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Advance care planning
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Who’s who?
Background to Advanced Care
         Planning
           Hilary Squire
     Clinical Nurse Specialist
            Hospiscare
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References
• The cancer Plan (DoH, 2000).
• The Cancer Reform Strategy(DoH, 2007).
• Advanced Care Planning: A guide for Health &
  Social Care Staff (2007) at:
  http//www.endoflifecareforadults.nhs.uk
• The End of Life Strategy (DoH, 2008).
• Dying Matters Coalition GP Project NCPC
  (2010) at http//www.dyingmatters.org
Strategies in Instigating an ACP

          Annie Hunneyball
       Clinical Nurse Specialist
              Hospiscare
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Cancer
                                High




                                 Function
       GP’s Workload
Ave 20 Deaths per GP per year
                                Low
                                                  Time
                                               Organ Failure
                                High




                                    Function
                                Low
                                                   Time
                                               Fraility/Dementia
                                High

                                    Function


                                Low
                                                   Time
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References
• Advance Care Planning: A guide for Health &
  Social Care Staff (2007) at :http//
  www.endoflifecareforadults.nhs.uk
• Gold Standard Framework Prognostic Indicator
  Guidance (2008) at:
  http//www.goldstandardsframework.nhs.uk
• The End of Life Strategy (2008) Department of
  Health, at: http//www.DoH.gov.uk
ADVANCED CARE PLANNING
          Caroline Prince

      Clinical nurse specialist
             Hospiscare
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Advance Decision to Refuse
       Treatment
          Dr Jane Whitehurst
 Macmillan GP Facilitator for Exeter and Mid Devon
           Specialty Doctor Hospiscare
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Valid ADRT

• I now have MND and benefit from PEG
  feeding. As my condition deteriorates, if I
  should lose consciousness and am not
  expected to recover after 24hrs, I wish
  feeding, hydration and any other life
  prolonging treatment such as antibiotics to be
  withdrawn or withheld although medication
  such as painkillers for my immediate comfort
  can be used. This decision to apply even if my
  life is at risk”
Valid ADRTs
I wish to refuse the following        In these circumstances:-
specific treatments:-
Artificial (mechanical) breathing     If I have had a severe stroke with
machine                               little chance of recovering
                                      consciousness
Antibiotics                           If my dementia means that I cannot
                                      not make the decision, in the event
                                      that I have a severe chest infection
                                      that might threaten my life.
Artificial feeding (via a tube or drip) When my dementia has
                                        deteriorated to the point that I
                                        cannot swallow safely, even with
                                        the help of others
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    patients life
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Core Competencies for ACP
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Last night, my husband and I were sitting in the
living room and I said to him, 'I never want to live in
a vegetative state, dependent on some machine
and fluids from a bottle’.

He got up, unplugged the computer, and threw out my
wine.
Mrs Adams
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Mr Brown
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Mrs Carter
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Mr Downham
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This is my favorite recipe. It was
  Granny's. Now you are the
            guardian
“This is a book that I am really
  going to miss. Think of me
    whenever you read it
Here is my favourite joke. Dad left
it to me, now you must keep it alive
Thank you for this memory. I
        treasure it.
I always wanted to tell you this but
 was too shy/afraid/embarrassed.
I can’t remember if I told you this
           before but.....
There is something I have learned
  that I would like you to know
If you watch this film, think of me.
        It was my favourite.
Have you ever thought about
trying....I reckon you would be
             great at it
Advanced care planning presentation for Tiverton event 12 may v 4

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