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Directions for ICT Research in Disease Prevention




 FT7-ICT-2009.5.1 – Support Action




           Lessons learned from products
          and projects dealing with primary
               prevention through ICT
                                                    Sergio GuillĂŠn
                               Technologies for Health & Wellbeing (TSB)
                               Universidad PolitĂŠcnica de Valencia, Spain
INTRODUCTION
Introduction
3
Introduction
4


    • The WHO Report 2002 describes in detail how a few major risk factors
      account for a significant proportion of all deaths and diseases in most
      countries.
    • All the most important risk factors for premature death are related to lifestyle
    • Six out of the seven relate to diet and physical activity
Introduction
5


    • Unhealthy diets and lack of physical activity are
      therefore the leading causes of avoidable illness and
      premature death in Europe.
    • It has been estimated that…
       – …up to 80% of coronary heart disease cases…
       – …90% of type 2 diabetes cases…
       – …one third of cancers …
Introduction
6


    • Population based approaches
      addressing lifestyle factors have
      huge potential for the prevention
      of severe morbidity and mortality.
    • For this purpose in the last years
      numerous scientific reports have
      been produced by different
      International Public Health
      Societies
       – including guidelines and
         recommendations
       – for the management of the diverse
         clinical conditions associated to the
         presence or to the development of
         an elevated risk profile.
METHODOLOGY
What is done?

Revision of research projects of ICT and
primary prevention

Revision of commercial products, websites
and online health promotion organizations

Revision of complementary domains:
secondary and tertiary prevention, marketing
GENERAL RESULTS
Main Figures
Projects, Websites and Products
  Projects   Products   Websites


                         23%

   40%




                        37%
Main Figures
              Origin of PROJECTS & WEBS
40
35
30     8

25
20                                         WEBS
                                     37
15                                         PROJECTS
      27
10
5
                 2          4
0
     Europe   Australia   Canada    EEUU
Main Figures
      Focus of the prevention projects
40%
35%
30%
25%
20%
15%
10%
 5%
 0%
Main Figures
      Focus of the prevention websites
20%
18%
16%
14%
12%
10%
 8%
 6%
 4%
 2%
 0%
Main Figures
Products related with prevention
         Videogames   Others




   46%

                               54%
Main Figures
          Videogames
Console     Online   iPhone, iPod…


     24%

                             40%




          36%
Main Figures
                  Type of products
18
16
14                     4
12
10                                       Other products
 8
         1                               Videogames
 6                    12
 4   3                     7         2
         6
 2                3                  3
     2       2                  2
 0
Task 2.2 – Main Results
             Most Common Risk Factors
50%
45%
40%
35%
30%
25%                                            Projects
20%
                                               Websites /
15%
                                               Organizations
10%
 5%
 0%
      Diet      Physical    Obesity   Others
               inactivity
CONCLUSIONS AND LESSONS
LEARNED
Lessons Learned
19




                   • Correct risk stratification for the
                     individual
                   • Taking into account all the risk factors,
       The best      • not only the physic-pathological
     therapeutic        ones
                     • Also the genetic, environmental,
       choice is        socio-cultural, behavioral and
                        personal factors
     guided by…    • In order to personalize health-hygiene
                     measures on the basis of the risk
                     profile.
The Challenges of Primary Prevention...

     Identification & Assessment
     • Who is at risk?
     • Which is the risk?

     Definition of the adequate strategy
     • Which is the correct healthy lifestyle for me?
     • How can I match my preferences with my healthy lifestyle?

     Psychological approach to change
     • Why should I change the life I have decided to live?
     • How can I match my social role and life with my healthy lifestyle?

     Sustainability & Control
     • How can I keep control but reduce my need to intervene?
     • Why should I incorporate the change to my life?
Identification & Assessment
21



        Identifying the people at risk and correctly assessing
         which are their key risks and to what extent is very
                              DIFFICULT.

