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An overview of Parr in
    practice in Northern
          Ireland.

           Marina Lupari
     Head of nursing- research &
development, NHSCT/PhD student, UU
Key Statistics for Northern Ireland
 1.8 people living in N. Ireland
 160k emergency admissions to hospital each
  year.
 Over 700k attendances at A&E Depts.
 Our Ambulance service provides over 350k
  journeys, of which 88k are emergencies.
 5 integrated Health & Social Care Trusts.
About the NHSCT
 The Northern Health and Social Care Trust provides
    a broad range of health and social care services.
   The Northern Health and Social Care Trust became
    operational on 1 April 2007, combing 3 legacy trusts.
   It is geographically the largest trust in Northern
    Ireland and operates from approximately 150
    locations, serving a population of 443k people.
   The Trust employs approximately 14,000 staff. We
    have an annual budget of £550 million.
   We provide a range of services from nine hospitals
    and a large number of community based settings
    including people's own homes.
Drivers for Change - 2004
 The Health Economy had recognized a need for
    tighter financial efficiency and cost effectiveness in service
     delivery.
    better approaches to the management of chronic disease.
 These multiple challenges included:
    the under-coordination of health services, limited incentives and
     training for health care professionals.
    poor diagnostic methods, limited disease management
     protocols, lack of patient involvement in managing disease.
    stove-piped funding mechanisms.
 These realities underpinned:
    recent efforts to change existing structures and practices in
     order to increase service efficiency in chronic disease
     management
    and improve health outcomes for people living with chronic
     illness.
Care pathways links between primary, secondary and community care services in
                               chronic disease management
      Primary Care                                                            Secondary Care


Patient with suspected Chronic                                   Patients with known Chronic condition –
            disease                                                      exacerbation of condition

                                                                            Hospitalisation
  Appropriate investigations to
      confirm diagnosis
                                           Community Based
                                           Specialist Nurse                        PARR Assessment
GP referral onwards for support
                                         Continuing Care Nurse                  Case Finder
                                         (CCN) visits pt at home                Case Management Co-ordinator

          Patient assessment, review, treatment, education, referral to other professionals services &
                             support programmes including domiciliary services




Primary       Community rehab        Chronic Conditions       ACAHT-          Multi        Patient          Asst.
 Care         inc cardiac/           Management                acute          skills       support       Technology
Nursing       pulmonary rehab        programme                 needs         network        Group
 Team
Care pathways links between primary, secondary and community care services in
                               chronic disease management
      Primary Care                                                            Secondary Care


Patient with suspected Chronic                                   Patients with known Chronic condition –
            disease                                                      exacerbation of condition

                                                                            Hospitalisation
  Appropriate investigations to
      confirm diagnosis
                                           Community Based
                                           Specialist Nurse                        PARR Assessment
GP referral onwards for support
                                         Continuing Care Nurse                  Case Finder
                                         (CCN) visits pt at home                Case Management Co-ordinator

          Patient assessment, review, treatment, education, referral to other professionals services &
                             support programmes including domiciliary services




Primary       Community rehab        Chronic Conditions       ACAHT-          Multi        Patient          Asst.
 Care         inc cardiac/           Management                acute          skills       support       Technology
Nursing       pulmonary rehab        programme                 needs         network        Group
 Team
Overview of the PARR Tool and
        Data Preparation Process
                             Patient admitted/discharged
                             Activity recorded on Trust PAS
                        PARR DATABASE

                                                  Activity downloaded into PARR Via
                                                  Business Objects, Trust Designed MS
                                                  Access Database




                             Sifting & criteria                  Risk Level Identified
                                   applied
   OTHER
  PATIENT
DATA APPLIED
               CASE FINDING DATABASE        CCN Nurse assesses, accepts

                           THE ‘CASELOAD MANAGEMENT’ PROCESS
Initial review of CICM service
                                                          Within 1
                                                             year
                                                            PRIOR
                                             1-2 years         to     Within 1 year
                                               PRIOR to    Referra         AFTER
                                               Referral       l to        Referral
                                                to CCN       CCN          to CCN
Activity Type                                   service     service       service

