more in 2014  Health Literacy?  40% of Americans can not understand health information  115 million people
  • 13. Impact on Healthcare System  Sites of “care”  Hospital  Clinic  Emergency Room  Doctor’s Office  Pharmacy  School  Work
  • 14. Impact on Healthcare System  Patient  Trust  Engagement  Satisfaction with care  Healthcare decision making  Adherence  Provider  Patient centeredness  Readmissions  Reimbursements  Outcomes  System/Population  Costs  Waiting times  Disparities
  • 15. Impact on Healthcare System  Add in  Aging Provider workforce  Nursing shortage  Inability to manage “care in the community” Recipe for a “Communication Crisis in Healthcare”
  • 16. What can we do about it?  Wait for the Healthcare system  Explore powerful emerging resources  More U.S. adults used the Internet than doctors to obtain health and medical information  The Internet has considerably more influence over consumer health decisions and actions than traditional channels like print, TV and radio  Thousands of Translator Apps (Google, Android and Apple)  WordLens, Google Translate, many others  Refuse to accept the status quo
  • 17. What can we do about it?  Refuse the status quo in health communication  Now – one time, paper based, word dense communication  Future - Paper +  Electronic information – thumb drives etc  Take anywhere  On Demand health information – 1-800 xxx xxxx  Obtain anytime  Video based vs. Graphic Based information  Culturally appropriate  Cloud based web services information  Access by any device  PN & CHW based services
  • 18. Bottom Line  Refuse Status quo  Utilize available emerging tools & technologies  Request/Inform  Advocate  City, state and government Reps  Organize  Information support groups  “Patients like me”  “Cure together”  Let your voice be heard  Editorials, Blogs, Petitions
  • 19. Be Part of the Solution  Prepare to be the advisors and expert consultants they will need.  Design our own new innovative solutions.  Prepare to be tomorrows designers and developers.
  • 20. Thank You Together, we will find the “cure” for the coming “communications crisis”.