      People that are just
                                         Risk is an indicator that is calculated based on
         at risk are not
                                         probabilities and population inferences made
      identified inside the
                                                      for a specific pathology
       healthcare system

                                                                        Personalized and dynamic risk
          A much bigger part of the
                                                                      assessment of the individual and
         population could be traced         Only used for providing
                                                                       its evolving lifestyle can provide
      incorporating new stakeholders          population based
                                                                      the necessary knowledge for the
     into the game: school, workplace,       recommendations.
                                                                      personalization of the prevention
                community.
                                                                                      action
Definition of Adequate Strategy
22




      Definition of adequate actions that the person must do or
       that have to be applied to the person to improve his risk
      profile and reduce the probability of developing a disease.

      As the risk model becomes more complex and the action more
        personalized, the possibilities for interventions need to be
       boosted with the support of a dynamic and adaptive system.

                                                       The evidence in the literature supports the
      The needs of the individual and the desired
                                                     belief that a comprehensive and personalized
        lifestyle trends could be better aligned
                                                     action towards the major risk factors that are
      moving to a more personalized intervention
                                                             modifiable can result in a major
     than the traditional public health campaigns.
                                                      improvement of the individual’s risk profile.
Psychological approach
23



        The individual is required to change the lifestyle he
       and his circumstances have chosen to follow and this
           change is normally neither easy nor wanted.

         To achieve the success in moving people towards a
          healthier lifestyle, thus reducing their risk profile,
               there is the need for a combined action
                                                           Any intervention should incorporate a highly
      Including all the possible actors and mediators      psychological strategy that contributes to the
      that are related, both that influence the citizen   idea of convincing the person that the lifestyle
     (school, workplace, community) or that depends       change is required, and providing a continuous
                   on the citizen (family).               motivation to support the permanence of those
                                                                              changes.
Sustainability & intrusiveness
24


     People at risk are in general terms healthy people that may be more or
     less aware of the consequences of not preventing risk but that for sure
       can’t be expected to invest a great amount of resources in solutions
                        with just a preventive background.


        In general people wouldn’t like to be immersed in a highly intrusive
             environment that in some way constrains their normal life.


      New business models, enhanced motivational
     strategies and innovative technological solutions   In this scenario, Ambient Intelligence can lead to
       are needed, involving non-traditional actors,          a disruptive breakthrough in the way of
      and using products and services that are more                         interaction.
         consumer-oriented than health-oriented.
Conclusions
www.preve-eu.org
www.preve-eu.org
www.preve-eu.org

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pHealth - Lessons learned from products and project