Admissions                                     110          215           143

Spell Beddays                                  1466        2307           1903

Avg LoSpell                                    13.3        10.7           13.3

% of Individuals who had Adms in year
   (%/167)                                    35.3%        68.9%         38.3%

Avg No. of Relevant Adms per individual
   (n=167)                                     0.7          1.3            0.9


Actual No. of Individuals who had relevant
   Adms in the year                             59          115            64
Admissions to UHT by Diagnostic Group
                       - for those Admissions in both Year BEFORE & AFTER Referral to CCN



     Count of Date of Admission Only
35
30
25
20                                                                                                 Post CCN Service
15
10
 5
 0




                                                                                                             Jul
                 Jul




                                                                                           Jul




                                                                                                                   Aug
                       Aug




                                                                                                                                                                   Apr
                                                                        Apr




                                                                                                                         Sep




                                                                                                                                                       Feb
                             Sep




                                                            Feb




                                                                                                       Jun




                                                                                                                                                 Jan




                                                                                                                                                                               Jun
           Jun




                                                     Jan




                                                                                     Jun




                                                                                                                                           Dec
                                               Dec




                                                                                                 May




                                                                                                                                                                         May
     May




                                                                               May




                                                                                                                                     Nov
                                         Nov




                                                                                                                                                             Mar
                                                                  Mar




                                                                                                                               Oct
                                   Oct




                        2005                                            2006                                         2006                                     2007

                 2. within 1 year PRIOR to Referral to CCN service                                           3. within 1 year AFTER Referral to CCN service


                                                                   Condition

                                                                        Diabetes      Heart       Other       Resp


                                                           Time Banding         Years        Date of Admission Only
Drivers for Change - 2007
   Proposal to Centralise the PARR Analysis to allow for the
    identification of admissions/activity across different
    providers to be integrated.
   Trusts moving to “Real Time” recording of Clinical
    Diagnoses and thereby aiding the identification of
    prospective “Caseload Management” patients in real time.
   Regional Unique Identifier now available i.e. HCN to track
    individuals across services.
   Need to tie in other data sources, i.e. Primary Care activity
    such as Attendances at surgery, Out of Hours service
    usage, Medications etc. to improve complexity of PARR
    Tool (subject to evidence/research).
   Organise for N.I. Deprivation Measures to be added to
    PARR Tool.
   Need to understand full capability of PARR and it’s
    application to service provision.
Summarisation of key components of
      study design & methodology
April 06…         June 2008- November 2009 approx

                Intervention Group    Comparison Group
                Locality A (n=295)    Locality B (n=295)
     Case                                 Usual Care
 Management         CM Care
  Introduced
                                      Data Gathering
               Data Gathering         Patient specific
  Locality A
               Patient specific      FIM
               FIM                   HR-QOL
               HR-QOL                Economic Proforma
               Economic Proforma     Carers Strain Index
               Carers Strain Index   - Carers Focus group
               - Carers Focus group
Research Objectives and link to
PARR
 Aim- to establish if the introduction of a case management
  approach for chronic conditions is effective and/ or cost effective

 Does PARR predict patients accurately at risk of
  rehospitalisation and how can we move towards prediction of
  avoidable rehospitalisations?

 What is the relationship between PARR, reduction in
  rehospitalisations and the intervention?

 Is there any relationship between PARR and the specific chronic
  condition, and/or presence of co-morbidities ?
“PARR” identified referrals to CICM

                      Result of Assessment   No.     %
    CCN caseload                             1122   33.5%
    CCN Discharge                            319    9.5%
    Mortality                                670    20.0%
    Renal Failure                             27    0.8%
    Inappropriate referral CCN               826    24.7%
    Other handover                           103    3.1%
    Palliative care                           82    2.4%
    PCNT handover                             46    1.4%
    Service declined                         154    4.6%

                                             3349
Position @ Jun09
Distribution Chart showing PARR Scores across Research Groups



      Count of ID
250
               216
         199
200


150


100
                       56
                            44
 50
                                  23
                                       14        10 9          5 4     1 4     1 2        2
  0
         20-29         30-39      40-49          50-59         60-69   70-79   80-89   90-99
                                       Research Group

