1. Social media in health care John Sharp, MSSA, PMP

2. Objectives Social Media in Healthcare l October 1, 2010 l 2 Define Social Media Describe the impact of social media on patient care Outline appropriate use of social media for health care professionals, both during work hours and on personal time

3. Disclosure Social Media in Healthcare l October 1, 2010 l 3 Advisory Board, Within3.com Within3 enables that engagement by building and sustaining secure online communities for formal and informal networks of health professionals.

4. Social Media Defined Social Media in Healthcare l October 1, 2010 l 4 Social media is a blending of technology and social interaction for the co-creation of value Uses web-based technology to enable dialog User-generated content Social Networking a large part Health 2.0 – User generated healthcare Wikipedia, Health 2.0 Conference

7. Social Media – the Big Four Social Media in Healthcare l October 1, 2010 l 7 Facebook – 500 million users Twitter - 145 million users LinkedIn – 60 million YouTube – more that 12 billion video views per month

8. Social Media in Healthcare l October 1, 2010 l 8 Facebook for organizations

9. Twitter Social Media in Healthcare l October 1, 2010 l 9 Tags - #hcsm Health CareSocial Media

10. LinkedIn Social Media in Healthcare l October 1, 2010 l 10 610Connections link you to 4,782,747+ professionals

11. LinkedinGroupsDiscussions Social Media in Healthcare l October 1, 2010 l 11

12. Social Media in Healthcare l October 1, 2010 l 12 YouTube – Hospitals, Health Information

13. Social Media in Healthcare l October 1, 2010 l 13 Social Media Presentations

14. Social Media Uses in Health Care Social Media in Healthcare l October 1, 2010 l 14 Facebook – Wellness, links back to website Twitter – daily wellness tips, seminars, discoveries LinkedIn – recruitment, professional community YouTube – content, diseases and conditions, discoveries, medical specialties, patient stories

15. Social Media for Patients - Empowerment Social Media in Healthcare l October 1, 2010 l 15 Patient Communities Health and Wellness Information Custom Tools for monitoring/managing illness

16. Patient Communities Social Media in Healthcare l October 1, 2010 l 16

17. PatientsLikeMe.com- profile Social Media in Healthcare l October 1, 2010 l 17

18. PatientsLikeMe – Personal Profile Social Media in Healthcare l October 1, 2010 l 18

19. CaringBridge.org Social Media in Healthcare l October 1, 2010 l 19 Communicating with family, friends

20. Crowd Sourcing Social Media in Healthcare l October 1, 2010 l 20

21. Blogs as the Center of Online Communities Social Media in Healthcare l October 1, 2010 l 21

22. Health Information for Patients Social Media in Healthcare l October 1, 2010 l 22

23. Combining Health Content and Community Social Media in Healthcare l October 1, 2010 l 23 Content Discuss

24. Information on Treatments Social Media in Healthcare l October 1, 2010 l 24 Integration with Personal Health Record

25. Custom Health Tools for Patients Social Media in Healthcare l October 1, 2010 l 25

26. Wellness Challenge Social Media in Healthcare l October 1, 2010 l 26

27. Managing Diabetes Social Media in Healthcare l October 1, 2010 l 27

28. Helping Patients Find Useful Social Media Tools Social Media in Healthcare l October 1, 2010 l 28 Post 3 times a day

29. What to Recommend to Patients Social Media in Healthcare l October 1, 2010 l 29 As with healthcare websites, start with reliable, well known organizations – hospitals, non-profits Depends on the patient’s motivation, tech savy-ness Review the sites within your area of interest Cancer – ACOR.org Diabetes – Diabetesmine.com ALS, MS – PatientsLikeMe.com Prescribe social media? The ePatient Dave Story

30. ePatient Dave Social Media in Healthcare l October 1, 2010 l 30 Diagnosed with Stage IVkidney cancer Oncologist prescribe ACOR Discovered a support groupand new information on currenttreatments Now cancer free Speaking, writing on the empowerment of online communities

31. Unhelpful Social Media Social Media in Healthcare l October 1, 2010 l 31 Promote unproven treatments Cancer communities promoting marijuana use Pain communities as potential sources for prescription drugs Unsubstantiated rumors about vaccination side effects Links to bogus treatments Social media like Twitter and Facebook can link to anything and may point someone away from effective treatment (experience-based rather than evidence-based) Information overload health information sites plus social media can easily overload a desperate patient

32. Social Media At Work Social Media in Healthcare l October 1, 2010 l 32

33. Communities for health care professionals Social Media in Healthcare l October 1, 2010 l 33 Promote a broad base of professional support Latest news, trends Job opportunities Reviews of books and journal articles Greater ownership in national organizations

34. Physician Social Networking Social Media in Healthcare l October 1, 2010 l 34 Clinical case discussions Clinical Trial management Professional associations Discussions before, during and after professional meetings

35. Social Work Networks Social Media in Healthcare l October 1, 2010 l 35

36. Nursing Communities Social Media in Healthcare l October 1, 2010 l 36

37. LinkedIn – for Recruitment Social Media in Healthcare l October 1, 2010 l 37

38. Employee Social Media Policy Social Media in Healthcare l October 1, 2010 l 38 Don’tshare any information about patients Any selling or soliciting donations must be approved in advance Make it clear that you are posting your own opinions and not those of your employer Don’tpublish confidential or proprietary information Posting and viewing social media sites should not interfere with your work Post to social media sites should not contain any product or service endorsements or any content that may construed as political lobbying, solicitations or contributions Approved Social Media Networkers should stay within the scope of their role in posting on behalf of the organization

39. Professional versus Personal Social Media in Healthcare l October 1, 2010 l 39 What is appropriate to share? Who to share with? How to control privacy? Does privacy exist anymore? What about harassment?

40. Understand privacy settings Social Media in Healthcare l October 1, 2010 l 40

41. Closed versus Open Communities Social Media in Healthcare l October 1, 2010 l 41 Closed communities are rare in social media- Will ask you to validate your identity Most allow anonymous user accounts – can’t confirm other’s identity Who is listening, watching? – hospital staff post photo takenof dying patient on Facebook – LA Times, 8/8/10

42. Patient Contact Through Social Media Social Media in Healthcare l October 1, 2010 l 42 Patients or families want to “friend” you on Facebook Ignore? – will they ask you in person Allow? – how will you respond outside of the clinical setting? Do you want them to know about your family, vacations, fiends? HIPAA violation once you discuss clinical issues Have a personal policy which follows the institutional policy “I don’t friend my patients/clients online but I would be glad to direct you to some helpful sites/communities”

44. card.ly/JohnSharp Social Media in Healthcare l October 1, 2010 l 44

45. Links Social Media in Healthcare l October 1, 2010 l 45 www.delicious.com/johnsharp/promedica Delicious is an online bookmark organizer which allows you to tag links and share with others