  • 1. Directions for ICT Research in Disease Prevention FT7-ICT-2009.5.1 – Support Action Lessons learned from products and projects dealing with primary prevention through ICT Sergio GuillĂŠn Technologies for Health & Wellbeing (TSB) Universidad PolitĂŠcnica de Valencia, Spain
  • 4. Introduction 4 • The WHO Report 2002 describes in detail how a few major risk factors account for a significant proportion of all deaths and diseases in most countries. • All the most important risk factors for premature death are related to lifestyle • Six out of the seven relate to diet and physical activity
  • 5. Introduction 5 • Unhealthy diets and lack of physical activity are therefore the leading causes of avoidable illness and premature death in Europe. • It has been estimated that… – …up to 80% of coronary heart disease cases… – …90% of type 2 diabetes cases… – …one third of cancers …
  • 6. Introduction 6 • Population based approaches addressing lifestyle factors have huge potential for the prevention of severe morbidity and mortality. • For this purpose in the last years numerous scientific reports have been produced by different International Public Health Societies – including guidelines and recommendations – for the management of the diverse clinical conditions associated to the presence or to the development of an elevated risk profile.
  • 8. What is done? Revision of research projects of ICT and primary prevention Revision of commercial products, websites and online health promotion organizations Revision of complementary domains: secondary and tertiary prevention, marketing
  • 10. Main Figures Projects, Websites and Products Projects Products Websites 23% 40% 37%
  • 11. Main Figures Origin of PROJECTS & WEBS 40 35 30 8 25 20 WEBS 37 15 PROJECTS 27 10 5 2 4 0 Europe Australia Canada EEUU
  • 12. Main Figures Focus of the prevention projects 40% 35% 30% 25% 20% 15% 10% 5% 0%
  • 13. Main Figures Focus of the prevention websites 20% 18% 16% 14% 12% 10% 8% 6% 4% 2% 0%
  • 14. Main Figures Products related with prevention Videogames Others 46% 54%
  • 15. Main Figures Videogames Console Online iPhone, iPod… 24% 40% 36%
  • 16. Main Figures Type of products 18 16 14 4 12 10 Other products 8 1 Videogames 6 12 4 3 7 2 6 2 3 3 2 2 2 0
  • 17. Task 2.2 – Main Results Most Common Risk Factors 50% 45% 40% 35% 30% 25% Projects 20% Websites / 15% Organizations 10% 5% 0% Diet Physical Obesity Others inactivity
  • 19. Lessons Learned 19 • Correct risk stratification for the individual • Taking into account all the risk factors, The best • not only the physic-pathological therapeutic ones • Also the genetic, environmental, choice is socio-cultural, behavioral and personal factors guided by… • In order to personalize health-hygiene measures on the basis of the risk profile.
  • 20. The Challenges of Primary Prevention... Identification & Assessment • Who is at risk? • Which is the risk? Definition of the adequate strategy • Which is the correct healthy lifestyle for me? • How can I match my preferences with my healthy lifestyle? Psychological approach to change • Why should I change the life I have decided to live? • How can I match my social role and life with my healthy lifestyle? Sustainability & Control • How can I keep control but reduce my need to intervene? • Why should I incorporate the change to my life?
  • 21. Identification & Assessment 21 Identifying the people at risk and correctly assessing which are their key risks and to what extent is very DIFFICULT. People that are just Risk is an indicator that is calculated based on at risk are not probabilities and population inferences made identified inside the for a specific pathology healthcare system Personalized and dynamic risk A much bigger part of the assessment of the individual and population could be traced Only used for providing its evolving lifestyle can provide incorporating new stakeholders population based the necessary knowledge for the into the game: school, workplace, recommendations. personalization of the prevention community. action
  • 22. Definition of Adequate Strategy 22 Definition of adequate actions that the person must do or that have to be applied to the person to improve his risk profile and reduce the probability of developing a disease. As the risk model becomes more complex and the action more personalized, the possibilities for interventions need to be boosted with the support of a dynamic and adaptive system. The evidence in the literature supports the The needs of the individual and the desired belief that a comprehensive and personalized lifestyle trends could be better aligned action towards the major risk factors that are moving to a more personalized intervention modifiable can result in a major than the traditional public health campaigns. improvement of the individual’s risk profile.
  • 23. Psychological approach 23 The individual is required to change the lifestyle he and his circumstances have chosen to follow and this change is normally neither easy nor wanted. To achieve the success in moving people towards a healthier lifestyle, thus reducing their risk profile, there is the need for a combined action Any intervention should incorporate a highly Including all the possible actors and mediators psychological strategy that contributes to the that are related, both that influence the citizen idea of convincing the person that the lifestyle (school, workplace, community) or that depends change is required, and providing a continuous on the citizen (family). motivation to support the permanence of those changes.
  • 24. Sustainability & intrusiveness 24 People at risk are in general terms healthy people that may be more or less aware of the consequences of not preventing risk but that for sure can’t be expected to invest a great amount of resources in solutions with just a preventive background. In general people wouldn’t like to be immersed in a highly intrusive environment that in some way constrains their normal life. New business models, enhanced motivational strategies and innovative technological solutions In this scenario, Ambient Intelligence can lead to are needed, involving non-traditional actors, a disruptive breakthrough in the way of and using products and services that are more interaction. consumer-oriented than health-oriented.