                                         Control Group Intervention Group

                                                        PARR
Distribution Chart of Major Chronic Conditions by Research Group

350


           295   295
300


250


200                                                          193
                                                                                             186

                                                                                                    158
                                                    145
150
                                                                                 113   113

100

                                     61
                               46
 50


  0
      No. in Research Group     Asthma                    COPD                   Diabetes    Heart Failure

                                          Control Group     Intervention Group
0
                                                                                     10
                                                                                     20
                                                                                     30
                                                                                     40
                                                                                     50
                                                                                     60
                                                                                     70
                                                                                     80
                                                                           Asthma



                                                                 Asthma / Diabetes        Count of ID

                                                           Asthma / Diabetes /Heart
                                                                   Failure


                                                                    Asthma/ COPD



                                                           Asthma/ COPD/ Diabetes


                                                           Asthma/ COPD/ Diabetes/
                                                                Heart Failure

                                                              Asthma/ COPD/ Heart
                                                                    Failure




                     Control Group
                                          Research Group
                                                              Asthma/ Heart Failure




Chronic Conditions
                                                                             COPD
                                                                                                                                                                                     Drop Page Fields Here




                     Intervention Group
                                                                   COPD/ Diabetes


                                                             COPD/ Diabetes/ Heart
                                                                   Failure


                                                               COPD/ Heart Failure



                                                                          Diabetes
                                                                                                        Distribution Chart showing the Multiple Co-Morbidities for Research Groups




                                                             Diabetes/ Heart Failure



                                                                      Heart Failure
PARR

Chronic Conditions                      Research Group       20-29   30-39   40-49   50-59          60-69   70-79   80-89   90-99   Total

Asthma                                  Control Group         4       2       2       1                                              9

                                        Intervention Group    7       2                                                              9

Asthma / Diabetes                       Control Group         6       1       1                                                      8

                                        Intervention Group    15      2                                                              17

Asthma / Diabetes /Heart Failure        Control Group         3               1                                                      4

                                        Intervention Group    1       2                                                              3

Asthma/ COPD                            Control Group         1       1       1                                                      3

                                        Intervention Group    2       1       1                                                      4

Asthma/ COPD/ Diabetes                  Control Group         2               1                      1                               4

                                        Intervention Group    4       4                                                              8


Asthma/ COPD/ Diabetes/ Heart Failure   Intervention Group    2                                                                      2

Asthma/ COPD/ Heart Failure             Control Group         2                                                                      2

                                        Intervention Group    4                       1                                              5

Asthma/ Heart Failure                   Control Group         10      4       2                                                      16

                                        Intervention Group    12      1                                                              13

COPD                                    Control Group         29      14      3       4              1                               51

                                        Intervention Group    47      3       1       2              2       1               1       57

COPD/ Diabetes                          Control Group         14      4               1                                              19

                                        Intervention Group    21      4               1                      2                       28

COPD/ Diabetes/ Heart Failure           Control Group         12      5       3       1              1                               22

                                        Intervention Group    14      2                              1               1               18

COPD/ Heart Failure                     Control Group         34      6       3                      1                               44

                                        Intervention Group    50      10      6       2              1       1       1               71

Diabetes                                Control Group         9       1       3       1                      1                       15

                                        Intervention Group    7       5       1                                              1       14

Diabetes/ Heart Failure                 Control Group         34      5       1                      1                               41

                                        Intervention Group    15      5       2       1                                              23

Heart Failure                           Control Group         39      13      2       2                              1               57

                                        Intervention Group    15      3       3       2                                              23

Grand Total                                                  415     100      37      19             9       5       3       2      590
Distribution Chart : Showing "relevant" rehospitalisations


      Sum of SumOfAdmissions
100
                        89
90
80                                          76

70            63                 63
60                                                                              51   52
                                                                     47
50                                                                                             42
40
30
20
10
 0
                   T0                 T3                                   T6             T9

                                                         Yes

                                      Research Group
                                       Control Group       Intervention Group


