1. Alzheimer’s Disease
Innovation 2013
A Review of Barriers & Best Practices
The Alzheimer’s Association National Office has released
a 2013 update to the National Plan to address Alzheimer’s
Disease. Read on to learn about the top 10 barriers and
best practice tools and resources that can help.
Barrier #1: Lack of
Public Awareness
• Widespread lack of knowledge/
understanding about Alzheimer’s Disease
• High level of public/professional stigma
and negative experiences for people living
with Alzheimer’s Disease
• Poor understanding of the scope of
Alzheimer’s Disease
Barrier #2: Lack of
Funding for Research
“The best hope we have of stemming
this epidemic is through investments
in research now. Federal funding for
Alzheimer’s research is at a historic
low.”
– Quote from Alzheimer’s advocate
Barrier #3:
Delayed Diagnosis
• Inaccurate or delayed diagnosis
• Frustrating diagnostic process for
clients and family caregivers
• Diagnosis made without consulting a
specialist (Neurologist, Geriatrician,
Geriatric Psychiatrist)
Barrier #4: Inadequate
Dementia Care
• Poor care coordination
• Need for improved professional
training on Alzheimer’s Disease
Barrier #5: Ineffective
Treatments
• No treatments today to alter or cure
Alzheimer’s Disease
Barrier #6: Challenges
Facing Diverse Communities
• Eliminate disparity related to access, education
and resources
Barrier #7: Challenges
Facing People Living with YoungerOnset Alzheimer’s Disease
• Myth and misperception that Alzheimer’s Disease
only affects older adults
• Poor access to relevant education, support
and services
Barrier #8: Unprepared
Family Caregivers
• Family caregivers struggle to find affordable
education, care and services
• Emotional and physical burden takes it’s toll
Barrier #9: Unprepared
Communities
• Some communities may not offer adequate
education, support and resources
Barrier #10:
Mounting Costs
• The cost to treat Alzheimer’s
Disease is extremely high and not
sustainable over time
• Many clients and family caregivers
do not qualify for insurance or
government assistance
The US Department of Health and Human Services has released
the top 5 goals for the National Alzheimer’s Plan 2013
Prevent and
Effectively Treat
Alzheimer's Disease
by 2025
Enhance Care
Quality and
Efficiency
Enhance Public
Awareness
and Engagement
Expand Support
for People with
Alzheimer's
Disease and
Their Families
Track Progress
and Drive
Improvement
Source: United States Department of Health and Human Services - http://aspe.hhs.gov/daltcp/napa/natlplan.pdfm
Alzheimer’s Disease Solutions Toolkit
Understand and Support People Living with
Alzheimer’s Disease:
Advocate for Alzheimer’s
Disease Research:
Learn About Alzheimer’s Disease Diagnosis:
Create an Action Plan:
Learn About Clinical Trials:
Learn About Health Disparity
and Alzheimer’s Disease:
http://bit.ly/1hIa0H4
http://bit.ly/1dIyQDS
http://1.usa.gov/HrHMCa
Learn About Younger-Onset Alzheimer’s
Disease:
http://bit.ly/1aAm6At
http://bit.ly/19vh3iJ
http://1.usa.gov/HCLeuB
http://bit.ly/1hIafBU
Learn About Best Practice
Community Outreach Programs:
http://bit.ly/18Tw89C
Learn About Financial
Assistance Programs:
http://bit.ly/16tMRz0
Learn About Alzheimer’s
Disease Caregiving:
http://bit.ly/1b7rYwa
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Source: National Plan to Address Alzheimer’s Disease 2013 Update - http://aspe.hhs.gov/daltcp/napa/NatlPlan2013.pdf