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Wikipedia and Medicine
     An introduction

         Jake Orlowitz
         editor, Ocaasi



      All text is under a CC-BY-SA license
Our goal



  “Imagine a world in which every single
 person on the planet is given free access
    to the sum of all human knowledge.
                                       (12)
           That's what we're doing.”
Is Wikipedia Read by
  Nearly Everyone?
Some stats
•   Most popular reference online
•   # 6 website in the world
       …after Google, Facebook, Youtube,
       Baidu, and Yahoo
•   500 million visitors per month
•   20 billion page views(7)
•   2.5 billion pageviews via mobile(7)
30% of global internet users visit Wikipedia
monthly, 15% daily
Does Wikipedia Cover
 Nearly Everything?
Size of Wikipedia(9)




 •   1750 volumes of Encyclopedia Britannica

 •   4 million articles in English

 •   24 million total articles in 285 languages
Growth




         (9)
Does Wikipedia Have a
Huge Number of Editors?
Wikipedians…
•   35 million registered

•   Many more anonymously

•   80,000 people contribute > 5 edits/month

•   10,000 people contribute > 100 edits/month

•   Even fewer for medical editors
Editor numbers peaked in 2007…
• The easy work has been done
• More stringent criteria for contributing
• Can be a chalenging place to work (lots of policies, debate)




                                                                 (15)
Does What One Writes
      Matter?
Data: monthly pageviews
Medical stats: monthly

•200 million page views for 25,000 medicine
 articles(1)

•40 million page views for medication articles(2)
•Not including anatomy, genetics,
 neuroscience, cellular biology...
Do you use it?
Do you use it?
•A UK survey found 50% to 90% of
 physicians do

•2011 J. Medical Internet Research: most
 frequently used source by junior physicians
 besides Google (3)

•35% to 70% of pharmacists as well(3)
Can One Just Come and
Write What They Want?
How it works
•Anyone can edit but…
•Multiple safeguards
 o Automation to revert vandalism and spam
 o Monitoring new edits by "recent changes patrollers"
 o Watchlists alert interested editors of new edits
 o Admins have additional tools (protection, blocks)
 o Locks on controversial content
 o Blacklisted links
 o Detection of conflict of interest
 o Thousands of experienced editors
 o Hundreds of thousands of readers
 o  Wikipedia’s immune system
Most anonymous edits are good
First and foremost an
encyclopedia
•Neutrally, proportionately, and verifiably,
 summarize reliable sources

•Not
  Promoting specific ideas
  Original research
Reference, reference, reference

•Not about editors’ expertise but quality sources
•Review articles strongly preferred
•Major clinical practice guidelines
•Major textbooks
•Unreferenced or poorly referenced material
 often fixed, tagged, or rapidly removed
If you do not provide a reference...(10)
Is Wikipedia Peer
   Reviewed?
Article rating
Featured and Good articles



•Semi-formal peer review
•4,000 FA and 17,000 GA
•Medicine: 57 FA and 132 GA (<1%)
•Featured content displayed on the main page
•Frequently written by experts
•Still open to editing
•Exploring other forms of peer review
Who Are We Writing
      For?
Readers in 2011




                  (6)
Internet content by language(4)
Wikipedia articles by language(17)
Health Information for All
in the Language of their
         Choice



                (16)
Why do we need this?
•   Health education is a human right

•   Lack of information leads to poor choices

•   Wikipedia can address the knowledge gap

•   Perhaps the most viable way
Global access to Wikipedia
•   Developing world has poor access to the
    internet
•   Expensive data charges for cell phones
•   Partner with cell phone companies
•   Give free access
•   300 million people in Africa, Middle East,
    Asia and Eastern Europe
What we are working on?
•   80 key articles

•   Improve to a professional standard

•   Translate into as many other languages

•   Integrate the translations into Wikipedia

•   Free access for everyone
Can You Edit?
Yes.
•   Just click [Edit]
•   Mediawiki markup
•   Editing toolbar
•   References
•   Edit summaries
•   Talk pages
    •   Stay civil
    •   Sign comments ~~~~
The good news