                                           Included in Study    T Band
Distribution chart: Beddays by Relevant Conditions across Research
                                                Groups


      Sum of SumOfLength of Spell1
800
               678        699
                                                 673
700                                  632                                     649

600                                                                                            560

500
                                                                                         384              367
400

300

200

100

 0
                     T0                    T3                                      T6                T9

                                                              Yes

                                           Research Group
                                                Control Group       Intervention Group


                                                Included in Study       T Band
Distribution Chart: Relevant Adms by PARR Score

160         150

140   132

120


100

80

60
                    48
                         37
40

                                   18                     20            20
                              16                                              15
20                                                                                            11
                                                   8                                   7
                                                                                   1
 0
       20-29         30-39     40-49                   50-59              60-69    70-79   80-89

                                                       Yes




                                       Control Group     Intervention Group
What have we learnt so far ?
 We know PARR can predict people at risk of
  all rehospitalisations for about 75 % of people
 We know PARR and our intervention can
  save rehospitalisations / beddays
 We know we need to look at how better to
  predict those people at risk of avoidable
  rehospitalisations
 We need to look at the impact of social
  deprivation for NI
So where to now?
 Continue with data analysis
 Investigate the relationship of PARR and
  avoidable re hospitalisations more fully
 DHSSPS have agreed to run PARR across NI
 Look at what everyone else is doing and see
  how we can improve

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Marina Lupari: An overview of PARR in practice in Northern Ireland

  • 1. An overview of Parr in practice in Northern Ireland. Marina Lupari Head of nursing- research & development, NHSCT/PhD student, UU
  • 2. Key Statistics for Northern Ireland  1.8 people living in N. Ireland  160k emergency admissions to hospital each year.  Over 700k attendances at A&E Depts.  Our Ambulance service provides over 350k journeys, of which 88k are emergencies.  5 integrated Health & Social Care Trusts.
  • 3.
  • 4. About the NHSCT  The Northern Health and Social Care Trust provides a broad range of health and social care services.  The Northern Health and Social Care Trust became operational on 1 April 2007, combing 3 legacy trusts.  It is geographically the largest trust in Northern Ireland and operates from approximately 150 locations, serving a population of 443k people.  The Trust employs approximately 14,000 staff. We have an annual budget of £550 million.  We provide a range of services from nine hospitals and a large number of community based settings including people's own homes.
  • 5. Drivers for Change - 2004  The Health Economy had recognized a need for tighter financial efficiency and cost effectiveness in service delivery.  better approaches to the management of chronic disease.  These multiple challenges included:  the under-coordination of health services, limited incentives and training for health care professionals.  poor diagnostic methods, limited disease management protocols, lack of patient involvement in managing disease.  stove-piped funding mechanisms.  These realities underpinned:  recent efforts to change existing structures and practices in order to increase service efficiency in chronic disease management  and improve health outcomes for people living with chronic illness.
  • 6.
  • 7. Care pathways links between primary, secondary and community care services in chronic disease management Primary Care Secondary Care Patient with suspected Chronic Patients with known Chronic condition – disease exacerbation of condition Hospitalisation Appropriate investigations to confirm diagnosis Community Based Specialist Nurse PARR Assessment GP referral onwards for support Continuing Care Nurse Case Finder (CCN) visits pt at home Case Management Co-ordinator Patient assessment, review, treatment, education, referral to other professionals services & support programmes including domiciliary services Primary Community rehab Chronic Conditions ACAHT- Multi Patient Asst. Care inc cardiac/ Management acute skills support Technology Nursing pulmonary rehab programme needs network Group Team
  • 8. Care pathways links between primary, secondary and community care services in chronic disease management Primary Care Secondary Care Patient with suspected Chronic Patients with known Chronic condition – disease exacerbation of condition Hospitalisation Appropriate investigations to confirm diagnosis Community Based Specialist Nurse PARR Assessment GP referral onwards for support Continuing Care Nurse Case Finder (CCN) visits pt at home Case Management Co-ordinator Patient assessment, review, treatment, education, referral to other professionals services & support programmes including domiciliary services Primary Community rehab Chronic Conditions ACAHT- Multi Patient Asst. Care inc cardiac/ Management acute skills support Technology Nursing pulmonary rehab programme needs network Group Team
  • 9. Overview of the PARR Tool and Data Preparation Process Patient admitted/discharged Activity recorded on Trust PAS PARR DATABASE Activity downloaded into PARR Via Business Objects, Trust Designed MS Access Database Sifting & criteria Risk Level Identified applied OTHER PATIENT DATA APPLIED CASE FINDING DATABASE CCN Nurse assesses, accepts THE ‘CASELOAD MANAGEMENT’ PROCESS
  • 10.
  • 11. Initial review of CICM service Within 1 year PRIOR 1-2 years to Within 1 year PRIOR to Referra AFTER Referral l to Referral to CCN CCN to CCN Activity Type service service service Admissions 110 215 143 Spell Beddays 1466 2307 1903 Avg LoSpell 13.3 10.7 13.3 % of Individuals who had Adms in year (%/167) 35.3% 68.9% 38.3% Avg No. of Relevant Adms per individual (n=167) 0.7 1.3 0.9 Actual No. of Individuals who had relevant Adms in the year 59 115 64
  • 12. Admissions to UHT by Diagnostic Group - for those Admissions in both Year BEFORE & AFTER Referral to CCN Count of Date of Admission Only 35 30 25 20 Post CCN Service 15 10 5 0 Jul Jul Jul Aug Aug Apr Apr Sep Feb Sep Feb Jun Jan Jun Jun Jan Jun Dec Dec May May May May Nov Nov Mar Mar Oct Oct 2005 2006 2006 2007 2. within 1 year PRIOR to Referral to CCN service 3. within 1 year AFTER Referral to CCN service Condition Diabetes Heart Other Resp Time Banding Years Date of Admission Only
  • 13. Drivers for Change - 2007  Proposal to Centralise the PARR Analysis to allow for the identification of admissions/activity across different providers to be integrated.  Trusts moving to “Real Time” recording of Clinical Diagnoses and thereby aiding the identification of prospective “Caseload Management” patients in real time.  Regional Unique Identifier now available i.e. HCN to track individuals across services.  Need to tie in other data sources, i.e. Primary Care activity such as Attendances at surgery, Out of Hours service usage, Medications etc. to improve complexity of PARR Tool (subject to evidence/research).  Organise for N.I. Deprivation Measures to be added to PARR Tool.  Need to understand full capability of PARR and it’s application to service provision.