•   Learn from other articles
•   Lots of help guides
•   Other editors can fix your formatting
•   Practice in your sandbox
•   Active support from community
•   Markup being replaced by word processing
Write for a General Population

•Professionals, academics, and the lay public
•Main article  overview
•Sub-articles  greater detail (nesting)
•Factual rather than instructional
Do Authors Receive
     Credit?
Authorship


•   Every edit stored on the history page

•   No author credits on articles

•   Not required to use real names, most don’t
Collaboration with journals
•   Need more academics involved
•   No credit from Wikipedia, required for
    advancement in academia
•   Form collaborations with journals
       PLoS, Open Medicine, JMIR
•   Co-publish Wikipedia articles under authors'
    real names
•   First article on Dengue Fever is in the
    publication process
Pictures
Adding images

•Stored at the sister site, Wikimedia Commons
•13 million free media files
•You can upload and share
•Need written consent for identifiable content
Is Wikipedia Just an
   Encyclopedia?
The Wikimedia Family(13)
The Wikimedia Movement

•   Three main parts
    o   Volunteer community
    o   Wikimedia Foundation
    o   Chapters / Thematic organizations


•   Non-profit

•   No advertising

•   Open copyright
Open licensing
•   CC-BY-SA
•   CC = "Creative Commons"
•   BY = "By Attribution"
•   SA = "Share Alike"
•   Free to use, modify, or even sell
What is a wiki?

•Developed 1994 by Ward Cunningham
•“Quick” in Hawaiian
•Collaborative editing of interlinked articles
•Changeable content via a web browser
•Thousands of sites based on this software
What is not Wikipedia


•   WikiLeaks: publishes secret documents
•   WikiAnswers: question and answer site
•   Wikia: for-profit collection of wikis
•   Intellipedia: closed wiki for US intelligence
•   Conservapedia: US conservative angle
•   Many others
Why get involved?
• Wikipedia is what the world is reading
• People need access to quality health info
• You develop understanding of your field
• You discusss topics with international peers
• Autonomy, The mission, Topical interest,
  Audience, Perfectionism, Challenge, Self-
  expression, Responsibility, Addiction ,
  Recognition… What’s your reason?
Come edit.

•   Monday-Friday
•   11AM-3PM
•   Nursing Building, Mezzanine

Bring: a laptop, questions, curiosity

Survey: http://enwp.org/wp:ucsfmed
Questions?
 Attribution to James Heilman
 jheilman@wikimedia.ca
 User:Jmh649
 www.wikimedia.ca
 This presentation is released
 under a CC-BY-SA license.
References
1. http://en.wikipedia.org/wiki/Wikipedia:WikiProject_Medicine/Popular_pages
2. http://en.wikipedia.org/wiki/Wikipedia:WikiProject_Pharmacology/Popular_pages
3. Heilman JM, Kemmann E, Bonert M, et al. (2011). "Wikipedia: a key tool for global public health
   promotion". J. Med. Internet Res. 13 (1): e14.doi:10.2196/jmir.1589. PMID 21282098.
4. "Usage of content languages for websites". W3Techs.com. Retrieved 30 December 2011.
5. http://www.hifa2015.org/about/why-hifa2015-is-needed/
6. http://infodisiac.com/blog/2012/02/wikipedia-readers/
7. http://reportcard.wmflabs.org/
8. http://en.wikipedia.org/wiki/List_of_languages_by_number_of_native_speakers#More_than_100
   _million_native_speakers
9. http://en.wikipedia.org/wiki/Wikipedia:Size_of_Wikipedia
10.   HTTP://XKCD.COM/285/

11. http://en.wikipedia.org/wiki/Wikipedia:IPs_are_human_too
12. http://commons.wikimedia.org/wiki/File:Jimmy_Wales_Fundraiser_Appeal_edit.jpg
13. http://commons.wikimedia.org/wiki/File:Wikimedia_logo_family_complete-2012.svg
14. http://commons.wikimedia.org/wiki/File:Zentralstadion-Main_stand_crowd.JPG?uselang=fr
15. http://commons.wikimedia.org/wiki/File:ActiveWikipedians.PNG
16. http://commons.wikimedia.org/wiki/File:Translation_Barnstar.svg
17. http://meta.wikimedia.org/wiki/List_of_Wikipedias