  • 14. Summarisation of key components of study design & methodology April 06… June 2008- November 2009 approx Intervention Group Comparison Group Locality A (n=295) Locality B (n=295) Case Usual Care Management CM Care Introduced Data Gathering Data Gathering Patient specific Locality A Patient specific FIM FIM HR-QOL HR-QOL Economic Proforma Economic Proforma Carers Strain Index Carers Strain Index - Carers Focus group - Carers Focus group
  • 15. Research Objectives and link to PARR  Aim- to establish if the introduction of a case management approach for chronic conditions is effective and/ or cost effective  Does PARR predict patients accurately at risk of rehospitalisation and how can we move towards prediction of avoidable rehospitalisations?  What is the relationship between PARR, reduction in rehospitalisations and the intervention?  Is there any relationship between PARR and the specific chronic condition, and/or presence of co-morbidities ?
  • 16. “PARR” identified referrals to CICM Result of Assessment No. % CCN caseload 1122 33.5% CCN Discharge 319 9.5% Mortality 670 20.0% Renal Failure 27 0.8% Inappropriate referral CCN 826 24.7% Other handover 103 3.1% Palliative care 82 2.4% PCNT handover 46 1.4% Service declined 154 4.6% 3349 Position @ Jun09
  • 17. Distribution Chart showing PARR Scores across Research Groups Count of ID 250 216 199 200 150 100 56 44 50 23 14 10 9 5 4 1 4 1 2 2 0 20-29 30-39 40-49 50-59 60-69 70-79 80-89 90-99 Research Group Control Group Intervention Group PARR
  • 18. Distribution Chart of Major Chronic Conditions by Research Group 350 295 295 300 250 200 193 186 158 145 150 113 113 100 61 46 50 0 No. in Research Group Asthma COPD Diabetes Heart Failure Control Group Intervention Group
  • 19. 0 10 20 30 40 50 60 70 80 Asthma Asthma / Diabetes Count of ID Asthma / Diabetes /Heart Failure Asthma/ COPD Asthma/ COPD/ Diabetes Asthma/ COPD/ Diabetes/ Heart Failure Asthma/ COPD/ Heart Failure Control Group Research Group Asthma/ Heart Failure Chronic Conditions COPD Drop Page Fields Here Intervention Group COPD/ Diabetes COPD/ Diabetes/ Heart Failure COPD/ Heart Failure Diabetes Distribution Chart showing the Multiple Co-Morbidities for Research Groups Diabetes/ Heart Failure Heart Failure
  • 20. PARR Chronic Conditions Research Group 20-29 30-39 40-49 50-59 60-69 70-79 80-89 90-99 Total Asthma Control Group 4 2 2 1 9 Intervention Group 7 2 9 Asthma / Diabetes Control Group 6 1 1 8 Intervention Group 15 2 17 Asthma / Diabetes /Heart Failure Control Group 3 1 4 Intervention Group 1 2 3 Asthma/ COPD Control Group 1 1 1 3 Intervention Group 2 1 1 4 Asthma/ COPD/ Diabetes Control Group 2 1 1 4 Intervention Group 4 4 8 Asthma/ COPD/ Diabetes/ Heart Failure Intervention Group 2 2 Asthma/ COPD/ Heart Failure Control Group 2 2 Intervention Group 4 1 5 Asthma/ Heart Failure Control Group 10 4 2 16 Intervention Group 12 1 13 COPD Control Group 29 14 3 4 1 51 Intervention Group 47 3 1 2 2 1 1 57 COPD/ Diabetes Control Group 14 4 1 19 Intervention Group 21 4 1 2 28 COPD/ Diabetes/ Heart Failure Control Group 12 5 3 1 1 22 Intervention Group 14 2 1 1 18 COPD/ Heart Failure Control Group 34 6 3 1 44 Intervention Group 50 10 6 2 1 1 1 71 Diabetes Control Group 9 1 3 1 1 15 Intervention Group 7 5 1 1 14 Diabetes/ Heart Failure Control Group 34 5 1 1 41 Intervention Group 15 5 2 1 23 Heart Failure Control Group 39 13 2 2 1 57 Intervention Group 15 3 3 2 23 Grand Total 415 100 37 19 9 5 3 2 590
  • 21. Distribution Chart : Showing "relevant" rehospitalisations Sum of SumOfAdmissions 100 89 90 80 76 70 63 63 60 51 52 47 50 42 40 30 20 10 0 T0 T3 T6 T9 Yes Research Group Control Group Intervention Group Included in Study T Band
  • 22. Distribution chart: Beddays by Relevant Conditions across Research Groups Sum of SumOfLength of Spell1 800 678 699 673 700 632 649 600 560 500 384 367 400 300 200 100 0 T0 T3 T6 T9 Yes Research Group Control Group Intervention Group Included in Study T Band
  • 23. Distribution Chart: Relevant Adms by PARR Score 160 150 140 132 120 100 80 60 48 37 40 18 20 20 16 15 20 11 8 7 1 0 20-29 30-39 40-49 50-59 60-69 70-79 80-89 Yes Control Group Intervention Group
  • 24. What have we learnt so far ?  We know PARR can predict people at risk of all rehospitalisations for about 75 % of people  We know PARR and our intervention can save rehospitalisations / beddays  We know we need to look at how better to predict those people at risk of avoidable rehospitalisations  We need to look at the impact of social deprivation for NI
  • 25. So where to now?  Continue with data analysis  Investigate the relationship of PARR and avoidable re hospitalisations more fully  DHSSPS have agreed to run PARR across NI  Look at what everyone else is doing and see how we can improve