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Wikipedia and Medicine

  • 1. Wikipedia and Medicine An introduction Jake Orlowitz editor, Ocaasi All text is under a CC-BY-SA license
  • 2. Our goal “Imagine a world in which every single person on the planet is given free access to the sum of all human knowledge. (12) That's what we're doing.”
  • 3. Is Wikipedia Read by Nearly Everyone?
  • 4. Some stats • Most popular reference online • # 6 website in the world …after Google, Facebook, Youtube, Baidu, and Yahoo • 500 million visitors per month • 20 billion page views(7) • 2.5 billion pageviews via mobile(7)
  • 5. 30% of global internet users visit Wikipedia monthly, 15% daily
  • 6. Does Wikipedia Cover Nearly Everything?
  • 7. Size of Wikipedia(9) • 1750 volumes of Encyclopedia Britannica • 4 million articles in English • 24 million total articles in 285 languages
  • 8. Growth (9)
  • 9. Does Wikipedia Have a Huge Number of Editors?
  • 10. Wikipedians… • 35 million registered • Many more anonymously • 80,000 people contribute > 5 edits/month • 10,000 people contribute > 100 edits/month • Even fewer for medical editors
  • 11. Editor numbers peaked in 2007… • The easy work has been done • More stringent criteria for contributing • Can be a chalenging place to work (lots of policies, debate) (15)
  • 12. Does What One Writes Matter?
  • 14.
  • 15. Medical stats: monthly •200 million page views for 25,000 medicine articles(1) •40 million page views for medication articles(2) •Not including anatomy, genetics, neuroscience, cellular biology...
  • 16.
  • 17. Do you use it?
  • 18. Do you use it? •A UK survey found 50% to 90% of physicians do •2011 J. Medical Internet Research: most frequently used source by junior physicians besides Google (3) •35% to 70% of pharmacists as well(3)
  • 19. Can One Just Come and Write What They Want?
  • 20. How it works •Anyone can edit but… •Multiple safeguards o Automation to revert vandalism and spam o Monitoring new edits by "recent changes patrollers" o Watchlists alert interested editors of new edits o Admins have additional tools (protection, blocks) o Locks on controversial content o Blacklisted links o Detection of conflict of interest o Thousands of experienced editors o Hundreds of thousands of readers o  Wikipedia’s immune system
  • 22. First and foremost an encyclopedia •Neutrally, proportionately, and verifiably, summarize reliable sources •Not Promoting specific ideas Original research
  • 23. Reference, reference, reference •Not about editors’ expertise but quality sources •Review articles strongly preferred •Major clinical practice guidelines •Major textbooks •Unreferenced or poorly referenced material often fixed, tagged, or rapidly removed
  • 24. If you do not provide a reference...(10)
  • 25.
  • 26. Is Wikipedia Peer Reviewed?
  • 28. Featured and Good articles •Semi-formal peer review •4,000 FA and 17,000 GA •Medicine: 57 FA and 132 GA (<1%) •Featured content displayed on the main page •Frequently written by experts •Still open to editing •Exploring other forms of peer review
  • 29. Who Are We Writing For?
  • 31. Internet content by language(4)
  • 32. Wikipedia articles by language(17)
  • 33. Health Information for All in the Language of their Choice (16)
  • 34. Why do we need this? • Health education is a human right • Lack of information leads to poor choices • Wikipedia can address the knowledge gap • Perhaps the most viable way
  • 35. Global access to Wikipedia • Developing world has poor access to the internet • Expensive data charges for cell phones • Partner with cell phone companies • Give free access • 300 million people in Africa, Middle East, Asia and Eastern Europe
  • 36. What we are working on? • 80 key articles • Improve to a professional standard • Translate into as many other languages • Integrate the translations into Wikipedia • Free access for everyone
  • 38. Yes. • Just click [Edit] • Mediawiki markup • Editing toolbar • References • Edit summaries • Talk pages • Stay civil • Sign comments ~~~~
  • 39. The good news • Learn from other articles • Lots of help guides • Other editors can fix your formatting • Practice in your sandbox • Active support from community • Markup being replaced by word processing
  • 40. Write for a General Population •Professionals, academics, and the lay public •Main article  overview •Sub-articles  greater detail (nesting) •Factual rather than instructional
  • 42. Authorship • Every edit stored on the history page • No author credits on articles • Not required to use real names, most don’t
  • 43. Collaboration with journals • Need more academics involved • No credit from Wikipedia, required for advancement in academia • Form collaborations with journals PLoS, Open Medicine, JMIR • Co-publish Wikipedia articles under authors' real names • First article on Dengue Fever is in the publication process
  • 45. Adding images •Stored at the sister site, Wikimedia Commons •13 million free media files •You can upload and share •Need written consent for identifiable content
  • 46. Is Wikipedia Just an Encyclopedia?
  • 48. The Wikimedia Movement • Three main parts o Volunteer community o Wikimedia Foundation o Chapters / Thematic organizations • Non-profit • No advertising • Open copyright
  • 49. Open licensing • CC-BY-SA • CC = "Creative Commons" • BY = "By Attribution" • SA = "Share Alike" • Free to use, modify, or even sell
  • 50. What is a wiki? •Developed 1994 by Ward Cunningham •“Quick” in Hawaiian •Collaborative editing of interlinked articles •Changeable content via a web browser •Thousands of sites based on this software
  • 51. What is not Wikipedia • WikiLeaks: publishes secret documents • WikiAnswers: question and answer site • Wikia: for-profit collection of wikis • Intellipedia: closed wiki for US intelligence • Conservapedia: US conservative angle • Many others
  • 52. Why get involved? • Wikipedia is what the world is reading • People need access to quality health info • You develop understanding of your field • You discusss topics with international peers • Autonomy, The mission, Topical interest, Audience, Perfectionism, Challenge, Self- expression, Responsibility, Addiction , Recognition… What’s your reason?
  • 53. Come edit. • Monday-Friday • 11AM-3PM • Nursing Building, Mezzanine Bring: a laptop, questions, curiosity Survey: http://enwp.org/wp:ucsfmed
  • 54. Questions? Attribution to James Heilman jheilman@wikimedia.ca User:Jmh649 www.wikimedia.ca This presentation is released under a CC-BY-SA license.
  • 55. References 1. http://en.wikipedia.org/wiki/Wikipedia:WikiProject_Medicine/Popular_pages 2. http://en.wikipedia.org/wiki/Wikipedia:WikiProject_Pharmacology/Popular_pages 3. Heilman JM, Kemmann E, Bonert M, et al. (2011). "Wikipedia: a key tool for global public health promotion". J. Med. Internet Res. 13 (1): e14.doi:10.2196/jmir.1589. PMID 21282098. 4. "Usage of content languages for websites". W3Techs.com. Retrieved 30 December 2011. 5. http://www.hifa2015.org/about/why-hifa2015-is-needed/ 6. http://infodisiac.com/blog/2012/02/wikipedia-readers/ 7. http://reportcard.wmflabs.org/ 8. http://en.wikipedia.org/wiki/List_of_languages_by_number_of_native_speakers#More_than_100 _million_native_speakers 9. http://en.wikipedia.org/wiki/Wikipedia:Size_of_Wikipedia 10. HTTP://XKCD.COM/285/ 11. http://en.wikipedia.org/wiki/Wikipedia:IPs_are_human_too 12. http://commons.wikimedia.org/wiki/File:Jimmy_Wales_Fundraiser_Appeal_edit.jpg 13. http://commons.wikimedia.org/wiki/File:Wikimedia_logo_family_complete-2012.svg 14. http://commons.wikimedia.org/wiki/File:Zentralstadion-Main_stand_crowd.JPG?uselang=fr 15. http://commons.wikimedia.org/wiki/File:ActiveWikipedians.PNG 16. http://commons.wikimedia.org/wiki/File:Translation_Barnstar.svg 17. http://meta.wikimedia.org/wiki/List_of_Wikipedias